Ebstein's Anomaly is an extremely rare congenital heart defect, effecting less then one percent of individuals with congenital heart defects. This Networking self-help group was established to offer a place for adults with Ebsteins (or had it repaired) to talk about living with Ebsteins, including medical care, the newest research, discuss how our families deal with us, etc. This particular groups is only for those who actually have Ebsteins.

FYI: There is another listserve available available at MSNgroups for parents of children with Ebsteins. You can find it at:
http://groups.msn.com/EbsteinsAnomalySupportGroup/letstalk.msnw