Not sure if I've ever posted this but it's worth a look in case you haven't seen it.  http://www.youtube. com/watch? v=5TL5NoNXkow Best,  Mark  blog:...
http://www.cbsnews.com/stories/2008/10/31/60minutes/main4560940.shtml  Great story that was on 60 Minutes tonight. Simply amazing! Make sure you watch...
Yes I watched that! It was very encouraging! I'm glad to see these amazing devices helping people maintain their independence instead of having someone speak...
we took my seven year old to see the MD doctor Monday, he looked at him for about a minute or two and says that we should put him on steroids. he first needs...
I would ask your doctor about deflazacort. Prednisone has alot of side effects and deflazcort does too but alot less severe. The deflazcort isn't available in...
Hi Scott, Prednisone is the only drug currently know that slows the progression of muscle weakness in DMD.? Children who seem to benefit the most are those who...
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I'm looking at purchasing word prediction software for school and I was wondering what software any of you use. What do you like, what don't you like? Thanks...
2335 miles....wow! Way to go Matt...Mark blog: http://nodakwheeler.blogspot.com/ ________________________________ From: John Herrmann <johnrsf@...> ...
I'm not sure exactly what you mean by word prediction software, but I use it on screen keyboard I really like. It's called softype. It does some word...
My husband is 32 has DMD and has been on prednisone since he was eight. Right now prednisone is the best option, I dont know alot about deflazacort which is...
That is amazing, I just wish it didn't take a growing population of the elderly to create new items that can benefit disabled people of all ages. To:...
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There is a survey being done at Boston University Medical school with the aim of improving genetic counseling for parents of kids with DMD. The survey can be...
I agree---that is a lot to keep track of! He must really want to play PS games badly. He and who ever helped him create the switch play are a lot more tech...
Glad you at least know what the culprit is that is causing you so much pain. School sounds exciting for you. That is too funny that you like the class you...
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