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Hallowell on ADD, depression, side effects, benefits, etc   Message List  
Reply | Forward Message #1462 of 1580 |
Re: [Chicago-CHADD] Hallowell on ADD, depression, side effects, benefits, etc

As an ammendment to the earlier e-mail regarding some meds working and some not...that is not true.  The truth is what works for certain individuals does not for others.  As in most medications that deal with the brain (i.e depression)...there is no one size fits all approach.  It takes patience and a good doctor,.  And, in more than 20% of cases (as in my case) there is no med that works for the ADD...so it is all about coping mechanisms....which can be frustrating...but what is the choice?  We are all trying to find our way with our whirring brains...god bless.

Janice


-----Original Message-----
From: Tom Proko <tjp@...>
To: notify@yahoogroups.com; djhslp@...; halve31@...; Chicago-ADHD-Adults@yahoogroups.com
Sent: Tue, 18 Dec 2007 12:05 am
Subject: [Chicago-CHADD] Hallowell on ADD, depression, side effects, benefits, etc

I like Hallowell's latest book. Here is some of the first 2 chapters. I thought they were worth sharing also
 
 
Here are some excerpts from Hallowell's book Delivered from Distraction.
 
Delivered From Distraction - On Damage from not taking proper medication.
Dr Hallowell
page 76
 
...Sophie on medication, Of course, all parents feel that way. Who would want their child to take medication unless they were sure it was necessary?
 
Both the neuro-psychologist and the psychiatrist, Dr. Cerulli, who met with Sophie used the same analogy “It’s like giving someone with poor vision eyeglasses. It’s really about a chemical adjustment in the brain so your kid is able, able, to function better. This is something that can really have a positive impact on your kid.”
 
 
While all physicians or medical professionals worry about the side effects of taking medication, if the medication is properly prescribed the side effects should be minimal.
 
What people don’t consider is what the side effects of not taking medication might be. Most people who oppose the use of medication fear that medication will have negative effects on the brain, even though such negative effects have never been demonstrated.
 
We now know from solid research that repeated episodes of failure and frustration can have serious negative effects on the brain. And we know that chronic failure acts like a huge load of toxic stress and that this most definitely causes damage to the brain. It can lead to cognitive decline~—in other words, you can lose intelligence—and it can cause depression. Those are pretty serious side effects, if you ask me.
 
 
Said Nan: “At a basic level, the idea of having my kid on an amphetamine was really difficult for me. Nobody around our house is on any kind of medication. And we don’t do drugs. Actually, my husband is an alcoholic, so we don’t even have alcohol around. The idea of having my kid taking a controlled substance just did not appeal to me at all. And not understanding very much about what it was chemically, and what it was doing, made me even more apprehensive.”
 
The family thought about the issue and then went back to see Dr. Cerulli. “What really convinced me was that after Dr. Cerulli looked at her record she said, ‘From looking at this record, there’s no question in my mind that she has ADD. This is not a borderline case.’ “After seeing Dr. Cerulli and hearing her evaluation, I thought, Well, if Sophie’s willing to do this. . . And she was. For a kid who doesn’t want anybody messing in her life, to then be willing to take medication, well, that brought me to where I was willing to do it. That was a big step. And I thought, Well, let’s see what happens. And, son of a gun! She noticed a positive effect the first day”
 
 
********************************************
 
CHAPTER 1 The Skinny on ADD; Read this if you Cant Read the Whole Book
 
Most people who have ADD don’t read books all the way through. It’s not because they don’t want to; it’s because reading entire books is very difficult—sort of like singing an entire song in just one breath.
 
We want to make this book accessible to people who don’t read books all the way through. For those people, our most dear and treasured brothers and sisters in ADD, we offer this first chapter, set off from the rest of the book. Reading this will give you a good idea of what ADD is all about. If you want to learn more, ask someone who loves you to read the whole book and tell you about it. Or you can listen to it on a tape or CD.
We offer this chapter in the ADD-friendly format of Q&A. You can get the skinny on ADD in these thirty questions and answers. For more detail and research-based answers, you can refer to the chapters of particular interest.
 
For those blessed readers who intend to read the entire book, some of what’s in this Q&A will appear again, but some of it won’t, so you too should read this section.
 
Q&A ON ADD
 
 
Q: What is ADD?
A: Attention deficit disorder, or ADD, is a misleading name for an intriguing kind of mind. ADD is a name for a collection of symptoms, some positive, some negative. For many people, ADD is not a disorder but a trait, a way of being in the world. When it impairs their lives, then it becomes a disorder. But once they learn to manage its disorderly aspects, they can take full advantage of the many talents and gifts embedded in this sparking kind of mind.
 
Having ADD is like having a turbocharged race-car brain. If you take certain specific steps, then you can take advantage of the benefits ADD conveys—while avoiding the disasters it can create.
 
The diagnostic manual of mental problems, called the DSM-IV, defines ADD by a set of eighteen symptoms. To qualify for the diagnosis you need six. These diagnostic criteria are listed in chapter 12. But he careful when you read them. They describe only the downside of ADD.
 
The more you emphasize the downside, the more you create additional pathology: a nasty set of avoidable, secondary problems, like:
shame,
fear, and
a sharply diminished sense of what’s possible in life.
 
The pathology of ADD—its disorderly side—represents only one part of the total picture.
The other part, the part that the DSM-lV and other catalogs of pathology leave out, is the zesty side of ADD. People with ADD have special gifts, even if they are hidden. The most common include:
 originality,
 creativity,
charisma,
energy liveliness, an unusual sense of humor,
areas of intellectual brilliance, and
spunk.
 
Some of our most successful entrepreneurs have ADD, as do some of our most creative actors, writers, doctors, scientists, attorneys, architects, athletes, and dynamic people in all walks of life.
 
 
Q: What is the difference between ADHD and ADD?
 
