Hi, I know what peroxide is and I know what epson salts are and if
this what will give us any relief at all, Both substances are really
mild...I am there. I am going to follow Dr Hebrst recommedations to
the letter and will report back here
Barb
--- In Dercums_Disease@yahoogroups.com, "Judith"
<poeticusmaximus@...> wrote:
>
> Dr. Herbst asked me to post this for her. Here is her e-mail. I
want
> to point out that she said she was unsure if it really worked, but
> she could see the principles behind it:
>
> I have been reading about possible treatments for Dercums on the
> net.  One thing that I found was a peroxide bath.  It increases the
> oxygenation of the body which I think is important in Dercums
because
> of all the vascular damage (and necrosis) that I see.  It is cheap
> and there are tons of websites referencing this treatment including
> the aging sites.  Can you post this as a suggestion from me?  If
not,
> suggestions on how to get this info out would be appreciated.  I am
> not sure if it works but there is a site that actually states it
will
> help with brain fog:
> http://www.tuberose.com/Hydrogen_Peroxide.html.   Also, check this
> out: http://www.majidali.com/ozoneis.htm.  I figure for Epsom
salts
> (or sea salt) plus three bottles of hydrogen peroxide, with some
> stealthy shopping, we are looking at $2.00 a bath three times a
week
> which is $6.00 a week or about $25.00 a month.  That's not too bad –

> if it works and I am not sure it does.
>
> Get oxygen to the tissue
>
> Peroxide baths – This treatment should help with oxygenation of
skin,
> fat, muscle and blood and loosens up stiff muscles.
>
> a)    First Bath - Fill the bath tub with warm/hot water (a
> temperature you prefer). Add 2 cups of Epsom salt or one-half
> teaspoon of sea salt to the bath water and soak for five minutes
> until pores are open. Add one quart of 3% hydrogen peroxide the
bath
> tub. Avoid direct contact of the bath tub water with your eyes. If
> you feel comfortable and have no tissue irritation, after five
> minutes, add a second one quart bottle of 3% hydrogen peroxide to
the
> bath water. After five minutes, add the third quart bottle of 3%
> hydrogen peroxide to the bath water. Stay in the bath from 20 to 25
> minutes. Still better is a Jacuzzi with the jets turned on; this
> enhances the effects. For economic bulk purchase of peroxide,
> consider obtaining the concentrated 27% solution sold by the gallon
> as a cleaner in some swimming pool shops. It is called "Baqua
Shock".
> This product is dangerous to the skin right out of the bottle. It
> must be diluted in your bath. Use about 1/10 the volume needed of
3%
> peroxide in your baths.
>
> b)     Second and Subsequent Baths: Fill the bath tub with warm/hot
> water (a temperature you prefer). Add 2 cups of Epsom salt or one-
> half teaspoon of sea salt to the bath water and soak for five
minutes
> until pores are open. Add 3 one quart bottles of 3% hydrogen
peroxide
> and soak for 20-25 minutes.  This should be repeated three times a
> week at bedtime.
>
> Ø       Be careful on standing after the bath as you may experience
> lightheadedness from the warmth of the bath.
>
> Ø       If you have trouble taking the baths at night because of
the
> increased oxygen in your system hampering sleep, take the baths in
> the morning.
>
> Ø       A mild temporary worsening of your clinical status can
occur
> after these baths (Jarisch-Herxheimer reaction).  These `flares'
are
> better known with antibiotic therapy (see above).  After peroxide
> baths, the JH reaction usually takes the mild form of sleepiness
and
> fatigue or achiness.  Immersion baths with sodium bicarbonate
(baking
> soda) or lathering up to the neck with alkaline bar soap (Fels
Naptha
> laundry soap) will help with the achy flare reactions.
>
> Ø       No vitamins should be taken 8 hours before the hydrogen
> peroxide bath.
>

You took the words right out of my mouth!! A BIG
crane!
Pamela

--- Dorrit Hvam <fiori68@...> wrote:

