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Dercums_Disease@yahoo...
Mar 1, 2008 8:58 am
24680
HI there, First of all a big welcome to all the new members of the group - I have been very remiss about posting recently - bad time, feeling low etc.... ...
So sorry Calle that you are going through so much pain now. About the munching sound in your ear, have you ever noticed that when you get up in the morning,...
MS contin for deep pain, vicodin for break thru pain, neurontin for the burning stinging pain, celebrex for swelling, and actually my water pill helps with...
Calle that is so weird...the same thing happens to me except its my right hip...I thought I was going nuts but Dr H told me there is a form of DD that mimics...
Thank you for the welcome Cynthia . I don't know what to do about my lumps like you I just get the ones that cause disfunction out. Can,t see how they could...
Howdy Sherry! Thank you for mentioning about the wet ears!!! I've had that now for a while, and I had no idea that it was connected with Dercum's; I just kept...
Howdy Cynthia! I totally agree with you about avoiding the surgeries!! All of the research I have done, says to avoid surgery, especially if you have...
Okay, so for the past month I have been having muscle twitches or spasms all through my body? I notice them throughout the day, but it is really bothersome...
I dont have water in them but have a very loud buzzing in my ears..all the time...Dr H tells me that DD can cause ear problems as well in fact her exact...
Been there done that all...It is caused by DD more likely..I asked the same questions of Dr Herbst and that is what she told me..Im sure everyone is different...
... Hi - well u can suggest that this might be the best way, but I and I think a lot of others in this group might disagree. We all have different experiences...
SO about dieting. What do I get if I go on this diet thats recomended with no meats and lots of fresh fruits and vegetables? Will all my lumps dissapear? Will...
... Mine is from crushing my knee and having it replaced. My bone truly does have slippage, and the doctor is going to fix it. How scary it is to hear one...
Hi Kristina, I have the spasms too, and I don't take any pain meds, so I'd say its part of the disease. My brain fog is getting so bad I make stupid mistakes...
Howdy Calle! For me personally, I live on the GK Diet. It is low-glycemic, and is wonderful. There is a lot of variety, if you aren't allergic to a number of...
Hi Kristina, My neuro rx'd klonopin and it has helped much with the twitching. I can only say from my experience, but the brain fog has only gotten worse. And...
I have heard alot of people, including myself, say that muscle twictching and spasms are part of their norm now. Sometimes it feels like an electric current...
Good morning to you. I have noticed that the itching/twitching can become worse when I actually do things; sort of like an early warning system that my body is...
If the diagram link does not work use this: http://www.painclinic.org/aboutpain-painmechanisms.htm <http://www.painclinic.org/aboutpain-painmechanisms.htm> ...
Dear Calle, No, your lumps won't disappear or get smaller, and probably all hte pain won't go away. For me it is more a matter of just feeding my body what it...
Hi there, The slow version releases the medication at a slower rate and over a more constant rate into your blood stream...... It means that you do not get so...
Hi Jo, I have been trying to get all the UK sufferers into a kind of group, if you want to chat on the phone, Messenger, Skyper or anything let me know and I...
Sounds just like DD to me - for everything ........ I take Clonazepam at night for muscle spasm which the doctor was convinced was due to Myoclonus epilepsy -...
You are very lucky to have a doctor who accepts all the limitations and problems that this disease can cause. I think that the overwhelming majority of us have...
All present research appears to show that no amount of dieting will actually make lipomas disappear. They do not appear to be available for metabolism. Why...
Dear Judi, You must be a saint in disguise - how did you cut out all the goodies ??!! I try to eat as healthy as possible but I do not think I could live ...
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