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Dercums_Disease@yahoo...
Sep 1, 2007 8:02 am
23661
Hi Cynthia, I was only on it for two weeks last year, but it gave me the worst diarrhea I ever had in my life! It got progressively worse until I was nearly...
Hi Judi, I didn't realise that you had had Plaquenil before Judi - how long did you take it? I was on it for 5/6 years before and after an initial sicky phase...
Rodney, those lipomas on the bottom of your feet make you feel like you are walking on a ball, don't they? I feel like a weeble most of the time. It causes me...
Hi Betty, Thanks for the good wishes! And just this afternoon I think we found a house about 11 miles from our daughter. She is going to look at it tomorrow...
Hello Rodney, I think the fibromas or at least the tissue around them must have swollen at times, because they seemed larger sometimes than others. Between the...
Sure, I have them, too. It tooks years before >I realised why shoes hurt so much, and I needed good soles that were not thin and flat. The pads don't go away,...
Yes, new job. Not sure if it will be less stressful than the last one or not. So far it does not appear so. My doctor will not be happy with me if it turns...
Oh yes, Rodney. I have tumors on the soles, sides and tops of both feet now, and they do swell and subside, depending upon their mood. I exclusively wear...
Oh Suzanne!You don't have air conditioning? Horrors! I do, but when it's 95 outside, it is at least 85 inside. No insulation left in my mobile home's floor and...
Hello everyone I am curious if anyone has tumors or pads of tissue that swell and are really painful on the bottom of your feet? I realize judi had fibromas...
Hi Will: Thanks so much for catching us up on what has been going on in your life! Sorry to hear that your motherboard died! Giving up dairy products might...
Hi Judi: Congratulations on selling your house. I am so glad that you and hubby will be close to your daughter and grandkids now. Happy Anniversary - 31...
Hi Cynthia, Well that is great that you found a good doctor!! No, I don't look forward to finding a whole new crew (family doc, DD doc, dentist, eye doc,...
Hi Pamela, Thanks for the good wishes! I sure picked a winner in the husband department. He is so good to me! I have an appointment next Wed. with the...
Hi Joan, and thanks! I don't know about the resting part--first comes the packing, moving, unpacking, and I'm sure our little guys (and gal) will want to make...
Thanks, Suzann! I have packed for moves many times, so I know to do a little each day. We started yesterday! I like to pack breakables with towels, ...
It was my experience. That is all. But, I am sure there are a few of us that have been treated that way until we got a diagnosis. I meant no disrespect. Tami ...
Yeah Cynthia - this is good news. I guess the drive was worth the visit then by the sounds of it. I'm sure you're wiped out from it though. I'm glad to hear...
Hi Pam, I'm not certain how we can have the same weather, but it sure sounds the same doesn't it? It has sprinkled about 4 times in 2 months here and we've...
Mitzi, I truly agree with you. I am having a hard time lately and it is hard for me to type. So, I am more blunt ant to the point. Less typing. I stand...
Hi everyone, I am exhausted today because yesterday I drove 5 and half hours just for one doctor's appointment with a new Rheumatologist. Well - despite my...
Dearest Judi and family !!! I am so pleased for you - what good news !! I feel for you though in your search for new doctors..... Read my next post to cheer...
lol - I misread your post - which shows how well I am right now............ I just meant that sometimes it is very positive to see a Psychiatrist because they...
Hi Suzanne, I just wanted to say that I could have written that myself! How is it you have had the same weather in NY as we're having in Missouri? It rained...
Yea Judi! I'm so happy for you on the sale of your house. Congrats! Happy Anniversary! 31 years, huh? What an accomplishment! How soon can you get to the...
Your right! And that feeling of not being dismissed finally is a wonderful feeling to finally have. You start to think you really are going nuts cause your...
... Hi Judi, I just wanted to say congratulations on your anniversery and the sale of your house. It is wonderful that you will be able to live near your...
CONGRATULATIONS JUDI! I'm so happy to hear your home sold. I know you were worried with the company going out of business and all, that it might not sell...
I sure hope it's going to be soon. I can't wait another ten years for help ! Dorrit ... recent report from her, but i can't find it in the archives, so must ...
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