I know what you are saying, I have had this disease at least 12-15 or more years ago but
was just diagnosed two years back, it is progressive and even though I get various tumors
removed, I feel better for a while and then some new ones pop up either right where I had lipomas removed or new. There is no winning, Yesterday and today is the full moon up in my sky. I wonder if some people are feeling more pain because of the weather and the tides from the moon.
Suzi
From: Donna Ross <irakel2@...> To: dercums_disease@yahoogroups.com Sent: Tue, November 3, 2009 3:48:23 PM Subject: [Dercums_Disease] where is everyone?
I don't post very often but I always read them. I have not been doing good lately. I am seeing a doctor today to see what they can do for the pain. I am 69 and getting really tired of dercums. I fall a lot because of the lipomas in my left leg that they say they can't take out because it would make it worse. Every time I fall new lipomas grow. I use a cane ( Harold ) when I go to town, but not at home. We live in the country. I still do some yard work, I love flowers and clean house but not like I use to. My husband does most of the cooking. I find it hard to stand in one place very long. I didn't even decorate for Halloween this year. The pain just never stops. I guess this is it, you just keep getting worse, then what do you do? I have had dercum's for years and could manage but not with the way it is now. Donna
I don't post very often but I always read them. I have not been doing good lately. I am seeing a doctor today to see what they can do for the pain. I am 69 and...
Hello Donna I remember when the lipoma or lipomatosis near my knee was hurting so bad, I got mad went to ortho did xray of the knee it was fine I knew it was...
Dear Donna, I know what you are saying, I have had this disease at least 12-15 or more years ago but was just diagnosed two years back, it is progressive and...
I think so, Suzi. My pain levels are way up this week. Full moon and weather fronts coming through pretty rapidly always do that to me. Hugs and spoons, Pamela...
i have been wondering to where is everyone? Nov 3, 2009 06:08:04 PM, Dercums_Disease@yahoogroups.com wrote: Dear Donna, I know what you are saying, I have had...
HI Donna, We're here. I think those of us who aren't too ill to post are just too busy. I'm fifty-five, and have had this most of my life, but I was only...
We are trying to handle bad news about my boyfriend's mother's cancer and h e is spending part of the time here and part of the week down there at her house. I...
Hi Donna, You don't say if you are or have tried any of Dr. Herbst recommendations for supplements, diet, etc. Some may be really helpful to you and might ...
Hello everyone, I'm still around, just trying to keep up with the demands of life. Donna, I'm 63, and have had this probably most of my adult life, only found...
Hello Judi, it is so good to read you....I wondered how you and Ron were...just lovely to hear that you are okay. And you are so right DD does affect us all...
I was doing well for several days, not a lot of pain and very clear headed but a great deal of stress with my boyfriend and his mother's cancer has just...
Hi Kay~K, It is so good to hear from you! I'm glad to hear you and hubby are enjoying your travels and that you are okay. It sounds like you and your family...
sorry you have a temp and feeling lousy again, I am havng pain now but i will rest after my chat group that starts now actually gotta go cht later! hope you...
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