I came across this in my research and found the article very
interesting.

http://www.cnn.com/2007/HEALTH/06/21/pain.remedies/index.html

When I went to the bariatric clinic they gave me HGH injections once
a week around my navel.  I really felt good.  The only problem I
could see is that when I went off the shot I have been in the worst
flare of my life.  I don't know if it was all the meds they gave me
(phentermine, oil caps, ect..)I loved the way I felt I just wasn't
losing weight to account for the cost of the treatments so I
stopped.  I did lose weight though. I lost almost 15 lbs.  They all
came back after I stopped taking the treatments.

Christine


--- In Dercums_Disease@yahoogroups.com, "frincess51" <frincess51@...>
wrote:
>
> Hi Angelique,
> My name is Carole and I am also HGH deficient.  I took HGH for
quite
> a few months and it did help with my Dercum's symptoms.  I slept
> better, had less pain, less fatigue, more stamina and was able to
> lose a bit of weight.  It is important to have a doctor familiar
with
> administering HGH therapy because there can be rather severe
> complications if the dose is too high.  It is best to titrate the
> dose upward slowly and let your body adjust.  I did have some joint
> pain for a week or so, but it was bearable and my experience was
> generally very positive.  I am also diabetic and had to stop HGH
> because I could not control my blood sugar.  It is worth a try in
my
> view, especially if you have a good doctor for support.  Hope this
> helps.
> Take care,
> Carole
>
> --- In Dercums_Disease@yahoogroups.com, "AdL" <kolaasen@> wrote:
> >
> > Dear Joyce:
> >
> > Thank you so much for your reply! I am completely new to
> > IGF-1...is it used to treat menopausal symptoms? I am not in
> > menopause yet, but my doctor discovered I was quite low on IGF-1,
> > and we have read studies that it can help with Chronic Fatigue
> > Syndrome symptoms, which I have in addition to (suspected)
> > Dercum's. We are still in the diagnosis stage for Dercum's, but
> > my doctor and I are feeling fairly certain that I do have
> > Dercum's. We thought perhaps IGF-1 would help with Dercum's
> > symptoms, as well, (I hope, I hope) because Dr. Karen mentioned
> > it on her recommendations page.
> >
> > I, too, have hypothyroidism, so I will take that into
> > consideration, thanks! I will keep the Effector in mind for the
> > future, too. I am so happy for you that you found something that
> > works for you. :-) Have a lovely day, Joyce!
> >
> > Very Truly Yours,
> > Angelique
> >
> >   _____
> >
> > From: Dercums_Disease@yahoogroups.com
> > [mailto:Dercums_Disease@yahoogroups.com] On Behalf Of Joyce White
> > Sent: Wednesday, January 28, 2009 12:19 PM
> > To: dercums_disease@yahoogroups.com
> > Subject: RE: [Dercums_Disease] For Dr. Karen Herbst — IGF-1
> > Deficiency Questions
> >
> >
> >
> > My Dr. told me that I can't take any type of hormone replacement,
> > natural, or otherwise. I had a total hysterectomy and I also have
> > blood clotting Factor V Lieden.
> > For my symptoms, such as getting hot flashes, warm, and emotions
> > he gave me Effector saying that is one thing they find helps for
> > those who can't take hormone replacement. It has worked for me.
> > I also have a hypothyroidism and was told the natural hormone
> > could mess up that....hope this helps.
> > Joyce
> >
> >
> >
> >
> >
> >
> >
> >
> >   _____
> >
> >
> > To: Dercums_Disease@yahoogroups.com
> > From: kolaasen@
> > Date: Wed, 28 Jan 2009 07:58:05 +0000
