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#1539 From: Mark Boatman <nodakwheeler@...>
Date: Sun Nov 22, 2009 7:30 pm
Subject: Threat to Mitchell's wheelchair over 		nodakwheeler
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Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman



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#1538 From: Mark Boatman <nodakwheeler@...>
Date: Sat Nov 21, 2009 3:36 am
Subject: Frank family has something to be thankful for 		nodakwheeler
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Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman



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#1537 From: Mark Boatman <nodakwheeler@...>
Date: Sun Nov 15, 2009 6:11 am
Subject: Hatchback Shoes 		nodakwheeler
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Thought these were very cool!

Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman


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#1536 From: Mark Boatman <nodakwheeler@...>
Date: Sat Nov 14, 2009 11:05 pm
Subject: Power wheelchair hockey at Hoggard 		nodakwheeler
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Make sure you click on the green video link.

Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman


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#1535 From: Mark Boatman <nodakwheeler@...>
Date: Wed Nov 11, 2009 7:41 pm
Subject: A mom fights MD 		nodakwheeler
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Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman


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#1534 From: Ruby Cullet <bobertacollins@...>
Date: Wed Nov 11, 2009 4:18 pm
Subject: RE: Paying for in-home nurses 		rubycullet
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Im sure there are cuts that can be made elsewhere instead of making people who have it difficult already suffer. They will probably label people they they don't even know basic that aren't basic. Very unfair.

To: npventsupport@yahoogroups.com; Duchenne_MD_Support_Group@yahoogroups.com
From: nodakwheeler@...
Date: Mon, 9 Nov 2009 20:08:47 -0800
Subject: [Duchenne_MD_Support_Group] Paying for in-home nurses

 

Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman




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#1533 From: Ruby Cullet <bobertacollins@...>
Date: Wed Nov 11, 2009 4:09 pm
Subject: RE: New Blog Post 11-8 		rubycullet
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Love the sign!

To: ceciandspike@...; phyl1225@...; vergefringe@...; mb2457@...; xpaludoshs@...; stacyviva@...; bridget@...; bravo91b@...; cotoclan@...; SVEN@...; jennifercaseda@...; hollycarney5@...; saintsiii@...; ulrike@...; acharman@...; bibbi2@...; info@...; temcon@...; ConnerMikes@...; jeancon@...; bibbi@...; glendodd88@...; downeysusa@...; sgordon@...; cool1bill@...; OHaydon@...; sirtshirt@...; gherrman@...; vagabondbill@...; billandjules@...; jrhink@...; blairelarson@...; michelle@...; bowbells@...; marisolmartinez@...; donnamiano@...; bronwyn12@...; montjoy@...; david.moss1@...; janicholas@...; Nickpnicholas@...; delmarpenny@...; emorcino@...; map820@...; peter.pingerelli@...; vradam@...; sxreed@...; glrossconst@...; toby@...; alexhs@...; dvalenciano@...; claireav@...; cvcv@...; bunchiz@...; ljbj_boof@...; awatson@...; earlito@...; johnwilcox1@...; pcwilmans@...; karen@...; holymolyrolypoly@...; dmdpioneers@yahoogroups.com; npventsupport@yahoogroups.com; Ostomates_R_Us@yahoogroups.com; independentliving@yahoogroups.com; DisabilityVoiceSpace@yahoogroups.com; Duchenne_MD_Support_Group@yahoogroups.com; NeckBreathers@yahoogroups.com
From: johnrsf@...
Date: Sun, 8 Nov 2009 18:44:38 -0800
Subject: [Duchenne_MD_Support_Group] New Blog Post 11-8

 

There is no cure for birth and death save to enjoy the interval.
--George Santayana(1863-1952)
 
Yahoo IM:johnrsf@pacbell.net
Follow me on Twitter. http://twitter.com/johnrsf
 
 
 


Find the right PC with Windows 7 and Windows Live. Learn more.