A: It’s just a matter of nosology, the classification of disorders. There is arbitrariness to it all. By the current DSM-IV definition, ADD technically does not exist. By the DSM-lV definition, the term ADHD includes both ADHD with hyperactivity (the H in ADHD) and ADHD without hyperactivity. Technically, this means you can have ADHD with no symptoms of H, hence there is no need for the term ADD. But ADD, the old term, is still used by many clinicians, including the authors of this book. Whichever term you use, the important point to know is that you can have ADHD (or ADD) without showing any signs of hyperactivity or impulsivity whatsoever. ADHD without hyperactivity or impulsivity is more common among females.
 
 
Q: What is the typical profile of a person who has ADD?
A: The core symptoms of ADD are excessive distractibility, impulsivity, and restlessness. These can lead both children and adults thunder-achieve at school, at work, in relationships and marriage, and in all other settings.
 
In addition, people who have ADD often also exhibit:
 
 
Advantageous characteristics:
 
      Many creative talents, usually underdeveloped until the diagnosis is made
 
      Original, out-of-the-box thinking
 
      Tendency toward an unusual way of looking at life,
       
      A zany sense of humor,
 
      An unpredictable approach to anything and everything
 
   Remarkable persistence and resilience, if not stubbornness
 
      Warm-hearted and generous behavior
 
      Highly intuitive style
 
 
Disadvantageous characteristics:
 
     Difficulty in turning their great ideas into significant actions
 
     Difficulty in explaining themselves to others
 
     Chronic underachievement. They may be floundering in school or at work, or they may achieve at a high level (getting good grades or being president of the company does not rule out the diagnosis of ADHD), but they know they could he achieving at a higher level if only they could “find the key.”
 
     Mood often angry or down in the dumps due to frustration
 
     Major problems in handling money and making sensible financial plans
 
     Poor tolerance of frustration (Low Frustration Tolerance - LFT)
 
      Inconsistent performance despite great effort. People with ADHD do great one hour and lousy the next, or great one day and lousy the next, regardless of effort and time in preparation. They go from the penthouse to the outhouse in no time at all
 
     History of being labeled “lazy” or “a spaceshot” or “an attitude problem” by teachers or employers who do not understand what is really going on (i.e., having ADD)
 
     Trouble with organization. Kids with ADD organize by stuffing book bags and closets. Adults organize by putting everything into piles. The piles metastasize, soon covering most available space.
 
     Trouble with time management. People with ADD are terrible at estimating in advance how long a task will take. They typically procrastinate and develop a pattern of getting things done at the last minute.
 
     Search for high stimulation. People with ADD often are drawn to danger or excitement as a means of focusing. They will drive 100 mph, in order to think clearly, for example. ADD'ers are notoriously heavy on the gas pedal.
 
     Tendency to be a maverick (This can be an advantage or a disadvantage!)
 
     Impatience. People with ADD can’t stand waiting in lines or waiting for others to get to the point.
 
     Chronic wandering of the mind, or what is called distractibility. Tendency to tune out or drift away in the middle of a page or a conversation. Tendency to change subjects abruptly.
 
     Alternately highly empathic and highly empathic, depending upon the level of attention and engagement
 
     Poor ability to appreciate own strengths or perceive own shortcomings
 
     Tendency to self-medicate with alcohol or other drugs, or with addictive activities such as gambling, shopping, sexualizing, eating, or risk-taking
 
     Trouble staying put with one activity until it is done
 
     Tendency to change channels, change plans, change direction, for no apparent reason
 
     Failure to learn from mistakes. People with ADD will often use the same strategy that failed them before.
 
     Easily forgetful of their own failings and those of others. They are quick to forgive, in part because they are quick to forget.
 
     Difficulty in reading social cues, which can lead to difficulty in making and keeping friends.
 
     Tendency to get lost in own thoughts, no matter what else might be going on.
 
 
Q: Aren’t most people somewhat like this?
A: The diagnosis of ADD is based not upon the presence of these symptoms—which most people have now and then—but upon the intensity and duration of the symptoms. If you have the symptoms intensely, as compared to a group of your peers, and if you have had them all your life, you may have ADD. An apt comparison can be made with depression. While everyone has been sad, not everyone has been depressed. The difference lies in the intensity and the duration of the sadness. So it is with ADD. If you are intensely distractible, and have been forever, you may have ADD.
 
 
Q: What causes ADD? Is it inherited?
A: We don’t know exactly what causes ADD, but we do know it runs in families. Like many traits of behavior and temperament, ADD is genetically influenced, but not genetically determined. Environment combines with genetics to create ADD. Environmental toxins may play a role, watching too much television may play a role, and excessive stimulation may play a role. Genetics seems to remain the strongest likelihood though.
 
You can see the role of genetics just by glancing at basic numbers. We estimate that about 5 to 8 percent of a random sample of children have ADD. But if one parent has it, the chances of a child developing it shoot up to about 30 percent; if both parents have it, the chances leap to more than 50 percent. But genetics don’t tell the whole story. You can also acquire ADD through a lack of oxygen at birth; or from a head injury; or if your mother drank too much alcohol during pregnancy; or from elevated lead levels; perhaps from food allergies and environmental or chemical sensitivities; from too much television, video games, and the like; and in other ways we don’t yet understand.
 
 
Q: Other than its being heritable, is there any other evidence that ADD has a biological, physical basis to it, us opposed to psychological or environmental?
A: Brain scans of various kinds have shown differences between the ADD and the non-ADD brain. Four different studies done in the past decade using MRI (magnetic resonance imaging) all found a slight reduction in the size of four regions of the brain: the corpus callosum, the basal ganglia, the frontal lobes, and the cerebellar vermis, While the differences are not consistent enough to provide a diagnostic test for ADD, they do correlate with the symptoms we see in ADD. For example, the frontal lobes help with organization, time management, and decision-making, all areas that people with ADD struggle with.
 