> I am no expert on this and have to deal with
> language difficulties +
> had to look up Peroxide. But I wonder, are you
> suggesting that
> an "outside" bath should give more oxygen to the
> "inside" of the
> body? That sounds pretty incredible to me?? Or have
> I misunderstood
> the message?
> Also I would be afraid to try this - which I am not
> about to do at
> all as I can't enter the bath tub, neither leave it
> again without a
> crane :-)
>
> Dorrit
>
>
>
> --- In Dercums_Disease@yahoogroups.com, "Judith"
> <poeticusmaximus@...> wrote:
> >
> > Dr. Herbst asked me to post this for her. Here is
> her e-mail. I
> want
> > to point out that she said she was unsure if it
> really worked, but
> > she could see the principles behind it:
> >
> > I have been reading about possible treatments for
> Dercums on the
> > net.  One thing that I found was a peroxide bath.
> It increases
> the
> > oxygenation of the body which I think is important
> in Dercums
> because
> > of all the vascular damage (and necrosis) that I
> see.  It is cheap
> > and there are tons of websites referencing this
> treatment
> including
> > the aging sites.  Can you post this as a
> suggestion from me?  If
> not,
> > suggestions on how to get this info out would be
> appreciated.  I
> am
> > not sure if it works but there is a site that
> actually states it
> will
> > help with brain fog:
> > http://www.tuberose.com/Hydrogen_Peroxide.html.
> Also, check this
> > out: http://www.majidali.com/ozoneis.htm.  I
> figure for Epsom
> salts
> > (or sea salt) plus three bottles of hydrogen
> peroxide, with some
> > stealthy shopping, we are looking at $2.00 a bath
> three times a
> week
> > which is $6.00 a week or about $25.00 a month.
> That's not too
> bad –
> > if it works and I am not sure it does.
> >
> > Get oxygen to the tissue
> >
> > Peroxide baths – This treatment should help with
> oxygenation of
> skin,
> > fat, muscle and blood and loosens up stiff
> muscles.
> >
> > a)    First Bath - Fill the bath tub with warm/hot
> water (a
> > temperature you prefer). Add 2 cups of Epsom salt
> or one-half
> > teaspoon of sea salt to the bath water and soak
> for five minutes
> > until pores are open. Add one quart of 3% hydrogen
> peroxide the
> bath
> > tub. Avoid direct contact of the bath tub water
> with your eyes. If
> > you feel comfortable and have no tissue
> irritation, after five
> > minutes, add a second one quart bottle of 3%
> hydrogen peroxide to
> the
> > bath water. After five minutes, add the third
> quart bottle of 3%
> > hydrogen peroxide to the bath water. Stay in the
> bath from 20 to
> 25
> > minutes. Still better is a Jacuzzi with the jets
> turned on; this
> > enhances the effects. For economic bulk purchase
> of peroxide,
> > consider obtaining the concentrated 27% solution
> sold by the
> gallon
> > as a cleaner in some swimming pool shops. It is
> called "Baqua
> Shock".
> > This product is dangerous to the skin right out of
> the bottle. It
> > must be diluted in your bath. Use about 1/10 the
> volume needed of
> 3%
> > peroxide in your baths.
> >
> > b)     Second and Subsequent Baths: Fill the bath
> tub with
> warm/hot
> > water (a temperature you prefer). Add 2 cups of
> Epsom salt or one-
> > half teaspoon of sea salt to the bath water and
> soak for five
> minutes
> > until pores are open. Add 3 one quart bottles of
> 3% hydrogen
> peroxide
> > and soak for 20-25 minutes.  This should be
> repeated three times a
> > week at bedtime.
> >
> > Ø       Be careful on standing after the bath as
> you may
> experience
> > lightheadedness from the warmth of the bath.
> >
> > Ø       If you have trouble taking the baths at
> night because of
> the
> > increased oxygen in your system hampering sleep,
> take the baths in
> > the morning.
> >
> > Ø       A mild temporary worsening of your
> clinical status can
> occur
> > after these baths (Jarisch-Herxheimer reaction).
> These `flares'
> are
> > better known with antibiotic therapy (see above).
> After peroxide
> > baths, the JH reaction usually takes the mild form
> of sleepiness
> and
> > fatigue or achiness.  Immersion baths with sodium
> bicarbonate
> (baking
> > soda) or lathering up to the neck with alkaline
> bar soap (Fels
> Naptha
> > laundry soap) will help with the achy flare
> reactions.
> >
> > Ø       No vitamins should be taken 8 hours before
> the hydrogen
> > peroxide bath.
> >
>
>
>
>




