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Epithelioid_Sarcoma · Epithelioid Sarcoma
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Reply | Forward Message #22 of 162 |
Hi everyone! I thought since everyone was sharing thier experiences
with ES, i might was well introduce myself. My name is Christine and
I'm a 21 year old college student. In Aug 2007 i was diagnosed with ES
in my left thumb. There was a bump that had been there for about a year
when I finally got it removed. A few days after my first surgery, I
recieved a call from the doctor, and he sent me to an oncologist who
diaognosed me. I had a full MRI of my arm, a full body bone scan and a
scan of my lungs. They were all clear, but the doc had to amputate my
left thumb so it wouldn't spread. I ended up with a 1 cm clear margin,
and I couldn't be happier! I'm now going through MRIs every 3 months,
and even though I had that clear margin, I'm still terrified of the
results. I made the mistake of serching on the Internet for ES, and i
scared myself to death looking at all of the research. I know this
sarcoma can't "jump" over normal tissue, and I also know that if it
spread somewhere in my body from my thumb, I wouldn't have a clear
margin. Is there anyone who can give words of encouragement? Thanks,
Christine




Tue Feb 5, 2008 7:28 pm

chiogeek
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Message #22 of 162 |
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Hi everyone! I thought since everyone was sharing thier experiences with ES, i might was well introduce myself. My name is Christine and I'm a 21 year old...
chiogeek
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Feb 5, 2008
7:28 pm

Christine dear, I'm so sorry that you have to go thru this crap. Your life is just beginning. I completely understand your worry when you read about ES on the ...
Kathy Zuber
kathy_lynn_z...
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Feb 5, 2008
8:48 pm

I don't really have advice to give, but wanted to let you know that you will always find support here. when my mom first had her tumor in her leg, we were...
Becky
mauibecka
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Feb 5, 2008
10:10 pm

Becky, it's good to hear from you again. I do want to add that they are beginning to see that amputation is not always a guarantee. ... a ... this ... clear...
Kathy Zuber
kathy_lynn_z...
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Feb 6, 2008
2:42 pm

Yeah, you know how that is, though, you just start to think I wish this or I wish that. You wonder if you did the right thing. Bottom line is, they sure...
Becky
mauibecka
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Feb 6, 2008
4:18 pm

I will keep you and your mom in my prayers!! ... Bottom ... is ... happy ... HAD ... diagnosed ... clear...
Kathy Zuber
kathy_lynn_z...
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Feb 6, 2008
4:29 pm

It is good to hear that you are doing well. I was diagnosed in September of 2006 with E.S.. Mine was in my groin area. I went through 4 surgeries, 28 days of...
Tom Lamb
lambli47
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Feb 6, 2008
12:46 am

Tom, you will be in my thoughts and prayers on Friday!! ... through ... negative ... chemo ... and ... Lori....
Kathy Zuber
kathy_lynn_z...
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Feb 6, 2008
2:50 pm
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