The basal ganglia help to regulate moods and to control impulsive outbursts(also considered the area of the brain where the "filters" reside, which are sensitive to modern medication), which people with ADD also struggle with. And the cerebellum helps with balance, rhythm, coordinated movements, language, and other as yet to be proven functions. It may be that the cerebellum is far more important in regulating attention than we realize today.
 
 
Q: How many people have ADD?
A: Roughly 5 to 8 percent (many experts would put that figure much higher, some lower) of the American population has ADD. The majority of adults who have it don’t know it because people used to think ADD was only a children’s condition. We now know that adults have it too. Of the roughly 10 million adults in the United States who have ADD, only about 15 percent have been diagnosed and treated. Until we have a precise diagnostic test for ADD, however, it will be impossible to give truly accurate figures. Studies around the world—in China, Japan, India, Germany, Puerto Rico, and New Zealand—show comparable figures.
 
 
Q: Does ADD ever go away on its own?
A: Yes. The symptoms of ADD disappear during puberty in 30 to 40 percent of children, and the symptoms stay gone. ADD therefore persists into adulthood 60 to 70 percent of the time. As the brain matures, it changes in ways that may cause the negative symptoms to lessen. Then ADD becomes a trait rather than a disorder. In addition, sometimes the child learns how to compensate so well for his ADD during puberty that it looks as if the ADD has gone away. However, if you interview that child closely, you will discover the symptoms are still there, but the child is struggling mightily—and successfully—to control them. These people still have ADD and would benefit from treatment.
 
Q: Is ADD over-diagnosed among children?
A: Yes, but also no. It is over-diagnosed in some places, under-diagnosed in others. There are schools and regions where every child who blinks fast seems to get diagnosed with ADD. At the same time, there are places around the country where doctors refuse to make the diagnosis at all because they “don’t believe in ADD.” (Note from preparer: I have seen this many times, in almost 50% of the physicians I have dealt with) ADD is not a religious principle; it is a medical diagnosis derived from such solid evidence as genetic studies, brain scans, and worldwide epidemiological surveys.
 
It is important that we educate doctors, as well as teachers, parents, and school officials, about ADD, so that we can solve the problems of both over-diagnosis and under-diagnosis. (Another note: Forget that! Find people who are open minded and know how to deal with childhood or adult ADD and are familiar with the medications. This kind of acceptance at this large a level takes time, perhaps/probably more than we have available in our lifetime. Get your life back before you use it up trying to save the world.)
 
 
Q: What is the proper procedure to diagnose ADD?
A: There is no surefire test. The best way to diagnose ADD is to combine several tests. The most powerful “test” is your own story, which doctors call your history. As you tell your story, your doctor will be listening for how your attention has varied in different settings throughout your life. In the case of ADD it is important that the history be taken from at least two people, such as parent, teacher, and child, or adult arid spouse, since people with ADD are not good at observing themselves.
 
To supplement the history, there is a relatively new physical test called the quantitative electroencephalogram, or EEG, that is quite reliable in helping to diagnose ADD. It is a simple, painless, brain-wave test, and it is about 90 percent accurate. Though well worth getting, it is not definitive by itself.
 
In complex cases where the diagnosis is unclear or there is a suspicion of coexisting conditions, especially if there is a history of head injury or other brain trauma, a SPECT scan can help. The SPECT brain scan is not widely available, though we believe it could help a great deal in psychiatry if it were.
 
In addition to the history, which should include questions based upon the DSM-JV diagnostic criteria, and the EEG and sometimes the SPECT, other standardized sets of questions, such as the ADHD Rating Scale or the Brown scale, add confidence to the diagnosis. Your doctor can tell you about these tests. None are necessary, but all are helpful.
 
Finally, neuropsychological testing can help pin down the diagnosis as well as expose associated problems—such as hidden learning disabilities, anxiety, depression, and other potential problems.
 
Practically speaking, if you are ‘going to see a busy primary-care doctor for your evaluation, the time available to take a history may be brief, and access to neuropsychological testing nonexistent. In these instances, the EEG becomes even more valuable, as well as the standardized rating scales, especially the DSM-IV criteria.
 
The best diagnostic procedures also include a search for talents and strengths, as these are the key to the most successful treatments.
 
 
Q: Should you always order the EEG, neuropsychological testing, or a SPECT scan?
A: All three can be helpful, but no, none is absolutely necessary unless the diagnosis is in doubt, or you suspect associated learning disabilities such as dyslexia, or other coexisting conditions, like brain damage due to an old head injury, or bipolar disorder, or hidden substance abuse. In such cases, you might encourage your doctor to consider getting you neuropsychological testing, a EEG, or a SPECT scan.
 
 
Q: Whom should I see to get a diagnosis?
A: The best way to find a doctor who knows what he is doing is to get a referral from someone you know who has had a good experience with that doctor (We have provided a list of specialists at the end of this book.)
 
Note from preparer: Good luck. Hopefully better than mine. Find someone who has a significant base of ADD patients. Experience is everything. This is really not rocket-science at all, but, if the physician does not have ongoing experience, there is too much out there that is known that is not published in the Journals. (I.E. The drugs Strattera and Provigil do not work. Wellbutrin, limited success with limited people. The medical community soooo much wanted them to, but, flat out, they don't work for ADD. Although, those 2 drug companies are still searching madly for some patients it will work on.)
 
The degree the person has is much less important than his experience. People from diverse disciplines may be capable of helping you. Child psychiatrists have the most training in ADD, and keep in mind that most child psychiatrists also treat adults. However, child psychiatry is an under-populated specialty; therefore, child psychiatrists are hard to find.
 
Developmental pediatricians are also good with ADD, but, of course, they do not treat adults and they are also in short supply. Some regular pediatricians are excellent at diagnosing and treating ADD, while others—those who have not had much experience with ADD—are understandably less skilled. Some family practitioners and some internists are good. Adult psychiatrists tend not to have training in ADD. However, most psychologists do.
 
If you cannot get a referral from someone you know, ask your primary-care doctor if she is expert in ADD, and if not, to whom would she recommend that you go.
 
