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#261 From: "ahoovahyah" <ahoovahyah@...>
Date: Thu Nov 19, 2009 3:08 pm
Subject: Re: New Here
ahoovahyah
Offline Offline
Send Email Send Email
 
And now also the second neuro-surgeon has said the same thing...that I am not a
surgical candidate.  All that can be done is heavy duty pain meds, like Nucynta
and gabapentin and Opama.  Thay took me off of soma, and it did not help anyway.
morphine pills do not help, but morphine injections do help alot.  Why is that?

They have never had me see a lung specialist, even though I had multiple
bilateral pulmonary emboli, and the lungs hurt every day.

I went to a chiropractor who went with me to another chiropractor who does
something I have never seen before.  He said that my C-1 was twisted almost to
the point of tearing the ligaments, and then it was locked there so it could not
move.  He took x-rays on an angle, so it could be seen.  His treatment has
unlocked it, so that sometimes after treatment it feels like my head is not
attached to my neck at all.  That is a strange feeling, and I then hold it so it
does not fall off.  And then my DID kicks in, and things go bad for a while.  I
pass out after treatment, and then come back with no sense of balance and not
speaking English at all.  It then takes a while for me to come back.  The HBS I
have also is hard with this.  But the chiropractor's treatments do not seem to
be able to get it into a stable position at all.  The chiropractor said I was
the worst case he has seen in 25 years.  So I spend most days in bed, and have
seizures every day, and my muscles wither.  (it is very hard being at the
computer this long.)

Unless I was taken by air ambulance, I cannot go far away, such as to Arizona. 
I am in Indiana.

But I keep praying for God to heal me.

Thanks!



--- In Cervical_Spondylosis@yahoogroups.com, "Gregory Nail" <g.nail@...> wrote:
>
> Dear Anna,
>
>
>
> I am so sorry to hear the pain & problems you are experiencing.  I sure hope
> a neurosurgeon can help your neck (& a pulmonary specialist for your lungs).
> If you cannot find a good local doctor to help you, let me know and I can
> suggest my team of neurosurgeons that I see in Phoenix AZ.  I was messed up
> by a local surgeon in Kansas City, MO and had to be fixed.  No one in NY or
> Chicago would take my case due to the difficulty.  This world renowned team
> in AZ gladly accepted me and corrected the botched surgery in a 2-day
> surgery.  I still have ongoing problems as I have DDD and cervical
> Myelopathy but the surgery made me 95% for several years.
>
>
>
> Good luck & God Bless you,
>
> Greg
>
>   _____
>
> From: Cervical_Spondylosis@yahoogroups.com
> [mailto:Cervical_Spondylosis@yahoogroups.com] On Behalf Of Anna
> Schverzhjedzova
> Sent: Wednesday, August 05, 2009 1:30 PM
> To: Cervical_Spondylosis@yahoogroups.com
> Subject: [Cervical_Spondylosis] Re: New Here
>
>
>
>
>
> The neurosurgeon said I was not a good candidate for surgery.
> He said it looked like the upper cervical vertebrae were twisted out of
> place, and there was DDD and arthritis, and ordered a special neck brace and
> upper cervical CT to look more closely at it. Also, my PCP prescribed a
> powerful muscle relaxant (soma) for the problem. And I see the pain
> specialist tomorrow. And the neurosurgeon said he saw something on the
> cervical X-rays that prompted him to request chest ways, because something
> may be wrong with my lungs.
> when the PCP doc touched my neck in his office, i fell on the floor crying
> in serious serious pain. Every day i spend 4-6 hours crying in pain,
> wondering if i should call for an ambulance, but knowing that they will
> probably only abuse me in the emergency room. very tough situation.
> thanks for listening.
>

#260 From: Antstig <antstig@...>
Date: Tue Nov 17, 2009 2:14 pm
Subject: Re: Re: An Interesting Article on "Regrowing Spines" from WebMD.
antstig
Offline Offline
Send Email Send Email
 
Interesting article. Thanks, Greg.

Frank

--- On Mon, 16/11/09, Greg Nail <g.nail@...> wrote:

From: Greg Nail <g.nail@...>
Subject: [Cervical_Spondylosis] Re: An Interesting Article on "Regrowing Spines" from WebMD.
To: Cervical_Spondylosis@yahoogroups.com
Date: Monday, 16 November, 2009, 13:54

 

I hope it is ok to post a link to an interesting article in WebMD about “Regrowing Spines”:
http://www.ivanhoe. com/channels/ p_channelstory. cfm?storyid= 22712

Best regards,

Greg



#259 From: Antstig <antstig@...>
Date: Tue Nov 17, 2009 2:07 pm
Subject: Re: Stenosis or MS-Please help
antstig
Offline Offline
Send Email Send Email
 
Sounds like it could, Greg. So that's one form of remission redefined.

Frank

--- On Mon, 16/11/09, Greg Nail <g.nail@...> wrote:

From: Greg Nail <g.nail@...>
Subject: Re: [Cervical_Spondylosis] Stenosis or MS-Please help
To: Cervical_Spondylosis@yahoogroups.com
Date: Monday, 16 November, 2009, 0:24

 

Frank,

I had a friend whose disk problem was difficult to diagnose because the disk would slip in and out of position.  Her symptoms would improve when the disk slipped into a “better” position but worsen when the disk slipped  into her spinal cord.  They FINALLY got an MRI of her when the disk was in a “bad” position.  

I wonder if a disk slipping in & out of  position, causing different sensations, could mistakenly be considered in remission?

Best regards,
Greg

On 11/15/09 6:59 AM, "Antstig" <antstig@yahoo. co.uk> wrote:


 
 
   

I would be curious to know why remissions occur. Have you ever thought of keeping a journal that details diet, weight and other things?
I know the term spontaneous remissions but my feeling is that they say "spontaneous" simply because they don't know why rather than saying they don't know the *reason* why.

Frank

--- On Thu, 12/11/09, verycool2009 <cinnamonmiroballi@ rocketmail. com> wrote:

From: verycool2009 <cinnamonmiroballi@ rocketmail. com>
Subject: [Cervical_Spondylos is] Stenosis or MS-Please help
To: Cervical_Spondylosi s@yahoogroups. com
Date: Thursday, 12 November, 2009, 21:53

       I have had neurological issues for three years now.  At first I was told I was depressed.  In 2007, I was told I have fibromyalgia.  In July 2009, I was told I probably have MS.  A brain MRI in September and a c-spine MRI in October of this year failed to show any lesions consistent with MS.  Blood tests showed no vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10 other things.  

The c-spine MRI did show some stenosis (forgot to ask which level) and a mild herniation.  I've been reading posts on this group and I am sorry for how much pain people are in.  I'm not in horrible pain.  My problems are more motor weakness, burning pain or stabbing pain, bladder and bowel problems, balance and coordination problems, muscle spasms, spasticity, things like that.  And my problems will flare up really badly for about a month, then take the next two months to taper off.  Then I will have a period of stasis for several months, then it will flare up again. Sometimes I will walk with a cane or barely be able to use my hands. I will have indescribable fatigue and cognitive difficulties.  