> > Subject: [Dercums_Disease] For Dr. Karen Herbst — IGF-1
> > Deficiency Questions
> >
> >
> >
> > Dear Dr. Karen & Dercum's Group: (Warning: Long Post)
> >
> > I am new to both Dercum's and this forum (I must confess, I have
> > been lurking for a couple months (keep me anyway??)), and I am
> > grateful to everyone who has shared with the group, because I
> > have certainly learned a lot in those two months. Thank you all!
> >
> > My doctor asked me to forward some questions to you, Dr. Karen,
> > regarding IGF-1 deficiency. Here is my relevant background
> > information, in brief (I hope!):
> >
> > I first became sick with CFIDS in 1987 (age 20), and was finally
> > diagnosed in 1992. I discovered my first painful lipoma (right
> > forearm) in 1991, which was dismissed as a benign lipoma that was
> > NOT painful. (Funny, it still SEEMED to hurt ;-) ) My acute phase
> > of CFIDS lasted until approximately 1996, at which point I was
> > able to function at a more normal level, meaning I no longer
> > slept 20 hours a day, and the fevers, sore throats, swollen
> > glands, etc. were no longer the norm. I returned to work in 1999,
> > and at the same time I indulged in an exercise binge (meaning 3
> > to 4 hours, including both aerobic and weights). At the time, I
> > noticed veins popping out on my arms and legs, but it was not
> > until years later that I realized the veins were pushed out by
> > lipomas that formed under the veins. More recently, in 2006, I
> > succumbed to another exercise binge (only 2 hours a day), and
> > that is when my lipomas really began to proliferate.
> > Concomitantly, I began to have unexplained, and still
> > uncontrolled, tachycardia and dyspnea. I have not recovered from
> > the illness brought on at that time, which I now believe to be
> > Dercum's.
> >
> > Following your testing protocols, most of my labs returned within
> > the normal range except for aluminum, which was slightly elevated
> > (normal for my lab: <7 mcg/L, my result: 8 mcg/L), and quite low
> > IGF-1 (normal for my lab: 112-296 ng/mL, my results: (1st) 63
> > ng/mL, (2nd) 59 ng/mL) Our questions regarding the IGF-1 are:
> >
> > 1.
> >
> >  How does IGF-1 deficiency interact with or affect
> > Dercum's? Is it causative? Is it a resultive? Unrelated?
> > 2.
> >
> >  Do you recommend treatment of IGF-1 deficiency?
> > 3.
> >
> >  If so, under what conditions do you advocate treatment?
> > How low should the IGF-1 be? Do you look for certain symptoms to
> > treat?
> > 4.
> >
> >  If so, do you treat with Growth Hormone, Insulin-like
> > Growth Factor, or something else?
> > 5.
> >
> >  Are there situations during which one should definitely
> > NOT treat IGF-1 deficiency?
> > 6.
> >
> >  What are the risks associated with GH or IGF treatment?
> > 7.
> >
> >  Is treatment even possible? My doctor is under the
> > impression that GH/IGF-1 is illegal in the U.S., but I am not
> > finding confirmation of that on the Internet.
> >
> > To the rest of the list, please feel free to share any
> > information or experiences you have with IGF-1. I appreciate all
> > input. And thanks for giving me the opportunity to ask these
> > questions. Have a lovely day!
> >
> > Very Truly Yours,
> > Angelique
> >
> > He has made everything beautiful in its time. Ecclesiastes 3:11
> > .
> >
> > <http://geo.yahoo.com/serv?s=97359714/grpId=1371922/grpspId=17050
> > 61589/msgId=27232/stime=1233170356/nc1=4025373/nc2=5202317/nc3=51
> > 70417>
> >
>

