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Dercums_Disease@yahoo...
Jun 1, 2008 7:56 am
25606
Vicky, I have to agree with Pamela that no-one wants you to leave including myself, after all we are here to help each other and walking away from the group...
Hi Karen. First off a big thanks for the heads up with regards to the info you provided on your website that got me and my Dr to try the doxycycline! To put it...
Hiya Anne, I hope the information is of use and by all means feel free to print it out and use as a reference with your Dr. Let me know how it goes with your...
We need to start a 501c3 before we start raising money in the $35,000.00 bracket; some of us are working on starting that non-profit as I wirte this....
Thank you, Ann, for your great reply/suggestion. Although I work for Health Net Insurance Company, my brain is in such a fog lately that I forgot to mention...
has anyone had problems with an obstructed bowel with the DD? I just can't go like I normally used to and it's scaring me. i've tajen laxitives but it takes...
Hi Robin, I haven't heard of anyone with an obstructed bowel due to DD, but many pain meds can cause constipation. I don't take any and I have IBS, so that is...
Hi Guys, I am a little confused at what is going on here. I didn't read anything that should have made anyone feel like they needed to run for cover. But then,...
Ah yes! IBS! Isn't it grand! And, yes, I also increase fiber to handle that particular problem. And play a lot of real music to drown out the symphony of...
Yo Poe, I cannot comment about the relationship between tinntis and Dercums as I had tinnitis since I was 5. However, I do feel there is a higher chance of the...
Aubs, I understand what you are saying, but I still think it is a good idea for a person who thinks they are actually hearing voices to get checked out by...
I understand but from what I have read on the forums of those who raised this initially the problem does not sound as you describe, of course any post is open...
Bah I didnt clarify my last post very well. I think the position I am coming from is one of concern for us getting carried away with symptoms before initially...
I COMPLETELY AGREE with your position about how we DD sufferers are often dismissed by doctors. We come at them (per their perception) with this solid wall of...
I have had noise in my ears since I was small but I also had an injury to one of my ear drums as a child and I attributed the "noise" to that..but its getting...
What I actually heard was a sound like voices at a distance. I did not hear words or someone speaking to me. I use to hear a sound like this when I ran the...
Morning Poe. We totally agree with each other then :) Thats why I only posted my experience, it is not diagnosing someone elses symptoms but offers a way for...
Hi there, Sorry for the late responses but I have been absent - again.... I did for some years have increasing problems with bowel problems - until a doctor...
If your thinking about buying one of these beds please check these sites first. New Jersey Sues Mattress Company Over Internet Ads: _New Jersey Sues Mattress...
WOW, I just got my Noni juice and GSE. I tried to drink the Noni and I could not get it down. It made me vomit. How in the world am I going to do this?...
I was the same way at first. I found putting it in a small glass and gulping in 2-3 gulps helped. It does get better, took about a week for me not to be ...
I have to drink a little water first, maybe an ounce. Then I hold my nose and swallow the noni. As soon as I let go of my nose I take a swallow of Crystal...
Hi Renee, I have to choke it down myself. I usually pour the shot glass, fill a cup with water, then take the shot glass and get ready. I count to three - hold...
Hi Try breathing only through your mouth before you drink it(so you are not smelling it), while you are taking your dose and continue to breath through your...
Good Evening! I have posted this information elsewhere, but thought I would post it here for everyone's edification.? I have been gathering my daughter's...
I'm sorry it has taken a few days to get back with you but it's been nuts. About the niacin the front lable reads "Flush Free Niacin Inositol Hexanicotinate...
At age 35, I am being challenged with tremendous physical limitations due to my medical condition. being forced to accept my limitations has been extremely...
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