Hey Kana, Â Thanks for getting back to me, here is the name of my doctors at UCSF they are a great team and care alot about their patients, they specialize in...
Becky, Thank you for sharing. That is a wonderful story and I am so happy to hear about your mother. That was really comforting news. This week has been one of...
thanks for the good wishes...and you keep that hope and fight - for you and especially for your daughter. I have absolute hope and faith that you will be...
Hi, Tim. Thanks for giving me the names of your doctors. I will try to get in to see at least Dr. Gottschalk if not Dr. Jahan as well. But first, I have to...
Chilli, Thanks for sharing with me your experience with radiation and the names of your doctors. I will keep them in mind as I continue to think over this...
Hi Kana, I, too, was diagnosed with epithelioid sarcoma in the upper thigh groin regioin. My doctor and I both thought it was a benign cyst (no imaging was...
Hi. So, tomorrow I am going to meet my oncologist for the first time. I am trying to think of questions to ask her. You would think that I would have a ton of...
It is important for him to be as honest as he can be. If he has not had a ES patient, does he know a doctor that has. The greatest thing I always ask a doctor...
Dear Kana, Â One of the most important things to ask your doctor is if she can determine what stage your ES is in based on the pathology report. also ask her...
My prayers are with you, Kana. Good luck. I would recommend that you write all of your questions down, so you don't forget because you are nervous. VERY...
Hi! Kana if you can try to look for a doctor who is an orthopedic oncologist from my understanding doctors with this title has experience with this type of...
Kana, Tom is so right! Ask your doctor how many ES patients he/she has treated. If your doctor says, "oh, we see sarcoma patients all the time", ask exactly...
Hi Chilli, Maybe I've missed something, but why would an orthopedic oncologist be the best to work with ES patients? ES is a soft tissue sarcoma, not an...
How did things go? Please let me know. Tom Lamb From: Epithelioid_Sarcoma@yahoogroups.com [mailto:Epithelioid_Sarcoma@yahoogroups.com] On Behalf Of Kana Yang ...
Hello, I am new to this site as my brother was diagnosed with ES just 3 days ago. He is 29 years old and has a 3 year old son. He is very scared he will not...
Hello, I'm Kathy. I'm glad you're here, but I'm sorry to hear about your brother. Education and support are your best hope. ES is a very aggressive cancer...
Thank you for your reply and all of the information you have given me. I will defenitly look at the website, actually already have it pulled up. I will also...
Kathy, I did not realize until after replying that your daughter had passed. I am truly sorry to read that. how old was she if you dont mind my asking? I read...
Jessica, how old are you? Stephanie was 23 when she died. Her last year was horrible. It was like watching her be tortured, and there was nothing I could...
Hello Jessica. My name is Tom Lamb and I was diagnosed in the fall of 2006. I had E.S. in my upper left thigh and after 4 surgeries and radiation and chemo I...
Hello Jessica  This is Mario. My partner has been diagnosed with an unclassified epiteliod/spindle cell sarcoma. Its been four years and its been rough....
Thank you again.I can not believe she was that young. I am very open to any information, stories or details. I just want to be open minded and prepared for...
thank you Tom for your information and I will be passing you and this group along to my brother. Congrats on being cancer free, I cant wait to hear my brother...
Thanks Mario for your reply. He will find out Friday which steps we will take from here. I am sorry about your wife. I will post on Friday what steps they are...
Hello, My 20 yr old daughter was diagnosed with Epitheliod Sarcoma in May 2009. When she had the tumor removed from her left hand, we were told the tumor was...
Hello, everyone. It has been awhile since I was logged in on this site. I am both happy and sad to see that we have had a couple of new members. Welcome to our...
Dear Kana, Â I'm so happy to hear the great news for you, Dr. Gottschalk is a great Doctor and very up front with his patients. I just had surgery at UCSF and...
Tim and Kana, I am so very glad to hear both of you doing so well. As you know I was diagnosed in August of 2006 and after 4 surgeries, chemo, and radiation I...
It is so good to hear that you're all doing well!! It's great to get answers. I think the waiting is one of the worst things....I have a friend who has...
Hi, Tim. I appreciate all the support! I can't thank you enough for suggesting Dr. Gottschalk. It took a while to get in to see him and it was a long wait...
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