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ClubRett · ClubRett: Rett Syndrome Support
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Group Information

  • Members: 435
  • Category: Rett Syndrome
  • Founded: Feb 21, 2000
  • Language: English
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59 New Messages - New Questions

Description

Our Mailing List is for ADULTS who have a Rett Syndrome Angel in their life. It is a place to share ANYTHING you want to talk about.

(And we DO talk about anything)

If you have problems subscribing, please email

Connie at CACoughlin@aol.com or Tamra at tamravarebrook@yahoo.com

Rett Syndrome (RS) is a neurological disorder seen almost exclusively in females, and found in a variety of racial and ethnic groups worldwide.

It is now known that RS can occur in males, but is usually lethal, causing miscarriage, stillbirth or early death.

First described by Dr. Andreas Rett, RS received worldwide recognition following a paper by Dr. Bengt Hagberg and colleagues in 1983.

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