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I will try the washcloth thing. I have a mobile home
with an extra small tub and my extra large body might
get stuck! I have used epsom salts back when I could
get down and back up and it was great for muscle
soreness. I rinse my mouth with peroxide so I'm sure
it is safe on the body.
Pamela

--- frincess51 <frincess51@...> wrote:

> Hey Guys,
> Don't shoot the messenger...this is research and Dr.
> Herbst is trying
> to help.  Obviously she is suggesting we try this
> because in her
> learned mind, it could provide some benefits.  We
> will never know until
> we try and since it is coming from the good doctor,
> who might I say is
> the only person in this whole big world who is
> taking an avid interest
> in helping us, that I for one will try it.  If it
> causes problems, then
> I will consult with her and go from there.  I know
> it does sound
> bizarre, but she must see some good in it to suggest
> that we try.
> Take care,
> Carole
>
>
>




________________________________________________________________________________\
____
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Hey Guys,
Don't shoot the messenger...this is research and Dr. Herbst is trying
to help.  Obviously she is suggesting we try this because in her
learned mind, it could provide some benefits.  We will never know until
we try and since it is coming from the good doctor, who might I say is
the only person in this whole big world who is taking an avid interest
in helping us, that I for one will try it.  If it causes problems, then
I will consult with her and go from there.  I know it does sound
bizarre, but she must see some good in it to suggest that we try.
Take care,
Carole

I am no expert on this and have to deal with language difficulties +
had to look up Peroxide. But I wonder, are you suggesting that
an "outside" bath should give more oxygen to the "inside" of the
body? That sounds pretty incredible to me?? Or have I misunderstood
the message?
Also I would be afraid to try this - which I am not about to do at
all as I can't enter the bath tub, neither leave it again without a
crane :-)

Dorrit



--- In Dercums_Disease@yahoogroups.com, "Judith"
<poeticusmaximus@...> wrote:
>
> Dr. Herbst asked me to post this for her. Here is her e-mail. I
want
> to point out that she said she was unsure if it really worked, but
> she could see the principles behind it:
>
> I have been reading about possible treatments for Dercums on the
> net.  One thing that I found was a peroxide bath.  It increases
the
> oxygenation of the body which I think is important in Dercums
because
> of all the vascular damage (and necrosis) that I see.  It is cheap
> and there are tons of websites referencing this treatment
including
> the aging sites.  Can you post this as a suggestion from me?  If
not,
> suggestions on how to get this info out would be appreciated.  I
am
> not sure if it works but there is a site that actually states it
will
> help with brain fog:
> http://www.tuberose.com/Hydrogen_Peroxide.html.   Also, check this
> out: http://www.majidali.com/ozoneis.htm.  I figure for Epsom
salts
> (or sea salt) plus three bottles of hydrogen peroxide, with some
> stealthy shopping, we are looking at $2.00 a bath three times a
week
> which is $6.00 a week or about $25.00 a month.  That's not too
bad –
> if it works and I am not sure it does.
>
> Get oxygen to the tissue
>
> Peroxide baths – This treatment should help with oxygenation of
skin,
> fat, muscle and blood and loosens up stiff muscles.
>
> a)    First Bath - Fill the bath tub with warm/hot water (a
> temperature you prefer). Add 2 cups of Epsom salt or one-half
> teaspoon of sea salt to the bath water and soak for five minutes
> until pores are open. Add one quart of 3% hydrogen peroxide the
bath
> tub. Avoid direct contact of the bath tub water with your eyes. If
> you feel comfortable and have no tissue irritation, after five
> minutes, add a second one quart bottle of 3% hydrogen peroxide to
the
> bath water. After five minutes, add the third quart bottle of 3%
> hydrogen peroxide to the bath water. Stay in the bath from 20 to
25
> minutes. Still better is a Jacuzzi with the jets turned on; this
> enhances the effects. For economic bulk purchase of peroxide,
> consider obtaining the concentrated 27% solution sold by the
gallon
> as a cleaner in some swimming pool shops. It is called "Baqua
Shock".
> This product is dangerous to the skin right out of the bottle. It
> must be diluted in your bath. Use about 1/10 the volume needed of
3%
> peroxide in your baths.
>
> b)     Second and Subsequent Baths: Fill the bath tub with
warm/hot
> water (a temperature you prefer). Add 2 cups of Epsom salt or one-
> half teaspoon of sea salt to the bath water and soak for five
minutes
> until pores are open. Add 3 one quart bottles of 3% hydrogen
peroxide
> and soak for 20-25 minutes.  This should be repeated three times a
> week at bedtime.
>
> Ø       Be careful on standing after the bath as you may
experience
> lightheadedness from the warmth of the bath.
>
> Ø       If you have trouble taking the baths at night because of
the
> increased oxygen in your system hampering sleep, take the baths in
> the morning.
>
> Ø       A mild temporary worsening of your clinical status can
occur
> after these baths (Jarisch-Herxheimer reaction).  These `flares'
are
> better known with antibiotic therapy (see above).  After peroxide
> baths, the JH reaction usually takes the mild form of sleepiness
and
> fatigue or achiness.  Immersion baths with sodium bicarbonate
(baking
> soda) or lathering up to the neck with alkaline bar soap (Fels
Naptha
> laundry soap) will help with the achy flare reactions.
>
> Ø       No vitamins should be taken 8 hours before the hydrogen
> peroxide bath.
>

