Cervical_Spondylosis : Messages : 1-30 of 261

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#30 From: john curtis <johncurtis04@...>
Date: Tue May 2, 2006 9:04 am
Subject: Re: cervical spinal stenosis johncurtis04
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hi gwynne thank you for emailing me. sorry it has taken me so long to respond. i dont have the motovation for doing alot these days. i used to get on the net every chance i could .but due to the pain it is hard to somedays.please forgive me i never have been all that great with typing and spelling words correctly. well enough about that i would like to here about the injury that you have. maybe i can help you out with thing's that have helped me through the years. again thank's for sending the email i look forward to hearing from you i wish you the best and hope your days are greatthank's john.

ERVettek2000@... wrote:

Hi,

I also noticed the lack of activity, glad it wasn't just me. I was just recently diagnosed after a minor injury turned into a big deal. I'd love to chat, there seem to be very few of us out here.

-Gwynne

Yahoo! Mail goes everywhere you do. Get it on your phone.

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#29 From: "Naomi Red" <seeing_eye@...>
Date: Sat Apr 29, 2006 8:31 pm
Subject: RE: cervical spinal stenosis seeing_eye00
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Hi Gwynne, I was diagnosed last year with cervical stenosis. I'm also hypothyroid, have GERD, COPD, and severe sleep apnea. That's all I can remember right now. Do you have any symptoms?

Christine

-----Original Message-----
From: Cervical_Spondylosis@yahoogroups.com [mailto:Cervical_Spondylosis@yahoogroups.com]On Behalf Of ERVettek2000@...
Sent: Friday, April 28, 2006 4:04 PM
To: Cervical_Spondylosis@yahoogroups.com
Subject: Re: [Cervical_Spondylosis] cervical spinal stenosis

Hi,

I also noticed the lack of activity, glad it wasn't just me. I was just recently diagnosed after a minor injury turned into a big deal. I'd love to chat, there seem to be very few of us out here.

-Gwynne

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#28 From: "john curtis" <johncurtis04@...>
Date: Mon May 1, 2006 12:36 pm
Subject: cervical spinal stenosis johncurtis04
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hi everyone. glad to here from every one thank's. sorry i haven't been
on the net for a couple of days. i just dont have the motivation these
days for doing things. i dont mean to bore you all with my pain issues
but it has alot to do with my motivation. i am sorry to here that you
all have the same thing that i have i know just what you all are going
through. i just hope you all have someone that understands and loves
you all a great deal. thank you all and hope to hear from you all
again

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#27 From: ERVettek2000@...
Date: Fri Apr 28, 2006 5:04 pm
Subject: Re: cervical spinal stenosis geelayne
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Hi,

I also noticed the lack of activity, glad it wasn't just me. I was just recently diagnosed after a minor injury turned into a big deal. I'd love to chat, there seem to be very few of us out here.

-Gwynne

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#26 From: "Thomas Houvenagle" <houvenaglecbiowa@...>
Date: Fri Apr 28, 2006 9:41 pm
Subject: Re: cervical spinal stenosis poohbearia
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Hi John,

I was diagnosed this past winter with cervical spondoyosis....some stenosis going on but nothing that requires surgery now....spinal cord is safe for the moment...

Sincerely a child of the King,
Paula

For God so loved the world that he gave his one and only son, that who so ever believes in Him should not perish but have everlasting life.
John 3:16

join me on my weight loss journey at
www.healthsteward.com/Forum/viewtopic.php?t=326

----- Original Message -----

From: john curtis

To: Cervical_Spondylosis@yahoogroups.com

Sent: Thursday, April 27, 2006 11:31 AM

Subject: [Cervical_Spondylosis] cervical spinal stenosis

hello my name is john. iv'e been watching the post here for a couple
of weeks now and there doesent seem to be much activity. just looking
to maybe talk to who shares the same problem i have. maybe i will not
go nuts. i have been diaginosed with this about three years ago. so if
your looking to talk as well please post back. thank's.

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#25 From: "john curtis" <johncurtis04@...>
Date: Thu Apr 27, 2006 4:31 pm
Subject: cervical spinal stenosis johncurtis04
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hello my name is john. iv'e been watching the post here for a couple
of weeks now and there doesent seem to be much activity. just looking
to maybe talk to who shares the same problem i have. maybe i will not
go nuts. i have been diaginosed with this about three years ago. so if
your looking to talk as well please post back. thank's.

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#24 From: GLORIA TELLIER <g.tellier@...>
Date: Thu Mar 23, 2006 12:40 pm
Subject: Re: need info tellier54
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Hi,

I'm going through a similar problem. My right ankle is is just about gone. My doctor wants me just to use a cane and take more pain meds. Between the pain in my neck arms and back, having pain traveling in a new place is just too much. I am diabetic and I am suppose to get exercise every day. Well now it kills to walk, and trying to walk with all the pain meds I get lightheaded that doesn't help with the fact my gates aren't good to start with. I can just picture just falling where no one hears me and there I am stuck sitting there in pain for God knows how long with a broken bone. Then just yesterday I heard from a friend that she got the news yesterday, that she in with us. She is having severe neck pain. and she did not get much from her doctor either. I am almost afraid to tell her just what is going to be happening to her. Well, I have to go but my prayers goes out for everyone in the group.

Gloria

ERVettek2000@... wrote:

I had a bone scan done yesterday that was obviously abnormal. Enough so that the tech who did the scan told me I have at the very least osteopenia in my spine. I've been off the stuff nearly a whole year and been on calcium and multi vitamins and my bone density of still too low. I shutter to think about what it was while I was on the stuff. I can tell you from experience and from being married to an attorney, never underestimate the power of a good freak out<g>. I started getting somewhere with this when I walked into an ER literally crying-and I have a very high pain threshold-and told the doctor very bluntly they were going to do something or I wasn't leaving and would be phoning my attorney unless someone started trying to figure out what was wrong with me. At that point I couldn't move my head at all and had not felt my left hand in weeks. Because I am not the typical age of someone with these problems, no one bothered to look for them. They actually had me in physical therapy for Thoracic Outlet Syndrome-very much not what I have and the treatments for it are all contraindicated with c-spine disk disease, seeing a chiropractor- again a big fat no with disk disease, I even started doing more yoga than usual that just hurt me more. We went through drug after drug and no one could figure out why I kept getting worse for 8 long miserable weeks. After that last ER trip I was sent on an emergency appointment to an orthopedic surgeon who had an emergency MRI done that night and put me on steroids and different drugs. Five herniated/bulging disks and spondylosis was not what any of us expected. I'll send you some info and links having to do with your situation. I've been able to find a lot of information, just not so much with people our age. I do know there is a link between your 2 conditions, I used to work with a vet who had them both. But for details I'd have to do some looking. http://www.monheit.com/depo-provera/studies.asp This is the law firm that's starting the first rounds of lawsuits, has some decent info attached to his site. Other good sites are www.Back.com www.Spine-inc.com www.spineuniverse.com I also have access to stuff through my insurance company that I can get to online that I'll check for you. Good luck.

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#23 From: ERVettek2000@...
Date: Tue Mar 21, 2006 3:08 pm
Subject: Re: need info geelayne
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I had a bone scan done yesterday that was obviously abnormal. Enough so that the tech who did the scan told me I have at the very least osteopenia in my spine. I've been off the stuff nearly a whole year and been on calcium and multi vitamins and my bone density of still too low. I shutter to think about what it was while I was on the stuff.