Hi Angelique,
My name is Carole and I am also HGH deficient.  I took HGH for quite
a few months and it did help with my Dercum's symptoms.  I slept
better, had less pain, less fatigue, more stamina and was able to
lose a bit of weight.  It is important to have a doctor familiar with
administering HGH therapy because there can be rather severe
complications if the dose is too high.  It is best to titrate the
dose upward slowly and let your body adjust.  I did have some joint
pain for a week or so, but it was bearable and my experience was
generally very positive.  I am also diabetic and had to stop HGH
because I could not control my blood sugar.  It is worth a try in my
view, especially if you have a good doctor for support.  Hope this
helps.
Take care,
Carole

--- In Dercums_Disease@yahoogroups.com, "AdL" <kolaasen@...> wrote:
>
> Dear Joyce:
>
> Thank you so much for your reply! I am completely new to
> IGF-1...is it used to treat menopausal symptoms? I am not in
> menopause yet, but my doctor discovered I was quite low on IGF-1,
> and we have read studies that it can help with Chronic Fatigue
> Syndrome symptoms, which I have in addition to (suspected)
> Dercum's. We are still in the diagnosis stage for Dercum's, but
> my doctor and I are feeling fairly certain that I do have
> Dercum's. We thought perhaps IGF-1 would help with Dercum's
> symptoms, as well, (I hope, I hope) because Dr. Karen mentioned
> it on her recommendations page.
>
> I, too, have hypothyroidism, so I will take that into
> consideration, thanks! I will keep the Effector in mind for the
> future, too. I am so happy for you that you found something that
> works for you. :-) Have a lovely day, Joyce!
>
> Very Truly Yours,
> Angelique
>
>   _____
>
> From: Dercums_Disease@yahoogroups.com
> [mailto:Dercums_Disease@yahoogroups.com] On Behalf Of Joyce White
> Sent: Wednesday, January 28, 2009 12:19 PM
> To: dercums_disease@yahoogroups.com
> Subject: RE: [Dercums_Disease] For Dr. Karen Herbst — IGF-1
> Deficiency Questions
>
>
>
> My Dr. told me that I can't take any type of hormone replacement,
> natural, or otherwise. I had a total hysterectomy and I also have
> blood clotting Factor V Lieden.
> For my symptoms, such as getting hot flashes, warm, and emotions
> he gave me Effector saying that is one thing they find helps for
> those who can't take hormone replacement. It has worked for me.
> I also have a hypothyroidism and was told the natural hormone
> could mess up that....hope this helps.
> Joyce
>
>
>
>
>
>
>
>
>   _____
>
>
> To: Dercums_Disease@yahoogroups.com
> From: kolaasen@...
> Date: Wed, 28 Jan 2009 07:58:05 +0000
> Subject: [Dercums_Disease] For Dr. Karen Herbst — IGF-1
> Deficiency Questions
>
>
>
> Dear Dr. Karen & Dercum's Group: (Warning: Long Post)
>
> I am new to both Dercum's and this forum (I must confess, I have
> been lurking for a couple months (keep me anyway??)), and I am
> grateful to everyone who has shared with the group, because I
> have certainly learned a lot in those two months. Thank you all!
>
> My doctor asked me to forward some questions to you, Dr. Karen,
> regarding IGF-1 deficiency. Here is my relevant background
> information, in brief (I hope!):
>
> I first became sick with CFIDS in 1987 (age 20), and was finally
> diagnosed in 1992. I discovered my first painful lipoma (right
> forearm) in 1991, which was dismissed as a benign lipoma that was
> NOT painful. (Funny, it still SEEMED to hurt ;-) ) My acute phase
> of CFIDS lasted until approximately 1996, at which point I was
> able to function at a more normal level, meaning I no longer
> slept 20 hours a day, and the fevers, sore throats, swollen
> glands, etc. were no longer the norm. I returned to work in 1999,
> and at the same time I indulged in an exercise binge (meaning 3
> to 4 hours, including both aerobic and weights). At the time, I
> noticed veins popping out on my arms and legs, but it was not
> until years later that I realized the veins were pushed out by
> lipomas that formed under the veins. More recently, in 2006, I
> succumbed to another exercise binge (only 2 hours a day), and
> that is when my lipomas really began to proliferate.
> Concomitantly, I began to have unexplained, and still
> uncontrolled, tachycardia and dyspnea. I have not recovered from
> the illness brought on at that time, which I now believe to be
> Dercum's.
>
> Following your testing protocols, most of my labs returned within
> the normal range except for aluminum, which was slightly elevated
> (normal for my lab: <7 mcg/L, my result: 8 mcg/L), and quite low
> IGF-1 (normal for my lab: 112-296 ng/mL, my results: (1st) 63
> ng/mL, (2nd) 59 ng/mL) Our questions regarding the IGF-1 are:
>
> 1.
>
>  How does IGF-1 deficiency interact with or affect
> Dercum's? Is it causative? Is it a resultive? Unrelated?
> 2.
>
>  Do you recommend treatment of IGF-1 deficiency?
> 3.
>
>  If so, under what conditions do you advocate treatment?
> How low should the IGF-1 be? Do you look for certain symptoms to
> treat?
> 4.
>
>  If so, do you treat with Growth Hormone, Insulin-like
> Growth Factor, or something else?
> 5.
>
>  Are there situations during which one should definitely
> NOT treat IGF-1 deficiency?
> 6.
>
>  What are the risks associated with GH or IGF treatment?
> 7.
>
>  Is treatment even possible? My doctor is under the
> impression that GH/IGF-1 is illegal in the U.S., but I am not
> finding confirmation of that on the Internet.
>
> To the rest of the list, please feel free to share any
> information or experiences you have with IGF-1. I appreciate all
> input. And thanks for giving me the opportunity to ask these
> questions. Have a lovely day!
>
> Very Truly Yours,
> Angelique
>
> He has made everything beautiful in its time. Ecclesiastes 3:11
> .
>
> <http://geo.yahoo.com/serv?s=97359714/grpId=1371922/grpspId=17050
> 61589/msgId=27232/stime=1233170356/nc1=4025373/nc2=5202317/nc3=51
> 70417>
>

