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Dercums_Disease@yahoo...
Jan 1, 2008 8:56 am
24334
And how about a little (very) DD Humor ?? If I don't laugh my way into the new year, I will cry, so here goes, hope you get a laugh or two also. DD gives the...
Joan, I have no family members with it either. I was on between 60 to 80 mgs of Prednisone for almost 3 years to keep the swelling in my eyes down. I have TED...
Hi everyone, I was wondering if those of you who have developed myoclonic twitches and jerks ever got any kind of dx from it? Mine are getting worse in spite...
could anyone tell me how i could contact dr. karen? i've heard such great things about her...i'd like to email her. hope everyone has a great 2008. much love...
I have heard that medicare will cover liposuction if it is medically necessary, does anyone know if that is true? My boyfriend is having a lot of pain in his...
Hello to all members;-) This is Kay and I really need to get the Amytriptyline medication clear. I had reported that Amytriptyline had helped 3 DD patients ( I...
I forgot to say............. Please do not take amytriptyline or any other drug without consultation with your GP , or primary medical care provider. Cheers! ...
Ask your boyfriend if some of his pain eases up when he is wearing lose fitting pants like sweats or pj's. I had to quit wearing anything that that was tight...
Here is a little info I thought I could send your way and some links about it. Amitriptyline: An antidepressant medication. In some patients with depression,...
Sherry...I have read that tremors are a symptom of DD...is it tremors or jerks? I do have jerks in my arms and hands at times as well as tremors. Judy...
... I am now on 50 mgs and will be going to 75 in February. I cannot stress what a difference it has already made with my pain and I have more energy. You will...
Good Morning Family! Yep, you read that subject line correctly! Has anyone noticed their sweat smelling different over affected areas? For those with a...
Hello, I don't have a chillow but my grandson uses one. He doesn't have DD but he sweats when he sleeps. He loves it, Joan **************Start the year...
Hi Carole, I have the hump you are talking about, but I can not smell my own sweat and I'm single, so I don't have a clue! I tried a chillow product a few...
nice to meet you Robin i am in the UK in Derbysire the doctors here are rubbish they tell me to my face they don't know nothing about Dercums but they don't...
nice to meet you louise. well basically she didn't know anything about it and gave me the name of someone else to go to, but they are about 400 miles away....
Both Judy, But mainly twitching or bigger twitches like jerks. Were you dx'd with anything? Sherry Judy <Ldyauburnfn11@...> wrote: Sherry...I have read...
Yeh Judy!! Way to go!! Kay~K. ... From: "Judy" <Ldyauburnfn11@...> To: <Dercums_Disease@yahoogroups.com> Sent: Friday, January 04, 2008 6:52 AM Subject:...
Yeah, I'm taking 600mg 4xdaily. It really does do the trick for my neuropathy, but that is all it does. Sherry carole p <mrs.stikbow@...> wrote: What...
... What medication is your doctor prescribing? Is anyone on Neurontin? Gabapentin? blessings, ... I took 600 mgs of neurontin 3x a day for several years....
I just have a question...I do sometimes wake updue to feeling like I am falling but increasingly I have had times where I was sitting or lying down and just...
I have terrible hot flashes and then go into chills. This has gotten worse by the month. And YES, my sweat smells like flowers or sweet smelling. Anyone else?...
i was wondering if anyone can give me idea on how to cope with this while i'm back and forth to dr's who just really don't know or want to ever try to help dx...
Renee The best thing I did was to get all the information off the internet I could regarding Dercum's and take it into the doctor with me. He didnt know...
thanks calle, i did take lots of info on dercums to my endocrinologist and all she wanted to do was pawn me off on someone else, 400 + miles away. very...
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