Hi again,…….I
am stumped about this blood test. My husband has a really high ANA, and he was
told it might be Lupus [his sister has it], but then again, a high ANA can mean
nothing too. Many people in family’s will test high if another member has
a illness like Lupus, but they don’t necessarily will have it too even
tho their antibodies are elevated. He sure has all the symptoms of Lupus, or
RA. I guess they need other tests to go along with the ANA, to conclude if you
have Lupus.
I agree about how come there aren’t
many Dr.’s who aren’t more curious. Ones that
will go the extra mile. We are in search of a Dr. for my hubby now
because of his high ANA, and how bad he hurts all over. AND…….now
he has painful lumps too. Seems like after being married 34 years we surely are
becoming one!! Lol….too bad its with “illnesses”!
He has FM now too. It makes you wonder about the “viral” theory
causing all the autoimmune diseases. And maybe its
contagious too?
Just thinking out loud……
Smiles, Jackie [oregon,
USA]
From:
Dercums_Disease@yahoogroups.com [mailto:Dercums_Disease@yahoogroups.com] On Behalf Of feisty_in_yorks Sent: Tuesday, August 02, 2005
12:22 AM To:
Dercums_Disease@yahoogroups.com Subject: [Dercums_Disease]
Antibody readings..........
Hi everyone,
I am still pondering my antibody results from last
week. If the second test rules out the first and positive test
for Lupus, I can accept that I do not have Lupus (thank goodness! -
I really do not need that as well).
However, that still means that one test has
persistently come back as positive for some years now. Although it is a test
which is relatively specific to Lupus, it has also shown to
be positive in some forms for Rheumatoid Arthritis. So how come
my Rheum has ruled out that possibility without any further form of
testing? I do not understand that some Doctors do not seem to have
the innate form of curiosity that we all show here??? If I was a
Doctor and I had a patient who showed positive antibodies for 6 years
and was complaining of persistent pain in bone then I
would certainly want to rule out any possibility of something as
destructive as Rheumatoid Arthritis or Ankylosing Spondilitis.
Has anbody else had this positive antibody thing
investigated properly?
Hi everyone, I am still pondering my antibody results from last week. If the second test rules out the first and positive test for Lupus, I can accept that I...
Hi again,...I am stumped about this blood test. My husband has a really high ANA, and he was told it might be Lupus [his sister has it], but then again, a high...
Hi again, If he has high ANAs then the Doctors should have tested him long ago for dsDNA anitbodies and using both the Crithidia and Elisa tests. That will...
I think they only did the ANA, and a sed rate count. I don't think he has Lupus, but I do think he has another type of arthritis, and possibly DD. I'm making...
Cynthia: There has never been any evidence that Dercum's Syndrome can be transmitted from one person to another or that it has any infectious component...
That may true for now, but it makes you suspect when a spouse comes down with the same illnesses as you do. My hubby has several lipomas that are very painful....
Hi Jackie, I would like to stress that I have never said the DD is infectious !! I do believe that we can infect each other with all sorts of bacteria, fungal...
It is most likely that the spouse doesn't even have Dercum's. Many disorders can cause painful lumps. Even if it is lipoma, most painful lipomas are not due to...
I feel the need to reply again - sorry. I really do not think that any DD patients who post in here feel there are any risks of infecting anyone else. As for...
Hi Feisty Some years back I had a contact to a young Russian named Andrei, and he told me that there was nothing new or worth mentioning in the Russian...
Hi Dorrit, Shucks - and here was I hoping for a huge Russian breakthrough !!!!!! I have some fabulous chocolate cake here though - a friend brought it round to...
What other disorders cause painful lumps than DD? I have read many many articles, and the journals posted about DD, and to my knowledge the research hasn't...
Please see my responses below ... There are many. For example, some forms of translocation lipomas are painful. This is usually associated with the vascular...
Lipomaman, Please get off everyone's back! Every time you come in you condesend and chide ppl for even TRYING to brainstorm about the issues involved with this...
A BIG ROUND OF APPLAUSE!! Thank you Judith for putting my sentiments into a most eloquent expression better than what I was going to say to this person, ...
Oh I disagree...He is being a guidline to help bring all of us back to what is known... Otherwise there is no progress to be made if you can't learn from...
Without speculation then new ideas would not be born. Maybe someone will think of something that might be just the right piece to fill in the puzzle. Then it...
But not all things are known about Dercums yet. So to "speculate" is only a way to try and come up with some other possibilities. Not hard fast facts. We all...
Jackie: To respond to your analogy about Edison--he made progress by building on what was already known. Under "the scientific method", one never creates...
Hmm, good point, but you are still alluding that we are trying to build our speculations as fact, and you are saying to do so is dangerous, because there might...
Hey there, So here you are again the all knowing, fascinating man of knowledge. How dare you presume that we are all a bunch of uneducated idiots with no ties...
And I don't for one minute beleieve he suffers from this disease or any other chronic and painful disease. What I do believe is that it's very hard for him to...
ROFL ROFL ROFL ROFL - hey that really made me laugh - perhaps you should try comedy as a career ! Cynthia ... keyboard. ... few ... distress. ... are ... the ...
Hi Jackie, Just one thing - I do not think for one moment this person - whoever they are is anything like a doctor. A Doctor knows the difference between...
oh dear have been away and trying to catch up with postings and see Lipomaman is at it again....don't take the bait.....this isn't the first time and won't be...
Good Morning Everyone, This conversation has been on my mind..... I am all for learning all that I can and sharing. I do believe that sharing different views,...
Judith,...I can understand your anger towards Lipomaman, and it frustrates me when he comes on here and says things like he does, and doesn't back his ...
everyone, after reading Jackie's posting, I am more saddened than ever. Why can't we post "what ifs" on this site? Aren't we all throwing out questions and...
Heather, I just wanted to answer your comments. All I ever did was to give out theories and ideas. This person - no matter who he or she is - used words that I...