Hello everyone. I thought I would share and ask anyone on here if they have their loved ones with this affliction have bumps on the skin surface, primarily...
Hi, I know it's normal to be angry with a diagnosis of E.S., but is it normal to take it out on the family member's that are there to help you? Rich is very...
Had great news from Pittsburgh today, no cancer and no new tumors. They have a new sarcoma doctor there and he still wants me to come back in 6 months. I was...
Hi Tom, Thinking and praying for a positive outcome for Fridays Cat scan. Let us know when you get the results, and we'll all celebrate the good outcome. ...
Hi, I have just joined the group. My son is 41 years old and has had E.S. for about a year now. He had his first surgery in July of this year, and when...
So nice to hear from you! Gosh you're a gem. You're quite right though, what is money? Absolutely nothing when compared to how one can use it to help...
It is so great to hear the two of you talking. I love the support we can give to each other. I was amazed at the support we got from people all thru our...
Hi Kathy, So glad you added your bit of info. I have made a note of the meds, Rich is not looking forward to chemo, but Tom's idea is a great one, to...
Hello, I am new to this site as my brother was diagnosed with ES just 3 days ago. He is 29 years old and has a 3 year old son. He is very scared he will not...
It is so good to hear that you're all doing well!! It's great to get answers. I think the waiting is one of the worst things....I have a friend who has...
Hi. I was recently diagnosed with epithelioid sacroma. I have undergone surgery to remove the tumor (which is in my upper thigh groin area). I am still...
There are several services like this. If Corporate Angels aren't in your area-look around for others. My daughter, Stephanie, and I used a service like this...
Hi Friends, I am caregiver to my 29 yr old wife who is proud mother of a sweet girl, who turned 1 today :-) Her pics and videos at - http://palewar.com/chibu/ ...
Vitiligo is a pigmentation disorder in the human skin. The human skin contains special skin cells (melanocytes) that produce the pigment melanin which colors...
We met with the radiation oncologist today, 3 months post-cyberknife. There really wasn't any definitive news. He said he was a little disappointed that they...
Wow - good to find this site... To gain support and understanding from those who have and are dealing with ES. Jamie will be going for his first MRI Scan & CT...
Did any of you hear about this surgery? I saw it Tuesday night on the news. Here's a link to the story. http://www.waff.com/Global/story.asp?S=8063400 Anyone...
Hi all, Just got back from my 3rd round of SPDT in China and the news is all good. I had a PET/CT done the day before treatment began and it came back NED. I...
Hello, I'm new to this group, dx'd with proximal ES in 6/07, and glad to be among those who understand what it's like to live with this disease. Here is a link...
Brandyn's dad is working to get a not for profit foundation to raise money for research. He is working right now with the student legal services at Indiana...
Hello Everyone, I am writing because a loved one in my family has had epithelioid sarcoma. I am currently at school as a radiologic technologist major. I am...
The grandson of my cousin was diagnosed with epithelioid sarcoma in May 2007. He was 10 years old when he was diagnosed. His tumors are in the lungs....
I wanted all of you to know that my C.A.T. scan came back negative! I go back to Hillman Cancer Center on June 8th. Lori and the kids were thrilled. I owe it...
Here is an article I found about this treatment. Actually, I've found basically the same article on several different websites. Althought they aren't...
Hi everyone! I thought since everyone was sharing thier experiences with ES, i might was well introduce myself. My name is Christine and I'm a 21 year old...
Hi there peoples, I have just returned from Melbourne where I had PET and MRI scans yesterday to see whats happening with my tumor. My hope was that it hadn't...
I was diagnosed in August of 2006. Mine was located in my groin. I went to the Hillman Cancer Institute in Pittsburgh. I had 3 surgeries after my initial one...
Hi there guys, I was doing a search on the web and came across your group. My name is Andrew and I was diagnosed with Proximal type Epithelioid Sarcoma in...
I just found this link on the Sarcoma Alliance page. THANK YOU THANK YOU! My mom is fighting this sarcoma and it is so hard to find info and people who...
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