Hi Gloria - thank you for your reply and sorry it's taken me so long
to post again. I hope you understand what I mean when I say it was a
relief to read you have the same symptoms - not that I would wish
this on anyone! I am sorry that all your treatment didn't work. I
can't imagine going through that for it to make no difference! My
neurologist said they wouldn't even try unless it was affecting my
arm so badly, I could hardly use it.
Had my 2nd appt with her last week and to say it was a waste of time
is an understatement. From my scans, they couldn't see too much
wrong and the word 'pshycosamtic' (bad spelling) was mentioned a few
times!! She told me she would prescribe some medication to my GP and
that I should make an appt for them 'if' I felt I needed them - I was
astounded and wondered why she thought I was sitting there in front
of her - certainly not for the love of hospitals (laughing). Her
parting words were that this was not a life-long ailment. In time
(over the next 12-18 months), my 'problem' would repair itself!! Now
why is it that I don't believe that ..? I was speechless at her
prognosis. Oh well, enough harping on about that appt as it changes
nothing does it.
You mentioned we share the same symptoms, but I just wanted to ask
again if you suffer from 'blotchiness' on your arms/legs? I
mentioned before, this happens to me (pretty much most of the time
now) when my neck is paining or uncomfortable - it's almost like a
nerve being pinched just below back of neck which then leads to pins
and needles and then the 'blotchiness'. Similarly, if I put my head
backwards for any reason, I get a shooting pain in the middle of my
chest (so no plane spotting for me then lol). Also
noticed 'crunching' just off centre in same area of back/neck when I
walk.
And finally ... (honestly!), I had a Bell's Palsy (right side) 3 yrs
ago which unfortunately has never gone completely. The neurologist
was more interested in this than the spinal problem, and I wonder if
there is a general weakness that could tie these in together - does
anyone know?
Does anyone else want to join us here - would love to hear from you.
Bye for now and take care all.
Sally
--- In Cervical_Spondylosis@yahoogroups.com, "Gloria"
<g.tellier@s...> wrote:
>
> Hi Sally,
> Thank you for being the first to get messages started. I have been
> told I have a cervical myelopathy some 10 years ago. It is funny
> because we have the same symptoms and there really not much that
can
> be done to help. I have had fusion done to c6 and c7, which helped
> some for a little while, I did the big time pain killers for about
a
> year. It didn't help, but I didn't care either. I also had two
nerve
> blocks. The first one worked about a couple of weeks and the other
> worked for a day. My sister was just told she has the same thing
and
> she is in pain managment, and so they are trying an epadural. So
far
> she is still having trouble. So where do we go from here? We are
all
> in the same boat, and we have heard it all. I have found that the
only
> thing that eases the pain for a while is moist hot packs, muscel
> relaxers, and a lot of prayer. God help us!!! Anyway, thanks Sally
for
> being willing to share what is happening to you. At least it is
good
> to know that others suffer along with you. Have you been able to
work?
> I am on disability, and can only handle about 8 hours a week as a
> church secretary.I guess it is better than nothing. I am very glad
to
> meet you. Please keep in touch. Gloria
>