I can tell you from experience and from being married to an attorney, never underestimate the power of a good freak out<g>. I started getting somewhere with this when I walked into an ER literally crying-and I have a very high pain threshold-and told the doctor very bluntly they were going to do something or I wasn't leaving and would be phoning my attorney unless someone started trying to figure out what was wrong with me. At that point I couldn't move my head at all and had not felt my left hand in weeks. Because I am not the typical age of someone with these problems, no one bothered to look for them. They actually had me in physical therapy for Thoracic Outlet Syndrome-very much not what I have and the treatments for it are all contraindicated with c-spine disk disease, seeing a chiropractor- again a big fat no with disk disease, I even started doing more yoga than usual that just hurt me more. We went through drug after drug and no one could figure out why I kept getting worse for 8 long miserable weeks. After that last ER trip I was sent on an emergency appointment to an orthopedic surgeon who had an emergency MRI done that night and put me on steroids and different drugs. Five herniated/bulging disks and spondylosis was not what any of us expected.

I'll send you some info and links having to do with your situation. I've been able to find a lot of information, just not so much with people our age. I do know there is a link between your 2 conditions, I used to work with a vet who had them both. But for details I'd have to do some looking.

http://www.monheit.com/depo-provera/studies.asp

This is the law firm that's starting the first rounds of lawsuits, has some decent info attached to his site.

Other good sites are

www.Back.com

www.Spine-inc.com

www.spineuniverse.com

I also have access to stuff through my insurance company that I can get to online that I'll check for you.

Good luck.

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#22 From: GLORIA TELLIER <g.tellier@...>
Date: Tue Mar 21, 2006 3:33 pm
Subject: Re: need info tellier54
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Hi Elizabeth,

I have been struggling with this for over ten years. I have found there is not much written about. All I have come up with is that it is incurable, Some are in pain 24/7, and the amount of the pain is usually different from person to person. I have constant pain in my neck, but I have learned to deal with it. I know my boundaries to keep it from going so much pain that I can't move. I have to type while watching where I type because the nerve damage is so bad in my arms hands and fingers that I don't know what key I am at except by looking. I also can't tell you how many time I have burnt myself cooking. I just don't feel the heat of the pan until I see my fingers with blisters. Walking is no fun either. I live in senior housing and when I walk down the halls I usually bounce from one wall to the other. I know my cane would help, but I hate using it.I wish there were a place for us like the heart association,or the lung association for people for our disease. Maybe that would give us answers. Although I was told from the beginning that things would only get worst with time or stay the same. With me as each year passes everything gets worst. I went to the doctor this morning, and he would like me to use a walker. As far as I am concerned.Using a cane leads to a walker. A walker leads to a wheel chair. I plan on fighting this awful thing as long as I possibly can. I'm sorry I don't have encouraging words for you. At least we all have each other where we all too well understand how hard this is. Prayer is good too. Gloria

Elizabeth Long <superelizzzabeth@...> wrote:

Hi Gwynne,

I am also new to this condition, I was diagnosed with MS on October 31, 2005, and then with Cevical Spondylosis Myelopathy on February 27th, 2006. My neurologist didn't go over any of the facts with me. I'm very lost. I do know that no one in my family ever had it and, I never had any trauma to my back that would've caused it, and there doesn't have to be trauma for it to start. I've been trying to do research on it but am coming up dry everytime. No one seems to be very helpful.

I'm only 21 years old, I've had the symptoms for several years. I'm getting to the point where I'm going to start demanding answers tests and whatever it takes to figure things out, I suggest you do the same, because after all we are the doctor's customers, and they are supposed to give us what we pay for ... help.

I was actually on Depro-Provera for a couple of years in my teens, let me know if you find anything out involving that.
Hopefully you can get some answers from some of the people in the group. I just joined so I haven't started asking questions yet.

Good Luck,

-e

geelayne <ERVettek2000@...> wrote:

I am new to this condition and don't really know what to make of all of this yet. I am only 29 and they tell me I have spondylosis and cerical DJD with oseophyte complex from C4-C7 already. I've been in around the clock pain since Feb. when a minor injury turned into a bigger one and then this was diagnosed last week. What I'm wondering is at what point does the "acute" pain stop? No amount of PT, massage, yoga, chiropractic adjustments seems to help this. I'm just on constant pain meds, Ansaid, and muscle relaxers. I have been an ER/Critical care Veterinary Nurse for the last 10 years, my job and CPR on a large dog is actually what started all this nonsense,I'm also wondering if I should start accepting that I may never be allowed to do that kind of work again? No one is even telling me when I can expect the pain to calm down. Should I go for a surgical consult about this now (haven't felt three of my fingers in 8 weeks!) It's so hard to find other people with this condition, much less those near my age, that I'd just like to get an idea of what I can expect with this. Also, by the way, no member of my family has or has ever had spondylosis of any kind. There is a very high suspicion that I have it because of 7 years on Depo-Provera injections that I was told were safe. I'm seeing my MD to request a bone density scan tomorrow and already have already consulted an attorney about this being related to the drug. Any info you guys can give me will be a great help. Thanks to all -Gwynne

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#21 From: Elizabeth Long <superelizzzabeth@...>
Date: Fri Mar 17, 2006 8:33 pm
Subject: Re: need info superelizzza...
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Hi Gwynne,

I am also new to this condition, I was diagnosed with MS on October 31, 2005, and then with Cevical Spondylosis Myelopathy on February 27th, 2006. My neurologist didn't go over any of the facts with me. I'm very lost. I do know that no one in my family ever had it and, I never had any trauma to my back that would've caused it, and there doesn't have to be trauma for it to start. I've been trying to do research on it but am coming up dry everytime. No one seems to be very helpful.

I'm only 21 years old, I've had the symptoms for several years. I'm getting to the point where I'm going to start demanding answers tests and whatever it takes to figure things out, I suggest you do the same, because after all we are the doctor's customers, and they are supposed to give us what we pay for ... help.

I was actually on Depro-Provera for a couple of years in my teens, let me know if you find anything out involving that.
Hopefully you can get some answers from some of the people in the group. I just joined so I haven't started asking questions yet.

Good Luck,

-e

geelayne <ERVettek2000@...> wrote:

I am new to this condition and don't really know what to make of all of this yet. I am only 29 and they tell me I have spondylosis and cerical DJD with oseophyte complex from C4-C7 already. I've been in around the clock pain since Feb. when a minor injury turned into a bigger one and then this was diagnosed last week. What I'm wondering is at what point does the "acute" pain stop? No amount of PT, massage, yoga, chiropractic adjustments seems to help this. I'm just on constant pain meds, Ansaid, and muscle relaxers. I have been an ER/Critical care Veterinary Nurse for the last 10 years, my job and CPR on a large dog is actually what started all this nonsense,I'm also wondering if I should start accepting that I may never be allowed to do that kind of work again? No one is even telling me when I can expect the pain to calm down. Should I go for a surgical consult about this now (haven't felt three of my fingers in 8 weeks!) It's so hard to find other people with this condition, much less those near my age, that I'd just like to get an idea of what I can expect with this. Also, by the way, no member of my family has or has ever had spondylosis of any kind. There is a very high suspicion that I have it because of 7 years on Depo-Provera injections that I was told were safe. I'm seeing my MD to request a bone density scan tomorrow and already have already consulted an attorney about this being related to the drug. Any info you guys can give me will be a great help. Thanks to all -Gwynne