I read this poem years ago in school.  I smiled when I just ran
across it online.  I loved this poem as a teenager and just wanted to
share.


Where the Sidewalk Ends
by Shel Silverstein

There is a place where the sidewalk ends
And before the street begins,
And there the grass grows soft and white,
And there the sun burns crimson bright,
And there the moon-bird rests from his flight
To cool in the peppermint wind.

Let us leave this place where the smoke blows black
And the dark street winds and bends.
Past the pits where the asphalt flowers grow
We shall walk with a walk that is measured and slow,
And watch where the chalk-white arrows go
To the place where the sidewalk ends.

Yes we'll walk with a walk that is measured and slow,
And we'll go where the chalk-white arrows go,
For the children, they mark, and the children, they know
The place where the sidewalk ends.

I hope you enjoyed,
Christine

I first became sick with CFIDS in 1987 (age 20), and was finally diagnosed in 1992. I discovered my first painful lipoma (right forearm) in 1991, which was dismissed as a benign lipoma that was NOT painful. (Funny, it still SEEMED to hurt ;-) ) My acute phase of CFIDS lasted until approximately 1996, at which point I was able to function at a more normal level, meaning I no longer slept 20 hours a day, and the fevers, sore throats, swollen glands, etc. were no longer the norm. I returned to work in 1999, and at the same time I indulged in an exercise binge (meaning 3 to 4 hours, including both aerobic and weights). At the time, I noticed veins popping out on my arms and legs, but it was not until years later that I realized the veins were pushed out by lipomas that formed under the veins. More recently, in 2006, I succumbed to another exercise binge (only 2 hours a day), and that is when my lipomas really began to proliferate. Concomitantly, I began to have unexplained, and still uncontrolled, tachycardia and dyspnea. I have not recovered from the illness brought on at that time, which I now believe to be Dercum's.

 

Following your testing protocols, most of my labs returned within the normal range except for aluminum, which was slightly elevated (normal for my lab: <7 mcg/L, my result: 8 mcg/L), and quite low IGF-1 (normal for my lab: 112-296 ng/mL, my results: (1st) 63 ng/mL, (2nd) 59 ng/mL) Our questions regarding the IGF-1 are:

1. How does IGF-1 deficiency interact with or affect Dercum's? Is it causative? Is it a resultive? Unrelated?
2. Do you recommend treatment of IGF-1 deficiency?
3. If so, under what conditions do you advocate treatment? How low should the IGF-1 be? Do you look for certain symptoms to treat?
4. If so, do you treat with Growth Hormone, Insulin-like Growth Factor, or something else?
5. Are there situations during which one should definitely NOT treat IGF-1 deficiency?
6. What are the risks associated with GH or IGF treatment?
7. Is treatment even possible? My doctor is under the impression that GH/IGF-1 is illegal in the U.S., but I am not finding confirmation of that on the Internet.

