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Dercums_Disease@yahoo...
Aug 1, 2007 8:06 am
23490
that Dr. Birger Fagher of Sweden who is the co-writer of the big Dercum article together with Hakon Brorson has had his authorization for writing prescriptions...
- hello Renee I like you I'm in the UK, London, I've not been member of this group for very long time but was recently verbally diagnosed with dercums after...
Thanks for writing back. The one in your jaw sounds horrible making it feel like choking has got to be really scarry. How do you sleep feeling like that? I...
Hi Pam, I sleep partially sitting up. That helps a bunch with the one in my jaw,with my back, and the ones in my ribcage. When I said belly I was talking about...
Hi Dorrit,.........can you tell us more about this. Was he prescribing that med for DD? Jackie Dorrit Hvam <fiori68@...> wrote: that Dr. Birger Fagher of...
I had one on my lower jaw that seemed to burst and then became a fingertip sized bruise. Looked like someone poked me. I have them everywhere now and can't...
Hi Caryn, Loved the post below! My answer to your question is yes. I too have a difficult time holding my arms up to style my own hair as they feel like lead...
Hi Jackie Yes, I think that he was perscribing this med for DD patients, as it makes you less tired and makes you lose weight, but the price to pay is a...
I have given up doing anything to my hair. Too difficult, must have arms down to rest all the time. Must be worse for American women as they always seem to...
Pamela Harrison said: When I cough or sneeze, it feels like I am being ripped open ----- I hate sneezing and coughing. I think this year I am developing...
Hi Will, All the things you mentioned as well as walking or stretching. To relieve the pressure/pain of the tumor on my left waist, I often have to lean to my...
I have given up on any thing too fussy with my hair. It is very short and I use a little gel and blow dry it a little. I would suggest to anyone to cut it...
Here's one. It hurts when my cat rubs against my legs! Also when my tiny little dog lays on my lap. How about resting your feet on the floor when sitting? I'm...
Pam, I don't know how I forgot to mention the feet resting on the floor. And my cats like to do the bonding thing, you know when they massage you with thier...
Stretching definetly kills me too. Walking too hurts my ankles. I have to do weird things like move to another position, or raise my left leg to relieve...
Hi Pam I did contact Dr Herbst, and she sent me a questionaire and a consent form but didnt tell me where to send them to. I've asked her twice since she...
Heya Will and all. You pick up on a couple of things that I really notice affecting me and also comments on the board. First thing I want to mention is the...
Add me to the list of having to find creative ways to sneeze or cough that don't hurt! Showers don't bother me as I have mine set on a gentle spray, but I...
Hello group, I am wondering if the specific pain we have with DD is resistant to most pain medications? I have tried many, from plain aspirin to Neurontin and...
Yo Judi, I think the problem is that there are several factors to this: 1. There is more than one type of pain and Dercums definitely falls into the broad...
Ha ha - I know that some of you have short hair, but just look at the DD gallery, many beautiful women with hair that would take HOURS to fix :-)) Not to...
Aubrey, If you wouldn't mind what food and drinks both you. I hadn't heard that food and drinks could aggravate DD. I know things works differently for all of...
Not any longer for this Americann woman. Had my hair buzzed off right after Brittany for the same reason as you Dorrit. And with this disease making us feel...
I try to stay away from too much caffeine. Just one cup of coffee in the morning, which I just have to have. Also chocolate. These things tend to aggrivate...
Dorrit, My hair is so short now I don't know if I resemble a Kiwi fruit or a coconut! I just know that I like it short, and I can shampoo it more easily, run...
Thanks for your input, Aubrey. I pretty much expected that, but it is so frustrating for me that I will take something for awhile, then it no longer has any...
Hi Judi Let me run my fingers through your hair and I'll tell you whether you are a kiwi or a coco nut or just a nut case :-))) Thanks for your never ending...
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