I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome.  Sometimes I have a stiff neck or headaches that come out of my neck, but other than that, I would never think anything is wrong with my neck.  

Here's my question. Can these things be explained by compression on the spinal cord at one of the c-levels?  Is it possible I have MS but it hasn't progressed enough to show on an MRI or should I be looking at probable spinal cord damage from stenosis or the herniation?  I am a need-to-know person.  I hate not having answers.  I am trying to continue to be patient.

Right now, I am in what I call "remission."  I have the usual problems with my left foot being stiff and weaker than the right.  I have weak wrists and hands and my hands go numb at night.  I am more tired than I should be for a woman of my age.

 
  

 
 
   




#258 From: Antstig <antstig@...>
Date: Tue Nov 17, 2009 2:10 pm
Subject: Re: Re: Stenosis or MS-Please help
antstig
Offline Offline
Send Email Send Email
 
Let us know how you get on with the physio and what exercises if any you are given to do at home.

Frank

--- On Mon, 16/11/09, verycool2009 <cinnamonmiroballi@...> wrote:

From: verycool2009 <cinnamonmiroballi@...>
Subject: [Cervical_Spondylosis] Re: Stenosis or MS-Please help
To: Cervical_Spondylosis@yahoogroups.com
Date: Monday, 16 November, 2009, 1:38

 

And by the way, thank you everyone who responded. I'm sure you all know how it feels to have weird problems and not know why. I have a prescription for physical therapy. I am supposed to do some traction. I am going to call tomorrow and get it set up. I am no longer living with the fear of "MS" hanging over my head. I am not thrilled about what I am facing, but I am going to do whatever I can to minimize it.

--- In Cervical_Spondylosi s@yahoogroups. com, Antstig <antstig@... > wrote:
>
> I would be curious to know why remissions occur. Have you ever thought of keeping a journal that details diet, weight and other things?
> I know the term spontaneous remissions but my feeling is that they say "spontaneous" simply because they don't know why rather than saying they don't know the *reason* why.
> Frank
>
> --- On Thu, 12/11/09, verycool2009 <cinnamonmiroballi@ ...> wrote:
>
> From: verycool2009 <cinnamonmiroballi@ ...>
> Subject: [Cervical_Spondylos is] Stenosis or MS-Please help
> To: Cervical_Spondylosi s@yahoogroups. com
> Date: Thursday, 12 November, 2009, 21:53
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>  
>
>
>
>
>
>
>
>
>
> I have had neurological issues for three years now. At first I was told I was depressed. In 2007, I was told I have fibromyalgia. In July 2009, I was told I probably have MS. A brain MRI in September and a c-spine MRI in October of this year failed to show any lesions consistent with MS. Blood tests showed no vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10 other things.
>
>
>
> The c-spine MRI did show some stenosis (forgot to ask which level) and a mild herniation. I've been reading posts on this group and I am sorry for how much pain people are in. I'm not in horrible pain. My problems are more motor weakness, burning pain or stabbing pain, bladder and bowel problems, balance and coordination problems, muscle spasms, spasticity, things like that. And my problems will flare up really badly for about a month, then take the next two months to taper off. Then I will have a period of stasis for several months, then it will flare up again. Sometimes I will walk with a cane or barely be able to use my hands. I will have indescribable fatigue and cognitive difficulties.
>
>
>
> I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome. Sometimes I have a stiff neck or headaches that come out of my neck, but other than that, I would never think anything is wrong with my neck.
>
>
>
> Here's my question. Can these things be explained by compression on the spinal cord at one of the c-levels? Is it possible I have MS but it hasn't progressed enough to show on an MRI or should I be looking at probable spinal cord damage from stenosis or the herniation? I am a need-to-know person. I hate not having answers. I am trying to continue to be patient.
>
>
>
> Right now, I am in what I call "remission." I have the usual problems with my left foot being stiff and weaker than the right. I have weak wrists and hands and my hands go numb at night. I am more tired than I should be for a woman of my age.
>



#257 From: "verycool2009" <cinnamonmiroballi@...>
Date: Mon Nov 16, 2009 3:44 pm
Subject: Re: Stenosis or MS-Please help
verycool2009
Online Now Online Now
Send Email Send Email
 
Greg - I'm starting to think that.  The more I read, the more I am convinced
that this is the right diagnosis.  I have ignored the slight pain in my neck
because I had it in my mind that this was some kind of systemic problem.  Also,
I was told I had fibromyalgia, so neck, shoulder, and upper back pain and
tightness were not a concern to me.  I am CONSTANTLY stretching and changing
position because my back is uncomfortable.  Again, I thought it was either
fibromyalgia or spasticity from the possible MS.

Things are finally starting to make sense.  I am still scared about the future
but now I have a face to the enemy and can try to manage the condition.

Cinnamon

--- In Cervical_Spondylosis@yahoogroups.com, Greg Nail <g.nail@...> wrote:
>
> Frank,
>
> I had a friend whose disk problem was difficult to diagnose because the disk
> would slip in and out of position.  Her symptoms would improve when the disk
> slipped into a better position but worsen when the disk slipped  into her
> spinal cord.  They FINALLY got an MRI of her when the disk was in a bad
> position.
>
> I wonder if a disk slipping in & out of  position, causing different
> sensations, could mistakenly be considered in remission?
>
> Best regards,
> Greg
>
> On 11/15/09 6:59 AM, "Antstig" <antstig@...> wrote:
>
> >
> >
> >
> >
> >
> > I would be curious to know why remissions occur. Have you ever thought of
> > keeping a journal that details diet, weight and other things?
> > I know the term spontaneous remissions but my feeling is that they say
> > "spontaneous" simply because they don't know why rather than saying they
don't
> > know the *reason* why.
> >
> > Frank
> >
> > --- On Thu, 12/11/09, verycool2009 <cinnamonmiroballi@...> wrote:
> >>
> >> From: verycool2009 <cinnamonmiroballi@...>
> >> Subject: [Cervical_Spondylosis] Stenosis or MS-Please help
> >> To: Cervical_Spondylosis@yahoogroups.com
> >> Date: Thursday, 12 November, 2009, 21:53
> >>
> >>       I have had neurological issues for three years now.  At first I was
> >> told I was depressed.  In 2007, I was told I have fibromyalgia.  In July
> >> 2009, I was told I probably have MS.  A brain MRI in September and a
c-spine
> >> MRI in October of this year failed to show any lesions consistent with MS.
> >> Blood tests showed no vitamin deficiencies. Doctors have ruled out RA,
lupus,
> >> and about 10 other things.
> >>
> >> The c-spine MRI did show some stenosis (forgot to ask which level) and a
mild
> >> herniation.  I've been reading posts on this group and I am sorry for how
> >> much pain people are in.  I'm not in horrible pain.  My problems are more
> >> motor weakness, burning pain or stabbing pain, bladder and bowel problems,
> >> balance and coordination problems, muscle spasms, spasticity, things like
> >> that.  And my problems will flare up really badly for about a month, then
> >> take the next two months to taper off.  Then I will have a period of stasis
> >> for several months, then it will flare up again. Sometimes I will walk with
a
> >> cane or barely be able to use my hands. I will have indescribable fatigue
and
> >> cognitive difficulties.
> >>
> >> I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome.
> >> Sometimes I have a stiff neck or headaches that come out of my neck, but
> >> other than that, I would never think anything is wrong with my neck.
> >>
> >> Here's my question. Can these things be explained by compression on the
> >> spinal cord at one of the c-levels?  Is it possible I have MS but it hasn't
> >> progressed enough to show on an MRI or should I be looking at probable
spinal
> >> cord damage from stenosis or the herniation?  I am a need-to-know person. 
I
> >> hate not having answers.  I am trying to continue to be patient.
> >>
> >> Right now, I am in what I call "remission."  I have the usual problems with
> >> my left foot being stiff and weaker than the right.  I have weak wrists and
> >> hands and my hands go numb at night.  I am more tired than I should be for
a
> >> woman of my age.
> >>
> >>
> >>
> >
> >
> >
> >
> >
> >
>