I first became sick with CFIDS in 1987 (age 20), and was finally diagnosed in 1992. I discovered my first painful lipoma (right forearm) in 1991, which was dismissed as a benign lipoma that was NOT painful. (Funny, it still SEEMED to hurt ;-) ) My acute phase of CFIDS lasted until approximately 1996, at which point I was able to function at a more normal level, meaning I no longer slept 20 hours a day, and the fevers, sore throats, swollen glands, etc. were no longer the norm. I returned to work in 1999, and at the same time I indulged in an exercise binge (meaning 3 to 4 hours, including both aerobic and weights). At the time, I noticed veins popping out on my arms and legs, but it was not until years later that I realized the veins were pushed out by lipomas that formed under the veins. More recently, in 2006, I succumbed to another exercise binge (only 2 hours a day), and that is when my lipomas really began to proliferate. Concomitantly, I began to have unexplained, and still uncontrolled, tachycardia and dyspnea. I have not recovered from the illness brought on at that time, which I now believe to be Dercum's.

 

Following your testing protocols, most of my labs returned within the normal range except for aluminum, which was slightly elevated (normal for my lab: <7 mcg/L, my result: 8 mcg/L), and quite low IGF-1 (normal for my lab: 112-296 ng/mL, my results: (1st) 63 ng/mL, (2nd) 59 ng/mL) Our questions regarding the IGF-1 are:

1. How does IGF-1 deficiency interact with or affect Dercum's? Is it causative? Is it a resultive? Unrelated?
2. Do you recommend treatment of IGF-1 deficiency?
3. If so, under what conditions do you advocate treatment? How low should the IGF-1 be? Do you look for certain symptoms to treat?
4. If so, do you treat with Growth Hormone, Insulin-like Growth Factor, or something else?
5. Are there situations during which one should definitely NOT treat IGF-1 deficiency?
6. What are the risks associated with GH or IGF treatment?
7. Is treatment even possible? My doctor is under the impression that GH/IGF-1 is illegal in the U.S., but I am not finding confirmation of that on the Internet.

Sherry, did you get my response?

Veronica

---

To: Dercums_Disease@yahoogroups.com
From: shefox908@yahoo.com
Date: Tue, 27 Jan 2009 09:52:38 -0800
Subject: Re: [Dercums_Disease] Beating DD by staying positive. Facilitating Change

Dear veronica,

 

It seems like you are taking a hell of a bashing in regards to your positive outlook and your description of your Dercums not being like the rest of ours--I believe. If you wrer dx'd with DD, then I do believe you have it. When you tell us that your DD seem's to be in some type of remission for some lengthly time now, I believe you. It pisses me off , but it is what it is. I would like to tell you thet you do not piss me off and that I am very glad for you and I hope that you stay in "renmmission" for as long as possible.

 

Actually I think that it is a very good thing fore DR K to know that "some" people can go into remmission like you, while others simply go down, down, down. To me it seems like Dr K would really want to study you the most to see what it is about you genically or otherwise that DD is not as destructive as it usually is. I know that you are a positive person, And that is great, but I,ve studied human genetics and believe that your genitic makeup is allowing your DD to not ravish you. Plesse try to understand those of us who might have a hard time wondering why they are not like you--I must admit that I am one of them.

 

Veronica, I recently went to the Human Society in my area which was bombarded due to the new arrival of  40 plus cats that were swiftly removed from an old lady's home in Akron when neighbors called the authorities about the stench. She told the press and the authrities that she was only taking in stray cats to feed and shelter them but they kept on breeding and she had no money to have them fixed. So the media was pleading to the public to go there and adopt a cat as the facility was way, way, over it's capicity since prior to the arrival of the 40 something cats new kittens, they were already over their animal capicity. So I went there and adopted one young male and two kittens--one male, one female. Well they all ended up having the same contagious disease which is common with cats and the is the herpes virus. I have had all three in the vets office two of them more than oncefor the same thing herpes. With cats the herpes virus is a respitory ailment,it's not like herpes in humans. Well from the very beginning, the vet told me that he wa most concerned about the female kitten the most. The oldest cat maybe 1 yr, I guess is in remission. The two younger kittens are the sickest, though the male kitten is far better from the female. It looks like I may loose the female, which sadens me very, very much. My point here is that we are all different, and we are all being diminished by this DD differently than others.

 

Veronica, I hope that all of the negativity you have received lately does not stress you to the point where you might come out of this remission. Take advatage lady because you never know when this ugly beast may greet you one morning when it's making it's rounds.

