Hi all, Just got back from my 3rd round of SPDT in China and the news is all good. I had a PET/CT done the day before treatment began and it came back NED. I...
Did any of you hear about this surgery? I saw it Tuesday night on the news. Here's a link to the story. http://www.waff.com/Global/story.asp?S=8063400 Anyone...
Wow - good to find this site... To gain support and understanding from those who have and are dealing with ES. Jamie will be going for his first MRI Scan & CT...
I feel like I don't know enough to offer any advice on what to ask, but I am thinking of you....hope the day brought good news. If not, please know that we...
... from ... 10.04.08. ... loads ... hi, you are in our prayers ,and i just want to say that the only advice i can offer you is to make sure you get a second...
We met with the radiation oncologist today, 3 months post-cyberknife. There really wasn't any definitive news. He said he was a little disappointed that they...
hadn't heard from anyone else - hope you are all doing well and fighting the fight. My mom had her followup last week and they think the spot has possibly...
Vitiligo is a pigmentation disorder in the human skin. The human skin contains special skin cells (melanocytes) that produce the pigment melanin which colors...
Hi Friends, I am caregiver to my 29 yr old wife who is proud mother of a sweet girl, who turned 1 today :-) Her pics and videos at - http://palewar.com/chibu/ ...
Hi. I was recently diagnosed with epithelioid sacroma. I have undergone surgery to remove the tumor (which is in my upper thigh groin area). I am still...
Hey there Kana, Â I have had Epithelioid Sarcoma for over a year now, and I have seen many doctors, unfortunately none of them can agree on the proper...
Hi Tim, I don't know if you saw my reply to Kana, but I have been cancer free for over two years. I go to Hillman Cancer Center in Pittsburgh and I went to ...
Hey Tom, Â Thanks for responding to my email. Wow two years cancer free, that's great! I wish you many more to come. Where did you have Epithelioid Sarcoma?...
I was in stage IV when mine was found. It was located in my upper left thigh. The surgeries I had were my initial disection and removal then I had 7 lymph...
Hey Tom, Â Thanks for all the information, I still don't know what stage I'm in but this will be the second tumor removal in my Chest. I'm being treated at...
The Corporate Angels Network is based out of White Plains, New York. They try to arrange flights on corporate jets for patients. I flew on a Parker-Hannifan...
There are several services like this. If Corporate Angels aren't in your area-look around for others. My daughter, Stephanie, and I used a service like this...
Hi! My sarcoma was on my forearm. Before I was diagnose I had a minor surgery on my forearm then after that my doctors decided to try to shrink my tumor by...
Hi, Tim. Thank you for your email and for sharing your experience with me. You are right that the doctors can't seem to agree on what the best thing is for ES....
to give you another example of hope.... my mom was first diagnosed with ES in 1997, had a surgery (it was sort of on the inside of her thigh/knee) and no...
Hey Kana, Â Thanks for getting back to me, here is the name of my doctors at UCSF they are a great team and care alot about their patients, they specialize in...
Becky, Thank you for sharing. That is a wonderful story and I am so happy to hear about your mother. That was really comforting news. This week has been one of...
thanks for the good wishes...and you keep that hope and fight - for you and especially for your daughter. I have absolute hope and faith that you will be...
Hi, Tim. Thanks for giving me the names of your doctors. I will try to get in to see at least Dr. Gottschalk if not Dr. Jahan as well. But first, I have to...
Chilli, Thanks for sharing with me your experience with radiation and the names of your doctors. I will keep them in mind as I continue to think over this...
Hi Kana, I, too, was diagnosed with epithelioid sarcoma in the upper thigh groin regioin. My doctor and I both thought it was a benign cyst (no imaging was...
Hi. So, tomorrow I am going to meet my oncologist for the first time. I am trying to think of questions to ask her. You would think that I would have a ton of...
It is important for him to be as honest as he can be. If he has not had a ES patient, does he know a doctor that has. The greatest thing I always ask a doctor...
