Hi~~~



I hope I am in the right place.  I do not have a diagnosis of Cervical

Spondylosis.



I have been diagnosed with Cervical Spinal Stenosis at c3-4, c4-5, c5-6, c6-7. 

And with disc protrusion at a couple cervical levels.  And with Narcolepsy with

Cataplexy, and Vestibulo-Acoustic Neuritis, and Migraine Associated Vertigo, and

Degenerative Disc Disease (at c6-7), and Vaso-Vagal Syncope, and ....

Some of the symptoms include: frequent passing out, constant dizziness, lots of

falling, constant severe neck/head pain, seizures, pain deep to the ears, pain

behind the pharynx, pain swallowing, pain yawning, sometimes paralysis of either

arm, left sided weakness, and more i do not remember now.

I take narcotics for the pain, and sometimes that does not touch the pain. 

Although I ordinarily am a non-drinker, yet I drink alcohol in my desperation

for pain relief.

Many days I spend all day in bed, writhing trying to find a least painful

position.  When I go to a doctor, I go in my wheelchair because of balance

trouble, and in not too long a time I lay down on the floor in the doc's waiting

room because it is way too painful to sit any longer.

I cannot watch TV because the flashing lights induce seizures.  I cannot attend

most churches, even when i am able to sit for an hour or so, because the music

with a beat, such as using drums, induces seizures and/or passing out.  Several

churches have called ambulances for me.  But more and more I cannot sit that

long anyway, so cannot attend at all.

I have tried many Physical Therapists without help for this.  Chiropractors will

not touch me because of the seizures and syncope.  I have used home traction

without help, and a home "point tens unit", which used to help but no longer

does.  The pain specialist told me that I am not a candidate for injections for

the pain, but that I need to see a neurosurgeon.  So I have an appointment with

one in Indianapolis at the University medical center at the beginning of August.

I am praying much to God for His direct healing.  I utterly belong to Him and He

loves me.



Back to bed now. It is very hard to sit here this long.

Thanks for reading.

The neurosurgeon said I was not a good candidate for surgery.

He said it looked like the upper cervical vertebrae were twisted out of place,

and there was DDD and arthritis, and ordered a special neck brace and upper

cervical CT to look more closely at it.  Also, my PCP prescribed a powerful

muscle relaxant (soma) for the problem.  And I see the pain specialist tomorrow.

And the neurosurgeon said he saw something on the cervical X-rays that prompted

him to request chest ways, because something may be wrong with my lungs.

when the PCP doc touched my neck in his office, i fell on the floor crying in

serious serious pain.  Every day i spend 4-6 hours crying in pain, wondering if

i should call for an ambulance, but knowing that they will probably only abuse

me in the emergency room.   very tough situation.

thanks for listening.





--- In Cervical_Spondylosis@yahoogroups.com, Zeagler606@... wrote:

>

> I'm so sorry to hear of your problems associated with the stenosis and hope

>  the neurosurgeon can help. Let us hear what you learn after your

> appointment.  You'll be in our thoughts and prayers!

>

And now also the second neuro-surgeon has said the same thing...that I am not a

surgical candidate.  All that can be done is heavy duty pain meds, like Nucynta

and gabapentin and Opama.  Thay took me off of soma, and it did not help anyway.

morphine pills do not help, but morphine injections do help alot.  Why is that?



They have never had me see a lung specialist, even though I had multiple

bilateral pulmonary emboli, and the lungs hurt every day.



I went to a chiropractor who went with me to another chiropractor who does

something I have never seen before.  He said that my C-1 was twisted almost to

the point of tearing the ligaments, and then it was locked there so it could not

move.  He took x-rays on an angle, so it could be seen.  His treatment has

unlocked it, so that sometimes after treatment it feels like my head is not

attached to my neck at all.  That is a strange feeling, and I then hold it so it

does not fall off.  And then my DID kicks in, and things go bad for a while.  I

pass out after treatment, and then come back with no sense of balance and not

speaking English at all.  It then takes a while for me to come back.  The HBS I

have also is hard with this.  But the chiropractor's treatments do not seem to

be able to get it into a stable position at all.  The chiropractor said I was

the worst case he has seen in 25 years.  So I spend most days in bed, and have

seizures every day, and my muscles wither.  (it is very hard being at the

computer this long.)



