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Dercums_Disease@yahoo...
May 1, 2008 7:54 am
25305
Don't any of you faint out there! I know I have been away for a very long time, but I have been keeping my eye out and reading. Well, this is what I wanted to...
Hi Judith, That is a wonderful story. If only there were more doctors like him out there, so many suffering people could be helped. I think the key to getting...
went to PCP today, took my articles and he said"these articles are just out there to scare people" He scanned through them w/ a chuckle and stated I had...
Hi Kim, The first thing that comes to mind is find a new PCP! Did you show him Dr Herbst 's article? If that is how he reacted to that one, I'd have to say he...
Hi Judith, Bet not that he knows his mom as it - he'll take some action!!! Bet he'll think twice about not trying to help others as he's probably done with...
I told him about Dr. Herbst and showed him the articles w/some of information highlighted. He didn't really care, just handed back the articles. I told him...
Hi Kim, This is truly sad when doctors do this to us. I have had the same happen by two different doctors in different fields as well, not to mention that...
WTG Judith - this happened with me and my orthopedic surgeon. He read it, looked at me, and said, I have dozens of patients who have this, only I didn't know...
I believe he would. I will give him the addy and stuff. At this point, with his own mother suffering, I feel fairly certain that he will also direct her to...
Sherry, I think you need to have a serious conversation with your sister! I have SSDI. They gave it to me on FM/MPS, athritis, diabetes and ... well, the list...
Kim-- So sorry your doctor was such a jerk.? Sorry, there is no other word.? If he scoffed at Dr. Herbst's article RUN for the hills.? It was published in a...
Sounds like my doctor here in Canton, Ohio. Dr. Dave was the first to react in a positive and healthy attitude. I hate it when people are close-minded so I...
I did call the only endocronologist in my town as well as the only rheumatologist to ask their staff if the Dr. knew anything about Dercums. Both responded...
By the way, very happy about the whole doctor visit and his mom having the disease...thats great!...well not great that she has it but great that it is...
Hi Kim, I understand that. I have had the same PCP for 20 years or so. He diagnosed my DD, and goes along with whatever Dr Herbst recommends, but he doesn't...
You know I am beginning to think that some doctors think they are God and only know what they learned in med school and we should just be good little step-ford...
I have had several hundred doctors over the last six years. Many of them were descent and a few were completely out of touch with peoples emotions. I asked my...
My sister has never liked me from the day I was born. When I was a new born she dumped me down a flight of stairs into athe basement. Of course she said that...
Oh Judith what a find! You are so darn lucky. I wish that I could be in your shoes. I'm so happy for you that I don't know what to say. God bless you! Take...
Well everyone I went to see Dr God per his request. It all started when I called pain management and told them that my pharmacy had not received my rx of MS...
I think some get discouraged y their inability to actually cure so they think there must be nothing there...Just a thought... **************Wondering what's...
Seems like when we are just about to give up a miracle happens and somene listens finally... Thank You God! I am sooo happy for ou. Davana ... From: Sherry Fox...
So Sorry to here about sis....I have one kinda like that she can switch up and turn on you at any time she fakes being nice and steals all my childhood...
Ok Guys! I'm having a tough time here with something new and it's strange and hurts! I AM HAVING AWFUL MUSCLE SPASM ACROSS MY LOWER BACK. GOES FROM HIP TO HIP...
Hi Karen, I have had to sleep in the recliner because I get them so bad in bed. I have to take cushions and prop myself up. I do get them sitting here at the...
I have lipoma's from my abdomen and wrapping clear around the hips and lower back like a ring around my body"! I'm getting this drawing in feeling from the...
Hi Karen, I've had those spasms for years, not all the time, thank God, but frequently enough to get my attention. I use ice to settle them down. Heat works...
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