The following Duchenne_MD_Support_Group poll is now closed. Here are the final results: POLL QUESTION: Would you like to see Duchenne MD related new stories...
Duchenne_MD_Support_G...
Jun 1, 2008 7:44 am
186
Today is election day here in MT. Now I know for many people the democratic presidential race is the hot topic, but here in Missoula, the big race is closer...
Hello all, Before I introduce myself to the group, I would like to thank Mark for inviting me to join. My name is Chris and I am 40 years old. I have DMD and...
Hi Chris, It is wonderful to have you in the group! As the mom of a 22 year old with DMD, I want to read about your experience as well as the other "older"...
Hi Chris, It is wonderful to have you in the group! As the mom of a 22 year old with DMD, I want to read about your experience as well as the other "older"...
Thank you T. and Dustin for all your hard work!!! Elizabeth ... From: T. <azurewolf@...> To: Duchenne_MD_Support_Group@yahoogroups.com Sent: Tuesday,...
My son Andrew who is six and has DMD is going on a Nascar make-a-wish, leaving thursday returning monday night. Cannot say enough good things about that...
That is so great! I'm sure our son would have chosen that as well, if he'd thought about it. He is now 16 and reads car magazines and watches NASCAR every...
Who's his favorite driver? I did my make-a-wish to Wrigley Field and what a blast. Got to go on the field, meet the players, see the sights of Chicago. A...
All eyes in the room were on the round-faced, smiling kid in the wheelchair. His name is Gabe Stump. The Carlisle eighth-grader suffers from Duchenne muscular...
You shouldnt have to live in a hospital your independent life is just as important as anyone's. You might want to mention antidepressants to your doctor. I...
Well I guess my husband must be a ghost. lol. Some people really need to do research before they write a story that looks like it came from a fourth grade...
Thanks Jess! Make them write an apology to the many individuals with DMD thirty and over and the younger ones who they just trashed the future hopes of! Good...
Ruby- See, here's the thing. As Pete's wife, I understand where your views are coming from. But, as a reporter, I don't think that's appropriate, either. I do...
Welcome Chris: Please don't be a stranger to the board! Those of us with young boys diagnosed with Duchenne really need your input and experience to guide us....
OK, I did a little googling. This reporter is an idiot. He was a Post-Dispatch writer who got fired for writing in his personal blog about stories that were in...
I say take the "destroy" out of the email and use this as an opportunity to teach - then send to both the reporter and the editor. Bonnie ... I say take the...
I just saw this post and am hoping that Dustin got the votes he needed to mover forward. If not I agree that we are so proud of him for having the courage to...
Fair enough, Bonnie. He just sounds like a nincompoop from the other stuff I've read about him, which provoked me even more... Maybe I'll tone it down a touch....
Who wrote this? Information needs to be up dated. People do survive into the 40's Otherwise, I am so happy for Gabe. He must be the happiest boy in the...
i am just getting old i guess... i would have had the destroy until the last few years...now i feel like the best advocacy is to honor someone elses dignity...
Go get him Jess!! I understand, in order to make the story have a bigger impact, to leave out the fact about many w/DMD can live into their 40's. but telling...
I'm in total agreement!!! Way to go Dustin! Adele _____ From: Duchenne_MD_Support_Group@yahoogroups.com [mailto:Duchenne_MD_Support_Group@yahoogroups.com] On...
Adele, basically, it has been. This guy has been fired from some big newspapers. -J. ... -- ************************* Jessica Resnick-Ault jrault@... or ...
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