Duchenne_MD_Support_Group : Messages : 1-30 of 1532

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1	Thank you guys so much for joining this group. I'll do my best to make this group the best it can be. I'm 32 years old and have a trach and vent. My life has...	Mark Boatman nodakwheeler	Apr 26, 2008 12:08 am
2	I am so happy you have started this group. I know how busy you are but yet you are giving of yourself so others may benefit. Your advice is priceless to all...	praytostaysane	Apr 26, 2008 12:15 am
3	Thank you! blog: http://nodakwheeler.blogspot.com/ ... From: praytostaysane <praytostaysane@...> To: Duchenne_MD_Support_Group@yahoogroups.com Sent:...	Mark Boatman nodakwheeler	Apr 26, 2008 12:22 am
4	I am grateful to you. I know you will do a fantastic job! Elizabeth ... From: Mark Boatman <nodakwheeler@...> To: Duchenne MD...	ELIZABETH Hoehne praytostaysane	Apr 26, 2008 12:22 am
5	Mark,I just want to tell you that you give me hope. My little guy, Andrew was diagnosed at 15 months old. He is now 3 and has just started walking on his own...	dol_phinsgirl	Apr 26, 2008 12:58 am
6	http://www.dailyprincetonian.com/2008/04/24/20894/ ____________________________________________________________________________________ Be a better friend,...	Mark Boatman nodakwheeler	Apr 26, 2008 4:11 pm
7	http://www.tradingmarkets.com/.site/news/Stock%20News/1422858/ ____________________________________________________________________________________ Be a better...	Mark Boatman nodakwheeler	Apr 26, 2008 4:14 pm
8	Thank you for letting us join. My Name is Jean and I have a 12 yr old son Jimmy with DMD. He has been in a wheel chair for going on 5 yrs now. We are about to...	Jean dmdmomof1	Apr 26, 2008 4:14 pm
9	Hi Jean, My son Alex is going to have scoliosis surgery May 5 (really soon now!). We'll have to keep in touch with each other about how things are going. One...	George gibsona40	Apr 26, 2008 4:27 pm
10	So good to have you here with us. Spinal fusion is a big decision and I don't blame you one bit for being scared. Have you guys met with the surgeon to have...	Mark Boatman nodakwheeler	Apr 26, 2008 4:32 pm
11	http://nodakwheeler.blogspot.com/ ____________________________________________________________________________________ Be a better friend, newshound, and ...	Mark Boatman nodakwheeler	Apr 26, 2008 4:40 pm
12	... join! ... We'll be praying that everything goes well and for God to guide the surgeons hands. We are just starting this journey. My twin boys are almost 3...	nmphb	Apr 26, 2008 4:43 pm
13	Just wanted to let you guys know we have a second moderator that will be assisting me. Her name is Kara and you can reach her by email at...	Mark Boatman nodakwheeler	Apr 26, 2008 6:05 pm
14	Thank you and thank you Kara! Elizabeth ... From: Mark Boatman <nodakwheeler@...> To: Duchenne MD <Duchenne_MD_Support_Group@yahoogroups.com> Sent:...	ELIZABETH Hoehne praytostaysane	Apr 26, 2008 7:34 pm
15	... From: Jean <DMDMOMof1@...> To: Duchenne_MD_Support_Group@yahoogroups.com Sent: Saturday, April 26, 2008 11:14:29 AM Subject:...	ELIZABETH Hoehne praytostaysane	Apr 26, 2008 7:40 pm
16	Hi Jean, I sent the previous email without responding but thought I had. I am sorry you, your son and family are going through so much right now. Our son,...	ELIZABETH Hoehne praytostaysane	Apr 26, 2008 7:46 pm
17	George, Good luck with Alex's pending surgery.? I've mentioned before that Matthew had this procedure October of 2005.? He was in surgery for over eight hours...	denger2@... adenger	Apr 26, 2008 11:16 pm
18	Hi George and every one else that has responded! George I will keep Alex in my prayers and yes we will have to keep in contact. As far as I know Jimmy will be...	Jean dmdmomof1	Apr 27, 2008 2:19 am
19	That's awesome that you guys have a great surgeon! You'll be in great hands....Mark ... From: Jean <DMDMOMof1@...> To:...	Mark Boatman nodakwheeler	Apr 27, 2008 2:42 am
20	Hi Jean, I am so glad you have such a thorough and compassionate Dr. I think that is great that you can contact another mother whose child had the same...	ELIZABETH Hoehne praytostaysane	Apr 27, 2008 2:55 am
21	I am glad to be part of this new group! No more bad interference! Thanks Mark!...	rubycullet	Apr 27, 2008 3:41 am
22	... management ... He is very brave. ... out ... us...	rubycullet	Apr 27, 2008 3:47 am
23	Jean, Here are some links about the experience of a family Alex and I know, about one of the guys who Alex was able to talk to about the surgery: ...	George Smith gibsona40	Apr 27, 2008 12:12 pm
24	Thanks, Brian. I remember your posts on the subject. I will definitely be following your suggestions. Alex will be in rehab for a few weeks following the ...	George Smith gibsona40	Apr 27, 2008 12:27 pm
25	Hi George, I have read all of those articals and have also spoken to Adele on the phone. Adele gave me some good questions for the Doctor and explained some of...	Jean dmdmomof1	Apr 28, 2008 12:14 am
26	... ______________________________________________________________________ ... http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ...	Jean dmdmomof1	Apr 28, 2008 12:15 am
27	http://www.strausnews.com/articles/2008/04/25/township_journal/news/5.txt ____________________________________________________________________________________ ...	Mark Boatman nodakwheeler	Apr 28, 2008 5:22 am
28	That is an excellent article especially for those of us who are having to consider niv or trach. Elizabeth ... From: Mark Boatman <nodakwheeler@...> To:...	ELIZABETH Hoehne praytostaysane	Apr 28, 2008 2:14 pm
29	I was just going to post this Mark. Do you agree with the article? ... http://www.strausnews.com/articles/2008/04/25/township_journal/news/5.tx t ... ...	donnadoolittle2	Apr 28, 2008 2:32 pm
30	Mark: You have my undivided attention:) I just want to say that you are my true hero and that I know that if you can handle living with disease then I have...	donnadoolittle2	Apr 28, 2008 2:36 pm

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