It is worth the hassle to look around. I see patients every day who wasted years because they went to see the wrong person.
 
Note from preparer : I am one of those people who wasted years. And all the physicians I saw touted themselves as capable or expert.
 
 
Q: What are the most common conditions that may occur along with ADD?
 
A:            Dyslexia and other learning deficiencies ,
depression,
oppositional defiant disorder,
conduct disorder,
antisocial personality disorder,
substance abuse,
post-traumatic stress disorder,
anxiety disorders,  and
bipolar disorder.
 
Q: What other problems should one be on the lookout for?
A: Trouble in school, at work, or at home. Underachievement, even if there are no signs of what others consider to be trouble. Sometimes when the ADD is diagnosed and treated, the trouble, whatever it is, or the underachievement remit. But often they need special attention in their own right. Tutoring, career counseling, family therapy, couples therapy, individual therapy, or coaching can all help.
 
 
Q: What else should one watch out for regarding the diagnosis of ADD and getting treatment?
 
A: Many people in the United States today—including those who have ADD and those who do not—suffer from what I call disconnectedness. They do not have the close, sustaining relationships that they need. While we are elaborately connected electronically in modern life, we are poorly connected interpersonally. Studies have shown that such disconnectedness leads not only to anxiety, depression, and underachievement but also to substance abuse, disruptive behavior, and a host of medical problems in both children and adults.
 
Try to develop a connected interpersonal life for you and your family as seriously as you strive to maintain a proper diet or an exercise program.
 
Note: Nice. Thanks. Jeez. Really? Sorry, this is good advice.
 
 
Q: What about bipolar disorder in children? Does it look like ADD? How do you tell them apart?
 
A: It is important to keep bipolar disorder in mind whenever the possibility of ADD arises in a child. Some experts believe that if you give a child who has bipolar disorder stimulant medication, you run the risk of doing serious harm. These children can become violent, depressed, and even suicidal. This is just another reason why you must see a well-trained professional for a proper diagnostic evaluation.
 
Several items help distinguish between ADD and bipolar disorder. First of all, in bipolar disorder there is usually a family history on both parents’ sides of bipolar disorder, alcoholism, major depression, or all of these. Second, in bipolar disorder the leading symptom is rapidly fluctuating moods independent of what is going on in the environment. In ADD the leading symptom is fluctuating attention. Third, the child with bipolar disorder often has a daily variation: he becomes highly active at night and in the morning he is like a hibernating bear, all but impossible to get out of bed. You can see this in ADD too, but it is more accentuated in bipolar disorder.
 
 
Q: What is the best treatment for ADD?
A: It varies. The best approach to treating ADD is to follow an individualized, comprehensive plan specifically designed for you, based upon your particular situation and needs. One size does not fit all, Work with your doctor to create the best approach for you (or for your child, or for whomever has the ADD). This plan should always be open to revision.
 
If it doesn’t work, change it.
 
 
Q: What are the most common, key ingredients of such a comprehensive plan?
 
I divide the best plan into eight areas, as follows:
 
 
1. Diagnosis, as well as identification of talents and strengths
 
2. Implementation of a five-step plan that promotes talents and strengths (detailed in chapter 22)
 
3. Education
 
4. Changes in lifestyle (e.g., reduce TV and other electronics, increase time with family and friends, increase physical exercise)
 
5. Structure
 
6. Counseling of some kind, such as coaching, psychotherapy, career counseling, couples therapy, family therapy
 
7. Various other therapies that can augment the effectiveness of medication or replace the use of medication altogether, such as an exercise program that stimulates the cerebellum, targeted tutoring, general physical exercise, occupational therapy, and nutritional interventions
 
8. Medication
 
 
Q: In what ways are diagnosis, identification of talents and strengths, and implementation of a plan that promotes talents and-strengths part of the treatment?
A: Getting a name for what’s been going on with you usually brings relief. When you get the ADD diagnosis, you can finally shed all those accusatory, “moral” diagnoses, like liar, weak, undisciplined, or, simply bad.
 
The identification of talents and strengths is one of the most important parts of the treatment. People with ADD usually know their shortcomings all too well, while their talents and strengths have been camouflaged by what’s been going wrong.
 
The moment of diagnosis provides a spectacular opportunity to change that. The best way to change a life of frustration into a life of mastery is by developing talents and strengths, not just shoring up weaknesses. Keep the focus on what you are, rather than what you are not. The older you get, the more time you should spend developing what you’re good at. Work with someone who can help identify what you’re good at. In the long run that’s where you will find fulfillment.
 
 
Q: What is the Eve-step plan that promotes talents and strengths?
 
A: The first step is to connect—with a teacher, a coach, a mentor, a supervisor, a lover, a friend (and don’t forget God or whatever your spiritual life leads you toward). Once you feel connected, you will feel safe enough to go to step 2, which is to play.
 
Step 2 - In play, you discover your talents and strengths. Play includes any activity in which your brain lights up and you get imaginatively involved. When you find some form of play you like,
 
Step 3 -  you do it over and over again; this is step 3, practice. As you practice,
 
Step 4 - you get better; this is step 4, mastery. When you achieve mastery,
 
Step 5 - other people notice and give you recognition; this is step 5. Recognition in turn connects you with the people who recognize and value you, which brings you back to step 1, connect, and deepens the connection.
 
No matter what your age, you can use this five-step process to promote talents and strengths. Beware, however, of jumping in at step 3.
 
That’s the mistake many parents, teachers, coaches, and managers in the workplace make: they demand practice and offer recognition as the reward. This leads to short-term achievement but fatigue and burnout in the long run.
 
For the cycle to run indefinitely and passionately, it must generate its own enthusiasm and energy, not be prodded by external motivators. To do that, the cycle must start in connection and play.
 
 
Q:        Why is education part of the treatment?
 
