Please help me in my fight to help vcfs families join together and have picnics, outings and exchange information that could be important to our children's lifes... my son is now almost 3 years old and was born with vcfs, has 2 rare heart defects , a low immune deficiency and much more .. my daughter is 4 1/2 and also has vcfs and has had many struggles with it .. mostly she has global delays across the board and a right sided aortic arch which caused her to have one minor heart surgery and she's much better since. .please help me in my fight to help families better understand this syndrome and give eachother moral support and love and be there for one another, my goal is to be able to set up meetings and family outings to support eachother.. god bless you and your families who are battling this syndrome..
let's all start being there for one another. Here are my two sweeties.. i'd love to hear about yours.