#256 From: Greg Nail <g.nail@...>
Date: Mon Nov 16, 2009 2:16 pm
Subject: Re: Re: Stenosis or MS-Please help
g.nail...
Offline Offline
Send Email Send Email
 
Frank,

If it is helpful I am given the following:

Fentanyl pain patch (good for 72 hrs)
Percocet (for break-through pain)
Neurontin (for neuropathy & nerve sensations)
Baclofen (for spasticity)

If PT doesn’t help, talk with a neurosurgeon.  Ultimately, if you have a degenerative disk disease the above list may be of value to you.

God bless you & good luck,
Greg


On 11/15/09 7:38 PM, "verycool2009" <cinnamonmiroballi@...> wrote:


 
 
   

And by the way, thank you everyone who responded.  I'm sure you all know how it feels to have weird problems and not know why.  I have a prescription for physical therapy.  I am supposed to do some traction.  I am going to call tomorrow and get it set up.  I am no longer living with the fear of "MS" hanging over my head.  I am not thrilled about what I am facing, but I am going to do whatever I can to minimize it.

--- In Cervical_Spondylosis@yahoogroups.com <mailto:Cervical_Spondylosis%40yahoogroups.com> , Antstig <antstig@...> wrote:
>
> I would be curious to know why remissions occur. Have you ever thought of keeping a journal that details diet, weight and other things?
> I know the term spontaneous remissions but my feeling is that they say "spontaneous" simply because they don't know why rather than saying they don't know the *reason* why.
> Frank
>
> --- On Thu, 12/11/09, verycool2009 <cinnamonmiroballi@...> wrote:
>
> From: verycool2009 <cinnamonmiroballi@...>
> Subject: [Cervical_Spondylosis] Stenosis or MS-Please help
> To: Cervical_Spondylosis@yahoogroups.com <mailto:Cervical_Spondylosis%40yahoogroups.com>
> Date: Thursday, 12 November, 2009, 21:53
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>  
> Â
>
>
>
>   
>
>
>     
>       
>       
>       I have had neurological issues for three years now.  At first I was told I was depressed.  In 2007, I was told I have fibromyalgia.  In July 2009, I was told I probably have MS.  A brain MRI in September and a c-spine MRI in October of this year failed to show any lesions consistent with MS.  Blood tests showed no vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10 other things.  
>
>
>
> The c-spine MRI did show some stenosis (forgot to ask which level) and a mild herniation.  I've been reading posts on this group and I am sorry for how much pain people are in.  I'm not in horrible pain.  My problems are more motor weakness, burning pain or stabbing pain, bladder and bowel problems, balance and coordination problems, muscle spasms, spasticity, things like that.  And my problems will flare up really badly for about a month, then take the next two months to taper off.  Then I will have a period of stasis for several months, then it will flare up again. Sometimes I will walk with a cane or barely be able to use my hands. I will have indescribable fatigue and cognitive difficulties.  
>
>
>
> I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome.  Sometimes I have a stiff neck or headaches that come out of my neck, but other than that, I would never think anything is wrong with my neck.  
>
>
>
> Here's my question. Can these things be explained by compression on the spinal cord at one of the c-levels?  Is it possible I have MS but it hasn't progressed enough to show on an MRI or should I be looking at probable spinal cord damage from stenosis or the herniation?  I am a need-to-know person.  I hate not having answers.  I am trying to continue to be patient.
>
>
>
> Right now, I am in what I call "remission."  I have the usual problems with my left foot being stiff and weaker than the right.  I have weak wrists and hands and my hands go numb at night.  I am more tired than I should be for a woman of my age.
>

 
   



#255 From: Greg Nail <g.nail@...>
Date: Mon Nov 16, 2009 1:54 pm
Subject: Re: An Interesting Article on "Regrowing Spines" from WebMD.
g.nail...
Offline Offline
Send Email Send Email
 
I hope it is ok to post a link to an interesting article in WebMD about “Regrowing Spines”:
http://www.ivanhoe.com/channels/p_channelstory.cfm?storyid=22712

Best regards,
Greg

#254 From: "verycool2009" <cinnamonmiroballi@...>
Date: Mon Nov 16, 2009 1:08 am
Subject: Re: Stenosis or MS-Please help
verycool2009
Online Now Online Now
Send Email Send Email
 
Thanks Greg.  At this point, the doctor is saying I don't have MS.  I believe
him.  The MRI's were negative.  I would like to put MS out of my mind forever. 
I think I'm at the point where I'm willing to do that.  Thanks for letting me
know that the symptoms are the same as yours.  I want to know what I am
fighting.  Perhaps we have gotten the answer.  After all this time and all the
things the doctors looked at, this probably could have been answered a long time
ago.