A: Treatment really means learning how to fit the brain you have into the world most enthusiastically and constructively. The diagnosis becomes therapeutic through education—learning what ADD is in your case. Diagnosis means “to know through.” As you learn about your mind, and as you learn how ADD has affected your life, you gradually “know through” this condition, how it lives in you. The more you know about the kind of mind you have—whether or not you call it ADD— the better able you will be to improve your life.
 
Furthermore, the process of education will help identify your talents and strengths, or your potential talents and strengths. Take time, look hard, and get help in identifying these. You may not be able to see them yourself. People who have ADD often don’t think they have any talents or strengths.
 
If there were but one rule for treating ADD it would be this: Find out what you’re good at, and do it. Or, as my brother-in-law who is a teaching golf pro says, “Forget what the books say. Just do what you need to do to put the ball in the hole.”
 
 
Q: What if you’re not good at anything, or what if what you’re good at is illegal, dangerous, or simply lacking in any social value, like playing Nintendo?
 
A: Everyone has the seed of a talent. Everyone has some interest that can be turned into a skill that is legal, reasonably safe, and has value both to that person and to society. Everyone. The work of treating ADD is to find that talent or interest. It may be hidden or camouflaged. For example, if the activity you’re good at is selling drugs, well, that means you have entrepreneurial and sales talents and interests that could be plugged into some legal venture. If the activity you’re good at is driving down the highway at 110 mph, then you may have a career in some risk-filled, highly stimulating arena like investing on
the commodities exchange or being an investigative reporter. If what you’re good at has no social value, like playing Nintendo, you might want to get a job at a computer-game store, or you might want to take a course in designing computer games.
 
The germ of a great career often lies hidden in the illegal, dangerous, or useless activities we love. Look for that germ cell. If you can’t find it, get someone else to help you look.
 
 
Q: What do you mean by “structure”?
 
A: By “structure,” I mean any habit or external device that helps make up for what is missing internally, in your mind. For example, the ADD brain is low on filing cabinets. So, you need to set up more filing cabinets outside the brain in order to replace piles with files. An alarm clock is an example of structure. So is a key chain, as well as a basket to put the key chain in every day when you get home, The habits of putting your key chain in the basket and putting your documents into the files also exemplify structure. Useful devices and new habits can help more than any medication.
 
 
Q: What are the most important lifestyle changes? A: The six lifestyle changes I stress the most are:
 
 
1. Positive human contact. Due to our disconnected culture, people these days don’t get enough smiles, hugs, waves hello, and warm handshakes. Positive human contact is as important as, if not more so than, a good night’s sleep or a proper diet.
 
2. Reduce electronics (e.g., television, video games, the Internet). Studies have shown that too much “electronic time” predisposes to ADD.
 
3. Sleep. Enough sleep is the amount of sleep that allows you to wake up without an alarm clock. Without enough sleep, you’ll act like you have ADD whether or not you have it.
 
4. Diet. Eat a balanced diet. Eat protein as part of breakfast. Protein is the best long-lasting source of brain fuel. Don’t self-medicate with drugs, alcohol, or carbohydrates. Consider taking the various supplements discussed in chapter 25.
 
5. Exercise. Regular exercise is one of the best tonics you can give your brain. Even if it’s just walking for fifteen minutes, exercise every day. Exercise stimulates the production of epinephrine, dopamine, and serotonin, which is exactly what the medications we treat ADD with do. So exercising is like taking medication for ADD in a holistic, natural way.
 
6. Prayer or meditation. (Der!) Both of these help to calm and focus the mind.
 
 
Q: What is coaching and tutoring as it applies to ADD?
 
A: An ADD coach is someone other than a parent or a spouse who can:
 help a person get organized and
stay on track.
Coaches are available in many shapes and sizes, from the ultra-expensive executive coaches to the ultra-inexpensive grandpa who coaches for free. There are national coaching organizations you can contact online for more information.
 
For many people, the most important intervention is targeted tutoring—tutoring targeted to correct specific problems or symptoms. This is usually reserved for children and young adults, but adults may benefit as well. The tutoring should be targeted to the specific need of the individual, as determined by the history and testing. For example, if you have trouble with written output, the tutoring should address that specifically; if you have trouble with arithmetic, the tutoring should address that; if you have a reading problem, you should get help specifically aimed at that. It is important to address areas of cognitive weakness as early as you can. For global issues of time management, compensatory skills, and self-esteem, a professional educational therapist is best trained in counseling and learning theory. To learn about finding such a professional, go to
http://www. aetonline.org.
 
 
Q: What other non-medication therapies help?
 
A: The time-tested ones have already been mentioned: identifying and promoting strengths; education; structure; lifestyle changes; coaching, counseling, and tutoring.
 
Although as yet unproven, physical exercises specifically designed to stimulate the cerebellum may become mainstream interventions. There are various programs that do this, such as the Dore method, the Brain Gym, the Interactive Metronome, and the groups of exercises prescribed by occupational therapists.
 
Nutritional remedies can also help. Adding omega-3 fatty acids to the diet is useful for health in general. We suggest fish oil as the best source of the omega-3 fatty acids. Adding antioxidants to the diet can also help. Grape-seed extract is one of nature’s most potent sources of antioxidants; so are blueberries.
 
 
Q: What about medication?
 
A: You should never take medication until you know the facts and only if you feel comfortable doing so. Learn what is known before you decide. You’ll find that the facts are actually reassuring. When used properly, the medications for ADD are safe and effective, Research shows that medication is the single most effective treatment for ADD. It works for 80 to 90 percent of people who try it. When it works, it increases mental focus, which leads to improved performance in all domains of life. The most commonly used medications are the stimulants, like Ritalin or Adderall, or their long-acting equivalents, like Concerta, Ritalin LA, or Adderall XR. The non-stimulant amantadine has been used to great advantage in treating ADD, as has bupropion (Weilbutrin) and the newest non-stimulant, Strattera, If you are considering taking medication for ADD, be sure to see a doctor who has experience in prescribing them, as subtle adjustments can make a big difference.
 
 
Q: What are the dangers of stimulant medications?
 
