Rick, I am in the middle of the application process--first application was denied (as most are for any claim); I appealed and am in the middle of the appeal...
Dear Rick, May I suggest you search the archives as this was discussed relatively recently. Jenny had some helpful things to say from the processing end. I...
Greetings! OK, so now that the warning is in place.... In July, I went to see an endocrinologist who said he would make some inquiries about DD with various...
Hi, I am praying that you are safe. Hope you are well out of the way of the impending Frances. I'm sure we will all keep you in our hearts and in our prayers....
The dermatologist here in town, Dr. Twersky, to whom I had referred a woman in my aquatherapy group (this woman has identical symptoms to mine!) told the woman...
Did Dr. Twersky even examine Sandy? It isn't as if there aren't physical signs of Dercum's - the abnormal fat that makes lumps and deposits in areas that...
Yes, Dr. Twersky did examine Sandy. She has the typical lumps and abnormal fat, fatigue, all the "classic" symptoms. She has been to 11 doctors, even had...
Dear Judi, Dr. Twersky is a twit! I had to put that in print because it is the only thing in my mind right now! How unfair of her to dismiss an obviously ...
Greetings! I had a very good appointment with my rheumatologist, Dr. Dhar, today. She moved to Henry Ford Hospital from the Detroit Medical Center over the...
How totally unfair of this doctor...:-((((( Just because you live in the same town means nothing....DD is so often either misdiagnosed or put aside ..that...
Dora, I'll be interested (as we all will) to hear how the remicade works. Sandy, the woman whom Dr. T refused to diagnose, has been taking methotrexate which...
Dora, I am going to send you an email that I received last night...please read it and let me know your opinion....it sounds logical in a way, but also a bit...
Hi Guys, I have not been online for a while as I have had a DD melt down. I
know I probaably overdid the 'holiday' bit but I feel that it was going to
happen...
Good grief! I think that your aqauatics buddy should go see someone with a brain. Clearly the doctor you made the referral to doesn't have one. Hugs Jenny...
Hi all, I'm around just super busy. Dora had emailed me some recent stuff about mitochondria and Madelungs and DD and the lack of success in people with DD who...
Welcome back Teddy. Wonderful news that you do not have any new growths.. Please know that I am thinking of you...and hoping that you are able to control that...
Hi Jenni Not to sound rude, but has anyone ever suggested that DD and Madelungs were the same (or closely realted)? I can't remember ever reading that. Glad...
Hello Jenny, you have been very busy doing lots of reseach haven, t you. May I just offer my thoughts to this for you. Must admit I have never thought that...
Dear Dorrit, In case Jenny does not get back here right away, the discussions did not take place on this list. Some of us involved in chats and private e-mails...
Hi Dorrit, Several articles have suggested that DD and Madelungs might be different manifestations of the same thing, usually the folks that are trying to...
Hi all. I'm new here and need some help. Does anyone know of a doctor who diagnoses or knows anything about Dercum's in the Washington, DC metro area? That...
Thank you both of you for your answers. Now I can understand why I never heard the beginning of that as it seems to have taken place in another forum. Jenni,...
Hello good people, Just thought I'd drop in and say hi--have been really tired & draggy the past week, can't seem to get off the couch or out of bed. I've ...
Hi ! All I find myself again woundering why me 43 year old male and 180 lbs what did I do to have to put up with the pain and suffering that I do every day. Is...
Hello Everyone, I am happy to report that Hurricane Frances didn't do much damage to our home, other than ripping off the gutters, but our lovely yard was ...
Hooray!!! There you are!!! I have emailed you at your private email and got no response. I am soooo glad you are okay. Ready to move up north yet? Love and...
Greetings! I will find out when I will start the Remicade infusions tomorrow. In order to document what happens to the DD tumors after I begin my infusions, I...
Hello Rick, I read your post today and I felt such a connection. Those words of yours
are so like all of ours at sometime,the only difference is the name of...
Hi Rick, I think all of us, whether we have Dercum's, cancer, whatever, feel the same way--why me, or what did I do...but we never know what sort of challenges...
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