Thank You again Dawn for bringing this to my attention, This isn't going to fare
to well
with Jeb Bush ,but its something that, those of you just starting to search for
answers
should read carefully, Bill Heavens, Hope4Kids2@...
Please Read
Caylee's Story


Caylee was 4 yrs old when she passed and was completely full of life. There was
never a
bad moment, never a bad memory, except the one where she died.
Caylee comes from the word Katherine, meaning - PURE - and she sure was. All of
my
children had an upper respitory infection and had been to the doctor's the week
prior and
put on Zithromax. She was over the cough and on day 7 of the treatment, she got
a 99.1
fever(Thursday March 3, 2005,).
She was still acting like a healthy kid. We had been for a field trip to the
Fire Station the
day before. On Friday, she had begun vomiting. I thought it was a stomach virus.
Saturday,
she had stopped vomiting, was dry heaving and not keeping anything down, I took
her to
Healthpoint After Hours Pediatrics. They diagnosed it as a Stomach Virus. I let
her sleep
Sunday except when she wanted to go to Church, she ate some breakfast, but was
tired
because of the Promethazine they had given her.
Monday morning she looked worse, we took her to her Pediatrician about 9am. He
immediately diagnosed it on sight as Leukemia, Monday, March 7, 2005. We were
devastated. He said, "This is not a Death Sentence like it used to be." We took
her to the
Children's Cancer Center and they aspirated blood from her marrow and diagnosed
it as
ALL with a 80% chance of survival, this was the initial early diagnosis. The
next morning
the final results came in and it was not ALL, but AML and now the prognosis was
40% with
Chemo and 65% with a Transplant.
My whole world seemed to end at that moment. The Oncologist gave us her road
map and
said it would mean 10 days of Chemo and then more treatments lasting 2 1/2 years
and
then she may relapse and need a bone marrow transplant and could eventually die.
With
20 years + of experience, they had never seen or expected anything like this.
Her WBC was
283,000 and when they started Leukopheresis, a treatment that cleans out all
unnecessary
white blood cells. Her count came down momentarily to 190,000 and then went back
up to
220,000 with an hour left of the treatment. Her heart rate was now at almost
200, they
had to put a ventilator in and they explained that we could lose her. They had
to
resuscitate her twice, 2 minutes and back on Support.

She was not clotting and I was told she probably was not going to make it
through the
night. I told them to keep trying. I could not fail her. Our priest, Father Rich
from St.
Catherine's Episcopal Church was there and he said, "The last bit of love you
can give her
is to let her go." I knew he was right when the bags of blood they were putting
in to
stabalize her started coming back out. She was bleeding to death, so we had to
make a
decision to let her go before she did. The Hematologists said that it would be
far worse if
that happened. I could not bear to do that to her. So, I told them to disconnect
her and
give her to me. I held her for a long time. I touched her little feet and hands
and rubbed
her tummy that had hurt so much and kissed her over and over again. I told her
that I was
so sorry that this happened to her and that I loved being her mommy and that I
was lucky
to have had that opportunity. She died at 8:13 pm on Tuesday, March 8, 2005.

In November, her class made cards for Thanksgiving. Caylee's card said she
wanted to
thank Papa for taking her fishing, mommy for buying her things and Jesus for
giving her
TV. The last thing she said to us just a couple of hours before she passed was,
"Papa, I
want to watch TV." I want to think that Jesus was standing there telling her
whenever she
was ready to go home just say it. I think it was her way of saying to us she was
ready.

She closed her eyes and did not open them or ever speak again. I truly believe
she was
already gone.

About a week or so after Caylee passed, her younger sister contracted the Roto
Virus and
was hospitalized at the same hospital for 3 days. While we there, I asked to see
the
Hematologists and Caylee's records. The Hematologist brought them to me and
explained
that Caylee had Cytogenetic testing done. Not all Leukemia patients have this
type of
testing performed.

