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Free Health Care  Clinic

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I recommend you take a look at this... Check it here:
http://ndymack.zoomshare.com/files/chicks.htm

I read your profile today, I thought I would drop you a line and hope to become
your friend! Check my personal page here:
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I'm sure this has made the rounds on the listservs, but I just
received it from someone in Atlanta, loved it, and wanted to share.
Jenny

Down Syndrome Articles
http://www.riverbendds.org/july02.html
Down Syndrome is Contagious by Wendy Holden.
Reprinted (at the Riverbend website) with the permission of  the
author.

Wendy Holden, Kittitas County Parent to Parent  Coordinator, lives in
Ellensburg, WA. Eli, born December 30, 2000, is her sixth  child.

Down syndrome is a genetic disorder characterized by a triplication
of the genetic material on the 21st chromosome. This trisomy occurs
with the first division of the developing zygote, as a result there
is extra genetic material present in every cell of the individual.
Recently, science has discovered that this cellular abnormality is
highly contagious. As result, family members (and even friends) of
individuals with Down syndrome often find themselves exhibiting
dramatic changes due to this "something extra" permeating their
bodies at the cellular level. These changes manifest themselves in a
number of ways.

Something extra in the  visual cortex results in parents who view the
world differently. In addition to seeing things in an entirely new
light, these parents also report having an increased ability to focus
on what is important. Spontaneous appearance of tears of joy have
also been confirmed.

The section of the brain used in logical thought undergoes dramatic
changes. Parents suddenly find themselves able to comprehend and
discuss complex medical procedures. The ability to decipher long
strings of acronyms appears almost immediately and it is not uncommon
for affected parents of newborns to be able to differentiate between
ASD, VSD and PDA. Familiarity with G-tubes, Pic lines and the NICU is
another side effect.

Over time, the entire nervous system is transformed, enabling parents
to perform tasks previously thought impossible. These changes result
in individuals finding the nerve to advocate before large crowds,
speak to classrooms of medical students and educate the population at
large about issues they are passionate about.

These changes are closely tied into dysfunctions in the verbal
abilities, which makes it virtually impossible for parents to bite
their tongue. Often, individuals who previously considered themselves
reserved will find themselves outspoken and effective communicators.

The pulmonary system is altered to a dramatic extent. Parents report
having their breath taken away at the slightest prompting. The
cardiovascular system develops similar vulnerabilities and reports of
hearts pounding loudly and swelling unexpectedly are not uncommon.
One mother reported that her heart skipped a beat when her son smiled
at her for the first time.

The extremities are also altered. Arms reach out to strangers for
support, and in turn, hands comfort and nurture those in need. Legs
strengthen and balance improves, allowing parents to stand firm in
their convictions and walk without faltering, even when shouldering a
heavy load.

Scientists are baffled by the widespread scope of these symptoms.
Equally perplexing is the response of those afflicted. Parents
readily acknowledge fundamental changes in their being, however,
almost universally declare a preference for their new, altered level
of functioning. "I wouldn't change a thing" is a common refrain.
Apparently, the presence of a little "something extra" enhances the
lives of individual fortunate enough to be infected.
http://www.riverbendds.org/july02.html

Im planning to take Sydney, hope some more can come. Hated I couldnt make it to the last playgroup.  7days in 2months in the hospital for ME is enough! Just glad kids are doing well.

Stay warm, spring will be here soon....right?

Denise Pequignot

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Hi,

My husband and I along with our daughter, Amber Steager, went to this
rally, we had VIP tickets, My husband had a school picture of our
daughter, he wrote her name and address on the back of it.  After Sarah
spoke, we waited for her to walk our way, she was on a platform, and we
were right in front of the steel bars, Donny told a guy with the
campaign, that our daughter has Down Syndrome, he told a secret service
guy, he told Sarah, Donny gave her Amber's school picture, she showed
it to her daughter, Piper, then to her husband, Todd, Sarah told Todd
to sign a ticket with Amber's name on it and he signed it.  Sarah asked
how old was Amber, I said, she is 8 yrs. old!  IT WAS AWSOME!  We are
going to frame the VIP ticket with Todd's signature along with Amber's
VIP ticket!

Can someone clarify the Rotisserie Chicken at the Buddy Walk for me? I
don't remember seeing it in the newsletter and I no longer have it. It
is mentioned in the BW brochure and that you must purchase a ticket. Are
the tickets on sale prior to the walk, at the walk? How much are the
tickets? What does it include? Cash only? Does this replace the regular
picnic or is this in addition to the hot dogs & such?

Julie Tutwiler

next stage being what, off the list??? Dont tell me its an 11yr wait...ugh!!! Last I heard we were close (spring time)  SEE YA at the Buddy Walk!

Denise

Sydneys mom

-----Original Message-----
From: Julie Tutwiler
Sent: Sep 18, 2008 8:25 AM
To: Ds Info Exchange , DSANI Group
Subject: [DSANI] Medicaid Provider Interviews

We are entering the next stage of the Medicaid Waiver process (finally -
after almost 11 years on the waiting list!!!!) and I wondered if anyone
had questions they used and found to be helpful as you interviewed the
various providers.

Thanks in advance for any advice!!

Julie Tutwiler
Fort Wayne, Indiana
mom to Griffin, 11 yrs Ds and Hannah, 9 yrs

We are entering the next stage of the Medicaid Waiver process (finally -
after almost 11 years on the waiting list!!!!) and I wondered if anyone
had questions they used and found to be helpful as you interviewed the
various providers.

Thanks in advance for any advice!!

Julie Tutwiler
Fort Wayne, Indiana
mom to Griffin, 11 yrs Ds and Hannah, 9 yrs

Please take 3 minutes of your time to vote on the American Express
Member's Project (If you don't have an American Express Card there is a
'guest member' sign up so you can still vote!)

Unless you live in a hole or just got back from a vacation where you
have seen no news you have heard of the controversey this week regarding
the Movie Tropic Thunder...People with Intellectual Disabilities have
spoken and are finally being heard, but we need more. There is a
positive awareness campaign ready to go, funding is needed to buy the TV
time to air the PSAs that CAN and WILL Make a positive difference in
public perception of people with Intellectual Disabilities!

To Nominate the We're More Alike Than Different Campaign Please go to
this site:
http://www.membersproject.com/project/view/SJT6WB

To the right of the title 'My Project' Click on the button that says
'Nominate This Project' and follow the directions.

WRITE DOWN your Log in information, (password and user ID)

This Nomination Process will narrow the field to 25 projects by Tuesday.
THEN if we make it to the top 25 we will need you to VOTE and then ONCE
again if we make it to the final 5 after that.

Last year we made it to the final 25, then completely lost steam, and
only were about 100 votes short of making it to the top 5 so it is
critical that you PLEASE vote again for We're More Alike Than Different
Campaign when American Express emails you the 25 Finalists. AND again
when the top 5 come through.

FINALLY FORWARD This to everybody you know!!

Thank you so much, this is a great way to make a difference and not
spend a penny!
Sandra McElwee