--- In Cervical_Spondylosis@yahoogroups.com, Greg Nail <g.nail@...> wrote:
>
> Dear Verycool2009,
>
> You have all the exact symptoms that I have...pain came later.  Yes, those
> symptoms can be explained by a herniated disk and/or stenosis in the
> cervical area.  Dont let ANYONE tell you that you MIGHT have MS or any
> disease.  They MUST be sure of it.  If you are close to AZ I can tell you a
> team of 19 excellent neurosurgeons to see to tell you for sure.
>
> Please see a good neurologist or neurosurgeon.  It may tend to come & go
> if a disk is slipping back & forth.
>
> God bless you,
> Greg
>
>
> On 11/12/09 3:53 PM, "verycool2009" <cinnamonmiroballi@...>
> wrote:
>
> >
> >
> >
> >
> >
> > I have had neurological issues for three years now.  At first I was told I
was
> > depressed.  In 2007, I was told I have fibromyalgia.  In July 2009, I was
told
> > I probably have MS.  A brain MRI in September and a c-spine MRI in October
of
> > this year failed to show any lesions consistent with MS.  Blood tests showed
> > no vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10
other
> > things.
> >
> > The c-spine MRI did show some stenosis (forgot to ask which level) and a
mild
> > herniation.  I've been reading posts on this group and I am sorry for how
much
> > pain people are in.  I'm not in horrible pain.  My problems are more motor
> > weakness, burning pain or stabbing pain, bladder and bowel problems, balance
> > and coordination problems, muscle spasms, spasticity, things like that.  And
> > my problems will flare up really badly for about a month, then take the next
> > two months to taper off.  Then I will have a period of stasis for several
> > months, then it will flare up again. Sometimes I will walk with a cane or
> > barely be able to use my hands. I will have indescribable fatigue and
> > cognitive difficulties.
> >
> > I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome.
> > Sometimes I have a stiff neck or headaches that come out of my neck, but
other
> > than that, I would never think anything is wrong with my neck.
> >
> > Here's my question. Can these things be explained by compression on the
spinal
> > cord at one of the c-levels?  Is it possible I have MS but it hasn't
> > progressed enough to show on an MRI or should I be looking at probable
spinal
> > cord damage from stenosis or the herniation?  I am a need-to-know person.  I
> > hate not having answers.  I am trying to continue to be patient.
> >
> > Right now, I am in what I call "remission."  I have the usual problems with
my
> > left foot being stiff and weaker than the right.  I have weak wrists and
hands
> > and my hands go numb at night.  I am more tired than I should be for a woman
> > of my age.
> >
> >
> >
> >
> >
>

#253 From: "verycool2009" <cinnamonmiroballi@...>
Date: Mon Nov 16, 2009 1:38 am
Subject: Re: Stenosis or MS-Please help
verycool2009
Online Now Online Now
Send Email Send Email
 
And by the way, thank you everyone who responded.  I'm sure you all know how it
feels to have weird problems and not know why.  I have a prescription for
physical therapy.  I am supposed to do some traction.  I am going to call
tomorrow and get it set up.  I am no longer living with the fear of "MS" hanging
over my head.  I am not thrilled about what I am facing, but I am going to do
whatever I can to minimize it.

--- In Cervical_Spondylosis@yahoogroups.com, Antstig <antstig@...> wrote:
>
> I would be curious to know why remissions occur. Have you ever thought of
keeping a journal that details diet, weight and other things?
> I know the term spontaneous remissions but my feeling is that they say
"spontaneous" simply because they don't know why rather than saying they don't
know the *reason* why.
> Frank
>
> --- On Thu, 12/11/09, verycool2009 <cinnamonmiroballi@...> wrote:
>
> From: verycool2009 <cinnamonmiroballi@...>
> Subject: [Cervical_Spondylosis] Stenosis or MS-Please help
> To: Cervical_Spondylosis@yahoogroups.com
> Date: Thursday, 12 November, 2009, 21:53
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>  
>
>
>
>
>
>
>
>
>
>       I have had neurological issues for three years now.  At first I was told
I was depressed.  In 2007, I was told I have fibromyalgia.  In July 2009, I was
told I probably have MS.  A brain MRI in September and a c-spine MRI in October
of this year failed to show any lesions consistent with MS.  Blood tests showed
no vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10 other
things.
>
>
>
> The c-spine MRI did show some stenosis (forgot to ask which level) and a mild
herniation.  I've been reading posts on this group and I am sorry for how much
pain people are in.  I'm not in horrible pain.  My problems are more motor
weakness, burning pain or stabbing pain, bladder and bowel problems, balance and
coordination problems, muscle spasms, spasticity, things like that.  And my
problems will flare up really badly for about a month, then take the next two
months to taper off.  Then I will have a period of stasis for several months,
then it will flare up again. Sometimes I will walk with a cane or barely be able
to use my hands. I will have indescribable fatigue and cognitive difficulties.
>
>
>
> I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome. 
Sometimes I have a stiff neck or headaches that come out of my neck, but other
than that, I would never think anything is wrong with my neck.
>
>
>
> Here's my question. Can these things be explained by compression on the spinal
cord at one of the c-levels?  Is it possible I have MS but it hasn't progressed
enough to show on an MRI or should I be looking at probable spinal cord damage
from stenosis or the herniation?  I am a need-to-know person.  I hate not having
answers.  I am trying to continue to be patient.
>
>
>
> Right now, I am in what I call "remission."  I have the usual problems with my
left foot being stiff and weaker than the right.  I have weak wrists and hands
and my hands go numb at night.  I am more tired than I should be for a woman of
my age.
>

#252 From: "verycool2009" <cinnamonmiroballi@...>
Date: Mon Nov 16, 2009 1:27 am
Subject: Re: Stenosis or MS-Please help
verycool2009
Online Now Online Now
Send Email Send Email
 
I have a journal.  I gave it to the neurologist.  I started it 3 years ago so my
symptoms could be documented.  I figured one day it would help a doctor read the
pattern and help with a diagnosis.

The issues with flare ups and remissions are what was making me think autoimmune
disorder or MS (which they are now saying is not an autoimmune disorder).  But
then, I don't know with spinal issues.  They may come and go like that.  I have
some permanent damage that never goes away but I have some things that get worse
with the "flare ups."  My hands are permanently weak.  I can still type and do
things that don't involve hand strength but lifting a gallon of milk or a bag of
groceries: forget it.  My left foot is permanently stiff and weak.  My neck and
upper back are stiff and achy. Even on my best days, these things are present. 
Other things go away.

No bladder problems right now.  No arm and leg spasticity or weakness to the
point that it that makes me limp.  No wrist braces needed at night for unberable
wrist pain.  No crippling fatigue. No hip pain; no canes.  I am happy to have
peace from most of it right now.  Let's see how the next few months go.



--- In Cervical_Spondylosis@yahoogroups.com, Antstig <antstig@...> wrote:
>
> I would be curious to know why remissions occur. Have you ever thought of
keeping a journal that details diet, weight and other things?
> I know the term spontaneous remissions but my feeling is that they say
"spontaneous" simply because they don't know why rather than saying they don't
know the *reason* why.
> Frank
>
> --- On Thu, 12/11/09, verycool2009 <cinnamonmiroballi@...> wrote:
>
> From: verycool2009 <cinnamonmiroballi@...>
> Subject: [Cervical_Spondylosis] Stenosis or MS-Please help
> To: Cervical_Spondylosis@yahoogroups.com
> Date: Thursday, 12 November, 2009, 21:53
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>  
>
>
>
>
>
>
>
>
>
>       I have had neurological issues for three years now.  At first I was told
I was depressed.  In 2007, I was told I have fibromyalgia.  In July 2009, I was
told I probably have MS.  A brain MRI in September and a c-spine MRI in October
of this year failed to show any lesions consistent with MS.  Blood tests showed
no vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10 other
things.
>
>
>
> The c-spine MRI did show some stenosis (forgot to ask which level) and a mild
herniation.  I've been reading posts on this group and I am sorry for how much
pain people are in.  I'm not in horrible pain.  My problems are more motor
weakness, burning pain or stabbing pain, bladder and bowel problems, balance and
coordination problems, muscle spasms, spasticity, things like that.  And my
problems will flare up really badly for about a month, then take the next two
months to taper off.  Then I will have a period of stasis for several months,
then it will flare up again. Sometimes I will walk with a cane or barely be able
to use my hands. I will have indescribable fatigue and cognitive difficulties.
>
>
>
> I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome. 
Sometimes I have a stiff neck or headaches that come out of my neck, but other
than that, I would never think anything is wrong with my neck.
>
>
>
> Here's my question. Can these things be explained by compression on the spinal
cord at one of the c-levels?  Is it possible I have MS but it hasn't progressed
enough to show on an MRI or should I be looking at probable spinal cord damage
from stenosis or the herniation?  I am a need-to-know person.  I hate not having
answers.  I am trying to continue to be patient.
>
>
>
> Right now, I am in what I call "remission."  I have the usual problems with my
left foot being stiff and weaker than the right.  I have weak wrists and hands
and my hands go numb at night.  I am more tired than I should be for a woman of
my age.
>