A: Recently, the FDA has cautioned against the use of Strattera due to the rare potential side effect of suicidal thoughts (Sorry, Note: who cares, it does not work as said from those physicians who actually take care of ADD patients, adult or younger.). As always, any person taking this medication should be closely monitored. All stimulant medications can cause a variety of side effects. The most common is appetite suppression. Occurring much less frequently are headache, elevated blood pressure, elevated heart rate, nausea, vomiting, insomnia, the development of tics or twitching, feelings of jitteriness or anxiety, feelings of agitation or even mania, and feelings of depersonalization or paranoia. All these side effects can be reversed by lowering the dose of the medication, changing the medication, or stopping it altogether.
 
 
Q: What else should I know about stimulant medications?
 
A:         Here are some quick facts about stimulants (STs), or STs:
 
• STs take effect in about twenty minutes and last from four to twelve hours, depending upon which one is taken.
 
• You may stop and start STs at will. For example, you can discontinue them over the summer or on weekends. Unlike antibiotics or antidepressants, you do not need to maintain a steady blood level of STs in order to derive benefit. Obviously, when you stop the STs, you lose the benefit until you start them up again.
 
• If you start on STs and get some benefit, that does not mean you will need to take STs for the rest of your life. Sometimes you learn new habits while taking STs that carry over to when you aren’t taking them, thus allowing you to discontinue the STs.
 
• There are no known dangers associated with long-term use of STs. The side effects that are going to occur usually occur right away. Long-term dangers may appear, but as yet they have not.
 
• STs are not addicting or habit forming if taken properly. On the other hand, if you grind them up and snort them or inject them, as some people do, then they are dangerous.
 
• STs do not lead to the abuse of illicit drugs. To the contrary, studies show that taking STs reduces the likelihood that you will self-medicate with other drugs.
 
• STs or some other non-stimulant medication, like Strattera or Wellbutrin, will work (i.e., improve mental focus without producing side effects that warrant stopping the medication) 80 to 90 percent of the time in people who have ADD. That means that 10 to 20 percent of the time no medication will help.
 
• You should never compel anyone to take STs or any other medication for ADD. This can create struggles that lead to bad outcomes.
 
 
Q: What alternative medications are there to stimulants?
 
A:            Amantadine may be the best of all medications for ADD, but it is not widely used because when it was first tried the doses were too high and patients reported side effects. A doctor on the faculty of Harvard Medical School, William Singer, has pioneered its use at lower doses with excellent results. Not a controlled substance, not a stimulant, and virtually devoid of side effects, amantadine deserves much wider use.
 
The new medication Strattera, introduced in the winter of 2003, can also be helpful. Classified as a norepinephrine reuptake inhibitor, it is not a controlled substance It reduces the negative symptoms of ADD for some people, but not for others. However the robust impact of  stimulants is never replicated by this drug, or ever comes close.  It is impossible to predict in advance who will benefit and who will not. You have to try it (under medical supervision, of course) to find out. In addition, the atypical antidepressant Wellbutrin can help treat ADD somewhat. Like Strattera, which does not seem to work effectively, it is not a controlled substance.(Note: And experienced providers will tell you outright that they do not work.)
 
********************
 
Hallowell - Chapter 2 Delivered from Distraction
 
CHAPTER 2 THE FEEL OF ADD
Hallowell, Delivered from Distraction
 
Most people who don’t have ADD don’t understand it, Responding only to the well advertised negative aspects of ADD, they overly pathologize the condition. So you need to explain to them its complexity: ADD is a mélange of often contradictory tendencies and traits that swirl around within you, stirring up different parts of your life at different times as it makes its inconsistent rounds.
 
The ingredients of the mélange may include:
 
     high mental and physical energy (coupled with extreme lassitude at times)
 
     a fast-moving, easily distracted mind (coupled with an amazingly super-focused mind at times)
 
     trouble with remembering, planning, and anticipating
 
   unpredictability and impulsively
 
     creativity
 
     lack of inhibition as compared to others
 
   disorganization (coupled with remarkable organizational skills in certain domains)
 
     a tendency toward procrastination (coupled with an I-must-do-it-or-have-it-now attitude at times)
     
     a high-intensity attitude alternating with a foggy one
 
   forgetfulness (coupled with an extraordinary recall of certain often irrelevant remote information)
 
     passionate interests (coupled with an inability to arouse interest at other times)
 
     an original, often zany way of looking at the world
 
     irritability (coupled with tenderheartedness)
 
     a tendency to drink too much alcohol, smoke cigarettes, use other drugs, or get involved with addictive activities such as gambling, shopping, spending, sex, food, and the Internet (coupled with a tendency to abstain altogether at times)
 
     a tendency to worry unnecessarily (coupled with a tendency not to worry enough when worry is warranted)
 
     a tendency to be a nonconformist or a maverick
 
     a tendency to reject help from others (coupled with a tendency to want to give help to others)
 
     generosity that can go too far
 
     a tendency to repeat the same mistake many times without learning from it
 
     a tendency to underestimate the time it takes to complete a task or get to a destination
 
     various other ingredients, none of which dominates all the time, and any one of which may be absent in a single individual
 
 
No two people who have ADD are alike. Variety and inconsistency make it impossible to capture a definitive picture of this fast-moving mind-butterfly.
 
Nevertheless, even casual observation detects a difference between someone who has ADD and someone who does not. Just because we can’t say exactly where non-ADD life leaves off and ADD life begins does not mean that there is no division between the two. As Edmund Burke, the great eighteenth-century statesman, said, Just because there can be no clear line drawn between night and day, yet no one would deny there is a difference.”
 
So let me describe ADD from my point of view. First of all, I resent the term. Maybe it’s just because I have ADD myself, but it seems to me that if anyone has a disorder, it is the people who plod along Paying close attention to every little speck and crumb, every little detail and rule, every minor policy and procedure in every minuscule manual. I think these are the people who have a disorder. I call it Attention Surplus Disorder. They did exactly what they were told as children, told on others who did not, and now make a living doing what they’re told, telling others what to do, and telling on those who don’t.
 
