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Dercums_Disease@yahoo...
Nov 1, 2007 7:58 am
24085
Guess what? Since I wrote that I have just been put on two more. Sherry carole p <mrs.stikbow@...> wrote: Oh thank you for bringing this up! Can we start...
I half way knew that my pain management doc was going to cower out of trying botox on a tumor I have on my back that is inoperable. Last month while I am there...
Just curious if anyone else is havivg a problem with getting a prescription for 800mg tagament? You know what ticks me off is that I am told that I should do...
Rod-- My daughter has been going through this same thing since April. It started in one arm (coincidentally the same arm that Dercum's first announced itself)...
I think it's due to the colder weather. I'm also having a flare up right now. Feels like someone has repeatedly punched me the arms and my groin is swollen....
Hello all - After a year of battling with my insurance company - they have agreed to pay for removal of the tumors if I wish. After 20 years of misdiagnosis...
Myla I am curious which Mayo Clinic did you get diagnosed at. Also what doctor and department was actually aware of Dercums? I have been going to Mayo Clinic...
Pam What part of Illinois? I live in Bloomington. pamela tweed <ptweedypie@...> wrote: I think it's due to the colder weather. I'm also having a flare...
Hello Myla, I would like to tell you to avoid liposuction and large-scale tumor removal, because personally I really don't think it is a good idea. And this is...
Hello everyone, I tried this once before and all I got was stuff like "well everyone is different and I myself plan on living till I die in my garden." I get ...
This is a question I have asked Dr Herbst in my emails and she told me there is no longevity data on people with DD... **************************************...
Hi Sherry, I mean no offense by this, but quite honestly how can anyone predict such a thing? I'm not certain why you think there is hard evidence of an...
Hi Nonny Have you settled in, and do you by chance have an e-mail address and a snail mail address in case someone might want to send you a postcard? If you...
Hello Everyone, I received an email from Dr. Herbst today with a link to the professional magazine, The Endocrinologist, where her article on Dercum's will...
Hello to those that need the advice on death in DD, I understand your fears...but there is no need to feel this way. Quite rightly there will most definitely...
Sherry, I don't post here often, but have been a member since 2001. In my humble opinion, there just isn't an answer to your question. One reason is the lack...
The endocrinologist Dr. Roust (woman) at the Mayo Clinic in Scottsdale Arizona. The plastic surgeon there who is willing to do my surgery is Dr. Casey. Rodney...
Hi, There is no known articles on the occurence of death by DD - so you should stop worrying about it. It really does depend on each individual and the other...
Myla, I just now read your post about the Mayo Clinic in Scottsdale and your breast biopsy. First. the biopsy. I would DEFINITELY get a second opinion (or...
hello and OUCH! Just like you the 'aliens' did not show up with a mamogram or ultrasound of my breasts. But the technicians and doctors could certainly feel...
Hi Carole, I think someone once told the story of having her breasts removed for the same reason. The bottom line was that the lumps came back with a vengeance...
.... That's me!! You wrote exactly about me, not being able to keep up with the other children, for no apparent reason. Both my parents were very good at...
Hi Sherry, my name is Robin and I dont actually write here but am always reading. I had to write today because I feel that you got that same response "Ill die...
Yes, it's me too. The most un-athletic child in school, and not for lack of trying either. I was always sick as a child too. I'm pretty sure I've had it all my...
I guess I was different...until about 7 years ago. As a child, I WAS an athletic tomboy. I played every sport; ran the mile the second-fastest in our girl's...
FYI: I had my first large breast lump completely removed as well. It also did not show up on the mammogram, although it was marked and very visible. I insisted...
I am almost 57 and I don't feel like I am going to die anytime soon even though I have had Diabetes for over 30 years and DD probably for many many years.? I...
Hi Robin and Sherry, I think Kay's answer was the best you'll find. We will likely all enjoy bad health until some other ailment kills us. If you come from a...
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