#251 From: Greg Nail <g.nail@...>
Date: Mon Nov 16, 2009 12:24 am
Subject: Re: Stenosis or MS-Please help
g.nail...
Offline Offline
Send Email Send Email
 
Frank,

I had a friend whose disk problem was difficult to diagnose because the disk would slip in and out of position.  Her symptoms would improve when the disk slipped into a “better” position but worsen when the disk slipped  into her spinal cord.  They FINALLY got an MRI of her when the disk was in a “bad” position.  

I wonder if a disk slipping in & out of  position, causing different sensations, could mistakenly be considered in remission?

Best regards,
Greg

On 11/15/09 6:59 AM, "Antstig" <antstig@...> wrote:


 
 
   

I would be curious to know why remissions occur. Have you ever thought of keeping a journal that details diet, weight and other things?
I know the term spontaneous remissions but my feeling is that they say "spontaneous" simply because they don't know why rather than saying they don't know the *reason* why.

Frank

--- On Thu, 12/11/09, verycool2009 <cinnamonmiroballi@...> wrote:

From: verycool2009 <cinnamonmiroballi@...>
Subject: [Cervical_Spondylosis] Stenosis or MS-Please help
To: Cervical_Spondylosis@yahoogroups.com
Date: Thursday, 12 November, 2009, 21:53

      I have had neurological issues for three years now.  At first I was told I was depressed.  In 2007, I was told I have fibromyalgia.  In July 2009, I was told I probably have MS.  A brain MRI in September and a c-spine MRI in October of this year failed to show any lesions consistent with MS.  Blood tests showed no vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10 other things.  

The c-spine MRI did show some stenosis (forgot to ask which level) and a mild herniation.  I've been reading posts on this group and I am sorry for how much pain people are in.  I'm not in horrible pain.  My problems are more motor weakness, burning pain or stabbing pain, bladder and bowel problems, balance and coordination problems, muscle spasms, spasticity, things like that.  And my problems will flare up really badly for about a month, then take the next two months to taper off.  Then I will have a period of stasis for several months, then it will flare up again. Sometimes I will walk with a cane or barely be able to use my hands. I will have indescribable fatigue and cognitive difficulties.  

I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome.  Sometimes I have a stiff neck or headaches that come out of my neck, but other than that, I would never think anything is wrong with my neck.  

Here's my question. Can these things be explained by compression on the spinal cord at one of the c-levels?  Is it possible I have MS but it hasn't progressed enough to show on an MRI or should I be looking at probable spinal cord damage from stenosis or the herniation?  I am a need-to-know person.  I hate not having answers.  I am trying to continue to be patient.

Right now, I am in what I call "remission."  I have the usual problems with my left foot being stiff and weaker than the right.  I have weak wrists and hands and my hands go numb at night.  I am more tired than I should be for a woman of my age.

 
  

 
 
   



#250 From: Antstig <antstig@...>
Date: Sun Nov 15, 2009 12:59 pm
Subject: Re: Stenosis or MS-Please help
antstig
Offline Offline
Send Email Send Email
 
I would be curious to know why remissions occur. Have you ever thought of keeping a journal that details diet, weight and other things?

I know the term spontaneous remissions but my feeling is that they say "spontaneous" simply because they don't know why rather than saying they don't know the *reason* why.

Frank

--- On Thu, 12/11/09, verycool2009 <cinnamonmiroballi@...> wrote:

From: verycool2009 <cinnamonmiroballi@...>
Subject: [Cervical_Spondylosis] Stenosis or MS-Please help
To: Cervical_Spondylosis@yahoogroups.com
Date: Thursday, 12 November, 2009, 21:53

 

I have had neurological issues for three years now. At first I was told I was depressed. In 2007, I was told I have fibromyalgia. In July 2009, I was told I probably have MS. A brain MRI in September and a c-spine MRI in October of this year failed to show any lesions consistent with MS. Blood tests showed no vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10 other things.

The c-spine MRI did show some stenosis (forgot to ask which level) and a mild herniation. I've been reading posts on this group and I am sorry for how much pain people are in. I'm not in horrible pain. My problems are more motor weakness, burning pain or stabbing pain, bladder and bowel problems, balance and coordination problems, muscle spasms, spasticity, things like that. And my problems will flare up really badly for about a month, then take the next two months to taper off. Then I will have a period of stasis for several months, then it will flare up again. Sometimes I will walk with a cane or barely be able to use my hands. I will have indescribable fatigue and cognitive difficulties.

I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome. Sometimes I have a stiff neck or headaches that come out of my neck, but other than that, I would never think anything is wrong with my neck.

Here's my question. Can these things be explained by compression on the spinal cord at one of the c-levels? Is it possible I have MS but it hasn't progressed enough to show on an MRI or should I be looking at probable spinal cord damage from stenosis or the herniation? I am a need-to-know person. I hate not having answers. I am trying to continue to be patient.

Right now, I am in what I call "remission." I have the usual problems with my left foot being stiff and weaker than the right. I have weak wrists and hands and my hands go numb at night. I am more tired than I should be for a woman of my age.



#249 From: Antstig <antstig@...>
Date: Sun Nov 15, 2009 1:02 pm
Subject: Re: Stenosis or MS-Please help
antstig
Offline Offline
Send Email Send Email
 
I'm rarely surprised these days when specialists get it wrong. I'm more surprised when they get it right.

Also they love to tell you that your condition is "progressive" meaning that it's going to get worse.

They never use the word "progressive" to mean that your condition is going to get better.