Unless I was taken by air ambulance, I cannot go far away, such as to Arizona. 

I am in Indiana.



But I keep praying for God to heal me.



Thanks!







--- In Cervical_Spondylosis@yahoogroups.com, "Gregory Nail" <g.nail@...> wrote:

>

> Dear Anna,

>

>

>

> I am so sorry to hear the pain & problems you are experiencing.  I sure hope

> a neurosurgeon can help your neck (& a pulmonary specialist for your lungs).

> If you cannot find a good local doctor to help you, let me know and I can

> suggest my team of neurosurgeons that I see in Phoenix AZ.  I was messed up

> by a local surgeon in Kansas City, MO and had to be fixed.  No one in NY or

> Chicago would take my case due to the difficulty.  This world renowned team

> in AZ gladly accepted me and corrected the botched surgery in a 2-day

> surgery.  I still have ongoing problems as I have DDD and cervical

> Myelopathy but the surgery made me 95% for several years.

>

>

>

> Good luck & God Bless you,

>

> Greg

>

>   _____

>

> From: Cervical_Spondylosis@yahoogroups.com

> [mailto:Cervical_Spondylosis@yahoogroups.com] On Behalf Of Anna

> Schverzhjedzova

> Sent: Wednesday, August 05, 2009 1:30 PM

> To: Cervical_Spondylosis@yahoogroups.com

> Subject: [Cervical_Spondylosis] Re: New Here

>

>

>

>

>

> The neurosurgeon said I was not a good candidate for surgery.

> He said it looked like the upper cervical vertebrae were twisted out of

> place, and there was DDD and arthritis, and ordered a special neck brace and

> upper cervical CT to look more closely at it. Also, my PCP prescribed a

> powerful muscle relaxant (soma) for the problem. And I see the pain

> specialist tomorrow. And the neurosurgeon said he saw something on the

> cervical X-rays that prompted him to request chest ways, because something

> may be wrong with my lungs.

> when the PCP doc touched my neck in his office, i fell on the floor crying

> in serious serious pain. Every day i spend 4-6 hours crying in pain,

> wondering if i should call for an ambulance, but knowing that they will

> probably only abuse me in the emergency room. very tough situation.

> thanks for listening.

>

Wow Anna.  I am so sorry to read that.  Maybe I missed it, but what happened? 

Were you injured or is it one of those cases where you don't know what the cause

is?



I will pray for you as well.



Cinnamon





--- In Cervical_Spondylosis@yahoogroups.com, "ahoovahyah" <ahoovahyah@...>

wrote:

>

> And now also the second neuro-surgeon has said the same thing...that I am not

a surgical candidate.  All that can be done is heavy duty pain meds, like

Nucynta and gabapentin and Opama.  Thay took me off of soma, and it did not help

anyway.  morphine pills do not help, but morphine injections do help alot.  Why

is that?

>

> They have never had me see a lung specialist, even though I had multiple

bilateral pulmonary emboli, and the lungs hurt every day.

>

> I went to a chiropractor who went with me to another chiropractor who does

something I have never seen before.  He said that my C-1 was twisted almost to

the point of tearing the ligaments, and then it was locked there so it could not

move.  He took x-rays on an angle, so it could be seen.  His treatment has

unlocked it, so that sometimes after treatment it feels like my head is not

attached to my neck at all.  That is a strange feeling, and I then hold it so it

does not fall off.  And then my DID kicks in, and things go bad for a while.  I

pass out after treatment, and then come back with no sense of balance and not

speaking English at all.  It then takes a while for me to come back.  The HBS I

have also is hard with this.  But the chiropractor's treatments do not seem to

be able to get it into a stable position at all.  The chiropractor said I was

the worst case he has seen in 25 years.  So I spend most days in bed, and have

seizures every day, and my muscles wither.  (it is very hard being at the

computer this long.)