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#20 From: "geelayne" <ERVettek2000@...>
Date: Mon Mar 13, 2006 10:53 pm
Subject: need info geelayne
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I am new to this condition and don't really know what to make of all of
this yet. I am only 29 and they tell me I have spondylosis and cerical
DJD with oseophyte complex from C4-C7 already. I've been in around the
clock pain since Feb. when a minor injury turned into a bigger one and
then this was diagnosed last week. What I'm wondering is at what point
does the "acute" pain stop? No amount of PT, massage, yoga,
chiropractic adjustments seems to help this. I'm just on constant pain
meds, Ansaid, and muscle relaxers.
I have been an ER/Critical care Veterinary Nurse for the last 10 years,
my job and CPR on a large dog is actually what started all this
nonsense,I'm also wondering if I should start accepting that I may
never be allowed to do that kind of work again? No one is even telling
me when I can expect the pain to calm down. Should I go for a surgical
consult about this now (haven't felt three of my fingers in 8 weeks!)
It's so hard to find other people with this condition, much less those
near my age, that I'd just like to get an idea of what I can expect
with this.
Also, by the way, no member of my family has or has ever had
spondylosis of any kind. There is a very high suspicion that I have it
because of 7 years on Depo-Provera injections that I was told were
safe. I'm seeing my MD to request a bone density scan tomorrow and
already have already consulted an attorney about this being related to
the drug. Any info you guys can give me will be a great help.
Thanks to all
-Gwynne

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#19 From: GLORIA TELLIER <g.tellier@...>
Date: Thu Mar 2, 2006 11:33 pm
Subject: Re: New to Group... Hello tellier54
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Hi Roberta,

My name is Gloria and I have a Cervical Spondylotic Myelopathy which I believe is the same thing. I have been from one neurosurgeon to another, and has come to the realization that there is no cure for it either. It seems to run in my family. My mom had it and one of my sisters just got diagnosed a few month ago and is really having a hard time dealing with it. As for me I am on year 12, so now at this point it is part of my every day life. I have been blessed with many people who no longer bat an eyelash when I start loosing my balance or cannot pick up something as simple as a penny. I even work part time as a church secretary, and teach Sunday school. I have plenty of teachers helpers to do the psychical things for me when I can't, and between that and the fact I am a commissioner on the board for the housing authority, I think I do very well. Don't let the diagnoses get you down. Remember you are not alone; God is going through this with you. You can email me anytime. Also if you haven't been at this site yet familydoctor.org there is a really good explanation on CSM. I really gives all the facts. At least at the end of most days I can thank God for the day, and know I am not getting any worst. Well, welcome to the group, and God Bless

robertaleej <robertaleej@...> wrote:

Hi Group, I am brand new to the group and hope I can learn more about Spondylosis. I have learned that taking MSM is very helpful in reducing the amount of pain meds I must take. I was also referred to Ayurvedic medicine as being a means to actually cure this disorder. If any of you have had experience with either of these, please share your info. Your feedback and information about any experiences, successful or otherwise, would be greatly appreciated. thank you! Roberta

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#18 From: "Thomas Houvenagle" <houvenaglecbiowa@...>
Date: Thu Mar 2, 2006 5:51 pm
Subject: Re: New to Group... Hello poohbearia
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Hey Roberta,

I don't use much pain meds for mine. I use a machine called an inaferential unit. It is a small electronic devise from a company called Rehablicare. It is fairly new and sort of like a tens unit. I obtained it with the help of my physical therapist. Any way it has four electrodes I place at the back of my neck and it electronically stimulates to help the body with its own pain management.

Sincerely a child of the King,
Paula

For God so loved the world that he gave his one and only son, that who so ever believes in Him should not perish but have everlasting life.
John 3:16

----- Original Message -----

From: robertaleej

To: Cervical_Spondylosis@yahoogroups.com

Sent: Tuesday, February 28, 2006 7:41 AM

Subject: [Cervical_Spondylosis] New to Group... Hello

Hi Group, I am brand new to the group and hope I can learn more about Spondylosis. I have learned that taking MSM is very helpful in reducing the amount of pain meds I must take. I was also referred to Ayurvedic medicine as being a means to actually cure this disorder. If any of you have had experience with either of these, please share your info. Your feedback and information about any experiences, successful or otherwise, would be greatly appreciated. thank you! Roberta

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#17 From: "robertaleej" <robertaleej@...>
Date: Tue Feb 28, 2006 1:41 pm
Subject: New to Group... Hello robertaleej
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Hi Group,

I am brand new to the group and hope I can learn more about Spondylosis.

I have learned that taking MSM is very helpful in reducing the amount of pain
meds I must
take.  I was also referred to Ayurvedic medicine as being a means to actually
cure this
disorder. If any of you have had experience with either of these, please share
your info.

Your feedback and information about any experiences, successful or otherwise,
would be
greatly appreciated.

thank you!

Roberta

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#16 From: GLORIA TELLIER <g.tellier@...>
Date: Sun Oct 23, 2005 5:28 pm
Subject: Re: it is me tellier54
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Hi Paula,

That is great news. I pray things will continue to go well for you. There is not much happining at my end. Just that the asthma is acting up a little, but so far I am able to keep it under control. For everything else, it is just the same old thing.

God's blessings on all,

Gloria

Thomas Houvenagle <houvenaglecbiowa@...> wrote:

hi all,

Well I had a second cervical epidural. Oh the relief...immediate relielf. However that night due to some extreme chest pain I was admitted to the hospital. I had been having them for almost two weeks since they started traction on me. I no longer have that done. Anyway it was concluded it was all musculer/skeleter pain. I only had to stay for a day.

I don't know if I mentioned but the neuro surgeon did not feel the need for surgery. My spine is fine and the alignment as well.

Thanks for the prayers.

Sincerely a child of the King,
Paula

For God so loved the world that he gave his one and only son, that who so ever believes in Him should not perish but have everlasting life.
John 3:16

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#15 From: "Thomas Houvenagle" <houvenaglecbiowa@...>
Date: Sun Oct 23, 2005 12:20 pm
Subject: it is me poohbearia
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hi all,

Well I had a second cervical epidural. Oh the relief...immediate relielf. However that night due to some extreme chest pain I was admitted to the hospital. I had been having them for almost two weeks since they started traction on me. I no longer have that done. Anyway it was concluded it was all musculer/skeleter pain. I only had to stay for a day.

I don't know if I mentioned but the neuro surgeon did not feel the need for surgery. My spine is fine and the alignment as well.

Thanks for the prayers.

Sincerely a child of the King,
Paula

For God so loved the world that he gave his one and only son, that who so ever believes in Him should not perish but have everlasting life.
John 3:16

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#14 From: GLORIA TELLIER <g.tellier@...>
Date: Tue Oct 18, 2005 1:15 pm
Subject: Re: hello again tellier54
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Hi Paula,

I am glad things are going better for you. I tried a tens unit once, but it made my neck go into spasms even at the lowest setting.I have thought of trying acupuncture, but my insurance won't pay for it and I can't afford it myself. I already had the surgery. It did help some.Keep letting us know how things are going for you. You are always in my prayers.

Your sister in Christ,

Gloria

Thomas Houvenagle <houvenaglecbiowa@...> wrote:

Hi all,

thanks for the welcome. Well I met with a neuro surgeon yesterday and he said that surgery isn't required at this time.....just keep on with the physical therapy and get that epidural...he also said something about getting a trigger point injection...and to stop doing traction....that seemed to be making it worse....so yesterday at pt they put an electrical unit on me that was something like a tens unit but better .......little electric pulses went into my neck.......felt good.....after it was numb.....felt better.....I slept better than I had for a long time....this morning I am a little sore to the touch at the base of the cervical area of the neck and feel like I have a knot in my shoulders.....but better.....tomorrow I will be in la la land....cervical epidural time......