Frank

--- On Fri, 13/11/09, ERVettek2000@... <ERVettek2000@...> wrote:

From: ERVettek2000@... <ERVettek2000@...>
Subject: Re: [Cervical_Spondylosis] Stenosis or MS-Please help
To: Cervical_Spondylosis@yahoogroups.com
Date: Friday, 13 November, 2009, 23:58

 

 Have you ever had psorasis? I have Psoriatic Arthritis that sounds much like what you are describing. Looks and feels like RA and Lupus and comes in flares that worsen with every one. The blood tests and MRI's never show anything, but spondylosis that isn't bad enough to cause the kind of pain I'm in.  Check into it on the Arthritis Foundation site. I was beyond shocked when they told me that's what it is. 4 years of specialists couldn't figure it out.
 
 
Gwynne 
 
In a message dated 11/13/2009 6:39:04 A.M. Pacific Standard Time, cinnamonmiroballi@ rocketmail. com writes:
 

I have had neurological issues for three years now. At first I was told I was depressed. In 2007, I was told I have fibromyalgia. In July 2009, I was told I probably have MS. A brain MRI in September and a c-spine MRI in October of this year failed to show any lesions consistent with MS. Blood tests showed no vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10 other things.

The c-spine MRI did show some stenosis (forgot to ask which level) and a mild herniation. I've been reading posts on this group and I am sorry for how much pain people are in. I'm not in horrible pain. My problems are more motor weakness, burning pain or stabbing pain, bladder and bowel problems, balance and coordination problems, muscle spasms, spasticity, things like that. And my problems will flare up really badly for about a month, then take the next two months to taper off. Then I will have a period of stasis for several months, then it will flare up again. Sometimes I will walk with a cane or barely be able to use my hands. I will have indescribable fatigue and cognitive difficulties.

I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome. Sometimes I have a stiff neck or headaches that come out of my neck, but other than that, I would never think anything is wrong with my neck.

Here's my question. Can these things be explained by compression on the spinal cord at one of the c-levels? Is it possible I have MS but it hasn't progressed enough to show on an MRI or should I be looking at probable spinal cord damage from stenosis or the herniation? I am a need-to-know person. I hate not having answers. I am trying to continue to be patient.

Right now, I am in what I call "remission." I have the usual problems with my left foot being stiff and weaker than the right. I have weak wrists and hands and my hands go numb at night. I am more tired than I should be for a woman of my age.



#248 From: "verycool2009" <cinnamonmiroballi@...>
Date: Sat Nov 14, 2009 4:34 pm
Subject: Re: Stenosis or MS-Please help
verycool2009
Online Now Online Now
Send Email Send Email
 
I don't know.  I do have a weird scalp condition so who knows?  I appreciate the
suggestion and will look into it.  I remember looking into psoriatic arthritis
way back when all this started but I can't remember details about the condition.
I am going to do some reading.  I'm having a hard time believing that a mild
narrowing of the spinal column can cause the kinds of problems I have had.  I'm
not saying it's not possible, just that I am having a hard time believing it.  I
would like to hear it from another patient, rather than a doctor who is not
experiencing it.  But thanks.  I am going to do some study on psoriatic
arthritis again.

--- In Cervical_Spondylosis@yahoogroups.com, ERVettek2000@... wrote:
>
> Have you ever had psorasis? I have Psoriatic Arthritis that sounds  much
> like what you are describing. Looks and feels like RA and Lupus and comes  in
> flares that worsen with every one. The blood tests and MRI's never show
> anything, but spondylosis that isn't bad enough to cause the kind of pain I'm
> in.  Check into it on the Arthritis Foundation site. I was beyond shocked
> when they told me that's what it is. 4 years of specialists couldn't figure
> it  out.
>
>
> Gwynne
>
>
> In a message dated 11/13/2009 6:39:04 A.M. Pacific Standard Time,
> cinnamonmiroballi@... writes:
>
>
>
>
> I have had neurological issues for three years now. At first I was told I
> was depressed. In 2007, I was told I have fibromyalgia. In July 2009, I was
> told I probably have MS. A brain MRI in September and a c-spine MRI in
> October  of this year failed to show any lesions consistent with MS. Blood
tests
> showed  no vitamin deficiencies. Doctors have ruled out RA, lupus, and
> about 10 other  things.
>
> The c-spine MRI did show some stenosis (forgot to ask which  level) and a
> mild herniation. I've been reading posts on this group and I am  sorry for
> how much pain people are in. I'm not in horrible pain. My problems  are more
> motor weakness, burning pain or stabbing pain, bladder and bowel  problems,
> balance and coordination problems, muscle spasms, spasticity, things  like
> that. And my problems will flare up really badly for about a month, then  take
> the next two months to taper off. Then I will have a period of stasis for
> several months, then it will flare up again. Sometimes I will walk with a
> cane  or barely be able to use my hands. I will have indescribable fatigue and
>  cognitive difficulties.
>
> I do have symptoms consistent with ulnar palsy  and carpal tunnel syndrome.
> Sometimes I have a stiff neck or headaches that  come out of my neck, but
> other than that, I would never think anything is  wrong with my neck.
>
> Here's my question. Can these things be explained  by compression on the
> spinal cord at one of the c-levels? Is it possible I  have MS but it hasn't
> progressed enough to show on an MRI or should I be  looking at probable spinal
> cord damage from stenosis or the herniation? I am a  need-to-know person. I
> hate not having answers. I am trying to continue to be  patient.
>
> Right now, I am in what I call "remission." I have the usual  problems with
> my left foot being stiff and weaker than the right. I have weak  wrists and
> hands and my hands go numb at night. I am more tired than I should  be for
> a woman of my age.
>

#247 From: "wrexicanart" <wrexicanart@...>
Date: Fri Nov 13, 2009 7:05 pm
Subject: Re: Stenosis or MS-Please help
wrexicanart
Offline Offline
Send Email Send Email
 
Hi Very Cool
I was reading your post. I am going thru the same sort of symptoms, I have 4
lesions. 3 on the cord, one on the brain ...
But, yes I think your symptoms can be caused by compression to the spinal cord
and damage to the cord.
Stenosis can cause some of the symptoms you are having. maybe all.
just my thought...
M.


--- In Cervical_Spondylosis@yahoogroups.com, "verycool2009"
<cinnamonmiroballi@...> wrote:
>
> I have had neurological issues for three years now.  At first I was told I was
depressed.  In 2007, I was told I have fibromyalgia.  In July 2009, I was told I
probably have MS.  A brain MRI in September and a c-spine MRI in October of this
year failed to show any lesions consistent with MS.  Blood tests showed no
vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10 other
things.
>
> The c-spine MRI did show some stenosis (forgot to ask which level) and a mild
herniation.  I've been reading posts on this group and I am sorry for how much
pain people are in.  I'm not in horrible pain.  My problems are more motor
weakness, burning pain or stabbing pain, bladder and bowel problems, balance and
coordination problems, muscle spasms, spasticity, things like that.  And my
problems will flare up really badly for about a month, then take the next two
months to taper off.  Then I will have a period of stasis for several months,
then it will flare up again. Sometimes I will walk with a cane or barely be able
to use my hands. I will have indescribable fatigue and cognitive difficulties.
>
> I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome. 
Sometimes I have a stiff neck or headaches that come out of my neck, but other
than that, I would never think anything is wrong with my neck.
>
> Here's my question. Can these things be explained by compression on the spinal
cord at one of the c-levels?  Is it possible I have MS but it hasn't progressed
enough to show on an MRI or should I be looking at probable spinal cord damage
from stenosis or the herniation?  I am a need-to-know person.  I hate not having
answers.  I am trying to continue to be patient.
>
> Right now, I am in what I call "remission."  I have the usual problems with my
left foot being stiff and weaker than the right.  I have weak wrists and hands
and my hands go numb at night.  I am more tired than I should be for a woman of
my age.
>