 

Take Care,

 

Sherry

veronica bojerski <veronika117@msn.com> wrote:

I work with my counseling client's to assist them in facilitating their own change and healing. In order to heal it is imperative for an individual to believe that change is possible. I hope that the following may be helpful to you.
 
I believe that the ingredients to a successful process of CHANGE are : stepping out of my comfort zone...realizing that the risk to not making changes is greater than the risk of changing...utilizing goals to inspire me to keep moving forward in any area...being creative...having dedication...my faith...new attitudes and new habits towards skills and knowledge required...independance...willingness to be different/alone...focusing on positives/imagining what I want...consciously liking and respecting myself...recognizing that mistakes are stepping stones to achievement...remembering that life is a journey to be embraced one day at a time...

Veronica

---

To: Dercums_Disease@yahoogroups.com
From: yankeestovall@aol.com
Date: Sat, 24 Jan 2009 12:10:43 -0500
Subject: Re: [Dercums_Disease] Re: Beating DD by staying positive? No....

Amen, Judi and Will!

 

In a message dated 1/23/2009 11:46:04 Eastern Standard Time, nonny46@yahoo.com writes:

VERY well said, Will! I'm all for being positive, as you know by now,
but all the positivity in the world will not change the cold hard
facts, that I have Dercum's, and (at this point in time) there is no
cure. OK, so I live with it and try not to become buried by it. True,
there are documented "miracles" where people have been healed of
diseases, but as my faith isn't quite up to that, I'll be happy
muddling along with my brothers and sisters here until something comes
along!

Judi

---

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

---

Windows Live™ Hotmail®…more than just e-mail. See how it works.

---

Windows Live™: E-mail. Chat. Share. Get more ways to connect. Check it out.

I'm a bit confused.  If you are posting on a Dercum's support group
then why would it be a problem admitting you have the disease?  If you
don't, then I am really confused as to why you would even be here.
Those of us who have Dercum's freely discuss the symptoms we share and
through that come to understand we are not alone in our suffering,
which gives us positive validation. I understand the positive thinking
theory from my own uses of it, but realistically it doesn't change the
physical manifestations of the disease, only my ability to cope with it.
I also understand privacy issues, however,I am not interested in
knowing all of your personal information. But surely you realize, just
by the fact that you post, here leads one to believe that you could
have the disease..you know, the old guilt by association thing.  You
can click on my group name and email me privately.  It won't be posted
to the group, FYI. Just curious to know if you do in fact have Dercum's
how you have managed to overcome the physical aspects that the rest of
us who remain positive, eat correctly and do whatever possible to
maintain some semblance of our previous life have been unable to do.
Take care,
Carole

--- In Dercums_Disease@yahoogroups.com, veronica bojerski
<veronika117@...> wrote:
>
>
> I would be more than happy to discuss my experience with you outside
of the forum/through personal email.  I am much more discerning about
the amount of personal information that I put out for the general
public to read due to my career and family life.  You can email another
address for me to contact you if you like...
>
> http://windowslive.com/explore?
ocid=TXT_TAGLM_WL_t2_allup_explore_012009
>

I work with my counseling client's to assist them in facilitating their own change and healing. In order to heal it is imperative for an individual to believe that change is possible. I hope that the following may be helpful to you.
 
I believe that the ingredients to a successful process of CHANGE are : stepping out of my comfort zone...realizing that the risk to not making changes is greater than the risk of changing...utilizing goals to inspire me to keep moving forward in any area...being creative...having dedication...my faith...new attitudes and new habits towards skills and knowledge required...independance...willingness to be different/alone...focusing on positives/imagining what I want...consciously liking and respecting myself...recognizing that mistakes are stepping stones to achievement...remembering that life is a journey to be embraced one day at a time...

Veronica

---

To: Dercums_Disease@yahoogroups.com
From: yankeestovall@aol.com
Date: Sat, 24 Jan 2009 12:10:43 -0500
Subject: Re: [Dercums_Disease] Re: Beating DD by staying positive? No....

Amen, Judi and Will!