>

> Unless I was taken by air ambulance, I cannot go far away, such as to Arizona.

I am in Indiana.

>

> But I keep praying for God to heal me.

>

> Thanks!

>

>

>

> --- In Cervical_Spondylosis@yahoogroups.com, "Gregory Nail" <g.nail@> wrote:

> >

> > Dear Anna,

> >

> >

> >

> > I am so sorry to hear the pain & problems you are experiencing.  I sure hope

> > a neurosurgeon can help your neck (& a pulmonary specialist for your lungs).

> > If you cannot find a good local doctor to help you, let me know and I can

> > suggest my team of neurosurgeons that I see in Phoenix AZ.  I was messed up

> > by a local surgeon in Kansas City, MO and had to be fixed.  No one in NY or

> > Chicago would take my case due to the difficulty.  This world renowned team

> > in AZ gladly accepted me and corrected the botched surgery in a 2-day

> > surgery.  I still have ongoing problems as I have DDD and cervical

> > Myelopathy but the surgery made me 95% for several years.

> >

> >

> >

> > Good luck & God Bless you,

> >

> > Greg

> >

> >   _____

> >

> > From: Cervical_Spondylosis@yahoogroups.com

> > [mailto:Cervical_Spondylosis@yahoogroups.com] On Behalf Of Anna

> > Schverzhjedzova

> > Sent: Wednesday, August 05, 2009 1:30 PM

> > To: Cervical_Spondylosis@yahoogroups.com

> > Subject: [Cervical_Spondylosis] Re: New Here

> >

> >

> >

> >

> >

> > The neurosurgeon said I was not a good candidate for surgery.

> > He said it looked like the upper cervical vertebrae were twisted out of

> > place, and there was DDD and arthritis, and ordered a special neck brace and

> > upper cervical CT to look more closely at it. Also, my PCP prescribed a

> > powerful muscle relaxant (soma) for the problem. And I see the pain

> > specialist tomorrow. And the neurosurgeon said he saw something on the

> > cervical X-rays that prompted him to request chest ways, because something

> > may be wrong with my lungs.

> > when the PCP doc touched my neck in his office, i fell on the floor crying

> > in serious serious pain. Every day i spend 4-6 hours crying in pain,

> > wondering if i should call for an ambulance, but knowing that they will

> > probably only abuse me in the emergency room. very tough situation.

> > thanks for listening.

> >

>

Cinnamon!



I was allowed to fall in a hospital backwards while they were getting me into

bed so that my neck/head juncture hit the bed headboard.  An aide was not doing

her job.  That was 2 years ago.  But it has been getting gradually worse.

God is my only hope of help.

Anna



--- In Cervical_Spondylosis@yahoogroups.com, "verycool2009"

<cinnamonmiroballi@...> wrote:

>

>

> Wow Anna.  I am so sorry to read that.  Maybe I missed it, but what happened? 

Were you injured or is it one of those cases where you don't know what the cause

is?

>

> I will pray for you as well.

>

> Cinnamon

>

>

> --- In Cervical_Spondylosis@yahoogroups.com, "ahoovahyah" <ahoovahyah@> wrote:

> >

> > And now also the second neuro-surgeon has said the same thing...that I am

not a surgical candidate.  All that can be done is heavy duty pain meds, like

Nucynta and gabapentin and Opama.  Thay took me off of soma, and it did not help

anyway.  morphine pills do not help, but morphine injections do help alot.  Why

is that?

> >

> > They have never had me see a lung specialist, even though I had multiple

bilateral pulmonary emboli, and the lungs hurt every day.