#246 From: Greg Nail <g.nail@...>
Date: Fri Nov 13, 2009 8:35 pm
Subject: Re: Stenosis or MS-Please help
g.nail...
Offline Offline
Send Email Send Email
 
Dear Verycool2009,

You have all the exact symptoms that I have...pain came later.  Yes, those symptoms can be explained by a herniated disk and/or stenosis in the cervical area.  Don’t let ANYONE tell you that you MIGHT have MS or any disease.  They MUST be sure of it.  If you are close to AZ I can tell you a team of 19 excellent neurosurgeons to see to tell you for sure.

Please see a good neurologist or neurosurgeon.  It may tend to “come & go” if a disk is slipping back & forth.

God bless you,
Greg


On 11/12/09 3:53 PM, "verycool2009" <cinnamonmiroballi@...> wrote:


 
 
   

I have had neurological issues for three years now.  At first I was told I was depressed.  In 2007, I was told I have fibromyalgia.  In July 2009, I was told I probably have MS.  A brain MRI in September and a c-spine MRI in October of this year failed to show any lesions consistent with MS.  Blood tests showed no vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10 other things.  

The c-spine MRI did show some stenosis (forgot to ask which level) and a mild herniation.  I've been reading posts on this group and I am sorry for how much pain people are in.  I'm not in horrible pain.  My problems are more motor weakness, burning pain or stabbing pain, bladder and bowel problems, balance and coordination problems, muscle spasms, spasticity, things like that.  And my problems will flare up really badly for about a month, then take the next two months to taper off.  Then I will have a period of stasis for several months, then it will flare up again. Sometimes I will walk with a cane or barely be able to use my hands. I will have indescribable fatigue and cognitive difficulties.  

I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome.  Sometimes I have a stiff neck or headaches that come out of my neck, but other than that, I would never think anything is wrong with my neck.  

Here's my question. Can these things be explained by compression on the spinal cord at one of the c-levels?  Is it possible I have MS but it hasn't progressed enough to show on an MRI or should I be looking at probable spinal cord damage from stenosis or the herniation?  I am a need-to-know person.  I hate not having answers.  I am trying to continue to be patient.

Right now, I am in what I call "remission."  I have the usual problems with my left foot being stiff and weaker than the right.  I have weak wrists and hands and my hands go numb at night.  I am more tired than I should be for a woman of my age.

 
   



#245 From: ERVettek2000@...
Date: Fri Nov 13, 2009 6:58 pm
Subject: Re: Stenosis or MS-Please help
geelayne
Offline Offline
Send Email Send Email
 
 Have you ever had psorasis? I have Psoriatic Arthritis that sounds much like what you are describing. Looks and feels like RA and Lupus and comes in flares that worsen with every one. The blood tests and MRI's never show anything, but spondylosis that isn't bad enough to cause the kind of pain I'm in.  Check into it on the Arthritis Foundation site. I was beyond shocked when they told me that's what it is. 4 years of specialists couldn't figure it out.
 
 
Gwynne 
 
In a message dated 11/13/2009 6:39:04 A.M. Pacific Standard Time, cinnamonmiroballi@... writes:
 

I have had neurological issues for three years now. At first I was told I was depressed. In 2007, I was told I have fibromyalgia. In July 2009, I was told I probably have MS. A brain MRI in September and a c-spine MRI in October of this year failed to show any lesions consistent with MS. Blood tests showed no vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10 other things.

The c-spine MRI did show some stenosis (forgot to ask which level) and a mild herniation. I've been reading posts on this group and I am sorry for how much pain people are in. I'm not in horrible pain. My problems are more motor weakness, burning pain or stabbing pain, bladder and bowel problems, balance and coordination problems, muscle spasms, spasticity, things like that. And my problems will flare up really badly for about a month, then take the next two months to taper off. Then I will have a period of stasis for several months, then it will flare up again. Sometimes I will walk with a cane or barely be able to use my hands. I will have indescribable fatigue and cognitive difficulties.

I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome. Sometimes I have a stiff neck or headaches that come out of my neck, but other than that, I would never think anything is wrong with my neck.

Here's my question. Can these things be explained by compression on the spinal cord at one of the c-levels? Is it possible I have MS but it hasn't progressed enough to show on an MRI or should I be looking at probable spinal cord damage from stenosis or the herniation? I am a need-to-know person. I hate not having answers. I am trying to continue to be patient.

Right now, I am in what I call "remission." I have the usual problems with my left foot being stiff and weaker than the right. I have weak wrists and hands and my hands go numb at night. I am more tired than I should be for a woman of my age.


#244 From: "verycool2009" <cinnamonmiroballi@...>
Date: Thu Nov 12, 2009 9:53 pm
Subject: Stenosis or MS-Please help
verycool2009
Online Now Online Now
Send Email Send Email
 
I have had neurological issues for three years now.  At first I was told I was
depressed.  In 2007, I was told I have fibromyalgia.  In July 2009, I was told I
probably have MS.  A brain MRI in September and a c-spine MRI in October of this
year failed to show any lesions consistent with MS.  Blood tests showed no
vitamin deficiencies. Doctors have ruled out RA, lupus, and about 10 other
things.

The c-spine MRI did show some stenosis (forgot to ask which level) and a mild
herniation.  I've been reading posts on this group and I am sorry for how much
pain people are in.  I'm not in horrible pain.  My problems are more motor
weakness, burning pain or stabbing pain, bladder and bowel problems, balance and
coordination problems, muscle spasms, spasticity, things like that.  And my
problems will flare up really badly for about a month, then take the next two
months to taper off.  Then I will have a period of stasis for several months,
then it will flare up again. Sometimes I will walk with a cane or barely be able
to use my hands. I will have indescribable fatigue and cognitive difficulties.

I do have symptoms consistent with ulnar palsy and carpal tunnel syndrome. 
Sometimes I have a stiff neck or headaches that come out of my neck, but other
than that, I would never think anything is wrong with my neck.

Here's my question. Can these things be explained by compression on the spinal
cord at one of the c-levels?  Is it possible I have MS but it hasn't progressed
enough to show on an MRI or should I be looking at probable spinal cord damage
from stenosis or the herniation?  I am a need-to-know person.  I hate not having
answers.  I am trying to continue to be patient.

Right now, I am in what I call "remission."  I have the usual problems with my
left foot being stiff and weaker than the right.  I have weak wrists and hands
and my hands go numb at night.  I am more tired than I should be for a woman of
my age.

