I have started this site to help those touched by Epithelioid Sarcoma. I've included the story of our daughter, Stephanie. She was originally diagnosed in...
I just found this link on the Sarcoma Alliance page. THANK YOU THANK YOU! My mom is fighting this sarcoma and it is so hard to find info and people who...
my son was diagnosed oct 17 07 epitheliod sarcoma in his left thumb and pointer finger after amputation to the first joint on each they found one lymph node...
I'm sorry to hear of your son's trials. I hope all goes well and you won't have to 'deal' much longer - just move on to watching him become a strapping young...
Becky, I hope your mom is doing well with her battle with this horrid beast!! When was she diagnosed? Where was her tumor? If I can help in any way, if just...
Hello.Thanks for your email. I too have epitheloid chondrosarcoma and it spreads very atypically. I feel for your son. I am 44 years old and it went to the...
Kathy - thanks again for this support/message board. My mom's orig tumor was at the inside of her right knee/thigh. She had surgery on that 10 years ago, and...
THANKS FOR YOUR KIND WORDS , WHY ARE THEY HESITATING ON REMOVING THE LYMPH NODE ? IS IT IN A BAD SPOT ? I TRUELY BELIEVE WE MUST STAY POSITIVE AND SURROUND...
Hi there guys, I was doing a search on the web and came across your group. My name is Andrew and I was diagnosed with Proximal type Epithelioid Sarcoma in...
It's great to hear such a positive outlook. I hope this treatment continues to be very successful!!! Have they done any clinical trial on this form of...
Hi Kathy, Dr Wang published a study just recently on the beneficial effects of SPDT used in conjunction with radio seed implants and localised chemo. I will...
I was diagnosed in August of 2006. Mine was located in my groin. I went to the Hillman Cancer Institute in Pittsburgh. I had 3 surgeries after my initial one...
My daughter's was in her groin also, back in 2000. She had 4 rounds of Chemo 24/7 for 5 days, a second surgery, and then 49 radiation treatments. ... went ......
That sounds great!! I'm so glad for you!! PLEASE keep us updated with your progress. Have you ever shared this information on the Sarcoma Alliance Website?...
Hello Everyone, I am writing because a loved one in my family has had epithelioid sarcoma. I am currently at school as a radiologic technologist major. I am...
You're welcome to use the information Stephanie and I have written about my daughter, Stephanie, if you want a personal perspective. I think there is a link...
My mom has ES. Originally in her leg 10 yrs ago, one recurrence at 5 years, several lung mets in her right lung last year and now a met in a lymph node in her...
Good luck to your mom with this treatment!! I'll say prayers for her!! ... 5 ... in ... know ... radiology ... the ... typical ... you ... this ... my ... ...
Thanks, Kathy! We are glad they are going to try this first rather than traditional surgery. If it doesn't get rid of it, she can still try surgery but...
Hi everyone! I thought since everyone was sharing thier experiences with ES, i might was well introduce myself. My name is Christine and I'm a 21 year old...
Christine dear, I'm so sorry that you have to go thru this crap. Your life is just beginning. I completely understand your worry when you read about ES on the ...
I don't really have advice to give, but wanted to let you know that you will always find support here. when my mom first had her tumor in her leg, we were...
It is good to hear that you are doing well. I was diagnosed in September of 2006 with E.S.. Mine was in my groin area. I went through 4 surgeries, 28 days of...
Hi there peoples, I have just returned from Melbourne where I had PET and MRI scans yesterday to see whats happening with my tumor. My hope was that it hadn't...
Great news - I am very happy for you and wish you continued health! ... it ... last ... tumor ... my ... in ... to ... having ... morning - ... results....
Becky, it's good to hear from you again. I do want to add that they are beginning to see that amputation is not always a guarantee. ... a ... this ... clear...
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