What kind of a life is that? Wouldn’t you rather have attention deficit than attention surplus? If you had to call one a disorder, wouldn’t you vote for the surplus? Who wants to pay attention to the myriad details for very long? Is it really a sign of mental health to be able to balance your checkbook, sit still in your chair, and never speak out of turn? As far as I can see, many people who don’t have ADD are charter members of the Society of the Congenitally Boring. And who do you suppose advanced civilization? Who do you suppose comes up with the new ideas today? People with ADD, of course.
 
But I can’t change the names or the rules. Attention Surplus Disorder will remain the ideal to which people who like to be told what to do aspire. On the other hand, let me recommend the opposite of Attention Surplus Disorder, a syndrome called ADD.
 
ADD is a way of living that has been with us throughout history. Until recently it went unnamed, even to those who had it. Before the syndrome is named, i.e., diagnosed, life may be filled with pain and misunderstanding. But after the diagnosis is made, one often finds new possibilities and a lever for major improvements in life
 
Some people say ADD doesn’t even exist, but that’s only because they have never had to deal with it in a child or a friend or an employee. Believe me, I can tell you from fifty-five years of personal experience as well as almost twenty-five years of professional experience, ADD is real. It is as real as any other cast of mind, like being optimistic, or being good with words, or being brave. It is real, albeit impossible to measure exactly or to see under a microscope or on an X ray.
 
Many metaphors come to mind to describe it. Having ADD is like driving in the rain with bad windshield wipers. The windshield gets smudged and blurred as you’re speeding along, but you don’t slow down. You keep driving, trying your best to see. Why don’t you slow down or, better yet, pullover? That is not the way with ADD. You keep going. Faster is better. It is in your blood (and in your brain).
 
Having ADD is also like listening to a ball game on a radio station that’s coming in with a lot of static. The harder you strain to hear what’s going on, the more frustrated you get. Once in a while a static-free interval blesses the airwaves, and you can hear the ball game clear as a bell. A cat may meow in the background, but you know it is just a cat, not more static, and the clear signal from the radio allows you to focus on the game. How good this feels! But then, like an unresolved feud, the static returns, and you become more than frustrated. You get mad. You want to break the radio, or kick the cat, or scream at whatever human makes the terrible mistake of inquiring right then as to how you might be feeling.
 
Having ADD is also like flying to build a house of cards in a windstorm. You must build a structure to protect yourself from the wind before you can even start building with the cards. You put up a lean-to, and feel proud of what you’ve done, only to see a gust of wind tear it down. So you start again, and once again the wind wins. So you construct the lean-to again. And again. You never get to the cards, But you don’t give up. That is another trait of people with ADD. They keep trying. Often, they keep trying the same, doomed way, but they do keep trying.
 
In other ways having ADD is like being supercharged all the time. I tell kids it’s like having a race-car brain. Your brain goes faster than the average brain, Your trouble is putting on the brakes. You get one idea and you have to act on it, and then, what do you know, but you’ve got another idea before you’ve finished up with the first one, and so you go for that one, but of course a third idea intercepts the second, and you just have to follow that one, and pretty soon people are calling you disorganized and impulsive and disobedient and defiant and all sorts of impolite words that miss the point completely. Because you’re trying so hard to get it right. It’s just that you have all these invisible vectors pulling you this way and that, which makes it really hard to stay on task.
Plus, your brain is spilling over all the time. You’re drumming your fingers, tapping your feet, humming a song, whistling, looking here, looking there, scratching, stretching, doodling, which leads other people to think you’re not paying attention or you’re not interested, but you’re spilling over so that you can pay attention. I can pay a lot better
attention to something when I’m taking a walk or listening to music or even when I’m in a crowded, noisy room than when I’m sitting still and surrounded by silence. God save me from the reading rooms in libraries. These are peaceful havens for most people, but for me they are torture chambers.
 
Someone once said, Time is the thing that keeps everything from happening all at once,” Time parcels out moments into separate bits so that we can do one thing at a time. In ADD, time collapses, making life feel as if everything is happening at once. It’s now or never. . . or maybe later. This creates panic. This creates anxiety.
 
One loses perspective and the ability to select what needs to be done first, what needs to be done second, and what can wait until another day. Instead, you are always on the go, leaping before you look, always trying to keep the world from caving in on top of you.
 
In the world of ADD, there are only two times: there is now, and then there is not now.
 
So, if a supervisor says to a person with ADD that a presentation must be ready for a major meeting in three months, the person with ADD thinks to herself, not now. She forgets about it until three months from now becomes now, Then it is too late. “If only you could get your act together,” her exasperated supervisor laments. “You’re the most talented person in this company, but until you shape up you’re never going to make a difference here or anywhere else.”
 
It is not surprising that depression, toxic worry, and anxiety disorders abound among people with undiagnosed ADD.
 
We never know when we’re going to forget something, say the wrong thing, or show up at the wrong place at the wrong time, Museums. (Have you noticed how I skip around? That’s part of the deal with having ADD.) The way I go through a museum is the way some people go through a bargain basement. Some of this, some of that, oh, this one looks nice, but what about that rack over there? I love art, but my way of loving it can make someone think I’m an ignorant Philistine.
 
On the other hand, sometimes I can sit and look at one painting for a long, long while, I’ll get into the world of the painting and buzz around in there until I forget about everything else. In these moments I—like most people with ADD—can super focus. This ability gives the lie to the notion that we can never pay attention. When we’re interested, when our neurotransmitter~ line up just so, and when structure is in place to help us, we can focus like bloodhounds on a scent.
 
If there is a separate disorder called Can’t Wait in Lines Disorder, I’ve got it. Can’t is the wrong word, I guess, because life does require me to wait in lines, and I manage to do it without going berserk and getting arrested. It’s just that I hate to wait. When I have to wait I tend to act—often in ways I wish I hadn’t.
 
