Dear LJC,

Thank you for connecting People With Pain International, and
Invisible-NO-MORE, in with communicating with the Congress and relating
inquiries to your own book, A Pained Life. Tonight in particular, but just
representative, there are folks online in extreme distress and expressing
some profound indignities but also feelings of extreme helpfulness from how
they are received when in pain.

As we have discussed, this stress transcends models - medical, social, and
otherwise, and make us more than embarrassed at the verbal and other
demeaning response to pain sufferers. We can and must maintain our Rights
approach even though the challenge will always be there because varieties of
human attitudes will always be. So will those who strive for equality. And
keeping up with the Law - international, national, and local - is a key
factor. So your good endeavors are much appreciated.

Sincere regards, LDMF.

------------
Linda D. Misek-Falkoff, Ph.D., J.D..
Today's Signature Line note: New: join
www.yahoogroups.com/groups/portal-pwpi People with Pain International / and
/ HRPP Human Rights of People with Pain.

----- Original Message -----
From: <leejcaroll@...>
To: <invisible-NO-MORE@yahoogroups.com>
Cc: <DisabilityConvention@yahoogroups.com>; <pwpi-portal@yahoogroups.com>
Sent: Tuesday, March 01, 2005 9:04 PM
Subject: [DisabilityConvention] letter sent to Rep. Hooley



Sent this to Rep Hooley who had the other (or companion) bill wasn;t sure
because it seems to read as both)
This is another person to write to about the pain bill.
_http://www.congress.org/congressorg/home/_
(http://www.congress.org/congressorg/home/)

"Dear Rep. Hooley, I aoporeciated your companion bill to HR1863 but from my
research it seems no action has been taken on either. I was unable to find
any information on the White House conference that was supposed to take
place
in 2004.
I would appreciate any information you could provide. Thank you.
Carol Levy,
author A Pained Life, a chronic pain journey.
Member, PWPI, persons with pain international.
Member, Invisible No More"

(linda, It didn't take clicks so hope this signature was okay)




House Bills - 108th Congress
Session I | Session II


H.R. 2507—Conquering Pain Act of 2003
On June 18, 2003, Representative Darlene Hooley (D-OR) introduced H.R.
2507,
the Conquering Pain Act of 2003. While the majority of the legislation
would
address services and insurance coverage, there is a provision which would
require NIH to convene a national conference to discuss the translation of
pain
research into the delivery of health services, including mental health
services, to chronic pain patients and those needing end-of-life care. The
Secretary of HHS would be required to use unobligated amounts appropriated
for the
Department of Health and Human Services to convene the conference. Upon
introduction, the bill had no cosponsors and was referred to the House
Committees
on Commerce and on Ways and Means. S. 1278, the companion measure to H.R.
2507, was introduced by Senator Ron Wyden (D-OR) on June 18.








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