Suzi Sorry that I haven't replied sooner but I haven't been up to doing anything. Sorry about your friend. Seems like she had a hard life also. Poor...
A little late but I do have to answer this. At first I thought it was medications. My doctor said he does not believe so. Then I went into the hospital...
Howdy Carole, I planned to answer this yesterday or last night but you know how it goes. I have had the same feeling of muscle fatigue, numbness and tremors....
Mine are locking in comeplete charlie horse arms and legs I can't mov pain is horrible even next day very eweak Sent from my BlackBerry smartphone with...
I am sorry to hear this story, it's a shame. I am o glad I have compassionate and caring Doctors. I suffer in pain on a daily basis. lucky for me I am able to...
Hi suzann I tried to get an appointment with Dr. Campen but she was not seeing new patients, then I asked for a colleguea who new something about Dercum's but...
Hey group It always happens. I want to post, but my brain feels mixed up and scattered. But here goes. About muscles...me too. I use to power walk. That...
I am so happy for you Will I -Am that you can get up and walk up across the room! However, I feel that your message was to tell the folks here that it they...
Dear posters, I went to check my other email address and found that the "My Life" people (similar to MySpace, Facebook) sent me an invite from "Suzi More" so I...
This is long as usual: I just read through the latest thread about wheel chairs, making estimations about being able to walk across a floor and pains up and...
Teri, Good luck on your biopsy! I have been there and done that, and mine was benign, thank God. Please let us know what you find out. Hugs and spoons, pamela ...
Suzi, The same thing happened to me last year on one of those sites. I can't even recall which one it was, but it automatically sent an invitation to everyone...
Thanks,as I said, I hardly even send forwarded stuff because I don't want to spend my life at this web address reading mail I might not even want. Suzi ...
Elaine, What I know is that Dr. Campen travels to Boston I believe once a month only. And she had many DD patients at the time when I saw her years ago. I...
Hi Teri, You are welcome! But you deserve the thank you from all of us that you took the steps to secure your health and continued to push to have these lumps...
Hi Suzi, Don't worry - many of us are learning to use these sites ourselves. I sent out recommendations for friends for Pamela on FaceBook and don't know how...
If u are facebook they send u a request to be someones friend u can ignore it or befriend it. They also tell u like if befriend suzannn and she excepts they...
Oh so you didn't know it? Hmmmm - guess I should have kept my mouth shut!!!! LOL No I thought I sent you a message on FaceBook that explained what I had...
Thank you Barbara - that must be how it happened then. I must have accepted something from someone, and then my list went up and matched Pam with my friends?...
Hi elaine and Suzann the dr tht I went to at mgh was dr Henry Mankin who also was part of tht article however sorry to say he has retired since. He was an...
Hi Elaine, You have really made a good and noble effort here and your heart is definitely in the right place, but I have a couple of concerns. There is a need...
hi CAROL IUNDERSTAND, IWANTED TO PROVIDE INFORMATION THAT WAS CORRECT INTERNAL MEDICINE WHERE i WORK WOULD LIKE TO READ ABOUT DERCUMS. iT IS ONE WAY TO GET THE...
Elaine, You might want to direct them to Dr. Herbst's website, since she is the only doctor in the U.S. who is researching the disease. The address is: ...
Hi All I found out yesterday that the parathyroid is fine. No tumor. I think I may end up taking some type of synthetic thyroid. I was able read the text for...
Teri, I'm so happy to hear that all is ok with your thyroid and that there are no tumors! Well at least no thyroid tumors, but that doesn't rule out DD lipomas...
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