I hope I am not too late for this.  It is best for a surgeon or
Dermatologist to do this as thye know tissue better and can get
muscle.  Having said that, as an Endocrinologist, I am not too bad at
bioopsies so it depends on the doc!

Karen Herbst

--- In Dercums_Disease@yahoogroups.com, "jeannie_c85"
<jeannie_c85@...> wrote:
>
> What is your opinion of a GP doing it?
>
> did most of you also have the tumor removed? My GP seems very
> uninterested, although very helpful and willing to do the biopsy.
> Which is fine with me for now, but if there is some reason he
should
> not do this, please let me know! ;)  he's going into an upper arm
on
> me tomorrow afternoon. (operative word here is ME!) LOL
>
> There was no talk.... non of tumor removal, nothing.. just the
> biopsy.
>
> He did say he didn't know if he could get part of a tumor or not...
> and said he didn't know if he could get muscle.
>
> so, if he's not qualified to do this, I don't want him anywhere
near
> me!
>
>  LOL   I have to have a sense of humor, it gets me through the
> days! :)
>
> thanks,
> j
>

Dr. Herbst asked me to post this for her. Here is her e-mail. I want
to point out that she said she was unsure if it really worked, but
she could see the principles behind it:

I have been reading about possible treatments for Dercums on the
net.  One thing that I found was a peroxide bath.  It increases the
oxygenation of the body which I think is important in Dercums because
of all the vascular damage (and necrosis) that I see.  It is cheap
and there are tons of websites referencing this treatment including
the aging sites.  Can you post this as a suggestion from me?  If not,
suggestions on how to get this info out would be appreciated.  I am
not sure if it works but there is a site that actually states it will
help with brain fog:
http://www.tuberose.com/Hydrogen_Peroxide.html.   Also, check this
out: http://www.majidali.com/ozoneis.htm.  I figure for Epsom salts
(or sea salt) plus three bottles of hydrogen peroxide, with some
stealthy shopping, we are looking at $2.00 a bath three times a week
which is $6.00 a week or about $25.00 a month.  That's not too bad –
if it works and I am not sure it does.