The Cytogenetic Testing looks for abnormalities and better identifies the type
of
treatment that should be used. Unfortunately, for us, it takes a week to get the
results
back. The results were very upsetting. Caylee had translocations and mutations
of her
DNA. Her DNA actually changed. Not all cases of Leukemia have this so called RED
FLAG.
She had two. The first was a Trisomy 8, an extra copy of her number 8
chromosome,
which would mean that if it had been present at birth or in utero, she would
have had
Myelodysplastic Syndrome (Pre-Leukemia) or been deformed and/or possibly
mentally
disabled at birth or soon after. The other was a translocation of her
chromosomes 9 and
11. They completely swapped places. The ONLY time they see this, is with Acute
Myeloid
Leukemia. Again, meaning that if she had this at birth or in utero, she would
have had
Leukemia at birth or soon after. This means something caused my daughter's DNA
to
mutate.

As upset as I was, The SEARCH for an answer began. We have hired private
independents
to do testing on our old property. The results were Radon, which was too high in
the water
at a level of 10.3 and traces of Tetrachlorethylene used in industrial cleaning,
better
known as PERC. There was a Tetrachlorethylene leak in our area, 2/3 of a mile
away that in
1999 the source was located after it had affected 90 private wells 2 blocks
south of us.
There were traces of the chemicals in our well, but lower than the safe
drinking water
standard, however if they were there to begin with, how did they get there and
what do we
know about this contaminant? The toxin is very heavy and sinks and sticks to the
bottom
of the well once it initially releases. We had put a new pump on our well about
3-4 months
prior to her death. I believe it is possible that it could still be stuck to the
bottom of the
well and not leaching off into the water at higher traces. (The only real way of
knowing is
to scrape the bottom of the well). In addition, there is also the possibility of
some
Radioactive Materials underneath our property such as an old Battery Mine, one
neighbor
put a garden in and pulled up three large batteries while doing so.

I have spoken with several scientists, physicists, epidemiologists,
oncologists,
toxicologists, etc.. and they all say pretty much the same thing... It is not a
question of
what caused Leukemia because several things are believed to, although only
certain things
cause AML, but what caused her case to move so quickly. It is already very rare
for a child
to get Myeloid Leukemia, rare for her type, rare for mutations, and rare for two
mutations,
but extremely rare for a case to move so quickly.

The CDC - ATSDR, Center for Disease Control was investigating the area, along
with the
State Health Department and the County Health Department.

The Tetrachlorethylene leak was only 2/3 of a mile away. It still does not
answer the
question as to why that chemical was in my well and where it came from. It is a
highly
dangerous toxin. Additionally, the largest Land Fill in Florida just about 3
miles away
sitting atop a hill, I am surprised it was never mentioned in their letter to
me, even though
my petition referenced it. As much as I do not trust the people who cleaned up
all of the
contaminations to begin with, you can bet I will not be stopping in my search
for the truth.
According to the EPA, the Lake is Contaminated. There are 8 borrow pits and an
old
landfill, a Superfund Site and a Brand New Power Plant all in this small town.
These are the
facts.
Another fact is: Leukemia is not a hereditary disease, only one type is caused
by a Virus.
My daughter was predisposed to Leukemia because of something in the environment
poisoning her. I am her mother in death and in life. I will not let my child die
in Vain.

Remember they currently have no Cure for Childhood Cancer. Since there is no
cure, then
let's find the CAUSE.

Known and Suspected Causes of Leukemia

SOLVENTS

A 1998 review concluded that the evidence for an association between childhood
leukemia and paternal exposure to solvents is "quite strong." Chemicals where
risks are
elevated include solvents in general, chlorinated solvents, benzene, carbon
tetrachloride,
and trichloroethylene (TCE) (5).

Radon is a naturally occurring radioactive gas that gets into homes from
materials
underneath houses, such as soil or rocks, or from water piped into the houses.
One earlier
study reported an association between levels of radon in geographic areas and
increased
risk of childhood leukemia (40).

How much is too much for our children???? and when does just a little bit of
everything
bad in everything become a CANCER COCTAIL??? I think we already have the answer.
Thank you for Reading and God Bless You All, Bill...
Caylees Website
http://www.cayleeshope.com/