We met with the radiation oncologist today, 3 months post-cyberknife.

There really wasn't any definitive news.  He said he was a little

disappointed that they don't see more change.  The lymph node/tumor

seems to be about the same size, possibly slightly smaller.  So, we

don't really know if it is remaining tissue or if the tumor/sarcoma is

dead.  the plan is to followup again in 3 months with another scan and

see if it is changing.  No growth = no sarcoma.



So not great news but not bad and mom is feeling pretty darn good.  And

she is pretty darn excited because for MOther's Day I got tickets for

the two of us and my aunt to all go to Tina Turner in October!  :) So

that is her focus - keeping up on the good times yet to come.



Just wanted to give an update. Thanks for the support we have gotten on

this board.  I think about all of you and your families and wish all of

us could be free from ever thinking or hearing of sarcoma again.

hadn't heard from anyone else - hope you are all doing well and

fighting the fight.



My mom had her followup last week and they think the spot has

possibly shrunk.  It definitely has not grown, so they think it is

just "inert tissue" remaining of that lypmh node and not cancer.

She will have another scan in 6 months.  She is feeling good - gets

tired sometimes, but they feel that is just from all she has been

thru, especially losing most of her right lung in late 2007.  So she

can deal with the tiredness.  We just had a family reunion a couple

weeks ago and it was a blast.  She was out on the lake canoeing with

my brother and just loved it.  She hadn't been out in a canoe in

years.  So we are happy to still be having all these great times and

memories with mom, even after fighting this for about 11 years now.

We consider that a real blessing.



AGain, I sure appreciate all the support on this board and think of

all of you often!



--- In Epithelioid_Sarcoma@yahoogroups.com, "Becky" <mauibecka@...>

wrote:

>

> We met with the radiation oncologist today, 3 months post-

cyberknife.

> There really wasn't any definitive news.  He said he was a little

> disappointed that they don't see more change.  The lymph

node/tumor

> seems to be about the same size, possibly slightly smaller.  So,

we

> don't really know if it is remaining tissue or if the

tumor/sarcoma is

> dead.  the plan is to followup again in 3 months with another scan

and

> see if it is changing.  No growth = no sarcoma.

>

> So not great news but not bad and mom is feeling pretty darn

good.  And

> she is pretty darn excited because for MOther's Day I got tickets

for

> the two of us and my aunt to all go to Tina Turner in October!  :)

So

> that is her focus - keeping up on the good times yet to come.

>

> Just wanted to give an update. Thanks for the support we have

gotten on

> this board.  I think about all of you and your families and wish

all of

> us could be free from ever thinking or hearing of sarcoma again.

>