Get oxygen to the tissue

Peroxide baths – This treatment should help with oxygenation of skin,
fat, muscle and blood and loosens up stiff muscles.

a)    First Bath - Fill the bath tub with warm/hot water (a
temperature you prefer). Add 2 cups of Epsom salt or one-half
teaspoon of sea salt to the bath water and soak for five minutes
until pores are open. Add one quart of 3% hydrogen peroxide the bath
tub. Avoid direct contact of the bath tub water with your eyes. If
you feel comfortable and have no tissue irritation, after five
minutes, add a second one quart bottle of 3% hydrogen peroxide to the
bath water. After five minutes, add the third quart bottle of 3%
hydrogen peroxide to the bath water. Stay in the bath from 20 to 25
minutes. Still better is a Jacuzzi with the jets turned on; this
enhances the effects. For economic bulk purchase of peroxide,
consider obtaining the concentrated 27% solution sold by the gallon
as a cleaner in some swimming pool shops. It is called "Baqua Shock".
This product is dangerous to the skin right out of the bottle. It
must be diluted in your bath. Use about 1/10 the volume needed of 3%
peroxide in your baths.

b)     Second and Subsequent Baths: Fill the bath tub with warm/hot
water (a temperature you prefer). Add 2 cups of Epsom salt or one-
half teaspoon of sea salt to the bath water and soak for five minutes
until pores are open. Add 3 one quart bottles of 3% hydrogen peroxide
and soak for 20-25 minutes.  This should be repeated three times a
week at bedtime.

Ø       Be careful on standing after the bath as you may experience
lightheadedness from the warmth of the bath.

Ø       If you have trouble taking the baths at night because of the
increased oxygen in your system hampering sleep, take the baths in
the morning.

Ø       A mild temporary worsening of your clinical status can occur
after these baths (Jarisch-Herxheimer reaction).  These `flares' are
better known with antibiotic therapy (see above).  After peroxide
baths, the JH reaction usually takes the mild form of sleepiness and
fatigue or achiness.  Immersion baths with sodium bicarbonate (baking
soda) or lathering up to the neck with alkaline bar soap (Fels Naptha
laundry soap) will help with the achy flare reactions.

Ø       No vitamins should be taken 8 hours before the hydrogen
peroxide bath.

Hi Feather,
Yes,  they took one ovary at the time because of a
tumor on it and the other apparently disintegrated by
the time I was 30. I always thought it was a wives
tale that you go through menopause twice when you have
a hysterectomy but, unfortunately, it is true. I do
think the adhesions are more due to DD than the
hysterectomy.
I have Dercum's ribs too. There are huge lipomas
underneath each breast on my ribcage and they hurt
ALOT.
Pamela

--- M A BAKER <MABaker86@...> wrote:

> HI Pamela,
> Did they take your ovaries?  I am 51 and had partial
> hysto at age 27.  They took my ovaries during this
> last surgery for adhesions in the hope that the
> adhesions will not grow back (I wonder how much of
> these are due to Dercum's and not the endo?!?)  Oh
> Joy!  Back into menopause again!  I still have
> reflux but rarely bad enough to take meds. My Hiatal
> hernia doesn't help much there either and it
> definitely limits the amount I can eat at times.
> Add all that to these Dercum's ribs and it's a
> wonder we can eat or breathe sometimes!
> Feather
>



________________________________________________________________________________\
____
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Carole,
That sounds about right. I have more difficulties with
each surgery and I understand that I am in a very
advanced, although recently diagnosed, stage of DD.
The drainage with this biopsy has been ridiculous. It
has been over a month and it's still going. I think
the infection is under control though, thank God.
Pamela

--- frincess51 <frincess51@...> wrote:

> Suzann,
> It has been my experience that as the disease
> progresses, that
> drainage becomes more of a problem.  I had major
> abdominal surgery in
> 1998 prior to acute DD symptoms and had no problems
> with drainage,
> healing or infection.  In January of 2005, I had a
> hysterectomy,
> bikini cut, and had slight problems with drainage
> and infection.  In
> March or April of this year, I had the initial
> biopsies done, drained
> for about 10 days and no infection, but was put on
> antibiotics prior
> to and after the surgery, then had problems in
> August with the
> biopsies Dr. Herbst did with drainage and infection.
>  My DD has
> rapidly progressed in the last year and even more so
> in the last few
> months, so from now on, I will insist on drains and
> antibiotics
> before and after surgery.  This is not a proven
> medical fact, but it
> is what has happened to me and what I have
> personally observed.
> Thanks for the warm welcome back.
> Carole