I’m short on what you might call the intermediate reflective step between impulse and action. Like so many people with ADD, I lack tact. Tact is entirely dependent on the ability to consider your words before uttering them. We ADD types become like the Jim Carrey character in Liar Liar when he can’t lie. I remember in the fifth grade I noticed my math teacher’s hair in a new style and blurted out, "Mr. Cook, is that a toupee you’re wearing?” I got kicked out of class.
 
I’ve since leaned how to stifle most of these gaffes, but I can still get into trouble for saying the wrong thing at the wrong time. That’s another tough truth about having ADD. It takes a lot of work just to do the trivial tasks—like staying silent, or resisting telling the cop who stopped us that he looks just like Elmer Fudd.
 
As you might imagine, intimacy can be a problem if you’ve got to be constantly changing the subject, pacing, scratching, and blurting out tactless remarks. My wife has learned not to take my tuning out personally, and she does say that when I’m there, I’m really there.
When we first met, she thought I was some kind of a nut, as I would bolt out of restaurants at the end of meals or disappear to another planet during a conversation. She has since grown accustomed to my sudden comings and goings. I am lucky I married her.
Many of us with ADD crave high-stimulus situations, In my case, I love casinos and horse races. I deal with this passion by not going often, and when I do go, I bring a modest sum that I can afford to lose. And lose I usually do. Obviously, a craving for high stimulation can get a person into trouble, which is why ADD is prevalent among criminals and self-destructive risk-takers.
 
ADD is also often found among so-called type A personalities, as well as among manic-depressives, sociopaths, violent people, drug abusers, and alcoholics.
 
But it is also common among creative and intuitive people in all fields, and among highly energetic, interesting, productive people. You can find high stimulation in being a surgeon, for example, or a trial attorney, or an actor, or a pilot, or a trader on the commodities exchange, or working in a newsroom, or in sales, or in being a race-car driver.
 
Usually the positive side of ADD doesn’t get mentioned when people speak about it. The tendency is to focus on what goes wrong, or at least on what has to be somehow controlled. After all, that’s why people seek a diagnosis and why they seek help. Something is wrong. But once the ADD has been diagnosed, and the child or the adult has learned how to take care of whatever was wrong, the brain offers up an untapped realm.
 
 
Suddenly, the radio station is tuned in, the windshield is clear, the windstorm has died down and you can start to build that house of cards. You can start to use all the great plans and ideas you’ve been storing up for years, Now the adult or the child who had been such a problem, such a nudge, such a general pain in the neck to himself and everybody else, starts doing things he’d never been able to do before, He surprises everyone around him. He also surprises himself. I use the male pronoun, but it could just as easily be she. Now that we are looking for it and realize that hyperactivity does not have to be part of the picture, we are seeing more and more ADD among females.
 
 
People with ADD often have a special “feel” for life, a way of seeing right into the heart of matters, while others have to reason their way along methodically.
 
This is the person who can’t tell you how he thought of the solution, or where the idea for the invention came from, or why suddenly he produced such a painting never having painted before, or how he knew the shortcut to the answer for the geometry problem.
 
All she can say is she just saw it, she could feel it in places where most people are blind, the person with ADD can, if not see the light, at least feel the light, and she can produce answers, apparently out of the dark. It is important for others to be sensitive to this “sixth sense” many ADD people have, and to nurture it.
 
If the environment insists on rational, linear thinking and “good” behavior all the time, then these people may never develop their intuitive style to the point where they can use it profitably.
 
Indeed, it may atrophy or, worse, be used in the service of revenge or criminal behavior.
 
But with proper treatment, what at first seemed impaired may soon prove gifted.
 
What is the treatment all about? Anything that reduces the static and strengthens the true signal. Just making the diagnosis helps muffle the static of guilt and self-recrimination.
 
Building certain kinds of structure into one’s life—like:
            lists,
timetables, and
healthy habits of sleep, diet, and exercise—can sharpen mental focus.
 
Working in small spurts rather than long hauls helps. Breaking down tasks into smaller tasks helps.
 
The specifics of treatment will vary. Whether it’s hiring a secretary who understands ADD, or an accountant who can work with you, or using an automatic bank teller in the right way, or
 
 developing a filing system that works for you, or
 
selecting the right home computer,
 
getting the precise aid that you need takes time but can transform unmanageable chaos into, if not order,  at least manageable chaos.
 
Marrying the right person, and
 
finding the right job are probably the two most important “treatments” for adults.
 
 And for kids it is most important to get rid of ridicule and fear from home and school and promote big dreams.
 
Many other steps can help, like applying external limits on your dangerous impulses.
 
Wear seat belts when you drive. Observe the speed limit. (Adult Add-ers exceed the speed limit to get control of and use their fast minds)
 
Use a planner, don’t just own one!
 
Find support from other people instead of going it alone.
 
Find someone to be in your corner to coach you, to keep you on track.
 
Medication helps too, but it is far from the whole solution.
 
A comprehensive treatment plan, one that takes into account many and varied interventions, is the best treatment plan. Over time, it can help a person of any age who has ADD find a new life.
 
We who have ADD need help and understanding from others. But, then, who doesn’t? We probably need more than the average person, as we can be especially exasperating and difficult. We may make messes wherever we go, but with the right help, those messes can be turned into realms of reason and art.
 
 
So, if you know someone like me—of any age—who’s acting up and daydreaming and forgetting this or that and just not getting with the program, consider ADD before he starts believing all the bad things people are saying about him and it becomes too late.
 
 
 
Peace,
 
Tom P

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Wed Dec 19, 2007 12:06 am

jannypalms
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I like Hallowell's latest book. Here is some of the first 2 chapters. I thought they were worth sharing also Here are some excerpts from Hallowell's book...
Tom Proko
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Dec 18, 2007
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As an ammendment to the earlier e-mail regarding some meds working and some not...that is not true.  The truth is what works for certain individuals does not...
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