I hope this new year brings good things to all, particularly less pain and fatigue! My husband ran across this, and it looks quite interesting. While it may...
Guess it just goes to show how many Drs. should have the AH after their name instead of the MD, etc. The weblink was very interesting in that it dealt with...
In a message dated 1/5/2003 5:34:03 AM Central Standard Time, ... Denise -- Thanks for the article -- it looks very promising. I wrote to the only place that...
where can we get in touch with these chaps doing experiments with this drug???? Trish can you take a copy and take it toyour man at UCLA????? "snakelass...
Already printed everything on the site, especially the lipoma article which was a link. Had to postpone the Dr. for another week or two but will be heading...
look forward to hearing from you - wednesday at 16:30 apparently there is ayurveda spa in the UK as well where you can book yourself in for a detox before...
Sounds great-would think detox would be highly beneficial in cllearing the way for something positive to happen. Will wait with baited breath to hear how it...
Hi Have any of you experienced that pain gets less for a period after having one of those diseases (the dictionary says acute gastroenteritis) which could be...
Ah Dorrit - you have retained your sense of humor I see-hahaha. Definitely not recommending the "disease" form of detoxification-certainly most unpleasant as I...
Please send some sunshine - we are down to 4,5 d. Fahrenheit tonight, buried in snow. No, I don't recommend that type of detox, just remembered that I spent...
IM ON 1800MG ON NEURONTIN A DAY. I TAKE IT MORE FOR MY MS PAIN THAN DERCUMS. I WAS TAKEN OFF OF IT AND BY THE SECOND DAY I COULD NOT MOVE. IT DOES WORK EVEN...
Hi Dorrit Well, I wished some sunshine for you and today it is all gone from here so hope it got there. Now, where is my snow I miss so much? Hahaha Oh boy,...
Hi Dorrit, Was talking to the copenhagen office and they have utter chaos there and said there was more in Jutland so I guess you are up to your elbows in the...
Hi Trish! Well a funny thing happened last night it snowed!!! Yes in bonny old Guildford, just a centimeter but enough to stop traffic for hours! It was chaos...
I used to like shovelling snow, but now it's really a problem as I have a doctor's appointment tomorrow, and I was out trying to shovel in the wheel chair this...
hello everyone I heard and he said he is goign to be sending out letters in a couple of days to all of us... For the people who lives in the USA I received a...
SORRY, don't get me wrong the RARE DISEASE is for Everyone but we in the USA have to get our Dr.to get research going ....and once that happens everyone else...
Hahaha - if the Norskys think the Brits and Danes are something less than great drivers they should get a load of So. Californians when the rare rain wets the...
Curious about your last few lines-what does Maureen's site that was DX mean and what profession are they in? Interesting comment of weird, especially not...
Hi Dorrit and group, Have just been catching up on e-mails as I had been away to my daughter's in Devon over the christmas period, came home the day before new...
Dear Barbara, I'm sorry things are so hard and you are in so much pain. I received the first page and the last 2 pages of the Act but am missing what is ...
Hello Fran I am going to fax this to myself and then email it to you ... then everyone can see it .... I have my fax through efax so it might also work with...
here is the letter that I received from Senator Reeds office about the Rare DIsease act.. Note: forwarded message attached. ... Do you Yahoo!? Yahoo! Mail...
Note: forwarded message attached. ... Do you Yahoo!? Yahoo! Mail Plus - Powerful. Affordable. Sign up now ... Help STOP SPAM: Try the new MSN 8 and get 2...
Dear Fran I answered you mail 2 days ago, but has now got it back saying "undelivered mail" although sent to the correct address. Have you got another address...
Hi Maud I am very curious as to what the visit to the ayurveda expert ended up with? I still don't believe that this is an illness only in the fat, I think it...
... Hi Dorrit, This surely is a mystery and finding a test of any kind would be wonderful. If it were simply the fat, then you would think that removing it...
YOU KNOW I WOULD LIKE TO KNOW IF DERCUMS AFTER MANY YEARS EFFECTS THE BONES OF THE BODY. I HAVE SOME PROBS WITH BONES IN MY BACK THAT ARE NOT EXPLAINABLE. IM...
Dear Dorrit, I tried to email you also and it was returned. I've been thinking about you and how amazing you are to tackle all that snow with a snow shovel....
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