 

In a message dated 1/23/2009 11:46:04 Eastern Standard Time, nonny46@yahoo.com writes:

VERY well said, Will! I'm all for being positive, as you know by now,
but all the positivity in the world will not change the cold hard
facts, that I have Dercum's, and (at this point in time) there is no
cure. OK, so I live with it and try not to become buried by it. True,
there are documented "miracles" where people have been healed of
diseases, but as my faith isn't quite up to that, I'll be happy
muddling along with my brothers and sisters here until something comes
along!

Judi

---

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

---

Windows Live™ Hotmail®…more than just e-mail. See how it works.

Hi Veronica,
I have one simple question for you.  Do you have a definitive
diagnosis of Dercum's Disease?  It would help me understand more to
know.
Thanks,
Carole

--- In Dercums_Disease@yahoogroups.com, veronica bojerski
<veronika117@...> wrote:
>
>
> My encouragement for others has been misinterpretated by a few or I
did not convey my thoughts in a readable manner...  I was sharing
some of my journaling.
> Here I am talking about emotional well being and keeping our minds
and hearts open for positive energy and healing to occur in a
physical way...
>
> I am ONLY referring to hope.  I have the utmost feelings of empathy
for being given this "life sentence".  I am sorry that your life and
daily activities has been taken from you.  I am sorry that there is
no cure and there is no remission. I do believe that this may change
in the future and that EACH person with DD may manifest their
symptoms and course of illness differently from another person.
>
> Please forgive me if any way that I conveyed SIMPLE.  I am "simply"
attempting to offer another side of the coin because it is what I
look for and have looked for and know that what others are looking
for when feeling despondent. Writing in this manner (such as in an
email) leaves some things lost.
>
> I do not want you or anyone to have to HAVE to feel hopeless and
overwhelmed.
> I know that some days it is or seems impossible. I know all too
well about the loss of hope and ultimately the loss of life or life
as we had known it to be.   I only share my thoughts with the best of
intentions.
>
>
> http://www.windowslive-
hotmail.com/learnmore/versatility.aspx#mobile?
ocid=TXT_TAGHM_WL_HM_versatility_121208
>

Hi all

I am very curious as to how DD may be related to hormone imbalance,
particulary testosterone, but not limited to testosterone.  When I say
hormone imbalance, I do not mean when they tell you that your hormones
are within "normal range".  I mean on an individual basis how hormone
imbalance may contribute to dibilitating physical symtoms including
cognative/emotional funtions.

Hugs all around

Teri


--- In Dercums_Disease@yahoogroups.com, Fabric100@... wrote:
>
> Thought of another one or two!
>
> 1. Please explain the difference between and how to examine an
encapsulated vs. 'nonencapsulated' lipoma.
>
> 2. What have you found to be the most effective pain control measures?
>
> I think that is it. (at least for now)
>
> Anne
>

I work with my counseling client's to assist them in facilitating their own change and healing. In order to heal it is imperative for an individual to believe that change is possible. I hope that the following may be helpful to you.
 
I believe that the ingredients to a successful process of CHANGE are : stepping out of my comfort zone...realizing that the risk to not making changes is greater than the risk of changing...utilizing goals to inspire me to keep moving forward in any area...being creative...having dedication...my faith...new attitudes and new habits towards skills and knowledge required...independance...willingness to be different/alone...focusing on positives/imagining what I want...consciously liking and respecting myself...recognizing that mistakes are stepping stones to achievement...remembering that life is a journey to be embraced one day at a time...

Veronica

---

To: Dercums_Disease@yahoogroups.com
From: yankeestovall@aol.com
Date: Sat, 24 Jan 2009 12:10:43 -0500
Subject: Re: [Dercums_Disease] Re: Beating DD by staying positive? No....

Amen, Judi and Will!

 

In a message dated 1/23/2009 11:46:04 Eastern Standard Time, nonny46@yahoo.com writes:

VERY well said, Will! I'm all for being positive, as you know by now,
but all the positivity in the world will not change the cold hard
facts, that I have Dercum's, and (at this point in time) there is no
cure. OK, so I live with it and try not to become buried by it. True,
there are documented "miracles" where people have been healed of
diseases, but as my faith isn't quite up to that, I'll be happy
muddling along with my brothers and sisters here until something comes
along!

Judi

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