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#1532 From: Bonnie Dombrowski <Dombrofam@...>
Date: Tue Nov 10, 2009 6:25 am
Subject: Re: Paying for in-home nurses 		dombrowfam
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This is so bad. I am afraid we are in a Darwinian time... survival of the fittest. 
On Nov 9, 2009, at 9:08 PM, Mark Boatman wrote:


Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman




=

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#1531 From: Mark Boatman <nodakwheeler@...>
Date: Tue Nov 10, 2009 4:08 am
Subject: Paying for in-home nurses 		nodakwheeler
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Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman



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#1530 From: Mark Boatman <nodakwheeler@...>
Date: Mon Nov 9, 2009 5:20 am
Subject: Re: New Blog Post 11-8 		nodakwheeler
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Membership has its privileges :)
 
Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman



From: John Herrmann <johnrsf@...>
To: Ceci Alba <ceciandspike@...>; Phyllis Allison <phyl1225@...>; Lance Anderson <vergefringe@...>; Mario Bernheim <mb2457@...>; Wendy Beveridge <xpaludoshs@...>; Stacy Biener <stacyviva@...>; Bridget Brigitte <bridget@...>; Keith Bristow <bravo91b@...>; Rebecca Brown <cotoclan@...>; Sven Buncher <SVEN@...>; Jennifer Callahan <jennifercaseda@...>; Holly Carney <hollycarney5@...>; John Carney <saintsiii@...>; ulrike Chapo <ulrike@...>; Andrew E. Charman <acharman@...>; Bibbi Conner <bibbi2@...>; Rick Conner <info@...>; George Conner <temcon@...>; Mike Conner <ConnerMikes@...>; Jean Conner <jeancon@...>; Bibbi Conner <bibbi@...>; Glen Dodd <glendodd88@...>; Tricia Downey <downeysusa@...>; Scott Gordon <sgordon@...>; Bill Harding <cool1bill@...>; Ozzie Haydon <OHaydon@...>; Jeff Herrman <sirtshirt@...>; Greg Herrman <gherrman@...>; Bill Herrmann <vagabondbill@...>; Bill and Julie Herrmann <billandjules@...>; Jason Hinkle <jrhink@...>; Blaire Larson <blairelarson@...>; Michelle Macrovitch <michelle@...>; SYLVIA MARTIN <bowbells@...>; Marisol Martinez <marisolmartinez@...>; Donna Miano <donnamiano@...>; Bronwyn Miller <bronwyn12@...>; Rita & Lynne Montjoy <montjoy@...>; David Moss <david.moss1@...>; James Nicholas <janicholas@...>; Nick Nicholas <Nickpnicholas@...>; Penny Nicholas <delmarpenny@...>; Ernie Orcino <emorcino@...>; Marisa Passanisi <map820@...>; Peter Pingerelli <peter.pingerelli@...>; Vivian Radam <vradam@...>; Sylvia Reed <sxreed@...>; Gary Ross <glrossconst@...>; Toby Russell <toby@...>; Alexander Schaefer <alexhs@...>; Danielle Valenciano <dvalenciano@...>; Claire Varney <claireav@...>; Claire Varney <cvcv@...>; Alecia Wagner <bunchiz@...>; John Walk <ljbj_boof@...>; Alan Watson <awatson@...>; Earl Watson <earlito@...>; John Wilcox <johnwilcox1@...>; Peter Wilmans <pcwilmans@...>; Karen Wood <karen@...>; Karen Wood <holymolyrolypoly@...>; dmdpioneers@yahoogroups.com; NPVSN Ventilator Support Group <npventsupport@yahoogroups.com>; Ostomates_R_Us <Ostomates_R_Us@yahoogroups.com>; Independent Living <independentliving@yahoogroups.com>; DisabilityVoiceSpace@yahoogroups.com; Duchenne_MD_Support_Group@yahoogroups.com; Neckbreathers <NeckBreathers@yahoogroups.com>
Sent: Sun, November 8, 2009 7:44:38 PM
Subject: [Duchenne_MD_Support_Group] New Blog Post 11-8

 

There is no cure for birth and death save to enjoy the interval.
--George Santayana(1863- 1952)
 
Yahoo IM:johnrsf@pacbell. net
Follow me on Twitter. http://twitter. com/johnrsf
 
 
 


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#1529 From: John Herrmann <johnrsf@...>
Date: Mon Nov 9, 2009 2:44 am
Subject: New Blog Post 11-8 		johnrancho
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There is no cure for birth and death save to enjoy the interval.
--George Santayana(1863-1952)
 
My E-Mail: johnrsf@...
Yahoo IM:johnrsf@...
Follow me on Twitter. http://twitter.com/johnrsf
 
 
 

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#1528 From: Mark Boatman <nodakwheeler@...>
Date: Sat Nov 7, 2009 6:11 pm
Subject: Jesse's journey ends 		nodakwheeler
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Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman







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#1527 From: Ruby Cullet <bobertacollins@...>
Date: Fri Nov 6, 2009 3:54 pm
Subject: RE: Rollx vas 		rubycullet
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My husband got his van modified at mobility works.

