Hi Laura, We are all here for you. My son was diagnosed on August 19, 2010 in his left knee area. We was 21 at the time. He is currently cancer free! I...
Hi Andy, We are all here to support you any way we can. My son was diagnosed on August 19, 2010 in his left knee area. We was 21 at the time. He did have...
Thanks Jeremy, I am glad to hear from someone who has also had an amputation and not had to go through chemo etc. I must say I feel a bit of a fraud having...
Thanks for your message Jill, Please send all my best to your son. I will be keeping everything crossed that he stays Cancer free! I decided early on that as...
so I deleted the link sent. I don't want anyone to get scammed or hacked or whatever they do. If I don't recognize the member, I delete. I hope it deletes...
Hello Tom,  Thanks for the reply and words of encouragement!  Sorry for the delay responding back. I have just now been able to get back online with a...
Hello Caroline, I apologize for the delay responding back to the overwhelming support and Email responses I have received. Thank you so much for the...
Hi Lauren, Â Thanks for the reply. I wish your husband the best with all of his treatments. I will keep him and all of the ES community in my thoughts and...
Andy, Try not to worry about your lungs. Have you had a lymph node biopsy or anything? Also, so sorry to hear about the loss of your father. I lost a very...
I'm glad (and not glad) that you're here. We are here to support you. I'm glad that your scans have gone well and your treatment will be at the original site...
Welcome to our group! I am moved by your story. I applaud your for your positive journey. I am glad that you are not letting this disease stop you from...
welcome Andy......... my son has Es and had a tumor removed from his calf and two nodes...one behind his knee and one in his left grion area, and had...
Hi Lauren, Â No needle biopsy of the lymph nodes yet - I know they are very small in some places and the PET scan (I am told) is not very accurate on very...
Thanks Kathy, I read the stories of your daughter and the struggles she had with this disease. I am very sorry for your loss and I want to thank you for...
Thanks for the welcome and I hope your son has the very best outcome with his chemotherapy and ES. I think this support group is great and it is also a great...
What is everyone using beside doxil ???? Joyce Herndon Arkansas In the end, it's not the years in your life that count. It's the life in
your years. Abraham...
Chris used ifosfomide along with doxorubicin AKA Adriamycin. It worked wonders on the smaller tumors but had no affect on the tumors with an SVU larger than...
My brother was prescribed (at MD Anderson) a combination chemotherapy with gemcitabine 900 mg/m2 and docetaxel 100 mg/m2 with Neulasta support, given every...
my son will be getting ifosfamide DAR ________________________________ From: Karla Benites <karla_benites@...> To: epithelioid_sarcoma@yahoogroups.com ...
... From: Sarcoma Foundation of America To: Noah & Jill Elmhorst Sent: Tuesday, January 17, 2012 11:57 AM Subject: Rare Disease Day Dear SFA Member, Every year...
Just curious is any one here planning to go ??? Please let me know & it might be a dumb question but how can I raise awareness in my area ... Anyone have any...
Hi, I live in WI and my son had Epithelioid Sarcoma. I am in the process of starting a state chapter through osfa. I am not sure what it means or what all I...
I'm from NJ so I'm close enough to DC & i will check. I'm a surviver so I do need to promote & I knew 2 more that's affected by it too... So , I will check &...
Hi, I also live in Wisconsin and hearing there may be a group for Epithelioid Sarcoma is of interest to me. My mother was diagnosed August 26, 2011 with...
I would be interested! I live in DC. I am in recovery from Epitheliod Sarcoma having had my leg amputated in September. I would be very happy to help raise...
I would love to get involved here in Ohio. I have some issues that need to be resolved, but I am committed to the cause! ... I would love to get involved here...
Boyfriend was diagnosed in October with a tumor to his upper right thigh/groin. Since that time he has gone thru radiation and scheduled for surgery on...
Hi Debbie, This is the place to talk. You can ask anything. My 22 year old son was diagnosed on August 19th, 2010. His ES was in his left knee area. He did...
My daughter's original Chemo cocktail was doxorubicin and ifosfamide, and I think there was a third drug, but I cannot think of it right now. The best advice I...