__________________________________________________
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I had endometriosis from about age 12  and had a
hysterectomy when I was 25. I'm 52 now and have had
acid reflux it seems forever. I also become nauseaus
easily. I'm pretty sure there are no aliens in my
stomach because I was scoped 2 years ago. I sure don't
have any trouble eating,lol! I never thought about
adhesions...
Pamela

--- M A BAKER <MABaker86@...> wrote:

> Caryn,
>
> "Also, I can only eat about half as much as I used
> to because the
> fatty lipomas in my stomach seem to be pressing on
> things. I get
> nauseaus easily and have reflux alot. "
>
> I also have endometriosis and have had 3 lap.
> surgeries to remove adhesions.  I was experiencing
> many of the same symptoms you do and, before my last
> removal 2 years ago, my stomach stayed bloated.  My
> doctor told me that the problems from the
> endometriosis can cause problems with acid reflux.
> After the surgery, I was able to go off my reflux
> meds almost totally so I think he may have been
> right.
> Feather




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Hey guys,

I haven't been participating as much as I'd like--my sweet husband
has a cold, and girls, you all know what it's like when a MAN gets a
cold!  It has been nonstop orange juice, tea, kleenex, and
sympathy.  Meanwhile to the nausea...

I know we've discussed thsi before, but lately I have been having
bouts of nausea, mostly first thing in the morning (no, I am NOT
pregnant--it would be...well, never mind) and I either urp some
clear liquid, or just gag a bit and then it goes away.  Yesterday I
was queasy all day, never did urp.  I wonder if there's an alien
lurking in my digestive system throwing a tantrum or something.

Today was a beautiful Indian Summer day--75 degrees, sunny, and I
got all the leaves cleaned up out of the yard, ready for the
neighbors' leaves to come for a visit.  by the end of the week, back
to cold weather.  Watch out for the ghosts and goblins tomorrow
night!

Judi

Hey Poe,

I hope the looming issues can be settled soon--we miss you!  I hope
you come back to us "fully plugged" soon!

Judi

Hi Jeannie,

Here I am, late as usual.  I hope it isn't too late to call your GP
and ask him to refer you to a surgeon.  I would definitely NOT want my
GP, as much as I respect her, cutting into me not knowing what she is
doing.  Even the surgeon was in unfamiliar territory, but he at least
listened to me when I asked him to get the WHOLE tumor.

Good luck!

Judi

Dear Feather,
Just had to sneak in here and say hello!  It's been a long time since
we have talked.  I hope you are doing well and enjoying life!  Good
to see you here.
Like you and others have stated, I can't eat as much as I used to
either.  I have found that I do better with smaller, more frequent
meals during the day.  I also found out that I wasn't eating enough
as I really don't have much of an appetite, so that may have
contributed to additonal tumor growth for me.  I do find that I feel
better if I eat more because if I don't eat enough I feel more
sluggish and tired.  Hmmm, I am also experiencing increase acid
reflux and I have adhesions...now you have got me thinking!
Take care,
Carole

--- In Dercums_Disease@yahoogroups.com, "M A BAKER" <MABaker86@...>
wrote:
>
> Caryn,
>
> "Also, I can only eat about half as much as I used to because the
> fatty lipomas in my stomach seem to be pressing on things. I get
> nauseaus easily and have reflux alot. "
>
> I also have endometriosis and have had 3 lap. surgeries to remove
adhesions.  I was experiencing many of the same symptoms you do and,
before my last removal 2 years ago, my stomach stayed bloated.  My
doctor told me that the problems from the endometriosis can cause
problems with acid reflux.  After the surgery, I was able to go off
my reflux meds almost totally so I think he may have been right.
> Feather
>

Suzann,
It has been my experience that as the disease progresses, that
drainage becomes more of a problem.  I had major abdominal surgery in
1998 prior to acute DD symptoms and had no problems with drainage,
healing or infection.  In January of 2005, I had a hysterectomy,
bikini cut, and had slight problems with drainage and infection.  In
March or April of this year, I had the initial biopsies done, drained
for about 10 days and no infection, but was put on antibiotics prior
to and after the surgery, then had problems in August with the
biopsies Dr. Herbst did with drainage and infection.  My DD has
rapidly progressed in the last year and even more so in the last few
months, so from now on, I will insist on drains and antibiotics
before and after surgery.  This is not a proven medical fact, but it
is what has happened to me and what I have personally observed.
Thanks for the warm welcome back.
Carole