To: Duchenne_MD_Support_Group@yahoogroups.com; dmdpioneers@yahoogroups.com; npventsupport@yahoogroups.com; dmdsupport@yahoogroups.com; TRACHTIES@...
From: nodakwheeler@...
Date: Tue, 3 Nov 2009 11:04:49 -0800
Subject: [Duchenne_MD_Support_Group] Rollx vas

 

Has anyone gotten a van through Rollx.  If so, what were your experiences? Good? Bad?

Thanks...Mark
 
Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman










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#1526 From: Mark Boatman <nodakwheeler@...>
Date: Thu Nov 5, 2009 4:57 pm
Subject: Re: Health & Fitness, Online Education 		nodakwheeler
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Too funny. Sorry about the spam folks...Mark
 
Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman







From: Diane <dpro@...>
To: Duchenne_MD_Support_Group@yahoogroups.com
Sent: Wed, November 4, 2009 12:40:09 PM
Subject: Re: [Duchenne_MD_Support_Group] Health & Fitness, Online Education

 

You think if this was ligit they would spell Breast the right way.  LOL
 
 
----- Original Message -----
From: Moin
Sent: Wednesday, November 04, 2009 12:49 PM
Subject: [Duchenne_MD_ Support_Group] Health & Fitness, Online Education

 

We have published dynamic articles regarding Men Health, Women Health, How to increase sexual desire, Medical Mental & Dental Treatment, What is Appendix, Children Health, Acne, Alcohol & Drug addiction, Swine Flu, Lung Cancer, Brest Cancer, Bladder Cancer, Complete Cancer Information, Alternative Medicine, Stress Information, Pneumonia Pregnancy, Tuberculosis (TB), Substance Abuse Treatment System, Sexuality, Peptic Ulcer, Personality Disorder, Mental Health, Headaches, Health Tips, Heart Attack, Dengue fever, Hepatitis, HIV/AIDS, Gastritis, Fitness Video, Curry spice `Kills Cancer cell, Lose Weight, in this website we have tried to collect latest articles which clear your vision & give you great exposure about the same.

DiseaseNcure. com

Anas1912.blogspot. com

we have published dynamic article about Online  Education,  Online MBA Degree, Online Associate Degree, Top Class Universities, How to Admission in USA, UK, Singapore, How to get immigration of USA,

safeurlives. blogspot. com



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#1525 From: "Diane" <dpro@...>
Date: Wed Nov 4, 2009 7:40 pm
Subject: Re: Health & Fitness, Online Education 		dianeproc
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You think if this was ligit they would spell Breast the right way.  LOL
 
 
----- Original Message -----
From: Moin
Sent: Wednesday, November 04, 2009 12:49 PM
Subject: [Duchenne_MD_Support_Group] Health & Fitness, Online Education

 

We have published dynamic articles regarding Men Health, Women Health, How to increase sexual desire, Medical Mental & Dental Treatment, What is Appendix, Children Health, Acne, Alcohol & Drug addiction, Swine Flu, Lung Cancer, Brest Cancer, Bladder Cancer, Complete Cancer Information, Alternative Medicine, Stress Information, Pneumonia Pregnancy, Tuberculosis (TB), Substance Abuse Treatment System, Sexuality, Peptic Ulcer, Personality Disorder, Mental Health, Headaches, Health Tips, Heart Attack, Dengue fever, Hepatitis, HIV/AIDS, Gastritis, Fitness Video, Curry spice `Kills Cancer cell, Lose Weight, in this website we have tried to collect latest articles which clear your vision & give you great exposure about the same.