Sincerely a child of the King,
Paula

For God so loved the world that he gave his one and only son, that who so ever believes in Him should not perish but have everlasting life.
John 3:16

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#13 From: "Thomas Houvenagle" <houvenaglecbiowa@...>
Date: Tue Oct 18, 2005 10:28 am
Subject: hello again poohbearia
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Hi all,

thanks for the welcome. Well I met with a neuro surgeon yesterday and he said that surgery isn't required at this time.....just keep on with the physical therapy and get that epidural...he also said something about getting a trigger point injection...and to stop doing traction....that seemed to be making it worse....so yesterday at pt they put an electrical unit on me that was something like a tens unit but better .......little electric pulses went into my neck.......felt good.....after it was numb.....felt better.....I slept better than I had for a long time....this morning I am a little sore to the touch at the base of the cervical area of the neck and feel like I have a knot in my shoulders.....but better.....tomorrow I will be in la la land....cervical epidural time......

Sincerely a child of the King,
Paula

For God so loved the world that he gave his one and only son, that who so ever believes in Him should not perish but have everlasting life.
John 3:16

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#12 From: GLORIA TELLIER <g.tellier@...>
Date: Tue Oct 18, 2005 5:25 am
Subject: Re: Recently diagnosed tellier54
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Hi Paula,

I haven't tried an epidural. I did get a nerve block a couple times, but it didn't help. This may sound strange, but for me there is this guy in church, his name is Al, and every Sunday he massages my neck and between my shoulder blades, and for a while the pain will go away. He does it for a couple of people every Sunday. I also take a muscle relaxer at night that will help me sleep a little. I have also found that I have needed to slow down, and that there were triggers for me that I would find that I did that caused a pain flair up. If I stop and rest for about an hour or so when I start filling tightness in my neck I would not get to being in that extreme pain. If I don't stop I found I can be laid up for up to three or four days. This has been the hardest thing I have ever had to learn to live with. But sound off every so often. This site is a good place to do it, because we really know what you are going through. You have understanding friends here. Thanks for writing back. I will keep in touch. May God bless you.

Gloria

Thomas Houvenagle <houvenaglecbiowa@...> wrote:

Thanks Gloria,

I appreciate your offer of prayer. Right now I need patience in waiting for pain relief. I haven't had a really good day for awhile. Pain meds make me really groggy. I get a cervical epidural on Wednesday and that has helped alot a few weeks ago...I just hope it lasts longer this time.

Sincerely a child of the King,
Paula

For God so loved the world that he gave his one and only son, that who so ever believes in Him should not perish but have everlasting life.
John 3:16

----- Original Message -----

From: GLORIA TELLIER

To: Cervical_Spondylosis@yahoogroups.com

Sent: Saturday, October 15, 2005 7:04 PM

Subject: Re: [Cervical_Spondylosis] Recently diagnosed

Welcome Paula.

I am an old hand at this going on 11 years now. I had a lamonectomy, and fusion already, and not to be discouraging , but for me not much has helped, I have learned to live with it though. Some days are bad, some are good. I'm still walking most all the time without assistance. I just need to be careful on stairs, and uneven surfaces. My left side is really off, but praise God! I could be in worst shape. I manage a very small part time job, and I am very active in other ways. Your life becomes different, but life is what you make it. At least people who suffer like we do can actually say that we are beginning to understand what Job went through, and by learning from him we can give all praise and thanks to God, because He knows what he is doing. So keep us all informed, and let us know what you would like us to pray for in your behalf. God bless, Gloria

Thomas Houvenagle <houvenaglecbiowa@...> wrote:

Hi everyone,

I am new here and was just diagnosed with cervical spondylosis yesterday. I am 47 with mild cervical spondylosis. I have multiple levels of degeneration going on as well as some stenosis. The week of Sept. 21 I was hospitalized with extreme pain and stroke symptoms. No new stroke and an MRI of the head showed nothing new had occured. They did a cervical epidural and it worked for about a week and a half. My pt guy said that since the epidural worked I probably have some degeneration going on in my neck. So I began to search the internet. I ran across stuff on this condition and showed it to my husband, pt guy and doctor. sounded to them this might be what is going on. So the doc ordered the x-rays for two days ago and ta-dah ....I was right.

I am getting another injection on Wed and see a neuro surgeon on Monday.

Hoping to learn some things here.

Sincerely a child of the King,
Paula

For God so loved the world that he gave his one and only son, that who so ever believes in Him should not perish but have everlasting life.
John 3:16

Reply | Forward | Messages in this Topic (5)

#11 From: GLORIA TELLIER <g.tellier@...>
Date: Sun Oct 16, 2005 6:56 pm
Subject: Re: Re: Cervical Myelopathy tellier54
Offline
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Hi Sally, Last October I purchased a Sterns & Forster mattress It doesn't seem to make a bit of difference. I have never tried a Tempura Foam mattress, so your guess is as good as mine. If you do try it, make sure you save your old one just in case it doesn't work for you. The mattress and box spring I got cost me $800. A friend recommended to me one of those beds with the numbers that you can change for how firm you want it. It can come with massage and heat. My friend just has a bad back, and she swearers by it, but it is over $1000for the bed. Then I spent almost a thousand on a recliner that has massage and heat. Completely useless unless you are having pain in your lower back and butt. I did find that finding the right number and size of pillows does give some relief. I use a double stuffed pillow on the bottom and a standard one on top. You may consider that also, and it is much cheaper. So let me know what you choose and how it works for you. I will keep you in my prayers. Gloria

SALLY HARRINGTON <sallyjaneh@...> wrote:

Hi Gloria - I could have written everything you said below!! I have given up complaining about this to the few people I had for the reasons you mentioned. It is a relief to be able to talk about it here knowing that someone else knows exactly what you are going through and it's not all in our minds!

Nobody has offered me a long term prognosis - those that actually recognise it as a problem that is. I went to see my GP again on Fri and he was far more sympathetic this time. His view was that the neurologists look for the major diseases like MS and Motor Neurone (bad spelling) and once they have thankfully established you don't have that, that's where their interest in you stops. Yes ok, completely and utterly thank goodness we don't have either of those, but we're still suffering very much with what we do have aren't we. My doc has now suggested seeing a chiropractic funded by a 'trust fund' left to the surgery. I'm not sure whether this is the right or wrong thing to do, but I'm sure the chiropractic wouldn't touch me if he felt it was going to do more harm than good - hope so anyway!!! I'll let you know how I get on and if it helps.

On a last note, I've been tempted to try one of those Tempur foam mattresses on their 60 day free trial basis. Have you any thoughts on these? Trouble is, if it helps at all, you'd need a second mortgage to pay for one!! Wondering if it may help the symptoms as am sure how and what you sleep on hampers this as well.

Bye for now and take care.

