I uploaded some of the camp videos that MDA created. Here are the links: http://www.youtube.com/watch?v=XGI70gsOGPU (I have to edit this one a bit, the...
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Scott, I don't watch Idol but hopefully he can go a long way. Yeah the inspiration tag can be quite nauseating but the general public tends to eat that kind...
People dont realize the struggle of wanting to be recognized for what you do and not how you overcame a disability. For once Id like to see someone with a...
Exactly, it would be nice ot have it be about the person's ability and not their "dis-ability". ... Exactly, it would be nice ot have it be about the person's...
There are REAL current virus warnings that come along from time to time. The best idea is to check them out on someplace like Snopes before passing them along....
That would sure be great...Mark ________________________________ From: Ruby Cullet <bobertacollins@...> To: duchenne_md_support_group@yahoogroups.com ...
Wow, what a small world! The Epps were the first family we met during our first stay at Canuck Place. I believe they started power soccer in the Vancouver...
Wow a small world indeed! Mark ________________________________ From: The Wrights <mjib@...> To: Duchenne_MD_Support_Group@yahoogroups.com Sent: Saturday,...
I have two blog posts today. Check them out at www.johnrsf.blogspot.com Peace, John  There is no cure for birth and death save to enjoy the interval. ...
I hate the feeling of being stared at, usually by children but sometimes adults too. I would like to see more people with disabilities on shows not about their...
John, What do you say to children who ask about your disability? I often find it difficult to come up with an age-appropriate explanation, especially for...
I was going to say thanks for posting that about the British childrens show. In some ways we have come so far and in others so little... makes me sad that we...
Hi Peter, I tell young children that my muscles don't work and that's why I can't walk. When they ask about the vent, I say that it helps me breathe, because...
Check out my new blog post. www.johnrsf.blogspot.com Peace, John There is no cure for birth and death save to enjoy the interval. --George Santayana(1863-1952)...
Glad to read that you're healing up pretty well. If it is any consolation, Raymon wants me to tell you that it's weird but the leg he broke his femur...
I certainly hope they get the help they need. I know how it feels to wish you could give more room to your kid. My son has a very limited part of our house...