DiseaseNcure.com

Anas1912.blogspot.com

we have published dynamic article about Online  Education,  Online MBA Degree, Online Associate Degree, Top Class Universities, How to Admission in USA, UK, Singapore, How to get immigration of USA,

safeurlives.blogspot.com


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#1524 From: "Moin" <moinuddin6219@...>
Date: Wed Nov 4, 2009 6:49 pm
Subject: Health & Fitness, Online Education 		moinuddin6219
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We have published dynamic articles regarding Men Health, Women Health, How to increase sexual desire, Medical Mental & Dental Treatment, What is Appendix, Children Health, Acne, Alcohol & Drug addiction, Swine Flu, Lung Cancer, Brest Cancer, Bladder Cancer, Complete Cancer Information, Alternative Medicine, Stress Information, Pneumonia Pregnancy, Tuberculosis (TB), Substance Abuse Treatment System, Sexuality, Peptic Ulcer, Personality Disorder, Mental Health, Headaches, Health Tips, Heart Attack, Dengue fever, Hepatitis, HIV/AIDS, Gastritis, Fitness Video, Curry spice `Kills Cancer cell, Lose Weight, in this website we have tried to collect latest articles which clear your vision & give you great exposure about the same.

DiseaseNcure.com

Anas1912.blogspot.com

we have published dynamic article about Online  Education,  Online MBA Degree, Online Associate Degree, Top Class Universities, How to Admission in USA, UK, Singapore, How to get immigration of USA,

safeurlives.blogspot.com

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#1523 From: Mark Boatman <nodakwheeler@...>
Date: Tue Nov 3, 2009 7:04 pm
Subject: Rollx vas 		nodakwheeler
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Has anyone gotten a van through Rollx.  If so, what were your experiences? Good? Bad?

Thanks...Mark
 
Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman









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#1522 From: "Adele" <jasona65@...>
Date: Wed Oct 28, 2009 1:14 pm
Subject: RE: SCOTT SANDS ALIVE - Incredible Surprise 		navymom2josh
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Scott,  That was fantastic!  I do not usually read Blog posts, but yours got me curious.

 

Adele

 

From: Duchenne_MD_Support_Group@yahoogroups.com [mailto:Duchenne_MD_Support_Group@yahoogroups.com] On Behalf Of Scott F. Sands
Sent: Tuesday, October 27, 2009 11:32 PM
To: Maria Gonzalez; Manu Gambhir; Ed Franke; Connie Ehnann; Jack Glazier; Josephine Grobels; Chuck Healy; Dwight Eldred; Duchenne MD Support Group; Loukas Glykas; Andrea Gapko; Brenda Egan; Terry Farmer; Nick Dupree; Ingrid Fiorelli; Ed Geller; Pat Furlong; Susan Gordon Ryan; Mona Hughes; Rich DiBenedetto; DMD Support; Frank Gehr; William DeKnatel; Jaclyn Flynn; Annette Hanna; Martin Geller; John Grima; Corene Fry
Subject: [Duchenne_MD_Support_Group] SCOTT SANDS ALIVE - Incredible Surprise

 

 


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#1521 From: "Scott F. Sands" <scott@...>
Date: Wed Oct 28, 2009 3:32 am
Subject: SCOTT SANDS ALIVE - Incredible Surprise 		sfsands66
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http://www.scottsandsalive.com

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#1520 From: "The Wrights" <mjib@...>
Date: Sun Oct 25, 2009 11:41 pm
Subject: America's Cup Power Soccer Tournament 		scrabbler55
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Excellent videos of top-notch power soccer games can be accessed using the link below. 
 
 
(Ian didn't participate as he is in grade 12 and taking advanced placement calculus and sciences.  Maybe next year!)
 
~ Johanna

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#1519 From: Mark Boatman <nodakwheeler@...>
Date: Sat Oct 24, 2009 7:38 pm
Subject: Boy with muscle disease longs to be independent, and his mother helps 		nodakwheeler
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Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman
















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#1518 From: Mark Boatman <nodakwheeler@...>
Date: Sat Oct 24, 2009 6:13 am
Subject: Re: New Blog Post 		nodakwheeler
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Wow!  Looks fantastic John...Mark
 
Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman















From: John Herrmann <johnrsf@...>
To: Ceci Alba <ceciandspike@...>; Phyllis Allison <phyl1225@...>; Lance Anderson <vergefringe@...>; Mario Bernheim <mb2457@...>; Stacy Biener <stacyviva@...>; Bridget Brigitte <bridget@...>; Keith Bristow <bravo91b@...>; Rebecca Brown <cotoclan@...>; Sven Buncher <SVEN@...>; Jennifer Callahan <jennifercaseda@...>; Holly Carney <hollycarney5@...>; John Carney <saintsiii@...>; ulrike Chapo <ulrike@...>; Andrew E. Charman <acharman@...>; Bibbi Conner <bibbi2@...>; Rick Conner <info@...>; George Conner <temcon@...>; Mike Conner <ConnerMikes@...>; Jean Conner <jeancon@...>; Bibbi Conner <bibbi@...>; Glen Dodd <glendodd88@...>; Tricia Downey <downeysusa@...>; Scott Gordon <sgordon@...>; Bill Harding <cool1bill@...>; Ozzie Haydon <OHaydon@...>; Jeff Herrman <sirtshirt@...>; Greg Herrman <gherrman@...>; Bill Herrmann <vagabondbill@...>; Bill and Julie Herrmann <billandjules@...>; Jason Hinkle <jrhink@...>; Blaire Larson <blairelarson@...>; Michelle Macrovitch <michelle@...>; SYLVIA MARTIN <bowbells@...>; Marisol Martinez <marisolmartinez@...>; Donna Miano <donnamiano@...>; Bronwyn Miller <bronwyn12@...>; Rita & Lynne Montjoy <montjoy@...>; David Moss <david.moss1@...>; James Nicholas <janicholas@...>; Nick Nicholas <Nickpnicholas@...>; Penny Nicholas <delmarpenny@...>; Ernie Orcino <emorcino@...>; Marisa Passanisi <map820@...>; Peter Pingerelli <peter.pingerelli@...>; Sylvia Reed <sxreed@...>; Gary Ross <glrossconst@...>; Toby Russell <toby@...>; Alexander Schaefer <alexhs@...>; Danielle Valenciano <dvalenciano@...>; Claire Varney <claireav@...>; Claire Varney <cvcv@...>; Alecia Wagner <bunchiz@...>; John Walk <ljbj_boof@...>; Alan Watson <awatson@...>; Earl Watson <earlito@...>; John Wilcox <johnwilcox1@...>; Peter Wilmans <pcwilmans@...>; Karen Wood <karen@...>; Karen Wood <holymolyrolypoly@...>; dmdpioneers@yahoogroups.com; NPVSN Ventilator Support Group <npventsupport@yahoogroups.com>; Ostomates_R_Us <Ostomates_R_Us@yahoogroups.com>; Independent Living <independentliving@yahoogroups.com>; DisabilityVoiceSpace@yahoogroups.com; Duchenne_MD_Support_Group@yahoogroups.com; Neckbreathers <NeckBreathers@yahoogroups.com>
Sent: Thu, October 22, 2009 8:07:29 PM
Subject: [Duchenne_MD_Support_Group] New Blog Post

 


 
There is no cure for birth and death save to enjoy the interval.
--George Santayana(1863- 1952)
 
Yahoo IM:johnrsf@pacbell. net
Follow me on Twitter. http://twitter. com/johnrsf
 
 
 


Reply | Forward | Messages in this Topic (92)
#1517 From: Mark Boatman <nodakwheeler@...>
Date: Sat Oct 24, 2009 5:59 am
Subject: Re: SCOTT SANDS ALIVE - Gimp Fraud 		nodakwheeler
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Too bad stupid people like that can't be locked up for a few months.  They could really have time to think over their abuse of the system.

Mark
 
Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman















From: Scott F. Sands <scott@...>
To: Maria Gonzalez <mgonzalez@...>; Manu Gambhir <manu@...>; Connie Ehnann <con.geo@...>; Ed Franke <ed@...>; Jack Glazier <woloch30@...>; Josephine Grobels <Lemony218@...>; Chuck Healy <chealy@...>; Dwight Eldred <u2lightmyway@...>; Duchenne MD Support Group <Duchenne_MD_Support_Group@yahoogroups.com>; Loukas Glykas <LOUTHECHAIR@...>; Andrea Gapko <gapkoam@...>; Brenda Egan <BE304@...>; Terry Farmer <tfarmer@...>; Nick Dupree <nickdupree@...>; Pat Furlong <PatFurlong@...>; Ed Geller <edwardgeller4@...>; Ingrid Fiorelli <FIO5@...>; Susan Gordon Ryan <sgordonryan@...>; Rich DiBenedetto <D0402@...>; Mona Hughes <SemiYung@...>; DMD Support <dmdsupport@yahoogroups.com>; Frank Gehr <Thirdgehr67@...>; William DeKnatel <William.DeKnatel@...>; Jaclyn Flynn <my_vengence1@...>; Annette Hanna <computerwheelie@...>; Martin Geller <msneurology@...>; Corene Fry <BeaktwoBeak@...>; John Grima <john.grima@...>
Sent: Thu, October 22, 2009 2:57:38 PM
Subject: [Duchenne_MD_Support_Group] SCOTT SANDS ALIVE - Gimp Fraud

