Hi everyone! I thought since everyone was sharing thier experiences with ES, i might was well introduce myself. My name is Christine and I'm a 21 year old...
Christine dear, I'm so sorry that you have to go thru this crap. Your life is just beginning. I completely understand your worry when you read about ES on the ...
I don't really have advice to give, but wanted to let you know that you will always find support here. when my mom first had her tumor in her leg, we were...
It is good to hear that you are doing well. I was diagnosed in September of 2006 with E.S.. Mine was in my groin area. I went through 4 surgeries, 28 days of...
Hi there peoples, I have just returned from Melbourne where I had PET and MRI scans yesterday to see whats happening with my tumor. My hope was that it hadn't...
Great news - I am very happy for you and wish you continued health! ... it ... last ... tumor ... my ... in ... to ... having ... morning - ... results....
Becky, it's good to hear from you again. I do want to add that they are beginning to see that amputation is not always a guarantee. ... a ... this ... clear...
Yeah, you know how that is, though, you just start to think I wish this or I wish that. You wonder if you did the right thing. Bottom line is, they sure...
Here is an article I found about this treatment. Actually, I've found basically the same article on several different websites. Althought they aren't...
... Hi Guys, Very interesting article and a pretty good description of my treatment protocol. Doug Mitchell who was quoted in that article from the Opal ...
What a great story! I'm so happy for you that you were able to find this treatment. Otherwise, look at what your alternatives would have been!! It's great...
Hi Kathy, YES I have been extremely lucky to date especially after reading Stephanie's story and what she had to go through. She was certainly a lot braver...
I wanted all of you to know that my C.A.T. scan came back negative! I go back to Hillman Cancer Center on June 8th. Lori and the kids were thrilled. I owe it...
The grandson of my cousin was diagnosed with epithelioid sarcoma in May 2007. He was 10 years old when he was diagnosed. His tumors are in the lungs....
There are different people who have set up foundations/groups who raise money for research. Some are for Sarcomas in general, some are for specific Sarcomas....
Well, my mom had 3 sessions with the cyberknife February 8, 11 and 12th. All went fine. She did get a little nauseated and a little tired, but she tells me...
Thanks, Kathy! ... I ... and ... little ... in ... a ... need ... recurrence ... don't ... will ... that ... on ... that ... fighting ... technologist ... for...
Brandyn's dad is working to get a not for profit foundation to raise money for research. He is working right now with the student legal services at Indiana...
Ron, I've set up a Yahoo Group for Support for those touched by Epithelioid Sarcoma (what Stephanie had). I've met a few really great people thru this group....
... Epithelioid Sarcoma (what Stephanie had). ... trying to make some sense of this horrid disease and trying to help in different ways. ... Rapids area at...
Hello, I'm new to this group, dx'd with proximal ES in 6/07, and glad to be among those who understand what it's like to live with this disease. Here is a link...
Hi all, Just got back from my 3rd round of SPDT in China and the news is all good. I had a PET/CT done the day before treatment began and it came back NED. I...
Did any of you hear about this surgery? I saw it Tuesday night on the news. Here's a link to the story. http://www.waff.com/Global/story.asp?S=8063400 Anyone...
Wow - good to find this site... To gain support and understanding from those who have and are dealing with ES. Jamie will be going for his first MRI Scan & CT...
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