#243 From: Antstig <antstig@...>
Date: Tue Oct 20, 2009 1:17 pm
Subject: Re: Re: I am new to this group and was just diagnosed with Cervical Spondylosis
antstig
Offline Offline
Send Email Send Email
 
Yes Carol, rest is essential and I know if I overdo it on the computer my hands start to itch badly.

Maybe you could to some sort of arrangement with your company maybe they could let you work from home on a part time basis.

Frank

--- On Sun, 18/10/09, naporapeel <naporapeel@...> wrote:

From: naporapeel <naporapeel@...>
Subject: [Cervical_Spondylosis] Re: I am new to this group and was just diagnosed with Cervical Spondylosis
To: Cervical_Spondylosis@yahoogroups.com
Date: Sunday, 18 October, 2009, 5:37 AM

I have a few more weeks left of PT, although I am still in a lot of pain, it helps to know that it has helped others. Yes I have only a few amount of sessions That the Insurance Co will approve. I feel so frustrated and I finaly have been contacted by the Pain center to go to the first apt November 27. This will be an evaluation they said. I go to the Neuro doc on November 28. I will really push for him to give orders to get an MRI for my lower back as that causes me a great deal of pain along with all the rest.

As far as typing and going to work. It was something I made my self do everyday and suffered greatly for it as soon as I got home I was comfined to my chair to try and lessen the pain. Finaly the Neuro Doc sent paper work in to my Employer so that I may be off of work during this time. My short term disability for my time off of work is still pending. I worry I may be fired.

I just take one day at a time and with the really bad pain one moment at a time. I keep my faith in God and pray. I hardly get on my computer at home now. The PT has advised not to and not to do anything that causes pain during this time of healing. So If followed that I would be in my Lazy boy with my blanket behind my head and arms propt up all the time. I do listen to her as much as possible. I have to sleep in my chair as it is too painful to sleep in my bed.

I just pray that soon the Dr's will find out how to stop my pain and help me get back to my life. I call this time of my life "Life Interupted". I have faith that great things will come of this.
God Bless all
Carol Lynn

--- In Cervical_Spondylosi s@yahoogroups. com, Antstig <antstig@... > wrote:
>
> I think PT is great and now do my own exercises which strengthen the inner muscles of my neck and thus keep the spur of bone in my vertebrae from further damaging the myellin of my nerves.
> I live in the UK so have National Health Insurance and thus no worries about getting scans as everything is included as it is National Health. I think it would drive me mad having restrictions imposed by private insurance companies and my sympathy goes out to all those that have to suffer delay and in some cases no treatment because it's not offered.
> Frank
>
> --- On Sat, 10/10/09, casey brown <brownbat74@ ...> wrote:
>
> From: casey brown <brownbat74@ ...>
> Subject: Re: [Cervical_Spondylos is] I am new to this group and was just diagnosed with Cervical Spondylosis
> To: Cervical_Spondylosi s@yahoogroups. com
> Date: Saturday, 10 October, 2009, 6:52 PM
>
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> Wow. Carol Lynn. You have been through a lot. Thanks for the thoroughexplanation . I'm sure others here will relate to your story.
>
> I am impressed that you can type a lot and have, until recently, been able to hold down a computer desk job. My arm radiculopathy and hand tremor seem tohave impacted my keyboarding ability. (Now there are some other neuro issues, yet to be diagnosed but probably not related to the spondylosis, in my forearms that make typing very painful.)
>
> Let us know if the PT helps. I am a big fan of it but mydoctor (an ortho guy) thought PT was only aggravating my CervSpond.pain so he discontinued it. I was nervous about getting an epidural injection but I must say it worked like a miracle...at least the first one did. The second had no affect on the pain. So insurance wouldn't pay for more.
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> In my case, too, surgery is not advised. I have learned to adapt soas not to aggravate the pain.
>
> --- On Fri, 10/9/09, naporapeel <naporapeel@ yahoo. com> wrote:
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> From: naporapeel <naporapeel@ yahoo. com>
> Subject: [Cervical_Spondylos is] I am new to this group and was just diagnosed with Cervical Spondylosis
> To: Cervical_Spondylosi s@yahoogroups. com
> Date: Friday, October 9, 2009, 9:25 AM
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> Hello,
>
> I have had neck and back painsince 2003 but it would not last long and than go away for a few days. But in July of 2009 the Pain started in my neck, shoulders, and tingling in right arm and has not gone away at all since then.. It was so severe I went to ER. The Dr there rubbed my shoulders for less than 30 seconds and said I had a cervical sprain. I also was given two shots in my rear end.
> I didnt stop there. I made an apt with my family medical Dr. I was given exrays that showed Degenerative Disc Disease. My Dr couldnt order a MRI yet because of my insurance. My Dr had to first give me cortazone pills to see if my pain would be stopped or lessened. He also prescribed me muscle relaxers and pain meds. None of that stopped the pain.
> From the start of the pain, my pain was so bad I mostly reclined in my Lazy boy chair with my blanket behind my head and my arms propt up by a pillow and the blanket.That seemed to lessen the pain and
> make it not so sever. I continued to go to work which is computer work sitting at a desk and we had mandatory overtime at that time. When I would get home from work I would do what ever house hold duties had to be done and than back to the chair.
> Finally my Dr was able to order me the MRI. The results showed a herniated disc pressing on a nerve and a bulging disc. My pain was now getting worse and was also in my lower back beside the neck, shoulders and tingly arm. I was also getting pain at the base of my skull going to the left side of face and under the jaw. I would get very bad headaches that would come and go.
> MY Family Dr sent me to The Spine Center in Detroit, to be seen by a neurosergon. The neuro Dr decided not to do surgery and diagnosed my with Cervical Spondylosis. He gave orders for me to go to Physical Therapy, and to recieve injections from The Port Huron Pain center.
> So this brings me to today, so far I have been to Port Huron
> physical therapy 5 times and I have an apt today also. It will be about 6 weeks of it. I havent received the injections yet. The Spine Center has just sent the orders to the pain center a few days ago and than they are supposed to call me to set up an apt.
> I am still in pain, the pyhsical therepist is excellent. She asked what have I done to myself, did I fall. I replied I didnt fall and I am not sure what I have done to cause this. Today physical therepy will finaly receive the orders to work on my lower back as well as the neck. At first the orders were only for the neck. The MRI was only on the neck.
> I have had to make many phone calls to the Spine Center to get orders sent, to req my paper work be sent to my job. I have stopped going to work as of 09-08-09 because of the pain. I have requested an MRI for my lower back but so far that has been denied by the Neurosurgen assistant that I always have to speak with when I call the Spine Center. So
> I set up an early follow up apt with the Neuro Dr. It is now the end of October and it was the end of November.
> My family doc is the one prescribing my pain meds. He no longer prescribes me muscle relaxers.
> I am still very positive and hopeful the pain will stop. I just feel like "Life interupted".
> Anyway that is my story so far.
> Carol Lynn
>



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