 

http://www.scottsandsalive.com/



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#1516 From: Mark Boatman <nodakwheeler@...>
Date: Sat Oct 24, 2009 4:32 am
Subject: Pearl Family Fights Back After Guardian Cancels Line of Coverage for Ian Pearl 		nodakwheeler
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Absolutely sickening...Mark
 
Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman
















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#1515 From: Ruby Cullet <bobertacollins@...>
Date: Fri Oct 23, 2009 3:34 pm
Subject: RE: Digest Number 377 		rubycullet
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I didn't think her symptoms sounded like DMD. I hope they take her to get a second opinion on a diagnosis.

To: Duchenne_MD_Support_Group@yahoogroups.com
From: jrault@...
Date: Fri, 23 Oct 2009 08:25:43 -0400
Subject: Re: [Duchenne_MD_Support_Group] Digest Number 377

 

Mark-
  I think that the article you posted, 'Hamilton Co. Girl Battles Rare Form of MD' was poorly reported. From a Creatine Kinease test, there's no way that they would know that it was Duchenne muscular dystrophy, or some other disorder, and the article fails to specify whether further (genetic) testing was done. Stories like this, written by reporters who are weak, are potetentially misleading and can be very troubling to families with newly diagnosed boys with DMD who are trying to understand the genetic implications of the disease. As a  news reporter, I request corrections for all newspaper stories on DMD that are not medically accurate. I don't bother with local TV stories, because they tend to be so poor, regardless of the topic.
Best,
Jessica

On Fri, Oct 23, 2009 at 7:25 AM, <Duchenne_MD_Support_Group@yahoogroups.com> wrote:

Messages In This Digest (3 Messages)

1.
SCOTT SANDS ALIVE - Gimp Fraud From: Scott F. Sands
2.
Hamilton Co. Girl Battles Rare Form of MD From: Mark Boatman
3.1.
New Blog Post From: John Herrmann

Messages

1.

SCOTT SANDS ALIVE - Gimp Fraud

Posted by: "Scott F. Sands" scott@scottsandsalive.com   sfsands66

Thu Oct 22, 2009 1:57 pm (PDT)

2.

Hamilton Co. Girl Battles Rare Form of MD

Posted by: "Mark Boatman" nodakwheeler@yahoo.com   nodakwheeler

Thu Oct 22, 2009 4:52 pm (PDT)



WSIL TV • Hamilton Co. Girl Battles Rare Form of MD

I know girls can get DMD but how rare is this?

Mark
Mark J. Boatman
Student - University of Montana

blog @ nodakwheeler.blogspot.com
follow me on twitter @ http://twitter.com/markboatman

3.1.

New Blog Post

Posted by: "John Herrmann" johnrsf@pacbell.net   johnrancho

Thu Oct 22, 2009 7:07 pm (PDT)



www.johnrsf.blogspot.com

 
There is no cure for birth and death save to enjoy the interval.
--George Santayana(1863-1952)

My E-Mail: johnrsf@pacbell.net
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    --
    *************************
    Jessica Resnick-Ault
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    or
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    Windows 7: It helps you do more. Explore Windows 7.