Sally

GLORIA TELLIER <g.tellier@...> wrote:

Hi Sally, I know all too well what you mean. I've never been so sick of something in my life. The doctors don't see to understand, and people in general don't understand. People look at me as if I am just making things up. I may look fine outwardly, but what good would it do to show what pain you are really in all the time. No one would come near you. For instance I have a lot of trouble turning my head, and I can't look up at all. When I try I end up in such pain that my shoulders just raise up on their own, and then the pain will rush up my head and down my arms, and then I am told just put some heat on it and take some aspirin and it will magically disappear. It has never worked for me. I get laid out sometimes for up to three days. I honestly don't think anyone is doing studies on this, because like you all of the doctors are more interested in fixing a hang nail rather that identify will a spinal cord disease. They keep saying the is no cure, but where are they to help you live with it. I really wish all these so called specialists could live the way we do until they found something to do for it, and then see how fast there would be progress in doing something about our symptoms. Anyway, I don't get the blotches on my arms, but I do in my legs and ankles. On my left hand, the little, ring, and middle fingers are always numb. On my forefinger, and thumb they are only numb on the tip. It can get interesting when I sow. I have been known top sow my finger to the material from time to time. I know there has to be more people than you and I the suffer with this. Have you ever been told what will eventually happen to us as time goes by? I have never been able to get a straights answer on that from any doctor. If you have the info on this would you let me know? Well, it is good to hear from you. I keep you in my prayers. I know what you are going through. And that you for letting me sound off on the way I feel. Anytime you feel you need to vent, just drop me a ling. I understand.

Gloria

sallyjanexx <sallyjaneh@...> wrote:

Hi Gloria - thank you for your reply and sorry it's taken me so long to post again. I hope you understand what I mean when I say it was a relief to read you have the same symptoms - not that I would wish this on anyone! I am sorry that all your treatment didn't work. I can't imagine going through that for it to make no difference! My neurologist said they wouldn't even try unless it was affecting my arm so badly, I could hardly use it. Had my 2nd appt with her last week and to say it was a waste of time is an understatement. From my scans, they couldn't see too much wrong and the word 'pshycosamtic' (bad spelling) was mentioned a few times!! She told me she would prescribe some medication to my GP and that I should make an appt for them 'if' I felt I needed them - I was astounded and wondered why she thought I was sitting there in front of her - certainly not for the love of hospitals (laughing). Her parting words were that this was not a life-long ailment. In time (over the next 12-18 months), my 'problem' would repair itself!! Now why is it that I don't believe that ..? I was speechless at her prognosis. Oh well, enough harping on about that appt as it changes nothing does it. You mentioned we share the same symptoms, but I just wanted to ask again if you suffer from 'blotchiness' on your arms/legs? I mentioned before, this happens to me (pretty much most of the time now) when my neck is paining or uncomfortable - it's almost like a nerve being pinched just below back of neck which then leads to pins and needles and then the 'blotchiness'. Similarly, if I put my head backwards for any reason, I get a shooting pain in the middle of my chest (so no plane spotting for me then lol). Also noticed 'crunching' just off centre in same area of back/neck when I walk. And finally ... (honestly!), I had a Bell's Palsy (right side) 3 yrs ago which unfortunately has never gone completely. The neurologist was more interested in this than the spinal problem, and I wonder if there is a general weakness that could tie these in together - does anyone know? Does anyone else want to join us here - would love to hear from you. Bye for now and take care all. Sally --- In Cervical_Spondylosis@yahoogroups.com, "Gloria" <g.tellier@s...> wrote: > > Hi Sally, > Thank you for being the first to get messages started. I have been > told I have a cervical myelopathy some 10 years ago. It is funny > because we have the same symptoms and there really not much that can > be done to help. I have had fusion done to c6 and c7, which helped > some for a little while, I did the big time pain killers for about a > year. It didn't help, but I didn't care either. I also had two nerve > blocks. The first one worked about a couple of weeks and the other > worked for a day. My sister was just told she has the same thing and > she is in pain managment, and so they are trying an epadural. So far > she is still having trouble. So where do we go from here? We are all > in the same boat, and we have heard it all. I have found that the only > thing that eases the pain for a while is moist hot packs, muscel > relaxers, and a lot of prayer. God help us!!! Anyway, thanks Sally for > being willing to share what is happening to you. At least it is good > to know that others suffer along with you. Have you been able to work? > I am on disability, and can only handle about 8 hours a week as a > church secretary.I guess it is better than nothing. I am very glad to > meet you. Please keep in touch. Gloria >

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#10 From: "Thomas Houvenagle" <houvenaglecbiowa@...>
Date: Sun Oct 16, 2005 12:02 pm
Subject: Re: Recently diagnosed poohbearia
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Thanks Gloria,

I appreciate your offer of prayer. Right now I need patience in waiting for pain relief. I haven't had a really good day for awhile. Pain meds make me really groggy. I get a cervical epidural on Wednesday and that has helped alot a few weeks ago...I just hope it lasts longer this time.

Sincerely a child of the King,
Paula

For God so loved the world that he gave his one and only son, that who so ever believes in Him should not perish but have everlasting life.
John 3:16

----- Original Message -----

From: GLORIA TELLIER

To: Cervical_Spondylosis@yahoogroups.com

Sent: Saturday, October 15, 2005 7:04 PM

Subject: Re: [Cervical_Spondylosis] Recently diagnosed

Welcome Paula.

I am an old hand at this going on 11 years now. I had a lamonectomy, and fusion already, and not to be discouraging , but for me not much has helped, I have learned to live with it though. Some days are bad, some are good. I'm still walking most all the time without assistance. I just need to be careful on stairs, and uneven surfaces. My left side is really off, but praise God! I could be in worst shape. I manage a very small part time job, and I am very active in other ways. Your life becomes different, but life is what you make it. At least people who suffer like we do can actually say that we are beginning to understand what Job went through, and by learning from him we can give all praise and thanks to God, because He knows what he is doing. So keep us all informed, and let us know what you would like us to pray for in your behalf. God bless, Gloria

Thomas Houvenagle <houvenaglecbiowa@...> wrote:

Hi everyone,

I am new here and was just diagnosed with cervical spondylosis yesterday. I am 47 with mild cervical spondylosis. I have multiple levels of degeneration going on as well as some stenosis. The week of Sept. 21 I was hospitalized with extreme pain and stroke symptoms. No new stroke and an MRI of the head showed nothing new had occured. They did a cervical epidural and it worked for about a week and a half. My pt guy said that since the epidural worked I probably have some degeneration going on in my neck. So I began to search the internet. I ran across stuff on this condition and showed it to my husband, pt guy and doctor. sounded to them this might be what is going on. So the doc ordered the x-rays for two days ago and ta-dah ....I was right.

I am getting another injection on Wed and see a neuro surgeon on Monday.

Hoping to learn some things here.

Sincerely a child of the King,
Paula

For God so loved the world that he gave his one and only son, that who so ever believes in Him should not perish but have everlasting life.
John 3:16

Reply | Forward | Messages in this Topic (5)

#9 From: "sallyjanexx" <sallyjaneh@...>
Date: Sun Oct 16, 2005 6:02 am
Subject: Re: Recently diagnosed sallyjanexx
Offline
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Hi Paula - welcome from me too.  I've been suffering with this for a
few years, but only fairly recently diagnosed.  I feel this will be
an excellent place to exchange views, information and as Gloria says,
just to vent - especially when we feel we are getting nowhere.  Keep
in touch and let us know how you are getting on with the treatment.

Take care.

Sally.

p.s.  Karin - it would be great to hear from you here....