--- In Dercums_Disease@yahoogroups.com, Suzann Cheney <scheney@...>
wrote:
>
> Carole,
>
> I had to go and look up Seromas so that I could understand what
they were!
> Thanks so much for putting a name with what we are going through!
> Apparently, DD people have more Seromas than others, is that the
case?  I
> realize now that any surgery can cause this, but it sounds like we
really
> have a lot of drainage compared with others.  This is the first
tumor
> excision that has done this to me and I have now had 12 tumors
removed
> over the years.  7 back in May and 4 others many years ago.
>
>
>
>
>
> "frincess51" <frincess51@...>
> Sent by: Dercums_Disease@yahoogroups.com
> 10/30/2006 02:17 PM
> Please respond to
> Dercums_Disease@yahoogroups.com
>
>
> To
> Dercums_Disease@yahoogroups.com
> cc
>
> Subject
> [Dercums_Disease] Re: Just an Update on Post Surgery Status - and
Tumour
> removal
>
>
>
>
>
>
> Caryn,
> I have heard of seromas developing months after surgeries, one 6
> months and one 8 months later, so it is possible that you have one
> and it is draining. Might be a good idea to have it checked out.
> Take care,
> Carole
>
> --- In Dercums_Disease@yahoogroups.com, "Caryn" <caryn.healey@>
> wrote:
> >
> > Hi everyone, Caryn here again.
> >
> > After reading this information about draining and all the fluid
> build
> > up, I got to thinking. You see, I have had a few surgeries
through
> my
> > belly button. The last one being about a year maybe year and a
half
> > ago where the doc wanted to do a hyst but pumped me full of gas
and
> > took a look with the scope to realize I was full of fibroids,
> > adhesions and tumors, chocolate cysts, etc, and a belly full of
> > endometriosis. So she decided to cut me instead of laproscopic
> surgery.
> > I ended up having some necrotic tissue, surrounded by lots of
> > adhesions, had to have my bladder refixed to its position, etc.
But
> > that isn't what I wanted to chat about..:-) Anyway. I have
noticed
> > over the last several months as my DD gets worse, that my
> bellybutton
> > is weeping fluid. I can't make it stop. I know that inflammation
> and
> > fluid retention is a big issue. I know that retained fluid will
> drain
> > from an opening, such as a surgical wound. I know that while the
> body
> > continues to retain, it will continue to drain. I know these
things
> > because of the medical background I have, what little I have.
> >
> > Now, This is the second or third time I have had to deal with
> tumors
> > and necrotic (dead) tissue. And now I am worried that the
constant
> > draining from my belly button is going to result in more necrotic
> > tissue, and I will have a real issue on my hands. Last thing in
the
> > world I want is ANOTHER surgery to remove rotting flesh. Parts of
> me
> > keep dying while I am still using them! Previously I had three
> > surgeries in a row cause a doc didn't know how to deal with an
> > infection and tried to remove necrotic breast tissue like she
would
> a
> > cancer tumor. Which is encapsulated. So, anyway.
> > Do any of you know about drainage from the belly button? Is
anyone
> > else's drain site infected?
> > Has anyone else had an old wound start draining?
> >
> > Caryn
> > > > Just sharing my experience, for what it's worth. I hope the
> > > > drainage from yours stops and you start to heal,
> > > >
> > > > Judi
> > > > >
> > > >
> > >
> >
>

Listen to your Momma, Caryn.

Go see Dr. Johari as soon as you are able (we will do lunch) and then
tell him that the tissue in your navel is breaking down. Yes? Let me
know when your appointment is and I'll go with you. Once Skin breakdown
starts the only thing that stops it is -IS- surgery. Don't wait.

You know what you went through with your breasts. You DON'T want to do
that with your navel.

MOM