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Dear Parent,
We invite you to participate in an online survey about the positive
side of parenting a child
with a disability. The study is being conducted by Teresa Ulman,
M.S., as a dissertation
project under the direction of Dr. Elisabeth Dykens, Ph.D. through
the Vanderbilt Kennedy
Center. Eligibility requirements are as follows:
· The parent must be 18 years or older
· The parent must have a child between the ages of 8 and 25 with a
diagnosis of one
(and only one) of the following: Angelman syndrome, autism, Down
syndrome, Prader-
Willi syndrome, or Williams syndrome.
We know parenting a child with a disability can be challenging at
times. But many people
find that the experience has led to personal growth in unexpected
ways. Surprisingly
there are almost no studies that look at the ways the experience can
strengthen people,
while there is plenty of research that looks at negative outcomes for
parents. This study
will provide for a more balanced understanding of how having a child
with a disability can
change a person's life.
Benefits of the study include an opportunity to reflect upon the
positive psychological
growth that you may have experienced following the birth of your
child with a disability.
The survey will take approximately 45-60 minutes to complete and
consists of a series of
questionnaires about you and your child. At the end of the study you
will have the
opportunity to write your thoughts in an unstructured format. For
further information, you
may contact Teresa Ulman by email at Teresa.ulman@ vanderbilt. edu or
by phone at
615.414.9665 or 1.888.322.5339.
**IF THE LINK DOES NOT WORK YOU CAN CUT AND PASTE THE WEB ADDRESS
INTO A NEW
WINDOW** You may begin participation in the study immediately by
clicking on of the
following link:
http://www.surveymonkey.com/ s.aspx?sm= X2D00XX0zf2t2bfF SBg4zA_3d_
3d
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