I didn't see it -- I will let you know if I hear anything else -- this is awful
and a perfect example of how we as a an organization cannot control the media

=====================
From: Lashomo@...
Date: Fri Jun 30 20:40:59 CDT 2006
To: dsani@yahoogroups.com
Subject: [DSANI] Fwd: [IDSFparents] Indy's Child Magazine cover


Julie did you see this?   How awful.  You can never tell what the newspaper or
magazine will actually print. Laurie

I thought I would post this before everyone sees the cover and
accompanying "tag line" on the Indy's Child July edition. IDSF
purchased an opportunity for a cover on Indy's Child magazine last
year at Kelly's Upside Down Ball. I don't have specifics as to how
the month of July was chosen, but Cindy Busch, our Exec. Dir. sent
out email notices about a photo shoot, and a shoot was scheduled for
June 9, the same day as the DADS golf outing. Since Cindy's
article was previously published by Indy's Child about Ds and IDSF,
they told Cindy that no article would accompany the cover shot. We
were told it would be about "Summer Fun", and the picture was shot
at the Holiday Inn waterpark.

The July edition came out today. I am devastated.

Indy's Child parenting magazine decided to use our kids on their
cover, Nash, Anthony and Mackenzie, in a nice summer pool setting,
not to promote summer fun, but to use them for the "Maternity Issue"
with a big tag line by their heads "Understanding the Results is Key
for Prenatal Screening Tests" topped off with an article written by
a woman that had prenatal testing but said "We're fortunate. Our
child was born without Down syndrome".

No "other side of the story" to assist with information from a
parent, who has a child with Down syndrome, no information about the
Indiana Down Syndrome Foundation contacts for parents that have
positive results for Down syndrome if they chose prenatal testing………
nothing. Nothing to help provide accurate information to the parents
who receive a prenatal diagnosis.

I feel our kids were used, for all the reasons we fight against. I
feel all the efforts we put forth for inclusion and advocacy were
just flushed down the toilet. I am devastated on a personal level,
because I was led to believe this was a positive spin on our kids,
and something I could cherish as something wonderful for our son and
our local Ds community.

I am trying to get past the emotions but can't- Jeff has been on the
phone to gather input from Cindy, Steve Simpson, and those at our
local ARC on how to respond, but it has to be in a positive way.

Right now I feel anything but positive…………










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