EmpireStateLymeDiseaseAssociation : Message: *Meeting Reminders and Other News*

April 1, 2009, Manorville, 7:00 PM ~ We will show Eric Sullivan’s short film, Evan’s Gate, that he created to get major production companies interested and it did! The film is about a father’s quest to save his son who has Lyme disease. I met Eric Sullivan, a native New Yorker, at the Physician’s Roundtable where he discussed the promising news that this film will be produced by a major film company.

Please scroll down for more meeting reminders.

*Also, good news: Timothy Grey and Breanne Russell ‘s “Under The Eight Ball,” is a full length film about Tim’s sister, Lori, who was diagnosed with ALS but she also had Lyme Disease. From their website: {{Lori had suddenly collapsed one day in 2006 and, . . . was then diagnosed at different times, with Guilian Barre Syndrome, Multiple Sclerosis, Lupus, Lyme disease, Lou Gehrig’s disease, then Lyme disease again, Lou Gehrig’s disease again. She was once told by her neurologist that “Everyone dies”.}}

Where did the film get its title? The answer, on their website: {{ In 1951 at Fort Detrick, crews built a hollow metal sphere four stories high. Inside germ weapons were to be exploded, creating mists of infectious aerosols for testing on animals....and people. Employees called it the eight ball.}}

* I was fortunate to meet Eric, Tim and Breanne at the Physicians Roundtable. It was amazing to see these terrific, talented young people, passionate about their work and about Lyme disease.*

* Some of “Under The Eight Ball” takes place at the NatCapLyme’s September 24 Congressional Briefing and this leads into the following news:

~ The Lyme Legislative Forum ~ Please Note ~ Important Information ~

Date: March 28, 2009 There is still time to register for this important Conference.

Click Here for Agenda PDF

Keynote Address by Congressman Frank R. Wolf who demanded Lyme hearings in the 111th Congress

Among the Discussion Leaders: Dr. Daniel Cameron (ILADS); Dr. Ahmed Kilani (Clongen Labs); Pam Weintraub (science journalist); Kris Newby (researcher/producer); Pam Andrews (LDA-Eastern Shore of Maryland); John Coughlan (Massachusetts Lyme & Tick-Borne Disease Awareness Association); Linda Lobes (Michigan Lyme Disease Association); Lisa Torrey(LifeLyme); Gregg Skall (NatCapLyme); Mark B. Harkins and John Mashburn (Womble Carlyle and former Congressional staff)

This is an opportunity for you to be heard on Lyme legislation and other Congressional activities.

Click here For More Information & To Register

* Just finished The Baker’s Dozen - we are lucky to have this book added on to our "Lymebook" shelves.

From the Press Release:

{{New Book Exposes “Junk Science,” Conflicts of Interest, Disease Guidelines Affecting Millions

Critical evidence revealed about IDSA guidelines, science, researchers examined in recent Anti-Trust Investigation

Madison, WI – Midwest author, researcher, and Lyme patient PJ Langhoff has released a scientific exposé revealing the politics, conflicts of interest, academic ties, research, and IDSA guidelines for Lyme disease. Third in a series, “The Baker’s Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm?” exposes key evidence offered during CT Attorney General Richard Blumenthal’s anti-trust investigation into the Infectious Disease Society of America’s (IDSA) clinical practice guidelines for Lyme disease; findings which called the guidelines formation process “flawed.” }}

Support Meetings

Manorville, NY

Support Meetings: First Wednesday of Every Month

Dates For 2009: APR 1, MAY 6, JUNE 3,

JUL 1, AUG 5, SEPT 2, OCT 7, NOV 4, and DEC 2

From 7 PM to 8:30 PM at the Manorville Firehouse,

16 Silas Carter Rd, Manorville

Please click for info or directions Call 631-878-6657 or 631-286-2072

or email EmpireStateLyme@...

East Islip, NY:

Support Meetings: Fourth Saturday of Every Month

Dates For 2009: MAR 28, APR 25, and