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ChronicPainCooperate · 'ChronicPainCooperate,''a [CPC] Forum on [http://www.onelist.com] as of 2-25-99, aims to ease *communications* among Chronic P
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Here is some Discussion from Persons Working on the Disability "Tre   Message List  
Reply | Forward Message #2121 of 2503 |
(from a different list on the Web):
Dear <listmates>:
 
Re the previous question:  >"Where is the border between chronic illness and disability?"
 
I was just looking at this post again.  Here are some comments:
 
1.  PERSPECTIVES
 I am thinking that to answer this from a social perspective as the IDCC so far prefers, one could say - well, let's rephrase it socially. So might  we not therefore ask:
 
        "In the minds of beholders, where is a distinction  between chronic Illness and disability?" 
A corresponding answer, then, is e.g.  
        "The line between, if there is a  discernable one, is in the eye of the beholder."
 
In this light, "chronic" medical and "chronic" non-medical conditions, factors, or features, might look the same or similar. Then it wouldn't matter if the situation was viewed by us as medical or psychosocial or other. (I think perhaps something like this was notated by <listmate> also.  <listmate?>)
 
2.  PRESUMPTIONS
Having said that we could reframe the question to suit the forum, let's proceed to the particulars and in fact the key phrase "chronic."
 
From here,  I would not see these on a continuum with definable borders on a continuum line.  It's more complicated, but not necessarily intractably so. 
 
Simply if simplistically illustrated for discussion purposes, consider that one could have a chronic condition that was not medically 'serious' and yet disabling, as the Convention discussions construe disablement in terms of societally imposed barriers and restrictions, even unlawful and inhumane discrimination. (Many types of pain are examples.  Conditions that restrict mobility can be also). 
 
 Or one could have a chronic and medically grave situation which is not disabling. (Some cancers, for instance,  are notaby so before even death).  So illness and disability can be orthogonal, sometimes but not always linked /  paired, considerations.
 
3.  PLATFORM
Therefore I derive from the above that our time is not wasted looking to well-formedness of questions.  And that the social perspective might kick in, but is not complete (I note your own helpful citation to medical conditions.as perceived in your Regions).
 
Plus, if we are to discuss the word "chronic" we will have our hands full - but why not (? and !).  There was a time people reported "chronic" problems but more recently that tends to get a "Then go away, it's been like that a long time, so just live with it and don't bother me/us with it" response -  therefore exclusion from "help"  and support.
 
So it's quite a controversial term in itself !  Your discussion very welcomed.
 
Very best wishes, LindaMF.

------------
L. D. Misek-Falkoff, Ph.D., J.D..
Today's Signature Line note:  New:  join
www.yahoogroups.com/groups/pwpi   People with Pain International / and / HRPP Human Rights of People with Pain.


Sat Feb 19, 2005 1:24 pm

includey2001
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(from a different list on the Web): Dear <listmates>: Re the previous question: >"Where is the border between chronic illness and disability?" I was just...
l.d.misek-falkoff
includey2001
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Feb 19, 2005
1:24 pm
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