((Susan)) is there anyone who can go with you so you don't have to do all the driving? Good luck and be careful, I hope you get some releif and answers. Jean...
I just had an idea, thougth I would throw it out here and see what you all think... what if we were to sort of bombard webmd.com message boards with some of...
It must be the TN air. I have these things on face bad. They are all in my mouth, line my jawline, both eyebrows, cheekbones, and even one on my nose. That...
Good idea! The more we get the word out there, in a nice reasonable way, the better. My daughter may be interviewed about Dercum's for a magazine. When she...
Susan, My husband has had EMGs and nerve conduction tests. He has a neurological disorder and the tests were done to help define the extent of damage as well...
Hi Nance, Yes, I have them in my face too--one extends from the edge of my right eye inward to the middle of my cheek; another is right in the middle of my...
We do have some talented people herein, and I've enjoyed reading some of the recent poetic contributions. A book written by all of us would be great, but a...
There are multiple self-publishing houses 'out there'. We have used a local printer in our area to print books as well. I just checked CafePress and they...
I have never seen anything that ran more soomthly once the government got a hold of it! BUT (!) I do think that the government is missing the boat when it...
But be prepared to scald your eyeballs. There is some pretty strong language and there are some pretty rough references. And it is only of possible value if...
Gorsch... *she blushes* thank you. I don't think the "life stories" route wouls draw public interest or expand a small chapbook to have a universal voice for...
What I am talking about is an actual contracted publication of a "gift book" that could be purchased for anyone with a chronic pain condition. We need to...
I have also had nerve conduction studies. They repeatedly shock the &*#! out of you while telling you to sit still. NO THANK YOU. ... extent ... about ... ...
wow Judith! I must say I agree with outsourcing and that insurance isn't paying what it should. However, just like you I don't want government more into our...
Hi Nance, yes, I just got my first actual tumor on my face- right under my chin. Also, for about a year I have awoken with swollen eye lids that are discolored...
Dear Poe, God forbid that we should ever meet...... We would have to fight to get on the soap-box -lolol!!! Have spent most of yesterday and all this morning...
Dear Poe, God forbid that we should ever meet...... We would have to fight to get on the soap-box -lolol!!! Have spent most of yesterday and all this morning...
mmmmmmm yes - I suppose some people do have an expresive language of a different genre to mine.... cyn ... strong ... only of ... polar ... found it...
-I agree and am trying to get into the Organisation which "rules over" orphan illnesses in Europe - Europe being of course just a multilingual, multicultural...
Hi Barbara, how wonderful that your brother made that flyer- however, I didn't understand this statement in it: because the medical field does not know what to...
Hi Jean, well I have to say that if the site is helpful I couldn't get to that part as I was taken aback by the severe cursing and stuff, not my style of site....
well, all I can say is that if he wont even give us a chance, then he'll never know we're real and we are out here suffering just like him.... Love, blessings,...
Thanks to all who emailed me the link for Barbara's flyer. What a wonderful idea to have a fundraiser! I will ask our friends on Wed. night (from our bowling...
Yahoo Global Health Network http://www.GlobalHealthNetwork.org Group Guidelines and Rules of Netiquette The Group owners/moderators will enforce these...
Dercums_Disease@yahoo...
Apr 2, 2006 1:18 am
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Thanks for the replies. Judi and Shea, I think I am getting them in my scalp too. I don't feel the lump yet but several areas on my scalp, especially in my...
Some gentle hugs for you all by yourself Judi, there is only so much punishment the human body can take, let alone a DD human body....... Hugs, Cynthia ... ...
I received a copy of the histology report following the excision of one of lipomas. Macroscopic: Encapsulated fibrofatty tissue 48x23x12 mm. Ax2, Bx2 ...
I went to see doctor last week which I thought might have been a lipoma inside my knee.... had sharp pain in lower calf and a bulging lump at the back of my...
Hi, Is it a symptom of Dercums to get a skin rash on the skin above the tumors? I've got a rash on my left lower back and I don't know what it is. I've been...
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