    Reply | Forward | Messages in this Topic (2)
    #1514 From: Jessica Resnick-Ault <jrault@...>
    Date: Fri Oct 23, 2009 12:25 pm
    Subject: Re: Digest Number 377     		journalistjess
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    Mark-
      I think that the article you posted, 'Hamilton Co. Girl Battles Rare Form of MD' was poorly reported. From a Creatine Kinease test, there's no way that they would know that it was Duchenne muscular dystrophy, or some other disorder, and the article fails to specify whether further (genetic) testing was done. Stories like this, written by reporters who are weak, are potetentially misleading and can be very troubling to families with newly diagnosed boys with DMD who are trying to understand the genetic implications of the disease. As a  news reporter, I request corrections for all newspaper stories on DMD that are not medically accurate. I don't bother with local TV stories, because they tend to be so poor, regardless of the topic.
    Best,
    Jessica

    On Fri, Oct 23, 2009 at 7:25 AM, <Duchenne_MD_Support_Group@yahoogroups.com> wrote:

    Messages In This Digest (3 Messages)

    1.
    SCOTT SANDS ALIVE - Gimp Fraud From: Scott F. Sands
    2.
    Hamilton Co. Girl Battles Rare Form of MD From: Mark Boatman
    3.1.
    New Blog Post From: John Herrmann

    Messages

    1.

    SCOTT SANDS ALIVE - Gimp Fraud

    Posted by: "Scott F. Sands" scott@...   sfsands66

    Thu Oct 22, 2009 1:57 pm (PDT)

    2.

    Hamilton Co. Girl Battles Rare Form of MD

    Posted by: "Mark Boatman" nodakwheeler@...   nodakwheeler

    Thu Oct 22, 2009 4:52 pm (PDT)



    WSIL TV • Hamilton Co. Girl Battles Rare Form of MD

    I know girls can get DMD but how rare is this?

    Mark
    Mark J. Boatman
    Student - University of Montana

    blog @ nodakwheeler.blogspot.com
    follow me on twitter @ http://twitter.com/markboatman

    3.1.

    New Blog Post

    Posted by: "John Herrmann" johnrsf@...   johnrancho

    Thu Oct 22, 2009 7:07 pm (PDT)



    www.johnrsf.blogspot.com

     
    There is no cure for birth and death save to enjoy the interval.
    --George Santayana(1863-1952)

    My E-Mail: johnrsf@...
    My Blog: www.johnrsf.blogspot.com
    Facebook: www.facebook.com/john.p.herrmann
    Yahoo IM:johnrsf@...
    Follow me on Twitter. http://twitter.com/johnrsf
    Recent Activity
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      Put your favorite

      photos and

      more online.

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      Improve your business

      by community exchange

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      Find support

      Need to Reply?

      Click one of the "Reply" links to respond to a specific message in the Daily Digest.

      Questions, Comments, Concerns?

      Moderators:

      Mark: nodakwheeler@...
      Theresa: azurewolf@...



      --
      *************************
      Jessica Resnick-Ault
      jrault@...
      or
      jra@...

      Reply | Forward | Messages in this Topic (2)
      #1513 From: John Herrmann <johnrsf@...>
      Date: Fri Oct 23, 2009 2:07 am
      Subject: New Blog Post       		johnrancho
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      There is no cure for birth and death save to enjoy the interval.
      --George Santayana(1863-1952)
       
      My E-Mail: johnrsf@...
      Yahoo IM:johnrsf@...
      Follow me on Twitter. http://twitter.com/johnrsf
       
       
       

      Reply | Forward | Messages in this Topic (92)
      #1512 From: Mark Boatman <nodakwheeler@...>
      Date: Thu Oct 22, 2009 11:52 pm
      Subject: Hamilton Co. Girl Battles Rare Form of MD       		nodakwheeler
      Online Now Online Now
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      I know girls can get DMD but how rare is this?

      Mark
       
      Mark J. Boatman
      Student - University of Montana

      blog @ nodakwheeler.blogspot.com
      follow me on twitter @ http://twitter.com/markboatman
















      Reply | Forward | Messages in this Topic (1)
      #1511 From: Scott F. Sands <scott@...>
      Date: Thu Oct 22, 2009 8:57 pm
      Subject: SCOTT SANDS ALIVE - Gimp Fraud       		sfsands66
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      http://www.scottsandsalive.com

      Reply | Forward | Messages in this Topic (2)
      #1510 From: Mark Boatman <nodakwheeler@...>
      Date: Mon Oct 19, 2009 5:15 am
      Subject: New cough machine       		nodakwheeler
      Online Now Online Now
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      Mark J. Boatman
      Student - University of Montana

      blog @ nodakwheeler.blogspot.com
      follow me on twitter @ http://twitter.com/markboatman
















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