EB Force for Action was created to bring together the EB Community under one roof, in the expectation that many may wish to have this option, including:
Parents of children with Epidermolysis Bullosa
EB Adults
EB Young Adults
Care Providers for persons with EB
Those who have lost a friend or family member to EB
This group is also for anyone interested in learning more about this devastating disease. Please use it as an information forum for providing suggestions, sharing your experiences, and supporting others.
All types and subtypes of EB are welcome. The ONLY considerations which will be "moderated" are as per the Terms of Service found below the copyright of every yahoogroup page, regarding content. Please review these requirements as these are the rules we must follow to be a yahoogroup. These terms are required by law.
Other rules, if people ask for them, will be discussed among the members and, if it's necessary, we will have a vote. A 75% majority will be required to establish a rule. No one will be ejected because I, or someone else, does not share your opinion. If two people disagree, you'll be expected to work it out like mature adults. If things get heated, perhaps someone will ask you to take your discussion outside the group. If you are asked to do so, please respect that request.
I support legitimate nonprofit organizations, period. You may support whomever you like. I subscribe quite simply to the ideals of the Declaration of Independence and the Constitution of the United States, as well as civil rights laws passed by Congress.
You will not be discriminated against here. "Negativity" is a word that can be construed many ways. Please be kind, and remember that human beings are capable of GREAT things, especially when we work together.
|