Has anyone had problems with redness in the outer corner of the eye? I am 4 months past surgery and the redness persists. I have called Boston and tried some...
10393
jeremyasu
Jan 4, 2011 5:09 pm
Hi Connie, I finished my proton beam therapy on the last day of September this year...my treated eye is still slightly red all over. It doesn't look very bad...
10394
Elizabeth Gross
grammaba
Jan 4, 2011 6:50 pm
This is the first message I've gotten from this site in weeks. I feel like I"m missing a lot, but I don't know why. Any ideas? Liz in SC ... Hi Connie, I...
10395
ConnieRobillard@...
conniej67
Jan 4, 2011 6:59 pm
Hi Jeremy I thank you for sharing this and also are you on drops of some kind or have those stopped? Please share your results and I wish you all the best on...
10396
jeremyasu
Jan 4, 2011 7:11 pm
Hi Connie - I was on drops for only two weeks after treatment ended, and haven't gone back on drops since. I have used liquid tears on two occasions, however,...
10397
ConnieRobillard@...
conniej67
Jan 4, 2011 7:13 pm
Thank you It sounds like you have done extremely well. Keep us posted about what happens on Friday. In a message dated 1/4/2011 2:11:36 P.M. Eastern Standard...
10398
Lynne S.
rbirdalynne
Jan 4, 2011 7:21 pm
There hasn't been any activity on the site. This is the first message I received, as well. I could look at the site and see if there are others, but I doubt...
10399
Elizabeth Gross
grammaba
Jan 4, 2011 7:23 pm
Thanks for replying, Lynne. Still no word from Margaret. Be well. ... There hasn't been any activity on the site. This is the first message I received, as...
10400
ConnieRobillard@...
conniej67
Jan 4, 2011 7:23 pm
I noticed that too - no emails or activity for a while. Have you folks seen this - I _http://www.wmur.com/health/26347597/detail.html_ ...
10401
Lynne S.
rbirdalynne
Jan 4, 2011 7:41 pm
Her e-mail address was incorrect, so I let her know that on the eyecancer.com site, and to write me offline, at which point I would give her your address.If...
10402
Lynne
rbirdalynne
Jan 5, 2011 3:45 am
and see that they were posted here. I thought I was corresponding one on one, and would not have divulged the contribution information. I know I didn't say...
10403
rightyeyeball
Jan 7, 2011 6:51 pm
Hi Connie, My name is Danielle. I am 37 y/o mother living in Arizona. I was dx with CM July 2008. I had surgery and received proton beam radiation tx Aug 2008...
10404
ConnieRobillard@...
conniej67
Jan 8, 2011 12:35 am
Thank you Danielle I am having a hard time finding a local eye doctor that has had experience with CM. I am in NH Boston seems to be the place to go for...
10405
ConnieRobillard@...
conniej67
Jan 8, 2011 2:34 am
Hey Jeremy I hope you had a good day. I thought of you hoping that things went well with your appointment. Connie ... From: jeremyasu <jeremyasu@...> To:...
10406
ConnieRobillard@...
conniej67
Jan 10, 2011 11:47 pm
Has anyone ever heard of this. This information did not come from an eye specialist but instead an oncologist who read my brain MRI. "There is blood pooled...
10407
Lynne
rbirdalynne
Jan 11, 2011 12:41 am
Connie, I've had plaque, and I've heard of hemorrhaging (big word--don't make too much of it) behind the eye with that--though it's by no means a given. The...
10408
ConnieRobillard@...
conniej67
Jan 11, 2011 1:39 am
I do not know what I would do without having people like Lynne Thank you - Of course it is the eye people in Boston who I need to talk to. ... From: Lynne...
10409
jeremyasu
Jan 11, 2011 4:38 pm
Hi Connie, Thanks for the nice message. Fortunately I got good news at my 3 month follow up. The sub-retinal fluid that had accumulated is nearly gone, and the...
10410
ConnieRobillard@...
conniej67
Jan 11, 2011 7:44 pm
The radiology report has been faxed to Boston and I am waiting for the doctor to call back. I am glad to hear your tumor is shrinking and your fluid is being...
10411
ConnieRobillard@...
conniej67
Jan 11, 2011 9:33 pm
Hi Jeremy Boston called. They said yes, there is bleeding behind the eye ,probably from the radiation. There is some swelling, probably the tumor dying. Keep...
10413
peace12009
Feb 8, 2011 9:40 pm
Hi, How is everyone doing? Anne Marie...
10414
Linda
felixhaley
Feb 8, 2011 11:12 pm
Hi Anne Marie, Still going to Duke every couple of months for an Avastin shot. I was just there last Wednesday. Had macular hole surgery on the CM eye in Sept....
10415
Connie Robillard
conniej67
Feb 9, 2011 12:16 am
Hi Anne Marie I am still getting used to the eye changes. There is bleeding at the back of the eye. It was seen on the brain scan. Boston doctor says its...
10416
Carol Wilson
sqrlmnky2002
Feb 9, 2011 3:20 am
Hi Anne Marie, This site has been very quiet for quite some time and not sure why. How are you doing? Carol from NY ... From: peace12009 <peace12009@...>...
10417
Carol Wilson
sqrlmnky2002
Feb 9, 2011 3:21 am
... From: Carol Wilson <sqrlmnky2002@...> Subject: Re: [ChoroidalMelanoma] Where is everybody? To: ChoroidalMelanoma@yahoogroups.com Date: Tuesday,...
10418
Carol Wilson
sqrlmnky2002
Feb 9, 2011 3:22 am
... From: Carol Wilson <sqrlmnky2002@...> Subject: Fw: Re: [ChoroidalMelanoma] Where is everybody? To: choroidalmelanoma@yahoogroups.com Date: Tuesday,...
10419
shannonbaxter41
Feb 10, 2011 12:35 am
My dad has been diagnosed with choroidal melanoma. The tumor is 7.5x11 mm. He is scheduled to have the plaque treatment next week. He is really worried about...
10420
Elizabeth Gross
grammaba
Feb 10, 2011 4:17 am
Hi Shannon, I had radiation plaque therapy at Wills Eye Hospital in Philly in June 2005. Wills is one of the hospitals that lets you stay in the hospital for...
10421
Tonya
tant10
Feb 10, 2011 7:00 am
Hello Shannon, My mother was diagnosed with CM and we traveled with her to Philadelphia to the Wills Institute this past December. I see the other person that...
10422
karyn@...
pinky49090
Feb 10, 2011 12:25 pm
Deep breaths! My husband was treated at Wills in October 2008 and has done very well. I read your earlier response - do I understand that patients can no...