-- In Cervical_Spondylosis@yahoogroups.com, GLORIA TELLIER
<g.tellier@s...> wrote:
>
> Welcome Paula.
> I am an old hand at this going on 11 years now. I had a
lamonectomy, and fusion already, and not to be discouraging , but for
me not much has helped, I have learned to live with it though. Some
days are bad, some are good. I'm still walking most all the time
without assistance. I just need to be careful on stairs, and uneven
surfaces. My left side is really off, but praise God! I could be in
worst shape. I manage a very small part time job, and I am very
active in other ways. Your life becomes different, but life is what
you make it. At least people who suffer like we do can actually say
that we are beginning to understand what Job went through, and by
learning from him we can give all praise and thanks to God, because
He knows what he is doing. So keep us all informed, and let us know
what you would like us to pray for in your behalf. God bless, Gloria
>
> Thomas Houvenagle <houvenaglecbiowa@w...> wrote:
> Hi everyone,
> I am new here and was just diagnosed with cervical spondylosis
yesterday. I am 47 with mild cervical spondylosis. I have multiple
levels of degeneration going on as well as some stenosis. The week of
Sept. 21 I was hospitalized with extreme pain and stroke symptoms. No
new stroke and an MRI of the head showed nothing new had occured.
They did a cervical epidural and it worked for about a week and a
half. My pt guy said that since the epidural worked I probably have
some degeneration going on in my neck. So I began to search the
internet. I ran across stuff on this condition and showed it to my
husband, pt guy and doctor. sounded to them this might be what is
going on. So the doc ordered the x-rays for two days ago and ta-
dah ....I was right.
> I am getting another injection on Wed and see a neuro surgeon on
Monday.
>  Hoping to learn some things here.
> Sincerely a child of the King,
> Paula
>
> For God so loved the world that he gave his one and only son, that
who so ever believes in Him should not perish but have everlasting
life.
> John 3:16
>
>
> ---------------------------------
> YAHOO! GROUPS LINKS
>
>
>     Visit your group "Cervical_Spondylosis" on the web.
>
>     To unsubscribe from this group, send an email to:
>  Cervical_Spondylosis-unsubscribe@yahoogroups.com
>
>     Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
> ---------------------------------
>

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#8 From: GLORIA TELLIER <g.tellier@...>
Date: Sun Oct 16, 2005 12:04 am
Subject: Re: Recently diagnosed tellier54
Offline
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Welcome Paula.

I am an old hand at this going on 11 years now. I had a lamonectomy, and fusion already, and not to be discouraging , but for me not much has helped, I have learned to live with it though. Some days are bad, some are good. I'm still walking most all the time without assistance. I just need to be careful on stairs, and uneven surfaces. My left side is really off, but praise God! I could be in worst shape. I manage a very small part time job, and I am very active in other ways. Your life becomes different, but life is what you make it. At least people who suffer like we do can actually say that we are beginning to understand what Job went through, and by learning from him we can give all praise and thanks to God, because He knows what he is doing. So keep us all informed, and let us know what you would like us to pray for in your behalf. God bless, Gloria

Thomas Houvenagle <houvenaglecbiowa@...> wrote:

Hi everyone,

I am new here and was just diagnosed with cervical spondylosis yesterday. I am 47 with mild cervical spondylosis. I have multiple levels of degeneration going on as well as some stenosis. The week of Sept. 21 I was hospitalized with extreme pain and stroke symptoms. No new stroke and an MRI of the head showed nothing new had occured. They did a cervical epidural and it worked for about a week and a half. My pt guy said that since the epidural worked I probably have some degeneration going on in my neck. So I began to search the internet. I ran across stuff on this condition and showed it to my husband, pt guy and doctor. sounded to them this might be what is going on. So the doc ordered the x-rays for two days ago and ta-dah ....I was right.

I am getting another injection on Wed and see a neuro surgeon on Monday.

Hoping to learn some things here.

Sincerely a child of the King,
Paula

For God so loved the world that he gave his one and only son, that who so ever believes in Him should not perish but have everlasting life.
John 3:16

Reply | Forward | Messages in this Topic (5)

#7 From: SALLY HARRINGTON <sallyjaneh@...>
Date: Sun Oct 16, 2005 5:45 am
Subject: Re: Re: Cervical Myelopathy sallyjanexx
Offline
Send Email

Hi Gloria - I could have written everything you said below!! I have given up complaining about this to the few people I had for the reasons you mentioned. It is a relief to be able to talk about it here knowing that someone else knows exactly what you are going through and it's not all in our minds!

Nobody has offered me a long term prognosis - those that actually recognise it as a problem that is. I went to see my GP again on Fri and he was far more sympathetic this time. His view was that the neurologists look for the major diseases like MS and Motor Neurone (bad spelling) and once they have thankfully established you don't have that, that's where their interest in you stops. Yes ok, completely and utterly thank goodness we don't have either of those, but we're still suffering very much with what we do have aren't we. My doc has now suggested seeing a chiropractic funded by a 'trust fund' left to the surgery. I'm not sure whether this is the right or wrong thing to do, but I'm sure the chiropractic wouldn't touch me if he felt it was going to do more harm than good - hope so anyway!!! I'll let you know how I get on and if it helps.

On a last note, I've been tempted to try one of those Tempur foam mattresses on their 60 day free trial basis. Have you any thoughts on these? Trouble is, if it helps at all, you'd need a second mortgage to pay for one!! Wondering if it may help the symptoms as am sure how and what you sleep on hampers this as well.

Bye for now and take care.

Sally

GLORIA TELLIER <g.tellier@...> wrote:

Hi Sally, I know all too well what you mean. I've never been so sick of something in my life. The doctors don't see to understand, and people in general don't understand. People look at me as if I am just making things up. I may look fine outwardly, but what good would it do to show what pain you are really in all the time. No one would come near you. For instance I have a lot of trouble turning my head, and I can't look up at all. When I try I end up in such pain that my shoulders just raise up on their own, and then the pain will rush up my head and down my arms, and then I am told just put some heat on it and take some aspirin and it will magically disappear. It has never worked for me. I get laid out sometimes for up to three days. I honestly don't think anyone is doing studies on this, because like you all of the doctors are more interested in fixing a hang nail rather that identify will a spinal cord disease. They keep saying the is no cure, but where are they to help you live with it. I really wish all these so called specialists could live the way we do until they found something to do for it, and then see how fast there would be progress in doing something about our symptoms. Anyway, I don't get the blotches on my arms, but I do in my legs and ankles. On my left hand, the little, ring, and middle fingers are always numb. On my forefinger, and thumb they are only numb on the tip. It can get interesting when I sow. I have been known top sow my finger to the material from time to time. I know there has to be more people than you and I the suffer with this. Have you ever been told what will eventually happen to us as time goes by? I have never been able to get a straights answer on that from any doctor. If you have the info on this would you let me know? Well, it is good to hear from you. I keep you in my prayers. I know what you are going through. And that you for letting me sound off on the way I feel. Anytime you feel you need to vent, just drop me a ling. I understand.

