Hi Everyone, Just stopped by to read posts and check in. I'm still on the Pancreatin enzymes, still doing really well! My Madelungs masses are receding and my...
for some reason I have had problems with mails from the group. My VET has
been bouncing them. Seems all right now. I am going to bed now I have not
got one...
for some reason I have had problems with mails from the group. My VET has
been bouncing them. Seems all right now. I am going to bed now I have not
got one...
... medicine ... been ... Dear Jenny, I just tried searching "angiolipomatosis" and, although I usually understand most medical terminology, I couldn't make...
Hey Everyone! Went back to the pain clinic today and saw another doctor. I struck first and brought up the weight issue before he could chime in, so I took...
Dear Carole, Brava! Good job, taking control as you did. I hope the new meds help. I saw my neurologist today and got a prescription for Neurontin (gabapentin...
Wonderful news! It's about time something went your way! Let's hope that this is an upturn for the group all around. If I may ask, why particularly have you...
Hi Ladies, Sounds like you are finally getting the help you so richly deserve! Thanks for mentioning the Interferon problems. Maybe it wouldn't react with...
Gosh, I hate it that you are feeling so lousy, especially when I am feeling better! I want everyone to feel better and find some relief. This new med is a...
Carole, Please tell me the exact name of you stuff you are taking, and where you get it. I'd like to maybe try it. Judi ... pain ... everyone ... I ... can...
... Hi Carole, Thank you. It is good to be feeling better. I'm not around as much as before since I somewhat have my life back, but I will remain in touch with...
Hi Bunny, I'm sorry to hear that doctors you dealt with were so ignorant that they probably scared you half to death with gloom and doom predictions over the...
Hi Jenny, Guess I should have been more specific--I know about the Duragesic patches, I meant the pancreatin enzymes! Did you find those yourself, and where...
Hi Carole, My name is Jeannie and I am new to the group. I don't know how to send a message to everyone. I have had DD for 3 years, actually I think it...
Hi Jeannie, Welcome to the group! You did indeed send a message to the whole group, and we're glad to have you with us. I'm interested in the Avinza, and...
Hi Ellen, Yes, it was Drs. Kerblonzer who knew what I had at the presentation. what do they think you have if now DD. I'm so excited to ask about Orap....
I know not everyone with DD is overweight, and that losing weight is said to have little or no effect on Dercum's, but at the suggestion of my brother, who is...
If any of you are members of Costco, you might want to look into their Medical Savings Card. Go to: http://www.agelesscare.com/costco/frameset.asp to check it...
Miriam, I haven't tried any of those, but did stick to a strict 1500 calorie diet, low fat, no sugar, no flour, just stuff that grows--meat, fish, poultry,...
Hi Jeannie, The Durgesic patches are also morphine based and they are working wonderfully for me. The second day, I had a lot of nausea and felt drugged, but...
Generic Name: MORPHINE (MOR-feen) Drug Manufacturer: LIGAND PHARMACEUTICALS Common Uses: This medicine is a narcotic analgesic used to treat or prevent...
Hi Judi, Why and how the Pancreatin Enzymes work doesn't seem to be well understood. I initially thought of trying them after reading about protease inhibitor...
Jenny, Did he say what might happen (outcome wouldn't be good) if the lipomas are attached to veins. This kind of worries me because I am scheduled for...
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