This particular groups is only for those who actually have Ebsteins Anomaly. If you are a parent of child with Ebstein, there are other listserve/support groups available. You can find them here:
http://tchin.org/index.htm

This Special Interest Group / Self-Help Network was established to offer a place for adults who were born with Ebstein's Anomaly to talk about the challenges of living with this birth defect. The discussions include medical care, the newest research, discussions on how our families deal with us, etc.

In 1866, Wilhelm Ebsteins first described this congenital heart defect. Ebstein's Anomaly is an extremely rare congenital heart defect, which effects less then one percent of individuals with congenital heart defects. It occurs equally in men and women. Those with a mild form of Ebstein's can live a normal life without requiring surgery. If the defect is severe surgery may be necessary. Some will only need to have their tricuspid valve repaired, others will need to have it replaced.