Greetings: for your attention, interest, and comments, we forward this now widely circulating Persons in Pain Bill of Rights. Also you are very welcome to subscribe to ongoing discussion of pain policiy, law, and pain patient benefits - nationally and internationally. The direct url's are:
http://www.yahoogroups.com/group/invisible-NO-MORE
http://www.yahoogroups.com/group/C-O-P-I-N-G_UN
and description is at the announcement link below:
----- Sign-line revised 072003 : Recipients, please share where there seems a fit: http://home.att.net/~ldmf-docs/announce-c.htm invisible-NO-MORE (peer-2-peer) ; C-O-P-I-N-G_UN (both peer and support/providers, Community of Pain Interest Networking Grps for UN Participation.
Sending best wishes, and the URL (link) to the source site for the "Bill" at:
http://www.painfoundation.org/page.asp?menu=1&item=5&file=BillofRights.htm#1
[American Pain Foundation] Pain Care Bill of Rights
As a person with pain, you have the right to:
- have your report of pain taken seriously and to be treated with dignity and respect by doctors, nurses, pharmacists, and other healthcare professionals.
- have your pain thoroughly assessed and promptly treated.
- be informed by your healthcare provider about what may be causing your pain, possible treatments, and the benefits, risks and costs of each.
- participate actively in decisions about how to manage your pain.
- have your pain reassessed regularly and your treatment adjusted if your pain has not been eased.
- be referred to a pain specialist if your pain persists.
- get clear and prompt answers to your questions, take time to make decisions, and refuse a particular type of treatment if you choose.
Although not always required by law, these are the rights you should expect, and if necessary demand, for your pain care.
------- email from:
for references only: [L. D. Misek-Falkoff, Ph.D., J.D., U.N. Disability Convention Rep. of Communication and Coordination Committee for the U.N. (CCC/U.N.) NGO , and U.N. Rep - Information Habitat NGO. Speaker the National Disability Party and Chronic Pain Caucus Chair, Staff, Disability Grapevine Online Daily Newspaper. Moderator Internet disability/law discussion groups. Member - AARP AAUW ACLU American Pain Society, Trigeminal Neuralgia Association, UN. NGO Committees on the Status of Women, NGO Committee on Mental Health, other Human Rights Working Groups; currently joining Committee on Aging, Also forming: a-world.info: affiliates - womens online rights legal doorway. The foregoing are not paid positions.
for references only: [L. D. Misek-Falkoff, Ph.D., J.D., U.N. Disability Convention Rep. of Communication and Coordination Committee for the U.N. (CCC/U.N.) NGO , and U.N. Rep - Information Habitat NGO. Speaker the National Disability Party and Chronic Pain Caucus Chair, Staff, Disability Grapevine Online Daily Newspaper. Moderator Internet disability/law discussion groups. Member - AARP AAUW ACLU American Pain Society, Trigeminal Neuralgia Association, UN. NGO Committees on the Status of Women, NGO Committee on Mental Health, other Human Rights Working Groups; currently joining Committee on Aging, Also forming: a-world.info: affiliates - womens online rights legal doorway. The foregoing are not paid positions.