> >

> > I went to a chiropractor who went with me to another chiropractor who does

something I have never seen before.  He said that my C-1 was twisted almost to

the point of tearing the ligaments, and then it was locked there so it could not

move.  He took x-rays on an angle, so it could be seen.  His treatment has

unlocked it, so that sometimes after treatment it feels like my head is not

attached to my neck at all.  That is a strange feeling, and I then hold it so it

does not fall off.  And then my DID kicks in, and things go bad for a while.  I

pass out after treatment, and then come back with no sense of balance and not

speaking English at all.  It then takes a while for me to come back.  The HBS I

have also is hard with this.  But the chiropractor's treatments do not seem to

be able to get it into a stable position at all.  The chiropractor said I was

the worst case he has seen in 25 years.  So I spend most days in bed, and have

seizures every day, and my muscles wither.  (it is very hard being at the

computer this long.)

> >

> > Unless I was taken by air ambulance, I cannot go far away, such as to

Arizona.  I am in Indiana.

> >

> > But I keep praying for God to heal me.

> >

> > Thanks!

> >

> >

> >

> > --- In Cervical_Spondylosis@yahoogroups.com, "Gregory Nail" <g.nail@> wrote:

> > >

> > > Dear Anna,

> > >

> > >

> > >

> > > I am so sorry to hear the pain & problems you are experiencing.  I sure

hope

> > > a neurosurgeon can help your neck (& a pulmonary specialist for your

lungs).

> > > If you cannot find a good local doctor to help you, let me know and I can

> > > suggest my team of neurosurgeons that I see in Phoenix AZ.  I was messed

up

> > > by a local surgeon in Kansas City, MO and had to be fixed.  No one in NY

or

> > > Chicago would take my case due to the difficulty.  This world renowned

team

> > > in AZ gladly accepted me and corrected the botched surgery in a 2-day

> > > surgery.  I still have ongoing problems as I have DDD and cervical

> > > Myelopathy but the surgery made me 95% for several years.

> > >

> > >

> > >

> > > Good luck & God Bless you,

> > >

> > > Greg

> > >

> > >   _____

> > >

> > > From: Cervical_Spondylosis@yahoogroups.com

> > > [mailto:Cervical_Spondylosis@yahoogroups.com] On Behalf Of Anna

> > > Schverzhjedzova

> > > Sent: Wednesday, August 05, 2009 1:30 PM

> > > To: Cervical_Spondylosis@yahoogroups.com

> > > Subject: [Cervical_Spondylosis] Re: New Here

> > >

> > >

> > >

> > >

> > >

> > > The neurosurgeon said I was not a good candidate for surgery.

> > > He said it looked like the upper cervical vertebrae were twisted out of

> > > place, and there was DDD and arthritis, and ordered a special neck brace

and

> > > upper cervical CT to look more closely at it. Also, my PCP prescribed a

> > > powerful muscle relaxant (soma) for the problem. And I see the pain

> > > specialist tomorrow. And the neurosurgeon said he saw something on the

> > > cervical X-rays that prompted him to request chest ways, because something

> > > may be wrong with my lungs.

> > > when the PCP doc touched my neck in his office, i fell on the floor crying

> > > in serious serious pain. Every day i spend 4-6 hours crying in pain,

> > > wondering if i should call for an ambulance, but knowing that they will

> > > probably only abuse me in the emergency room. very tough situation.

> > > thanks for listening.

> > >

> >

>

Unbelievable Anna.  That's all I have to say.



--- In Cervical_Spondylosis@yahoogroups.com, "ahoovahyah" <ahoovahyah@...>

wrote:

>

> Cinnamon!

>

> I was allowed to fall in a hospital backwards while they were getting me into

bed so that my neck/head juncture hit the bed headboard.  An aide was not doing

her job.  That was 2 years ago.  But it has been getting gradually worse.

> God is my only hope of help.

> Anna

>

> --- In Cervical_Spondylosis@yahoogroups.com, "verycool2009"

<cinnamonmiroballi@> wrote:

> >

> >

> > Wow Anna.  I am so sorry to read that.  Maybe I missed it, but what

happened?  Were you injured or is it one of those cases where you don't know

what the cause is?

> >

> > I will pray for you as well.

