Hi Tom, I pray the docs got all the cancer and that you will continue your road to recovery. I too don't post much on here, mostly fb now and I know you are...
I hate this disease, it is so fast and heartless....Mike no longer has to decide on chemo, it is no longer an option and has again spread to a new area, Sacrum...
Hi !!! Debbie what I tried before was Percocet but slow release I think & diluted ( morphine )... The thing that seems to work is to get in to a routine &...
Hi Tom, Sounds as through the three that were enlarged are very luckily gone for good. Tom I pray along with every one else that those were the only ones...
I am so sorry, but who is Cynthia? When did she pass away? How old was she? This disease is so terrible. I hate it. Â Melissa R God gives talent but work...
Cynthia is an 11 year old girl who lost her battle to ES yesterday. She leaves behind a mom, dad, and 3 siblings. I knew her mom from facebook. Yes, it is a...
Thank you so much for letting us know. I will keep them in my prayers. Â When I first learned about ES, it was listed as a Young Adult cancer. I am seeing...
Cynthia was such a light to be around. The first time I met her, she had a HUGE butterfly painted all over her face. It was from the Children's hospital and...
HI Everyone! I hope everyone is doing well. I keep you in my prayers each and every day. I wanted to share our journey so far with you all and let you know...
My husband has the fetanyl patches and changes them every 48hrs. He is on hydromorphine too. Heating pads help with the pain as well. He liked being on Aleve...
I am so sorry Ron is going through all of that. Makes mine minor. I am so glad to hear that you are pregnant. That must make all of that so much harder. You...
Hi, I joined this group to see what is the latest in treatment. It appears much progress has been made. My wife died October 19, 1998. I've been concerned...
Hi Joe, Welcome to our little family. I am so sorry about your wife.....I know in the almost 3 years we have been fighting, so much has changed with...
Thank you Tom and Jill for your well wishes. That means a lot. We are very happy and excited. Every new week is fun for us to see how the baby is growing...
To all my friends here on Yahoo, thank you very much for the thoughts and prayer over the past 7 months. As most of you know, I have been battling epithelioid...
Hi Andy! That is great!! Congratulations!! There is nothing better than hearing your doctors words that things are fine. Keep taking care of yourself and I...
Hello everyone, My name is Cathy and my 29 yr old son Brandon has Epitheliod and spindle cell sarcoma. Like all of you his story is long...I'm reaching out in...
Hi Cathy, My 23 year old son Noah was diagnosed August 19, 2010. I know the pain and shock you are feeling for the most part. His was in his left leg by his...
Great news Andy! I am so glad to hear that. Keep The Faith. Tom Lamb From: Epithelioid_Sarcoma@yahoogroups.com [mailto:Epithelioid_Sarcoma@yahoogroups.com] On...
Cathy unfortunately (my husband) as of today has not had much success treating this, he had right leg, scalp, both lungs and now bone. His small successes...
Cathy, I'm sorry to hear of your news about this horrible disease. I'm afraid I don't have any advice for you but will pray for you, your son and your family. ...
I went yesterday to have tests done to see if I am ok for clinical trial that I will start on August, 3. I had to have a CT scan and it came back clean. They...
The trial I an starting is a double blind trial. I get a series of vaccinations that half are vaccine only and the other get the vaccine plus a booster. There...
I don't know if this will work. This is the trial I am starting. File sent to you by Tom Lamb: scan0010.pdf 8.6 MB No viruses detected. File will be available...
Hi Tom, The scan didn't work for me, but the clinical trial will for sure work for you. You're in my prayers, both you and Lori. Take care friend, Joan ... ...
It worked for me this time Tom, Thanks, it's very interesting. Good luck eh! On Sun, Jul 29, 2012 at 8:48 AM, Tom Lamb (Adobe SendNow Invitations) < ... It...
It is always so good to hear from you! From: Epithelioid_Sarcoma@yahoogroups.com [mailto:Epithelioid_Sarcoma@yahoogroups.com] On Behalf Of Elizabeth Joan ...
