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Congenital_MMD · Congenital Myotonic Muscular Dystrophy
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Messages 237 - 266 of 806   Newest  |  < Newer  |  Older >  |  Oldest
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266
I read your profile today, I thought I would drop you a line and hope to become your friend! Check my personal page here: ...
girlfsblog
Offline Send Email
Dec 1, 2007
8:01 am
265
Hello Alyssa, I have a 5 yr old and although we have had only 3 IEP's for her (2 yrs of pre-school and one kindergarten), so far we have been very successful...
Penni Warford
penniwarford
Offline Send Email
Nov 19, 2007
5:37 am
264
-- In MyotonicDystrophy@yahoogroups.com, "fbcat21" <aquintero@...> wrote: Hello. My name is Alyssa Quintero, and I'm a writer for MDA's Quest magazine. I'm...
tfgb_99
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Nov 19, 2007
3:49 am
263
Hey everyone! Sorry if I duplicated this to someone or sent it to the wrong person, I am trying to get 'groups' made on my computer to fix this. Now that my...
Suzette Schmaltz
billydeanison
Offline Send Email
Oct 31, 2007
6:16 pm
262
Hey everyone! I just added some more pictures of Raina from this past summer. Sondra Miller...
Sondra Miller
sondramllr
Offline Send Email
Oct 26, 2007
10:44 am
261
Hey everyone! I just added some more pictures of Raina from this past summer. Sondra Miller...
Sondra Miller
sondramllr
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Oct 26, 2007
10:44 am
260
yes, this is it, my email is suzetteschmaltz@... if you want to add me to your contact list. Also you could add Robyn that way. Make every IM count....
Suzette Schmaltz
billydeanison
Offline Send Email
Oct 4, 2007
8:11 pm
259
Is this the same thing? http://webmessenger.msn.com/ Suzette Schmaltz <suzetteschmaltz@...> wrote: Hi Penny, do you have MSN instant...
Penni Warford
penniwarford
Offline Send Email
Oct 4, 2007
5:47 pm
258
no i don't .. i just ried the link below, but it didn't work .. Suzette Schmaltz <suzetteschmaltz@...> wrote: Hi Penny, do you have MSN...
Penni Warford
penniwarford
Offline Send Email
Oct 4, 2007
5:45 pm
257
Hi Penny, do you have MSN instant messenger? Many of us chat that way. Robyn and I talk a lot on MSN sometimes daily. If you download it and sign up then if we...
Suzette Schmaltz
billydeanison
Offline Send Email
Oct 4, 2007
5:14 pm
256
i just sent this and it failed .. trying again. Penni Warford <penniterp@...> wrote: Date: Thu, 4 Oct 2007 08:13:16 -0700 (PDT) From: Penni Warford...
Penni Warford
penniwarford
Offline Send Email
Oct 4, 2007
3:14 pm
255
Yes, I am sending Robyn this email. I was just chatting with her!! Climb to the top of the charts! Play the word scramble challenge with star power....
Suzette Schmaltz
billydeanison
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Oct 4, 2007
2:52 pm
254
Hi Suzette and everyone. Do any of you have contact info for Robyn and Joe in Olympia? I planned to join MMD chat last night and track Robyn down there, but I...
Penni Warford
penniwarford
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Oct 4, 2007
2:42 pm
253
Thanks. That would be great. Sondra...
Sondra
sondramllr
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Oct 4, 2007
3:05 am
252
I am going to order the DVD as well for my Indiana support group families. If and when I find out is is ready I will post here and let everyone know as well. ...
Suzette Schmaltz
billydeanison
Offline Send Email
Oct 3, 2007
12:26 pm
251
I would also like to know when the dvd is available as we live in Rhode Island and were not able to attend. I cannot wait! Thanks, Jess ... From: Sondra To:...
Jess Harkins
justjess06
Offline Send Email
Oct 2, 2007
11:27 pm
250
Suzette, Please also let me know when the DVD is available. I didn't get to see the webcast. We were out of town. Sondra ... Suzette, Please also let me know...
Sondra
sondramllr
Offline Send Email
Oct 2, 2007
6:44 am
249
I am in south florida its 11 pm Cece Stearns <cece@...> wrote: Debbie, when I've been at the site, it says it is offline. I don't get it. Where...
Debbie Judge
debj1111
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Oct 2, 2007
3:03 am
248
Yes Debbie. I just got back from Los Angeles. Corey taped the conference and it will be available on DVD soon. I have copied his email above for you to find...
Suzette Schmaltz
billydeanison
Offline Send Email
Oct 2, 2007
1:54 am
247
Debbie, when I've been at the site, it says it is offline. I don't get it. Where are you located? Cece...
Cece Stearns
flyinginca
Offline Send Email
Oct 1, 2007
1:29 am
246
I watched it but it was so hard to understand especially the second speaker Dr. Said. The screen was so blurry i tried to take notes but it was difficult. I...
Debbie Judge
debj1111
Offline Send Email
Sep 30, 2007
11:27 pm
245
Hi, I'm logged onto the AWCAST website and the MD webcast is off line. I think I'm at the right place. I looked at their calendar of events at the site .. ...
Cece Stearns
flyinginca
Offline Send Email
Sep 30, 2007
7:43 pm
244
To whom it may concern, Is there anyway to save this on my computer so I can share with our Physicians and specialist down here in south florida? Or if there...
Debbie Judge
debj1111
Offline Send Email
Sep 29, 2007
8:05 pm
243
I just found out that the main speakers from the MDAASG (Myotonic Dystrophy Awareness and Support Group) will be webcast live on the internet on Sunday. Dr....
T B
tfgb_99
Offline Send Email
Sep 29, 2007
6:22 am
242
Hey Penny, Can you send me or Lisa your email address and we will forward it to the Long Beach MDA office so you can get an invitation? I am at...
Suzette Schmaltz
billydeanison
Offline Send Email
Aug 30, 2007
2:51 am
241
Hi All - Penni here in from northern California. I'm still waiting on a call or email back from the conference facilitators regarding the cost of the Universal...
Penni Warford
penniwarford
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Aug 30, 2007
2:42 am
240
I uinderstand that the conference will be videotaped. I will post info on this if I get further details. T. ... wondered if there will be a way to purchase or...
tfgb_99
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Aug 30, 2007
1:20 am
239
I am from Las Vegas, Nevada. Sondra...
Sondra
sondramllr
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Aug 29, 2007
4:02 am
238
Hi parents, It has been a long while us but we do read what everyone is writing. Jack is 31/2 now. He is still not walking independantly he uses a walker...
Debbie Judge
debj1111
Offline Send Email
Aug 28, 2007
1:07 pm
237
Sondra, Hi there, I am Jess and I am new to this group. I am a mom of David, also a 5 yr old with CMD. David will be 6 this November. Although he did not...
Jess Harkins
justjess06
Offline Send Email
Aug 27, 2007
12:47 pm
Messages 237 - 266 of 806   Newest  |  < Newer  |  Older >  |  Oldest
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