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Dercums_Disease@yahoo...
Dec 1, 2007 8:56 am
24237
You all might remember me talking about my boyfriend w/ Dercum's, he has been told that he can get liposuction covered by his medicare and medicaid as long as...
Hi, As you can see I live in Upstate NY - about 3 hours north of Syracuse, NY. I am not aware of any specialists in Dercums Disease per se, but he must see...
Hi Suzann, Thanks for your reply, he does already have a diagnosis for the disease. That was actually quite a few years ago. I don't know who he had seen at...
Hi Debbie, I wish I could be of more help to you. I have at this time not traveled to Syracuse for doctors, but rather Burlington, VT and Boston, MA. Mostly...
Hi Everyone, I have been trying to get over being told by a dentist in New England that I don't have DD. He is a relative's estranged husband who says my DD...
What can anybody say - after nearly 25 years of hearing it was all in my head - only the huge disfiguring lumps saved me from believing I was mad............ ...
Joan-- My heart goes out to you for the horrible way this dentist treated you. It was totally unprofessional, rude, mean, rotten and a whole string of other...
Thanks folks for your encouragement. I have never seen him as a dentist. He has decided to attack the family of his wife because she left him. Can't ...
Dear Joan, What a complete and utter JERK!! These so-called professionals who think they know it all usually end up getting their words thrown back in their...
Hi Judi, Thanks, I needed to hear everyone's comments. But, I am really concerned about that spider bite.? I had a friend here who got bit twice with 2 years...
It's here! Dr. Herbst's publication is in the new ENDOCRINOLOGIST! It looks like you have to have the magic password to see the entire paper. Could someone...
Well shoot, I went right online and purchased it !! But I am not sorrryy, if Dr. Herbst even gets a little of what I paid, that will be good.!! ... From:...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the Dercums_Disease group. File :...
Dercums_Disease@yahoo...
Dec 5, 2007 7:43 pm
24252
Hi All, I did get permission to post this article here. For many of you who haven't seen it yet. I have talked with Dr. H and as long as she doesn't post it...
Thank you So Much for posting the Dr. Herbst article. It was really interesting and should be a big help for people trying to get diagnosed or treated. I...
Hello everyone, I haven't posted in a long time and have been remiss in even keeping up with the postings. But this past week has been especially tough and I ...
Well hi there Bev! I have been thinking about you and wondering how you were. It's good to hear from you again. I'm sorry to hear you're having a tough time,...
Hi soggy in AZ - from another soggy in AZ Where abouts are you located ? Do you have a dr. that was able to diagnose you?? This is all new to me, so the only...
Dear Dr. Herbst: I am fairly new to the idea of DD, i found some bumps on my arm this summer, and I had been pretty ill since last December, when I came down...
Carin, I would advise caution in posting your telephone number on this or any other group site, because it is then open for anyone who visits to see and use. ...
looking for some advice on the numerous meds that my boyfriend's dr has him on. A dr that doesn't know much of anyhting about dercums. He is taking wellbutrin...
I would have the Dr. take me off all of that. I would ask to start taking Lyrica in a dose that works. I would then ask to be put on some kind of extended...
Speaking from personal experience, a doctor at a pain clinic prescribed Wellbutrin for me, thinking it would help me lose weight. It nearly killed me as I...
Hello whatever your name is, It actually sounds pretty normal for someone with DD as our immune systym is not that of a healthy person so we tend to have more...
Cynthia, I was informed by my middle daughter 3 weeks ago that it was all in my head and all I needed to do was exercise! LOL...I had to wait a week before I...
Hi Judi, Thanks for thinking about me. Even when I am not posting, I am thinking about folks here on the site. I did know that you were moving and am so glad...
Nice to meet you Carin. I live in Maricopa now, but have lived in north Phoenix since 1973. My daughter and her family still do and my son and his family are...
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