Gloria

sallyjanexx <sallyjaneh@...> wrote:

Hi Gloria - thank you for your reply and sorry it's taken me so long to post again. I hope you understand what I mean when I say it was a relief to read you have the same symptoms - not that I would wish this on anyone! I am sorry that all your treatment didn't work. I can't imagine going through that for it to make no difference! My neurologist said they wouldn't even try unless it was affecting my arm so badly, I could hardly use it. Had my 2nd appt with her last week and to say it was a waste of time is an understatement. From my scans, they couldn't see too much wrong and the word 'pshycosamtic' (bad spelling) was mentioned a few times!! She told me she would prescribe some medication to my GP and that I should make an appt for them 'if' I felt I needed them - I was astounded and wondered why she thought I was sitting there in front of her - certainly not for the love of hospitals (laughing). Her parting words were that this was not a life-long ailment. In time (over the next 12-18 months), my 'problem' would repair itself!! Now why is it that I don't believe that ..? I was speechless at her prognosis. Oh well, enough harping on about that appt as it changes nothing does it. You mentioned we share the same symptoms, but I just wanted to ask again if you suffer from 'blotchiness' on your arms/legs? I mentioned before, this happens to me (pretty much most of the time now) when my neck is paining or uncomfortable - it's almost like a nerve being pinched just below back of neck which then leads to pins and needles and then the 'blotchiness'. Similarly, if I put my head backwards for any reason, I get a shooting pain in the middle of my chest (so no plane spotting for me then lol). Also noticed 'crunching' just off centre in same area of back/neck when I walk. And finally ... (honestly!), I had a Bell's Palsy (right side) 3 yrs ago which unfortunately has never gone completely. The neurologist was more interested in this than the spinal problem, and I wonder if there is a general weakness that could tie these in together - does anyone know? Does anyone else want to join us here - would love to hear from you. Bye for now and take care all. Sally --- In Cervical_Spondylosis@yahoogroups.com, "Gloria" <g.tellier@s...> wrote: > > Hi Sally, > Thank you for being the first to get messages started. I have been > told I have a cervical myelopathy some 10 years ago. It is funny > because we have the same symptoms and there really not much that can > be done to help. I have had fusion done to c6 and c7, which helped > some for a little while, I did the big time pain killers for about a > year. It didn't help, but I didn't care either. I also had two nerve > blocks. The first one worked about a couple of weeks and the other > worked for a day. My sister was just told she has the same thing and > she is in pain managment, and so they are trying an epadural. So far > she is still having trouble. So where do we go from here? We are all > in the same boat, and we have heard it all. I have found that the only > thing that eases the pain for a while is moist hot packs, muscel > relaxers, and a lot of prayer. God help us!!! Anyway, thanks Sally for > being willing to share what is happening to you. At least it is good > to know that others suffer along with you. Have you been able to work? > I am on disability, and can only handle about 8 hours a week as a > church secretary.I guess it is better than nothing. I am very glad to > meet you. Please keep in touch. Gloria >

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#6 From: GLORIA TELLIER <g.tellier@...>
Date: Fri Oct 14, 2005 6:39 pm
Subject: Re: Re: Cervical Myelopathy tellier54
Offline
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Hi Sally, I know all too well what you mean. I've never been so sick of something in my life. The doctors don't see to understand, and people in general don't understand. People look at me as if I am just making things up. I may look fine outwardly, but what good would it do to show what pain you are really in all the time. No one would come near you. For instance I have a lot of trouble turning my head, and I can't look up at all. When I try I end up in such pain that my shoulders just raise up on their own, and then the pain will rush up my head and down my arms, and then I am told just put some heat on it and take some aspirin and it will magically disappear. It has never worked for me. I get laid out sometimes for up to three days. I honestly don't think anyone is doing studies on this, because like you all of the doctors are more interested in fixing a hang nail rather that identify will a spinal cord disease. They keep saying the is no cure, but where are they to help you live with it. I really wish all these so called specialists could live the way we do until they found something to do for it, and then see how fast there would be progress in doing something about our symptoms. Anyway, I don't get the blotches on my arms, but I do in my legs and ankles. On my left hand, the little, ring, and middle fingers are always numb. On my forefinger, and thumb they are only numb on the tip. It can get interesting when I sow. I have been known top sow my finger to the material from time to time. I know there has to be more people than you and I the suffer with this. Have you ever been told what will eventually happen to us as time goes by? I have never been able to get a straights answer on that from any doctor. If you have the info on this would you let me know? Well, it is good to hear from you. I keep you in my prayers. I know what you are going through. And that you for letting me sound off on the way I feel. Anytime you feel you need to vent, just drop me a ling. I understand.

Gloria

sallyjanexx <sallyjaneh@...> wrote:

Hi Gloria - thank you for your reply and sorry it's taken me so long to post again. I hope you understand what I mean when I say it was a relief to read you have the same symptoms - not that I would wish this on anyone! I am sorry that all your treatment didn't work. I can't imagine going through that for it to make no difference! My neurologist said they wouldn't even try unless it was affecting my arm so badly, I could hardly use it. Had my 2nd appt with her last week and to say it was a waste of time is an understatement. From my scans, they couldn't see too much wrong and the word 'pshycosamtic' (bad spelling) was mentioned a few times!! She told me she would prescribe some medication to my GP and that I should make an appt for them 'if' I felt I needed them - I was astounded and wondered why she thought I was sitting there in front of her - certainly not for the love of hospitals (laughing). Her parting words were that this was not a life-long ailment. In time (over the next 12-18 months), my 'problem' would repair itself!! Now why is it that I don't believe that ..? I was speechless at her prognosis. Oh well, enough harping on about that appt as it changes nothing does it. You mentioned we share the same symptoms, but I just wanted to ask again if you suffer from 'blotchiness' on your arms/legs? I mentioned before, this happens to me (pretty much most of the time now) when my neck is paining or uncomfortable - it's almost like a nerve being pinched just below back of neck which then leads to pins and needles and then the 'blotchiness'. Similarly, if I put my head backwards for any reason, I get a shooting pain in the middle of my chest (so no plane spotting for me then lol). Also noticed 'crunching' just off centre in same area of back/neck when I walk. And finally ... (honestly!), I had a Bell's Palsy (right side) 3 yrs ago which unfortunately has never gone completely. The neurologist was more interested in this than the spinal problem, and I wonder if there is a general weakness that could tie these in together - does anyone know? Does anyone else want to join us here - would love to hear from you. Bye for now and take care all. Sally --- In Cervical_Spondylosis@yahoogroups.com, "Gloria" <g.tellier@s...> wrote: > > Hi Sally, > Thank you for being the first to get messages started. I have been > told I have a cervical myelopathy some 10 years ago. It is funny > because we have the same symptoms and there really not much that can > be done to help. I have had fusion done to c6 and c7, which helped > some for a little while, I did the big time pain killers for about a > year. It didn't help, but I didn't care either. I also had two nerve > blocks. The first one worked about a couple of weeks and the other > worked for a day. My sister was just told she has the same thing and > she is in pain managment, and so they are trying an epadural. So far > she is still having trouble. So where do we go from here? We are all > in the same boat, and we have heard it all. I have found that the only > thing that eases the pain for a while is moist hot packs, muscel > relaxers, and a lot of prayer. God help us!!! Anyway, thanks Sally for > being willing to share what is happening to you. At least it is good > to know that others suffer along with you. Have you been able to work? > I am on disability, and can only handle about 8 hours a week as a > church secretary.I guess it is better than nothing. I am very glad to > meet you. Please keep in touch. Gloria >

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#5 From: "Thomas Houvenagle" <houvenaglecbiowa@...>
Date: Fri Oct 14, 2005 6:34 pm
Subject: Recently diagnosed poohbearia
Offline
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Hi everyone,

I am new here and was just diagnosed with cervical spondylosis yesterday. I am 47 with mild cervical spondylosis. I have multiple levels of degeneration going on as well as some stenosis. The week of Sept. 21 I was hospitalized with extreme pain and stroke symptoms. No new stroke and an MRI of the head showed nothing new had occured. They did a cervical epidural and it worked for about a week and a half. My pt guy said that since the epidural worked I probably have some degeneration going on in my neck. So I began to search the internet. I ran across stuff on this condition and showed it to my husband, pt guy and doctor. sounded to them this might be what is going on. So the doc ordered the x-rays for two days ago and ta-dah ....I was right.

