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Dercums_Disease@yahoo...
Nov 1, 2008 7:28 am
26755
I want to thank you all, for all your kind and inspiring words. I want to the lipomadoc.org web site and printed Dr. Karen Herbst's recommendations. I have...
Brenda, I am truly so very sorry. Is there any way you can see Dr Herbst? I knew that I had to have a believable diagnosis from an expert to get help. My...
Oh Brenda, I feel so upset inside for you. As I was reading your letter I just started to cry and then I started to get mad. I am so sorry that you are...
Dear Brenda, Please do go to lipomadoc.org and read Dr. H's recommendations.? Many, many of them are non-prescription and have helped many people.? For me, the...
Hi Brenda, I'm so sorry you have been going through so much! I agree with Suzanne. In fact, she put it so well, I have very little to add. I have to do without...
Hi Brenda, Yes you do sound like the depression is taking a hold, and no wonder! You aren't alone, we all feel the same things you are feeling from time to...
The fat you describe may also be lipedema, as that can hurt as well. However, DD has lipedema as well and Dr. Brorson thinks they may be related. ... The fat...
Hi Everyone, I haven't posted for a couple years, although I visited the group from time to time hoping I'd find some miracle treatment information. It's been...
Oh Vickie, your body does not look bad!! I am sorry I had to laugh at your faces, it looks like somebody just threw cookie dough on your faces and it stuck! ...
Carol asked- "Can you pile blankets on top of electric blankets? Does anyone use an electric blanket? " (she also asked other questions but I have no answer...
So Sorry Suzi! I have cold spells too, then hot spells... so I am constantly under my electric blanket and then swinging it off me all night, back and forth....
Vickie, First, stop beating yourself up over your weight. I am just as big as you. I also have lipedema, so I actually look worse than you do. We are more than...
Thanks for the laugh, Anne! I have had a handheld shower for eons. couldn't do without it. Pamela ________________________________ From: "Fabric100@..."...
have started collecting all records, got a binding machine and will start to bind the various reports. Suzi ________________________________ From: Pamela...
oh I needed that laugh! THANK YOU! I will never see "my apron" the same way again!! giggle giggle -- you just gave me lemonade! ps - yes i love hand-held...
Isn't being cold TERRIBLE? It takes everything out of me trying to keep warm. My feet, calves, hands, nose and BONES get cold! My calves CRAMP for hours...
Talk about? mental fog---when I first saw this posting I had been cooking and my first thought was, "Mine is dirty, but not heavy, ...I wonder what kind of...
My sympathies, Elaine. It is miserable enough without having to chase after a 2 year old. I have both my grandkids today but, thankfully, they are 7 and 9, so...
Suzi wrote: "I am always cold, if I don't take my tramadol, I am in pain, so much pain now that I want to throw up. Bundling up in my bed under down quilts...
Im sorry you are hurting..Today I am doing better except for being freezing cold..I have just taken my meds though..Yesterday was horrible..I was sweating...
I am always cold, if I don't take my tramadol, I am in pain, so much pain now that I want to throw up. Bundling up in my bed under down quilts helps and...
Vickie wrote: "Ice would always hurt my bones because of my Osteoporosis and arthritis so I used a heating pad. Recently I been using a heating pad on my mid ...
Vickie wrote: What ever you guys do, do not use a heating pad on your back to make it feel better. I found out that it will only spread the Dercums more. I...
"non-obese people get DD too. I wish all the information websites would say that! When I told my family doctor and my pain doctor the first thing they both...
For those of you that has seen my pictures, I don't think that I have to answer this question. Mine is extremely heavy. Even my hips have and apron....
That is a good question about the fat running out. I never thought about that before! I suppose they would just start growing on top of other lipomas (?) I...
I have had this apron for over 30 years and just now noticed it is full of lumps..It feels like it is getting bigger and definitely heavier..I have diffuculty...
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