> >

> > Cinnamon

> >

> >

> > --- In Cervical_Spondylosis@yahoogroups.com, "ahoovahyah" <ahoovahyah@>

wrote:

> > >

> > > And now also the second neuro-surgeon has said the same thing...that I am

not a surgical candidate.  All that can be done is heavy duty pain meds, like

Nucynta and gabapentin and Opama.  Thay took me off of soma, and it did not help

anyway.  morphine pills do not help, but morphine injections do help alot.  Why

is that?

> > >

> > > They have never had me see a lung specialist, even though I had multiple

bilateral pulmonary emboli, and the lungs hurt every day.

> > >

> > > I went to a chiropractor who went with me to another chiropractor who does

something I have never seen before.  He said that my C-1 was twisted almost to

the point of tearing the ligaments, and then it was locked there so it could not

move.  He took x-rays on an angle, so it could be seen.  His treatment has

unlocked it, so that sometimes after treatment it feels like my head is not

attached to my neck at all.  That is a strange feeling, and I then hold it so it

does not fall off.  And then my DID kicks in, and things go bad for a while.  I

pass out after treatment, and then come back with no sense of balance and not

speaking English at all.  It then takes a while for me to come back.  The HBS I

have also is hard with this.  But the chiropractor's treatments do not seem to

be able to get it into a stable position at all.  The chiropractor said I was

the worst case he has seen in 25 years.  So I spend most days in bed, and have

seizures every day, and my muscles wither.  (it is very hard being at the

computer this long.)

> > >

> > > Unless I was taken by air ambulance, I cannot go far away, such as to

Arizona.  I am in Indiana.

> > >

> > > But I keep praying for God to heal me.

> > >

> > > Thanks!

> > >

> > >

> > >

> > > --- In Cervical_Spondylosis@yahoogroups.com, "Gregory Nail" <g.nail@>

wrote:

> > > >

> > > > Dear Anna,

> > > >

> > > >

> > > >

> > > > I am so sorry to hear the pain & problems you are experiencing.  I sure

hope

> > > > a neurosurgeon can help your neck (& a pulmonary specialist for your

lungs).

> > > > If you cannot find a good local doctor to help you, let me know and I

can

> > > > suggest my team of neurosurgeons that I see in Phoenix AZ.  I was messed

up

> > > > by a local surgeon in Kansas City, MO and had to be fixed.  No one in NY

or

> > > > Chicago would take my case due to the difficulty.  This world renowned

team

> > > > in AZ gladly accepted me and corrected the botched surgery in a 2-day

> > > > surgery.  I still have ongoing problems as I have DDD and cervical

> > > > Myelopathy but the surgery made me 95% for several years.

> > > >

> > > >

> > > >

> > > > Good luck & God Bless you,

> > > >

> > > > Greg

> > > >

> > > >   _____

> > > >

> > > > From: Cervical_Spondylosis@yahoogroups.com

> > > > [mailto:Cervical_Spondylosis@yahoogroups.com] On Behalf Of Anna

> > > > Schverzhjedzova

> > > > Sent: Wednesday, August 05, 2009 1:30 PM

> > > > To: Cervical_Spondylosis@yahoogroups.com

> > > > Subject: [Cervical_Spondylosis] Re: New Here

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > The neurosurgeon said I was not a good candidate for surgery.

> > > > He said it looked like the upper cervical vertebrae were twisted out of

> > > > place, and there was DDD and arthritis, and ordered a special neck brace

and

> > > > upper cervical CT to look more closely at it. Also, my PCP prescribed a

> > > > powerful muscle relaxant (soma) for the problem. And I see the pain

> > > > specialist tomorrow. And the neurosurgeon said he saw something on the

> > > > cervical X-rays that prompted him to request chest ways, because

something

> > > > may be wrong with my lungs.

> > > > when the PCP doc touched my neck in his office, i fell on the floor

crying

> > > > in serious serious pain. Every day i spend 4-6 hours crying in pain,

> > > > wondering if i should call for an ambulance, but knowing that they will

> > > > probably only abuse me in the emergency room. very tough situation.

> > > > thanks for listening.

> > > >

> > >

> >

>