I am getting another injection on Wed and see a neuro surgeon on Monday.

Hoping to learn some things here.

Sincerely a child of the King,
Paula

For God so loved the world that he gave his one and only son, that who so ever believes in Him should not perish but have everlasting life.
John 3:16

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#4 From: "sallyjanexx" <sallyjaneh@...>
Date: Thu Oct 13, 2005 6:02 am
Subject: Re: Cervical Myelopathy sallyjanexx
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Hi Gloria - thank you for your reply and sorry it's taken me so long
to post again.  I hope you understand what I mean when I say it was a
relief to read you have the same symptoms - not that I would wish
this on anyone!  I am sorry that all your treatment didn't work.  I
can't imagine going through that for it to make no difference!  My
neurologist said they wouldn't even try unless it was affecting my
arm so badly, I could hardly use it.

Had my 2nd appt with her last week and to say it was a waste of time
is an understatement.  From my scans, they couldn't see too much
wrong and the word 'pshycosamtic' (bad spelling) was mentioned a few
times!!  She told me she would prescribe some medication to my GP and
that I should make an appt for them 'if' I felt I needed them - I was
astounded and wondered why she thought I was sitting there in front
of her - certainly not for the love of hospitals (laughing).  Her
parting words were that this was not a life-long ailment.  In time
(over the next 12-18 months), my 'problem' would repair itself!!  Now
why is it that I don't believe that ..?  I was speechless at her
prognosis.  Oh well, enough harping on about that appt as it changes
nothing does it.

You mentioned we share the same symptoms, but I just wanted to ask
again if you suffer from 'blotchiness' on your arms/legs?  I
mentioned before, this happens to me (pretty much most of the time
now) when my neck is paining or uncomfortable - it's almost like a
nerve being pinched just below back of neck which then leads to pins
and needles and then the 'blotchiness'.  Similarly, if I put my head
backwards for any reason, I get a shooting pain in the middle of my
chest (so no plane spotting for me then lol).  Also
noticed 'crunching' just off centre in same area of back/neck when I
walk.

And finally ... (honestly!), I had a Bell's Palsy (right side) 3 yrs
ago which unfortunately has never gone completely. The neurologist
was more interested in this than the spinal problem, and I wonder if
there is a general weakness that could tie these in together - does
anyone know?

Does anyone else want to join us here - would love to hear from you.

Bye for now and take care all.
Sally

--- In Cervical_Spondylosis@yahoogroups.com, "Gloria"
<g.tellier@s...> wrote:
>
> Hi Sally,
> Thank you for being the first to get messages started. I have been
> told I have a cervical myelopathy some 10 years ago. It is funny
> because we have the same symptoms and there really not much that
can
> be done to help. I have had fusion done to c6 and c7, which helped
> some for a little while, I did the big time pain killers for about
a
> year. It didn't help, but I didn't care either. I also had two
nerve
> blocks. The first one worked about a couple of weeks and the other
> worked for a day. My sister was just told she has the same thing
and
> she is in pain managment, and so they are trying an epadural. So
far
> she is still having trouble. So where do we go from here? We are
all
> in the same boat, and we have heard it all. I have found that the
only
> thing that eases the pain for a while is moist hot packs, muscel
> relaxers, and a lot of prayer. God help us!!! Anyway, thanks Sally
for
> being willing to share what is happening to you. At least it is
good
> to know that others suffer along with you. Have you been able to
work?
> I am on disability, and can only handle about 8 hours a week as a
> church secretary.I guess it is better than nothing. I am very glad
to
> meet you. Please keep in touch. Gloria
>

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#3 From: "Gloria" <g.tellier@...>
Date: Sun Sep 4, 2005 5:23 pm
Subject: Cervical Myelopathy tellier54
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Hi Sally,
Thank you for being the first to get messages started. I have been
told I have a cervical myelopathy some 10 years ago. It is funny
because we have the same symptoms and there really not much that can
be done to help. I have had fusion done to c6 and c7, which helped
some for a little while, I did the big time pain killers for about a
year. It didn't help, but I didn't care either. I also had two nerve
blocks. The first one worked about a couple of weeks and the other
worked for a day. My sister was just told she has the same thing and
she is in pain managment, and so they are trying an epadural. So far
she is still having trouble. So where do we go from here? We are all
in the same boat, and we have heard it all. I have found that the only
thing that eases the pain for a while is moist hot packs, muscel
relaxers, and a lot of prayer. God help us!!! Anyway, thanks Sally for
being willing to share what is happening to you. At least it is good
to know that others suffer along with you. Have you been able to work?
I am on disability, and can only handle about 8 hours a week as a
church secretary.I guess it is better than nothing. I am very glad to
meet you. Please keep in touch. Gloria

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#2 From: "sallyjanexx" <sallyjaneh@...>
Date: Sat Sep 3, 2005 7:45 am
Subject: Interested to know your symptoms? sallyjanexx
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Hello there,

I've just recently joined this group and was hoping to communicate
with others who suffer with cervical spondylosis, but I see there are
no messages as yet, so I thought I might try being the first to leave
a message.

I am 42 and a mum to Abi who is 4.  I have recently been diagnosed
with cervial spondylosis by a doctor in Egypt (my husband works there
and I visit) because I have been struggling to get a diagnosis for my
symptoms in the UK - so far it has taken 2 yrs.  I am currently
awaiting my second appt (in UK) with a registrar neurologist whom I
was referred to by my GP as he thought my symptoms may be due to MS.
Luckily an MRI scan of my head and thorasic spine has ruled this out
and, as I say, am left with the diagnosis of cervical spondylosis.
My GP is treating this very lightly, saying this is a very common
condition and basically the only thing I can do is keep taking the
brufen!  Therefore, I am beside myself that I will just have to 'put-
up' with these awful symptoms.

My now daily symptoms are:

* Pain in the neck (which I probably am to my GP!) and difficulty
turning my head completely to side

* Pain, tingling and numbness in my left arm down to my middle finger

* Tingling and numbness in my left leg and sometimes right hand

* Headaches sometimes at back of head, sometimes running in a middle
channel from back to front of head.

* Sometimes difficulty swallowing (which scares me completely)

* Blotchiness in my arms and legs that comes and goes with the pain
in the neck.

* Ringing in my left ear

* Pain radiating on left side (horizontally about 6" under arm) with
all I can describe as sudden electric shocks in that region

* 'Butterfly' like sensations down my left side

* Sudden urgencies to visit bathroom!

Sorry to go on, but I think that's it!

Understandably I think due to the symptoms, it crossed my mind that
this may be a heart problem and until I was reassured it wasn't, I
was suffering severe panic attacks - probably thinking I was going to
keel over at any moment!  Unfortunately, I still have the occasional
panic attack when the symptoms get on top of me.  I feel very foolish
when this happens, but sometimes, I just can't stop them.

Well, I think I have gone on for long enough and thank you if you
have read this far!  I would be grateful to hear from any of you -
especially if you have got further than me with successful treatment
in helping to eleviate your symptoms.  I feel it will also help just
to 'talk' to others in the same situation - I don't think anyone can
understand how this makes you feel unless they are suffering with
this as well.

Sally

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#1 From: SALLY HARRINGTON <sallyjaneh@...>
Date: Thu Aug 18, 2005 5:45 am
Subject: Cervical Spondylosis sallyjanexx
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Sending confirmation email to join the group.

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